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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
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Notes
Data Structures with shared data
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ATP Brain Donor Summary

atp_donor_summary

01

Summary information on Autism Tissue Program (ATP) brain tissue donors. Contains demographic and brain quantitative data elements. Accessible to ATP-approved researchers through NDAR and the ATP Portal atpportal.org

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age_at_death_months
src_subject_idString20RequiredSubject ID how it's defined in lab/project
tissue_qualityString4,000RequiredDescriptive information on tissue quality.
brain_weightFloatRequiredMass of brain in grams
doc_educational_existsString2RequiredFlag - availability of subject educational documentsdoc_educational
doc_neuropath_existsString2RequiredFlat - availability of neuropath documentdoc_neuropath
handednessString29Requiredhandedness
R;L;B;999
R = Right; L = Left; B = Both
doc_ot_pt_existsString2RequiredFlag - availability occupational and physical therapy documentsdoc_ot_pt
primary_cause_deathString200RequiredPrimary cause of death
brain_rinFloatRequiredRNA integrity number
doc_adir_summary_existsString2RequiredFlagdoc_adir_summary
left_fixationString200RequiredFixation method of left hemisphere
secondary_cause_deathString200RequiredSecondary cause of death
doc_eeg_existsString2RequiredFlag - availability of EEG reportdoc_eeg
doc_data_existsString2RequiredFlag - subject data document available
Y;N
doc_data
doc_psych_existsString2RequiredFlag - availability of psychological reportdoc_psych
doc_autopsy_existsString2RequiredFlag - availability of autopsy documentdoc_autopsy
doc_genetic_existsString2RequiredFlag - availability of genetic reportdoc_genetic
doc_neurology_existsString2RequiredFlag - availability of neurology reportdoc_neurology
post_mortem_intervalFloatRequiredTime interval from time of death until processing of the tissue by the brain bank. The value is in hours.
right_fixationString200RequiredFixation method for right hemisphere
doc_mri_existsString2RequiredFlag - availability of of MRIdoc_mri
doc_vision_existsString2RequiredFlag - availability of vision reportsdoc_vision
doc_aud_speech_existsString2RequiredFlag - availability of audiology or speech documentsdoc_aud_speech
commentsString4,000RequiredComments about assessment
doc_medical_reports_existsString2RequiredFlag - availability of medical reportsdoc_medical_reports
primary_diagnosisString200RequiredPrimary diagnosis of subject
subject_controlString1RequiredControl flag for subject
ethnicityString30RequiredEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
date_updatedDateRequiredDate record updatednull
genderString20RequiredSex of the subjectM;FM = Male; F = Female
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: atp_donor_summary01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.