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Internet Support Group

150 Shared Subjects

N/A
Clinical Assessments
Network
07/17/2017
isg01
07/20/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name tpid
session_id String 20 Recommended session ID/screening ID
isg_expected_discussions Integer Recommended Expected to find: Discussions with other participants 0;1 0=No; 1=Yes expected_discussions
isg_expected_advice Integer Recommended Expected to find: Advice from experts/ physicians 0;1 0=No; 1=Yes expected_advice
isg_expected_resource Integer Recommended Expected to find: Access to more resources 0;1 0=No; 1=Yes expected_resource
isg_expected_research Integer Recommended Expected to find: Information about research 0;1 0=No; 1=Yes expected_research
isg_expected_tips Integer Recommended Expected to find: Self-management tips for mood and anxiety 0;1 0=No; 1=Yes expected_tips
isg_other_spec Integer Recommended Expected to find: Other; specify 0;1 0=No; 1=Yes other_spec
isg_no_expectations Integer Recommended Expected to find: I had no expectations 0;1 0=No; 1=Yes no_expectations
isg_helpful_following Integer Recommended Find helpful: Following discussion boards 0;1 0=No; 1=Yes helpful_following
isg_helpful_responses Integer Recommended Find helpful: Responses to my own posts/ comments 0;1 0=No; 1=Yes helpful_responses
isg_helpful_resource Integer Recommended Find helpful: Links to resources 0;1 0=No; 1=Yes helpful_resource
isg_helpful_advice Integer Recommended Find helpful: Expert Advice 0;1 0=No; 1=Yes helpful_advice
isg_helpful_news Integer Recommended Find helpful: News updates 0;1 0=No; 1=Yes helpful_news
isg_helpful_email Integer Recommended Find helpful: Weekly emails 0;1 0=No; 1=Yes helpful_email
isg_helpful_multimedia Integer Recommended Find helpful: Multimedia and videos 0;1 0=No; 1=Yes helpful_multimedia
isg_helpful_spec Integer Recommended Find helpful: Other; specify 0;1 0=No; 1=Yes helpful_spec
isg_helpful_none Integer Recommended Find helpful: None 0;1 0=No; 1=Yes helpful_none
isg_feel_connected Integer Recommended Log on to: Feel connected with people who can understand my condition 0;1 0=No; 1=Yes feel_connected
isg_seek_advice Integer Recommended Log on to: Seek advice 0;1 0=No; 1=Yes seek_advice
isg_help_others Integer Recommended Log on to: Help others 0;1 0=No; 1=Yes help_others
isg_look_responses Integer Recommended Log on to: Look for responses on my posts/ comment 0;1 0=No; 1=Yes look_responses
isg_check_email Integer Recommended Log on to: Check out content of emails Chris sent 0;1 0=No; 1=Yes check_email
isg_get_recognition Integer Recommended Log on to: Get recognition for participation 0;1 0=No; 1=Yes get_recognition
isg_win_contest Integer Recommended Log on to: Win a contest 0;1 0=No; 1=Yes win_contest
isg_log_spec Integer Recommended Log on to: Other; Specify 0;1 0=No; 1=Yes log_spec
isg_interactions Integer Recommended Did you think that you could discuss certain issues more openly than in face-to-face interactions? 1::5 1= Yes, I completely agree that I could discuss my problems more openly; 2= Yes, I somewhat agree that I could discuss my problems more openly; 3= I think it made no difference that it was anonymous; 4= No, I somewhat disagree that I could discuss my problems more openly; 5= No, I definitely disagree that I could discuss my problems more openly interactions
isg_mood_symptoms Integer Recommended Did you think that logging in/engaging in the ISG was helpful in managing your mood symptoms? 1::6 1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my mood symptoms; 6= I did not have any mood symptoms mood_symptoms
isg_anxiety_symptoms Integer Recommended Did you think that logging in/ engaging in the ISG was helpful in managing your anxiety symptoms? 1::6 1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my anxiety symptoms; 6= I did not have any anxiety symptoms anxiety_symptoms
isg_logins Integer Recommended Number of internet support group logins
isg_posts Integer Recommended Number of internet support group posts
isg_comments Integer Recommended Number of internet support group comments
version_form String 121 Recommended Form used/assessment name formid
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.