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NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

DSM-IV Checklist (Early Steps; SOFAS)

2,626 Shared Subjects

SOFAS (Social and Occupational Functioning Assessment Scale)
Clinical Assessments
Diagnostic
08/22/2012
dsm_iv_es01
03/16/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subjectid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY DSMDATE, chrsofas_interview_date, chrsofas_interview_date_fu, datacollecteddate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
dsmvers String 10 Recommended version/name of assessment
Query dsmsoc1 Integer Recommended a. Impaired nonverbals 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value behavior_impairment
Query dsmsoc2 Integer Recommended b. Lack of peer relations 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value develop_peer_relate
Query dsmsoc3 Integer Recommended c. Lack of shared enjoyment 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value lack_seek_enjoyment
Query dsmsoc4 Integer Recommended d. Lack of social/emot reciprocity 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value lack_social_reciprocity
Query dsmcom1 Integer Recommended a. Delay in lang, no compensation 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value develop_delay
Query dsmcom2 Integer Recommended b. Impaired conversation 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value speech_delay
Query dsmcom3 Integer Recommended c. Sterotyped, repetitive lang 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value repetitive_lang_idiosyncratic
Query dsmcom4 Integer Recommended d. Impaired pretend play 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value lack_spontaneous_play
Query dsmrep1 Integer Recommended a. Preccupation, restricted interest 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value preoccup_stereotype_pattern
Query dsmrep2 Integer Recommended b. Inflexible routines/rituals 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value inflexible_routines
Query dsmrep3 Integer Recommended c. Stereotyped motor movts 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value motor_manner_repetitive
Query dsmrep4 Integer Recommended d. Preoccupation w/ parts of objs 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value preoccup_part_object
Query dsmasd Integer Recommended Meets criteria for Autistic Disorder 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value autism
Query dsmpdd Integer Recommended Meets criteria for PDD NOS 0::2;-1;-9 0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value dx_pdd_nos
Query dsmcon Integer Recommended Confidence rating 1::3; -1;-9 1 = Not confident; 2 = Somewhat confident; 3 = Very confident; -1 = Not applicable; -9 = Missing value
Query comments String 4,000 Recommended Comments about assessment DSMCOMM
Query dsmsoctot Float Recommended DSM Social total score
Query dsmcomtot Float Recommended DSM Communication total score
Query dsmreptot Float Recommended DSM Repetitive total score
Query dsmtot Float Recommended DSM total score
Query dsm_si Integer Recommended Social Impairment 0::2 0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
Query dsm_ci Integer Recommended Communication Impairment 0::2 0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
Query dsm_bi Integer Recommended Behaviors Impairment 0::2 0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
Query sofas_currscore Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) current score 0::100 0-10=Persistent inability to maintain minimal personal hygiene, unable to function without harming self or others without considerable external support; 11-20=Occasionally fails to maintain minimal personal hygiene. Unable to function independently; 21-30=Inability to function in almost all areas; 31-40=Major impairment in several areas such as work, school, or housework if a housewife/househusband, family relationships; 41-50=Serious impairment with work, school, or housework if a housewife; 51-60=Moderate difficulty in social, work, or school functioning; 61-70=Some difficulty in social, occupational, or school functioning; 71-80=No more than slight impairment in social, work, or school functioning; 81-90=Good functioning in all areas, occupationally and socially effective; 91-100=Superior functioning in a wide range of activities sofas_01, sofas_1, sofas_rating
Query sofas_highscore Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) Highest score in past year 0::100 sofas_02, sofas_3
Query sofas_lowscore Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) Lowest score in past year 0::100 sofas_03, sofas_2
Query dataquality Integer Recommended Data quality 0::5 0=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
Query elig_inclusion_check Integer Recommended Checks for a pass/fail on Elig for Inclusion 0::3 0=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
Query visit String 60 Recommended Visit name visitlabel
visit_name String 20 Recommended session ID/screening ID visitnumber
Query subjecttype String 20 Recommended Subject Type Control;Prodromal; Enhanced; Non-Enhanced
Query sofas_4 Integer Recommended Global Role Functioning -Role Assessed 1::10 1=School, 2=Work, 3=Homemaker, 4=Part-time School + Part-time Work
Query sofas_5 Integer Recommended Global Role Functioning Score -Current 1::10 1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
Query sofas_6 Integer Recommended Global Role Functioning Score - Lowest Past Year 1::10 1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
Query sofas_7 Integer Recommended Global Role Functioning Score -Highest Past Year 1::10 1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
Query visit_num Integer Recommended Visit number 1::3 1=Baseline, 2=12 Month, 3=24 Month
Query sofas_8 Integer Recommended Social Role Functioning: Current 1::10 1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
Query sofas_9 Integer Recommended Social Role Functioning: Lowest Past Year 1::10 1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
Query sofas_10 Integer Recommended Social Role Functioning: Highest Past Year 1::10 1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
socfun Integer Recommended social functioning 1::5 1= Slight; 2= Some; 3= Moderate; 4= Major; 5= Severe
ocfun Integer Recommended occupational functioning 1::5 1= Slight; 2= Some; 3= Moderate; 4= Major; 5= Severe
sofas Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) score 1::10 10 = Superior functioning in a wide range of activities; 9 = Good functioning in all areas, occupationally and socially effective; 8 = No more than a slight impairment in social, occupational or school functioning (e.g., infrequent interpersonal conflict, temporarily falling behind in schoolwork); 7 = Some difficulty in social, occupational, or school functioning but generally functioning well and has some meaningful, interpersonal relationships; 6 = Moderate difficulty in social, occupational, or school functioning (e.g., few friends, conflicts with peers or co-workers); 5 = Serious impairment in social, occupational, or school functioning (e.g., no friends, unable to keep a job); 4 = Major impairment in several areas such as work or school, family relations (e.g., depressed man avoids friends, neglects family and is unable to work; child frequently beats up younger children, is defiant at home and failing at school); 3 = Inability to function in almost all areas (e.g., stays in bed all day; no job, home, or friends); 2 = Occasionally fails to maintain minimal personal hygiene; unable to function independently; 1 = Persistent inability to maintain minimal personal hygiene. Unable to function without harming self or others or without considerable external support (e.g., nursing care and supervision); 0 = Inadequate information
ampscz_missing_spec Integer Recommended Please specify the reason for missing data on this form 0::6 0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit chrsofas_missing_spec, chrsofas_missing_spec_fu
ampscz_entry_date Date Recommended Date of Data Entry MM/DD/YYYY chrsofas_entry_date, chrsofas_entry_date_fu
chrsofas_session_type Integer Recommended SOFAS session type 0;1;-900;-300 0 = Screening; 1 = Followup; -900 = Missing; -300 = N/A
chrsofas_premorbid Integer Recommended Premorbid SOFAS (Social and Occupational Functioning Assessment Scale) Score
chrsofas_premorbdate Date Recommended Date of First Change from Premorbid Status MM/DD/YYYY
chrsofas_currscore12mo Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) Score 12 Months ago chrsofas_currscore12mo_fu
chrsofas_currscore Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) Current Score in the Past Month 0::100; -900; -300 -900 = Missing; -300 = N/A chrsofas_currscore_fu
chrsofas_lowscore Integer Recommended SOFAS (Social and Occupational Functioning Assessment Scale) Lowest Score in Past Year 0::100; -900; -300 -900 = Missing; -300 = N/A
ampscz_missing Integer Recommended Please click if this form is missing all of its data 0;1 0 = Not clicked; 1 = Clicked chrsofas_missing, chrsofas_missing_fu
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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