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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Acculturation

acc

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Siteasite
clinicidIntegerRecommendedClinic IDaclinic
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitwave
days_baselineIntegerRecommendedDays since baselinelof
ustime_codedIntegerRecommendedAbout how long have you been in the United States? PX011201_Years_living_in_US_Coded0;95;97;990=less than 1 year; 95= 95+ years; 97=Refused; 99=Don't Knowacc2_yrs
acc3_ageIntegerRecommendedAge when immigrated to United States
acc4IntegerRecommendedImagine a ladder with ten rungs on it. On the top rung of this ladder are the people who are best off-those who have the most money, the most education, and the most respected jobs. On the bottom rung of the ladder are people who are the worst off-those that have the least money, least education, and the least respected jobs, or no job at all. The higher up you are on the ladder, the closer you are to the people at the very top; the lower you are, the closer you are to the people at the very bottom. Where (or on what rung) of this ten-rung ladder would you place yourself?0::10
acc5IntegerRecommendedImagine the same ten-rung ladder. But now, the ladder represents where people stand in their communities. People define 'community' in different ways; please define it in whatever way is most meaningful to you. The top of the ladder is where people with the highest standing in their community would be. At the bottom of the ladder are people who have the lowest standing in their community. Where on this ten-rung ladder do you think you stand at this time of your life, relative to other people in your community?0::10
acc6IntegerRecommendedHow often do people treat you unfairly because of your race or ethnicity?
ustimeIntegerRecommendedHow long you lived in US, years
accult_select_languageIntegerRecommendedTest given in Spanish?0;10=No; 1=Yes
speak_engIntegerRecommendedHow well do you speak English0::3; 8; 90 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refusedaccult_q1_p, accult_q1_y
accult_q2_pIntegerRecommendedBesides English, do you speak or understand another language or dialect?accult_q2_y
oth_langString150RecommendedWhat other languages are you fluent in?accult_q3_p, accult_q3_y
friend_speakIntegerRecommendedWhat language do you speak with most of your friends0::4; 8; 90 = Spanish all the time; 1 = Spanish most of the time; 2 = Spanish and English equally; 3 = English most of the time; 4 = English all the time; 8 = Don¿t know; 9 = Refusedaccult_q4_p, accult_q4_y
family_speakIntegerRecommendedWhat language do you speak with most of your family0::4; 8; 90 = Spanish all the time; 1 = Spanish most of the time; 2 = Spanish and English equally; 3 = English most of the time; 4 = English all the time; 8 = Don¿t know; 9 = Refusedaccult_q5_p, accult_q5_y
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: acc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.