Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Activities of Daily Living

acdayliv

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectcatieid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visit
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
adl01IntegerRecommendedRegarding eating, which best describes (S) usual performance?0;1;2;30 = Usually or always was fed by someone else; 1 = Used fingers to eat; 2 = Used a fork or spoon, but not a knife, to eat; 3 = Ate without physical help, and used a knife
adl02IntegerRecommendedRegarding walking (or getting around in a wheelchair), which best describes his/her usual performance?0;1;2;30 = Required physical help to walk or transfer; 1 = Transferred from bed to chair without help; 2 = Mobile across a room without physica help; 3 = Mobile outside of home without physical help
adl03IntegerRecommendedRegarding bowel and bladder function0;1;2;30 = Needed physical help, and was usually incontinent; 1 = Needed physical help, and was usually continent; 2 = Needed supervision, but no physical help; 3 = Did everything necessary without supervision or help
adl04IntegerRecommendedRegarding bathing, which best describes his/her usual performance?0;1;2;30 = Needed to be bathed completely; 1 = Needed minor physical help (e.g., washing hair) to bathe completely; 2 = No physical help, but needed supervision/reminders to bathe completely; 3 = Bathed without reminding or physical help
adl05IntegerRecommendedRegarding grooming, which best describes his/her optimal performance0;1;2;30 = Needed help for grooming of hair, face, hands, and fingernails; 1 = Kept face and hands clean without physical help; 2 = Brushed or combed hair without physical help; 3 = Cleaned and cut fingernails without physical help
adl06aIntegerRecommendedRegarding dressing, did subject select his/her first set of clothes for the day?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl06aaIntegerRecommendedWhich best describes his/her usual performance?1;2;31 = With physical help; 2 = With supervision; 3 = Without supervision or help
adl06bIntegerRecommendedRegarding physically getting dressed, which best describes his/her usual performance?0::40 = Always need help, regardless of the type of clothing; 1 = Dressed without help if clothes needed no fastening or buttoning; 2 = Needed physical help only for buttons, clasps, or shoelaces; 3 = Dressed completely with supervision, but without physical help; 4 = Dressed completely without supervision or physical help
adl07IntegerRecommendedDid subject use a telephone?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl07aIntegerRecommendedWhich best describes his/her highest level of performance?1;2;3;4;51 = Did not answer the phone, but spoke when put on the line; 2 = Answered the phone; did not make calls; 3 = Made calls only to well-known numbers, by using directory or list; 4 = Made calls only to well-known numbers, without referring to a directory or list; 5 = Made calls after looking in white or yellow pages, or by dialing directory assisstancetelephonelist
adl08IntegerRecommendedDid subject watch television?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl08aIntegerRecommendedDid subject usually select or ask for different programs or his/her favorite show?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl08bIntegerRecommendedDid subject usually talk about the content of a program while watching it?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl08cIntegerRecommendedDid subject talk about the content of a program within a day (24 hours) after watching it?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl09IntegerRecommendedDid subject ever appear to pay attention to conversation or small talk for at least 5 minutes?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl09aIntegerRecommendedWhich best describes his/her usual degree of participation?1;2;31 = Rarely or never spoke; 2 = Usually said things that were not related to the topic; 3 = Usually said things that were related to the topice
adl10IntegerRecommendedDid subject clear the dishes from the table after a meal or snack?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl10aIntegerRecommendedWhich best describes how he/she usually performed?1;2;31 = With physical help; 2 = With supervision; 3 = Without supervision or help
adl11IntegerRecommended0;1;90 = No; 1 = Yes; 9 = Don't Know
adl11aIntegerRecommendedWhich best describes how he/she usually performed?1;2;31 = With physical help; 2 = With supervision; 3 = Without supervision or help
adl12IntegerRecommendedDid subject obtain a hot or cold beverage for him/herself?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl12aIntegerRecommendedWhich best describes his/her highest level of performance?1;2;31 = Obtained a cold beverage, usually without physical help; 2 = Made a hot beverage, usually if someone else heated the water; 3 = Made a hot beverage, usually without physical help
adl13IntegerRecommendedDid subject make him/herself a meal or snack at home?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl13aIntegerRecommendedWhich best describes his/her highest level of food preperation?1;2;3;41 = Obtained food on his/her own, without mixing or cooking it; 2 = Mixed or combined food items for a meal or snack, without cooking or microwaving; 3 = Cooked or microwaved food, with extensive help; 4 = Cooked or microwaved food, with little or no help
adl14IntegerRecommendedDid the subject dispose of garbage or litter in an appropriate place or container at home?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl14aIntegerRecommendedWhch best describes how he/she usually performs?1;2;31 = With physical help; 2 = With supervision; 3 = Without supervision or help
adl15IntegerRecommendedDid subject get around (or travel) outside of his/her home?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl15aIntegerRecommendedWhich best describes his/her optimal performance1::41 = Only with physical help, regardless of the trip; 2 = Only when accopmanied and supervised, regardless of the trip; 3 = Alone, but remained within 1 mile of home; 4 = Alone, went at least 1 mile away from home
adl16IntegerRecommendedDid subject ever go shopping?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl16aIntegerRecommendedWhich best describes how subject usually selects items?1;2;31 = Not at all, or selected mainly random or inappropriate items; 2 = With some supervision or physical help; 3 = Without supervision or physical help
adl16bIntegerRecommendedDid subject usually pay for items without supervision or physical help?1;0;90 = No; 1 = Yes; 9 = Don't Know
adl17IntegerRecommendedDid subject keep appointments or meetings with other people, such as relatives, a doctor, the hairdresser, etc.?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl17aIntegerRecommendedWhich best describes his/her awareness of the meeting ahead of time?1;2;31 = Usually did not remember, in spite of verbal reminders on the day; 2 = Only remembered the appointment after verbal reminders on the day; 3 = Usually remembered, may have needed written reminders
adl18IntegerRecommendedWas subject ever left on his/her own?0;1;8;90 = No; 1 = Yes; 8 = S is institutionalized; 9 = Don't Know
adl18aIntegerRecommendedWas subject left away from home, for 15 minutes or longer, during the day?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl18bIntegerRecommendedWas subject left at home, for an hour or linger, during the day?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl18cIntegerRecommendedWas subject left at home, for less than an hour, during the day?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl19IntegerRecommendedDid subject talk about current events?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl19aIntegerRecommendedDid subject talk about events that he/she heard or read about or saw on TV but did not take part of it?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl19bIntegerRecommendedDid subject talk about events that took part outside the home involving family, friends, or neighbors?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl20IntegerRecommendedDid subject read a magazine, newspaper, or book for more than 5 minutes at a time?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl20aIntegerRecommendedDid subject usually talk about details of what he/she read while or shortly (<1 hour) after reading?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl20bIntegerRecommendedDid subject usually talk about what he'she read 1 hour or longer after reading0;1;90 = No; 1 = Yes; 9 = Don't Know
adl21IntegerRecommendedDid subject ever write things down?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl21aIntegerRecommendedWhich best describes the most complicated things that he/she wrote?1;2;31 = His/her signature or name; 2 = Short notes or messages that other people understood; 3 = Letters or long notes that other people understood
adl22IntegerRecommendedDid subject perform a pastime, hobby or game?0;1;90 = No; 1 = Yes; 9 = Don't Know
adl22aaIntegerRecommendedcard or board games0;10=no; 1=yes
adl22abIntegerRecommendedbingo0;10=no; 1=yes
adl22acIntegerRecommendedmusical instrument0;10=no; 1=yes
adl22adIntegerRecommendedreading0;10=no; 1=yes
adl22aeIntegerRecommendedtennis0;10=no; 1=yes
adl22afIntegerRecommendedcrosswords0;10=no; 1=yes
adl22agIntegerRecommendedknitting0;10=no; 1=yes
adl22ahIntegerRecommendedgardening0;10=no; 1=yes
adl22aiIntegerRecommendedworkshop0;10=no; 1=yes
adl22ajIntegerRecommendedart0;10=no; 1=yes
adl22akIntegerRecommendedsewing0;10=no; 1=yes
adl22alIntegerRecommendedgolf0;10=no; 1=yes
adl22amIntegerRecommendedfishing0;10=no; 1=yes
adl22anIntegerRecommendedother0;10=no; 1=yes
adl22bIntegerRecommendedDid subject perform hobbies/pastime only at day care?0;10=no; 1=yes
adl22cIntegerRecommendedHow did subject usually perform his/her most common pastimes?1::31 = With physical help; 2 = With supervision; 3 = Without supervision or help
adl23IntegerRecommendedIn the past 4 weeks, did subject use a household applicance to do chores?0;1; 90=no; 1=yes; 9=don't know
adl23aaIntegerRecommendedwasher?0;10=no; 1=yes
adl23abIntegerRecommendeddishwasher0;10=no; 1=yes
adl23acIntegerRecommendedrange0;10=no; 1=yes
adl23adIntegerRecommendeddryer0;10=no; 1=yes
adl23aeIntegerRecommendedtoaster0;10=no; 1=yes
adl23afIntegerRecommendedmicrowave0;10=no; 1=yes
adl23agIntegerRecommendedvacuum0;10=no; 1=yes
adl23ahIntegerRecommendedtoaster oven0;10=no; 1=yes
adl23aiIntegerRecommendedfood processor0;10=no; 1=yes
adl23ajIntegerRecommendedother0;10=no; 1=yes
adl23bIntegerRecommendedFor the most commonly used appliances, which best describes how the subject usually used them?1;2;3;41 = With physical help; 2 = With supervision, but no physical help; 3 = Without help, but operated only on/off controls; 4 = Without help, operating more than on-off controls if needed
adl24IntegerRecommendedTotal score0::78
adl25IntegerRecommendedNumber of Don't Know responses in ADL0::30
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
phase_ctString20RecommendedCurrent Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase.Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1phase
adcs_tsIntegerRecommendedADCS Total Score
last1IntegerRecommendedFlag Last Phase 1/1A Visit1=Yes for all records meeting this criteria
base1IntegerRecommendedFlag Baseline Phase 1/1A Visit1=Yes for all records meeting this criteria
base_tsFloatRecommendedBaseline Total ScoreScare at Phase 1 baselline
c_tsFloatRecommendedChanged from Baseline ADAS Total ScoreChange from Phase 1 baseline
adl19cIntegerRecommendedDid subject talk about events that occurred at home that he/she took part in or watched?0;1;90 = No; 1 = Yes; 9 = Don't Know
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: acdayliv01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.