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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a way to query and access data for which you may be interested.  There are multiple places to go query and Add to Filter Cart (Sometimes called Download).  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you add subjects, sometimes it may take a few minutes to populate.  You can continue to do other things during this time. 

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data available for the subjects selected will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be available.  However, if you want to see all of the clinical and phenotype, then select, "Find All Subject Data" to see all the data avaialble for those subjects.  

when a secord or third filter is applied, an AND condition is used to determine the subjects that are exist in all filters.  If the subject does not appear in any filter, that subjects data will be excluded from your filter cart. Given the sparcity of data in the NDA, it is possible for no subjects to appear across filters.  If that happens, clear your filter cart, and start over.  

The NDA is looking to enhance query/filtering.  Until additional tools become available, it is best to package more data than you need and then package and download the data and use other tools to further restrict and analyze the data.  If you have any questions on data access, are interested in using avaialble web services or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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ADHD Symptom Checklist



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*nimhid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectptid, stepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldtestdate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visitvisitnum
daysconsIntegerRecommendeddays since consent
diffseatIntegerRecommendedDifficulty remaining seated0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd11, childadhd11
fidgetyIntegerRecommendedFidgety0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd10, childadhd10;adultadhd10
diffplayIntegerRecommendedDifficulty playing quietly0::5;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused; 5=Yesadultadhd35, childadhd35
talkexceIntegerRecommendedTalk excessively0::5;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused; 5=Yesadultadhd37, childadhd37
shiftactIntegerRecommendedShifts activities0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused
diffattnIntegerRecommendedDifficulty sustaining attention0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd2, childadhd2
difffollIntegerRecommendedDifficulty following instructions0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd4, childadhd4
easdistrIntegerRecommendedEasily distracted0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd8, childadhd8
interrupIntegerRecommendedInterrupts or intrudes0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd18, childadhd18
blurtsIntegerRecommendedBlurts out answers0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd16, childadhd16
diffwaitIntegerRecommendedDifficulty waiting turn0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd17, childadhd17
actthinkIntegerRecommendedActs before thinking0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused
losethgsIntegerRecommendedLoses things0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd7, childadhd7
nolistenIntegerRecommendedDoesn't listen0::5;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused; 5=Yesadultadhd25, childadhd25
nodetailIntegerRecommendedFails to pay close attention to details0::5;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused; 5=Yes
difforgnIntegerRecommendedDifficulties organizing0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd5, childadhd5
avoidmtlIntegerRecommendedAvoidance or strong dislike of mental tasks0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused
forgetofIntegerRecommendedOften forgetful0::5;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refused; 5=Yes
onthegoIntegerRecommendedOften on the go or acts like driven by a motor0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedadultadhd14, childadhd14
siteString100RecommendedSiteStudy Sitesite_id, siteid
hyperactivIntegerRecommendedHyperactivity/restlessness0::4;-70=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme; -7=Refusedhyperact
version_formString100RecommendedForm used/assessment name
age_onsetIntegerRecommendedAge Onset (age in mnths)adultadhd20, childadhd20
childadhd1IntegerRecommendedMakes a Lot of Careless Mistakes1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd1
childadhd3IntegerRecommendedDoesn't Listen1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd3
childadhd6IntegerRecommendedDislikes/Avoids Tasks Requiring Attention1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd6
childadhd9IntegerRecommendedForgetful in Daily Activities1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd9
childadhd12IntegerRecommendedRuns or Climbs Excessively1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd12
childadhd13IntegerRecommendedDifficulty Playing Quietly1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd13
childadhd15IntegerRecommendedTalks Excessively1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd15
childadhd19IntegerRecommendedDuration of childhood symptoms1::3;91= not present; 2= symptoms persist less than 6 months; 3= symptoms persist least 6 months; 9= inadequate informationadultadhd19
childadhd21IntegerRecommendedSome impairment in 2 or more settings1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd21
childadhd22IntegerRecommendedAssess clinically significant impairment1::4;91= not present; 2= mild; 3= moderate; 4=severe; 9= missingadultadhd22
childadhd23IntegerRecommendedCareless/Sloppy1;21=Yes; 2=Noadultadhd23
childadhd24IntegerRecommendedDifficulty sustaining attention1;21=Yes; 2=Noadultadhd24
childadhd26IntegerRecommendedDifficulty following instructions (finishing)1;21=Yes; 2=Noadultadhd26
childadhd27IntegerRecommendedDifficulty organizing tasks/activities1;21=Yes; 2=Noadultadhd27
childadhd28IntegerRecommendedAvoidance of tasks with sustained mental effort1;21=Yes; 2=Noadultadhd28
childadhd29IntegerRecommendedLoses things1;21=Yes; 2=Noadultadhd29
childadhd30IntegerRecommendedEasily distracted1;21=Yes; 2=Noadultadhd30
childadhd32IntegerRecommendedFidgets/Squirms1;21=Yes; 2=Noadultadhd32
childadhd33IntegerRecommendedDifficulty remaining seated1;21=Yes; 2=Noadultadhd33
childadhd34IntegerRecommendedRuns/Climbs excessively/Inappropriately1;21=Yes; 2=Noadultadhd34
childadhd36IntegerRecommendedOn the go/Driven by a motor1;21=Yes; 2=Noadultadhd36
childadhd38IntegerRecommendedBlurts out answers1;21=Yes; 2=Noadultadhd38
childadhd39IntegerRecommendedDifficulty waiting turn1;21=Yes; 2=Noadultadhd39
childadhd40IntegerRecommendedInterrupts or Intrudes1;21=Yes; 2=Noadultadhd40
adhd_bIntegerRecommendedChildhood onset of ADHD (prior to age 7)1;21=Yes; 2=No
adhd_c_ina_c1IntegerRecommendedADHD in School1;21=Yes; 2=Noadhd_c_ina_a1
adhd_c_ina_a2IntegerRecommendedADHD at Work1;21=Yes; 2=No
adhd_c_ina_c3IntegerRecommendedADHD at Home1;21=Yes; 2=Noadhd_c_ina_a3
adhd_c_ina_c4IntegerRecommendedADHD at Athletics or Clubs1;21=Yes; 2=Noadhd_c_ina_a4
adhd_c_dxIntegerRecommendedmet A, B, C, D, E and F diagnostic criteria?1;21=Yes; 2=Noadhd_f_child_dx
adhd_c_subtypeIntegerRecommendedADHD subtype1::31=Predominantly Inattentive Type; 2=Predominantly Hyperactive/Impulsive Type; 3=Combined Typeadhd_f_adult_subtype
adhd_f_childIntegerRecommendedADHD present1;21=Yes; 2=Noadhd_f_adult
adhd_f_child_dsmString10RecommendedDSM-IV Code for ADHDadhd_f_adult_dsm
adult_attentionIntegerRecommendedADHD Attention
adult_hyperactivityIntegerRecommendedADHD Hyperactivity
adult_totalsymptomsIntegerRecommendedADHD Total symptoms
adult_impairmentIntegerRecommendedADHD Impairment score
adult_attentionseverityIntegerRecommendedADHD Attention Severity
adult_hyperactivityseverityIntegerRecommendedADHD Hyperactivity Severity
adult_totalseverityIntegerRecommendedADHD Total Severity
lab020DateRecommendedDate of PI/clinician signature
adhm_aIntegerRecommendedHas the child taken medication for ADHD in the past six months?0;10=No; 1=Yes
adhm_19IntegerRecommendedDoes child experience impairment due to ADHD symptoms when not taking medication?0;10=No; 1=Yes
s4_adhd_impairment_socialIntegerRecommendedsocial impairment with peers.0 :: 20 = No information; 1 = Not present; 2 = Present
adhm_20dIntegerRecommendedIf yes, indicate area(s) of impairment due to ADHD symptoms: Self (e.g., self esteem)0;10=No; 1=Yes
adhm_20eIntegerRecommendedIf yes, indicate area(s) of impairment due to ADHD symptoms: Physical injury/Risky behavior0;10=No; 1=Yes
adhm_20gString500RecommendedIf yes, indicate area(s) of impairment due to ADHD symptoms: Describe "other
adhm_21String500RecommendedParent impression of child off medication is based upon:
cmp001IntegerRecommendedDid the subject complete the study?0;10=No; 1=Yes
stimeString20RecommendedSession time
ant_cString20RecommendedLength of Session 2:
ant_12IntegerRecommendedOppositional behavior (argues, talks back, or is unwilling to perform the task)0::30=Not at all; 1=Mild; 2=Moderate; 3=Severe
ant_13IntegerRecommendedTotal Prompts:
ant_13aIntegerRecommendedPhysical prompts:
ant_13bIntegerRecommendedVerbal prompts:
ant_13cIntegerRecommendedGesture prompts:
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: adhdc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.