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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Anxiety Sensitivity Index

anxsi

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy SiteASITE
clinicidIntegerRecommendedClinic IDACLINIC
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitWAVE
days_baselineIntegerRecommendedDays since baselineLOF
asi1IntegerRecommendedTo what extent is this statement true for you... It is very important for me not to appear nervous.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi2IntegerRecommendedTo what extent is this statement true for you: When I cannot keep my mind on a task, I worry that I might be going crazy.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi3IntegerRecommendedTo what extent is this statement true for you: It scares me when I feel shaky.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi4IntegerRecommendedTo what extent is this statement true for you: It scares me when I feel faint.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi5IntegerRecommendedIt is important to me to stay in control of my emotions.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi6IntegerRecommendedIt scares me when my heart beats rapidly.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi7IntegerRecommendedIt embarrasses me when my stomach growls.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi8IntegerRecommendedIt scares me when I am nauseous.0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi9IntegerRecommendedWhen I notice my heart is beating rapidly, I worry that I might have a heart attack0::40 = very little; 1 = a little; 2 = some; 3 = much; 4 = or very much
asi10IntegerRecommendedIt scares me when I become short of breath0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi11IntegerRecommendedWhen my stomach is upset, I worry that I might be seriously ill0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi12IntegerRecommendedIt scares me when I am unable to keep my mind on a task.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi13IntegerRecommendedOther people notice when I feel shaky.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi14IntegerRecommendedUnusual body sensations scare me.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi15IntegerRecommendedWhen I am nervous, I worry that I might be mentally ill.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asi16IntegerRecommendedIt scares me when I am nervous.0::40 = very little; 1 = a little; 2= some; 3 = much; 4 = or very much
asiFloatRequiredAnxiety Sensitivity Index
iasiFloatRecommendedImputed ASI
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: anxsi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.