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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Autism Spectrum Screening Questionnaire (ASSQ)

assq

01

Autism Spectrum Screening Questionnaire (ASSQ).

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
assq01IntegerRecommendedOld-fashioned or precocious0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq02IntegerRecommendedRegarded as an "eccentric professor" by other children0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq03IntegerRecommendedLives somewhat in a world of his/her own with restricted idiosyncratic intellectual interests0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq04IntegerRecommendedAccumulates facts on certain subjects but doesn't understand meaning0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq05IntegerRecommendedLiteral understanding of ambiguous and metaphorical language0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq06IntegerRecommendedDeviant style of communication with formal, fussy, old-fashioned, or robotlike language0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq07IntegerRecommendedInvents idiosyncratic words and expressions0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq08IntegerRecommendedHas a different voice or speech0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq09IntegerRecommendedExpresses sounds involuntarily; clears throat, grunts, smacks, cries, or screams0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq10IntegerRecommendedSurprisingly good at some things and surprisingly poor at others0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq11IntegerRecommendedUses language freely but fails to make adjustment to fit social contexts or the needs of different listeners0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq12IntegerRecommendedLacks empathy0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq13IntegerRecommendedMakes naive and embarrassing remarks0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq14IntegerRecommendedHas a deviant style of gaze0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq15IntegerRecommendedWishes to be sociable but fails to make relationships with peers0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq16IntegerRecommendedCan be with other children but only on his/her terms0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq17IntegerRecommendedLacks best friend0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq18IntegerRecommendedLacks common sense0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq19IntegerRecommendedIs poor at games: no idea of cooperating in a team, scores "own goals"0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq20IntegerRecommendedhas clumsy, ill coordinated, ungainly, awkward movements or gestures0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq21IntegerRecommendedHas involuntary face or body movements0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq22IntegerRecommendedHas difficulties in completing simple daily activities because of compulsory repetition of certain actions or thoughts0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq23IntegerRecommendedHas special routines: insists on no change0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq24IntegerRecommendedShows idiosyncratic attachment to objects0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq25IntegerRecommendedIs bullied by other children0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq26IntegerRecommendedHas markedly unusual facial expression0; 1; 20 = No; 1 = Yes; 2 = Somewhat
assq27IntegerRecommendedHas markedly unusual posture0; 1; 20 = No; 1 = Yes; 2 = Somewhat
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: assq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.