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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Background History Form

back_hist

01

Background History Form.

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yes
raceString30RequiredRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
cg1_relationshipString100RecommendedCaregiver/Parent 1's Relationship to ParticipantParent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose
cg2_relationshipString100RecommendedCaregiver/Parent 2's Relationship to ParticipantParent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose
cg_relation_statusString50RecommendedCaregiver's relationship statusmarried; widowed;separated;widowed, remarried;divorced, neither remarried;unmarried;divorced, both remarried;other;divorced, one remarried; living as though married; divorced
cg_relation_status_specifyString50RecommendedCaregiver's relationship status other, specify
liveswithString100Recommendedchild lives with
Both biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Other
liveswithotherString50Recommendedchild lives with other, specify
household_physical_custodyString50RecommendedPhysical Custody situation if mother and father are divorced or separatedJoint;Mother has sole custody;Father has sole custody
num_in_house_kidsIntegerRecommendedNumber of Individuals in Household Children
child1_ageString100RecommendedOther Child in Household 1 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child1_genderString10RecommendedOther Child in Household 1 GenderMale;Female
child1_educationString100RecommendedOther Child in Household 1 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child1_handednessString100RecommendedOther Child in Household 1 HandednessLeft-handed;Right-handed
child1_proband_relationshipString100RecommendedOther Child in Household 1 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child2_ageString100RecommendedOther Child in Household 2 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child2_genderString10RecommendedOther Child in Household 2 GenderMale;Female
child2_educationString100RecommendedOther Child in Household 2 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child2_handednessString100RecommendedOther Child in Household 2 HandednessLeft-handed;Right-handed
child2_proband_relationshipString100RecommendedOther Child in Household 2 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child3_ageString100RecommendedOther Child in Household 3 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child3_genderString10RecommendedOther Child in Household 3 GenderMale;Female
child3_educationString100RecommendedOther Child in Household 3 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child3_handednessString100RecommendedOther Child in Household 3 HandednessLeft-handed;Right-handed
child3_proband_relationshipString100RecommendedOther Child in Household 3 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child4_ageString100RecommendedOther Child in Household 4 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child4_genderString10RecommendedOther Child in Household 4 GenderMale;Female
child4_educationString100RecommendedOther Child in Household 4 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child4_handednessString100RecommendedOther Child in Household 4 HandednessLeft-handed;Right-handed
child4_proband_relationshipString100RecommendedOther Child in Household 4 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child5_ageString100RecommendedOther Child in Household 5 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child5_genderString10RecommendedOther Child in Household 5 GenderMale;Female
child5_educationString100RecommendedOther Child in Household 5 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child5_handednessString100RecommendedOther Child in Household 5 HandednessLeft-handed;Right-handed
child5_proband_relationshipString100RecommendedOther Child in Household 5 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child6_ageString100RecommendedOther Child in Household 6 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child6_genderString10RecommendedOther Child in Household 6 GenderMale;Female
child6_educationString100RecommendedOther Child in Household 6 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child6_handednessString100RecommendedOther Child in Household 6 HandednessLeft-handed;Right-handed
child6_proband_relationshipString100RecommendedOther Child in Household 6 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
child7_ageString100RecommendedOther Child in Household 7 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
child7_genderString10RecommendedOther Child in Household 7 GenderMale;Female
child7_educationString100RecommendedOther Child in Household 7 School LevelPre-school;Elementary;Jr high/middle;High school;Post-HS
child7_handednessString100RecommendedOther Child in Household 7 HandednessLeft-handed;Right-handed
child7_proband_relationshipString100RecommendedOther Child in Household 7 Relationship to ParticipantSibling;Half-sibling;Other relative;Not related
chi_livingIntegerRecommendedchild living arrangement1::31 = At home; 2 = In an institution; 3 = Other
chi_living_otherString255Recommendedchild living arrangement_otherOther living arrangement
cg1_educationString100RecommendedCaregiver/Prent 1's Highest Level of EducationSome primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree
cg2_educationString100RecommendedCaregiver/Parent 2's Highest Level of EducationSome primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree
cg1_occupationString100RecommendedCaregiver/Parent 1's Occupation
cg2_occupationString100RecommendedCaregiver/Parent 2's Occupation
cg_totalincomeIntegerRecommendedtotal combined family income1::71 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000
milestone_age_mo_smileIntegerRecommendedAge in which the participant accomplished the following milestone in months: smiled
milestone_age_mo_satupIntegerRecommendedAge in which the participant accomplished the following milestone in months: sat up without support
milestone_age_mo_crawlIntegerRecommendedAge in which the participant accomplished the following milestone in months: crawled
milestone_age_mo_solidfoodFloatRecommendedAge in which the participant accomplished the following milestone in months: started solid foods
milestone_age_mo_wordsIntegerRecommendedAge in which the participant accomplished the following milestone in months: used words
milestone_age_mo_stopbottleIntegerRecommendedAge in which the participant accomplished the following milestone in months: gave up bottle
milestone_age_mo_toilettrainIntegerRecommendedAge in which the participant accomplished the following milestone in months: was toilet trained
milestone_age_mo_walkaloneIntegerRecommendedAge in which the participant accomplished the following milestone in months: walked alone
milestone_age_mo_fedselfspoonIntegerRecommendedAge in which the participant accomplished the following milestone in months: fed self with a spoon
toilet_train_dayIntegerRecommended8. Acquisition of bladder control: daytime0 :: 600; 993;994;995;996;997;998;999993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
toilet_train_nightIntegerRecommended9. Acquisition of bladder control: nighttime0 :: 120;993;994;995;996;997;998;999993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
milestone_age_mo_word_sentIntegerRecommendedAge in which the participant accomplished the following milestone in months: combined words in short sentences
cllinical_diagnosisString100Recommendedclinical diagnosisAutism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; None
diag_ageatdiagIntegerRecommendedAge at diagnosis(in months)
0 :: 1200
lang_useIntegerRecommendedPlease estimate your child's use of language0::30 = Does not yet use single words; 1 = Uses 1 to 5 words daily; 2 = 2-3 word combinations daily; 3 = Full sentences daily
child_educationIntegerRecommendedCurrent educational or other placement0::70 = At home; 1 = Day care; 2 = Nursery/preschool; 3 = Kindergarten; 4 = School; 5 = Day program; 6 = Independent job; 7 = Supported job
chi_schoolIntegerRecommendedhighest grade of school child has completed1::151 = Preschool; 2 = Kindergarten; 3 = 1st grade; 4 = 2nd grade; 5 = 3rd grade; 6 = 4th grade; 7 = 5th grade; 8 = 6th grade; 9 = 7th grade; 10 = 8th grade; 11 = 9th grade; 12 = 10th grade; 13 = 11th grade; 14 = 12th grade; 15 = Other
job_detailString255RecommendedPlease indicate type of program/job and amount of hours per week.
class_detailString255RecommendedAny special type of classes or extra support provided? Specify
medication1_nameString100RecommendedName first medication that the participant has taken999= Legitimately skipped;
medication1_currentString10RequiredFirst medication currently taking?
Yes;No;999
medication1_pastString10RecommendedFirst medication took in the past?
Yes;No
medication1_frequencyString50RecommendedFirst medication frequency
medication1_dosageString50RecommendedFirst medication dosage
medication1_timeIntegerRecommendedHow long has first medication been taken? months
medication2_nameString100RecommendedName second medication that the participant has taken999= Legitimately skipped;
medication2_currentString10Recommendedsecond medication currently taking?
Yes;No
medication2_pastString10Recommendedsecond medication took in the past?
Yes;No
medication2_frequencyString50RecommendedSecond medication frequency
medication2_dosageString50RecommendedSecond medication dosage
medication2_timeIntegerRecommendedHow long has second medication been taken? months
medication3_nameString150RecommendedName third medication that the participant has taken999= Legitimately skipped;
medication3_currentString10Recommendedthird medication currently taking?
Yes;No
medication3_pastString10Recommendedthird medication took in the past?
Yes;No
medication3_frequencyString50RecommendedThird medication frequency
medication3_dosageString50RecommendedThird medication dosage
medication3_timeIntegerRecommendedHow long has third medication been taken? months
medication4_nameString100RecommendedName fourth medication that the participant has taken999= Legitimately skipped;
medication4_currentString10Recommendedfourth medication currently taking?
Yes;No
medication4_pastString10Recommendedfourth medication took in the past?
Yes;No
medication4_frequencyString50RecommendedFourth medication frequency
medication4_dosageString50RecommendedFourth medication dosage
medication4_timeIntegerRecommendedHow long has fourth medication been taken? months
medication5_nameString100RecommendedName fifth medication that the participant has taken
medication5_currentString10Recommendedfifth medication currently taking?
Yes;No
medication5_pastString10Recommendedfifth medication took in the past?
Yes;No
medication5_frequencyString50RecommendedFifth medication frequency
medication5_dosageString50RecommendedFifth medication dosage
medication5_timeIntegerRecommendedHow long has fifth medication been taken? months
medication6_nameString100RecommendedName sixth medication that the participant has taken
medication6_currentString10Recommendedsixth medication currently taking?
Yes;No
medication6_pastString10Recommendedsixth medication took in the past?
Yes;No
medication6_frequencyString50RecommendedSixth medication frequency
medication6_dosageString50RecommendedSixth medication dosage
medication6_timeIntegerRecommendedHow long has sixth medication been taken? months
medication7_nameString100RecommendedName seventh medication that the participant has taken
medication7_currentString10Recommendedseventh medication currently taking?
Yes;No
medication7_pastString10Recommendedseventh medication took in the past?
Yes;No
medication7_frequencyString50RecommendedSeventh medication frequency
medication7_dosageString50RecommendedSeventh medication dosage
medication7_timeIntegerRecommendedHow long has seventh medication been taken? months
medication8_nameString100RecommendedName eighth medication that the participant has taken
medication8_currentString10Recommendedeighth medication currently taking?
Yes;No
medication8_pastString10Recommendedeighth medication took in the past?
Yes;No
medication8_frequencyString50RecommendedEighth medication frequency
medication8_dosageString50RecommendedEighth medication dosage
medication8_timeIntegerRecommendedHow long has eighth medication been taken? months
medication9_nameString100RecommendedName ninth medication that the participant has taken
medication9_currentString10Recommendedninth medication currently taking?
Yes;No
medication9_pastString10Recommendedninth medication took in the past?
Yes;No
medication9_frequencyString50RecommendedNinth medication frequency
medication9_dosageString50RecommendedNinth medication dosage
medication9_timeIntegerRecommendedHow long has ninth medication been taken? months
medication10_nameString100RecommendedName tenth medication that the participant has taken
medication10_currentString10Recommendedtenth medication currently taking?
Yes;No
medication10_pastString10Recommendedtenth medication took in the past?
Yes;No
medication10_frequencyString50RecommendedTenth medication frequency
medication10_dosageString50RecommendedTenth medication dosage
medication10_timeIntegerRecommendedHow long has tenth medication been taken? months
cg1_raceString100RecommendedRace of the Caregiver/Parent 1American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
cg2_raceString100RecommendedRace of the Caregiver/Parent 2American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
cg1_ethnicityString30RecommendedCaregiver/Parent 1's ethnicityHispanic or Latino; Not Hispanic or Latino
cg2_ethnicityString30RecommendedCaregiver/Parent 2's ethnicityHispanic or Latino; Not Hispanic or Latino
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: back_hist01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.