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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Backgroung Information Form

bif

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
child_raceString55RecommendedChild's RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcbfchildsrace
mother_raceString55RecommendedMother's raceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcbfmomrace
cbfmomrelIntegerRecommendedMother's Current Relationship Status1::6; 888; 9991 = Married; 2 = Single; 3 = Divorced; 4 = Widowed; 5 = Separated; 6 = Cohabitating; 888 = not applicable; 999 = missing
cbfmomoccIntegerRecommendedMother's Occupation1::7; 888; 9991 = professional; 2 = manager/administrator; 3 = clerical; 4 = sales; 5 = services; 6 = skilled craft/repair; 7 = equipment; 8 = laborer; 9 = farmer; 10 = member of military; 11 = homemaker; 12 = student; 13 = other; 888 = not applicable; 999 = missing
cbfmomedu_yrIntegerRecommendedMother's Educational Level (Years of schooling)888 = not applicable; 999 = missing
cbfmomeduIntegerRecommendedMother's Educational Level1::7; 888; 9991 = grad/professional training; 2 = college grad; 3 = some college; 4 = high school/GED; 5 = some high school; 6 = junior high school; 7 = less than 7 years of education; 888 = not applicable; 999 = missing
father_raceString55RecommendedFather's raceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcbfdadrace
cbfdadrelIntegerRecommendedFather's Current Relationship Status1::6; 888; 9991 = Married; 2 = Single; 3 = Divorced; 4 = Widowed; 5 = Separated; 6 = Cohabitating; 888 = not applicable; 999 = missing
cbfdadoccIntegerRecommendedFather's Occupation1::13; 888; 9991 = professional; 2 = manager/administrator; 3 = clerical; 4 = sales; 5 = services; 6 = skilled craft/repair; 7 = equipment; 8 = laborer; 9 = farmer; 10 = member of military; 11 = homemaker; 12 = student; 13 = other; 888 = not applicable; 999 = missing
cbfdadedu_yrIntegerRecommendedFather's Educational Level (Years of schooling)888 = not applicable; 999 = missing
cbfdadeduIntegerRecommendedFather's Educational Level1::7; 888; 9991 = grad/professional training; 2 = college grad; 3 = some college; 4 = high school/GED; 5 = some high school; 6 = junior high school; 7 = less than 7 years of education; 888 = not applicable; 999 = missing
cbfwchlwIntegerRecommendedWho Child Lives With1::4; 888; 9991 = mother and father; 2 = mother only; 3 = father only; 4 = other caretaker; 888 = not applicable; 999 = missing
cbfraceIntegerRecommendedFamily's Race1::7; 888; 9991 = White; 2 = Black; 3 = Asian/Pacific; 4 = Native American; 5 = Hispanic; 6 = Unknown; 7 = Other; 888 = not applicable; 999 = missing
cbfparentsIntegerRecommendedParents are1::4; 888; 9991 = Natural/biological; 2 = adoptive; 3 = foster; 4 = other; 888 = not applicable; 999 = missing
demo_siblingscountIntegerRecommendedNumber of siblings888 = not applicable; 999 = missingcbfsiblings
cbfincomeIntegerRecommendedHousehold Income1::5; 888; 9991 = Less than $10,000; 2 = $10,000-$24,999; 3 = $25,000-$49,999; 4 = $50,000-$100,000; 5= $1000,000 or more 888 = not applicable; 999 = missing
cbfopwcIntegerRecommendedOther agencies/professionals working with you or your child0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cbfopwc_orgString100RecommendedOther agencies/professionals working with you or your child (what services)888 = not applicable; 999 = missing
rxIntegerRecommendedDoes child take any regular medications?0;1;999; 8880 = no; 1 = yes; 888 = not applicable; 999 = missingcbfchildmed
tau_psychotherapy_currentIntegerRecommendedcurrent psychotherapy/counseling0::1;999; 8880 = no; 1 = yes; 888 = not applicable; 999 = missingcbfpsycou
cbfspeechIntegerRecommendedSpeech/ Lang. Therapy0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cbfoccphyIntegerRecommendedOccupat. / Physical Therapy0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cbfspedplaceIntegerRecommendedIs this a special educational placement?0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cbfspedservicesFloatRecommendedHow long has the child received special educational services?" (years)888 = not applicable; 999 = missing
cbfrepeatheldbackIntegerRecommendedHas the child ever repeated a grade or been held back?0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
version_formString100RequiredForm used
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedbltbfrace
bltbfpositionIntegerRecommendedCurrent Position1::6; 888; 9991 = Special Ed. Teacher; 2 = Primary Resource Teacher; 3 = Other; 4 = Spe. Ed. and Resource; 5 = Preschool Teacher; 6 = Not Specified/just wrote "Teacher"; 888 = not applicable; 999 = missing
bltbfposttimeString25RecommendedHow long have you been working in this position?888 = not applicable; 999 = missing
bltbfyearteachFloatRecommendedHow many years have you taught?888 = not applicable; 999 = missing
bltbfcaseloadIntegerRecommendedWhat is your class size that the target child attends, or caseload size?888 = not applicable; 999 = missing
bltbfcertIntegerRecommendedPlease list your educational degrees and area(s) of certification0::4; 888; 9991 = Bachelor's, 2 = Master's, 3 = Emergency Certification, 4 = Other, 888 = not applicable, 999 = missing
bltbfauttrainIntegerRecommendedFormal Autism Training0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfcoursesIntegerRecommendedFormal Coursework0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbffieldworkIntegerRecommendedSupervised field work0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfwconfIntegerRecommendedWorkshops/ Conferences0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
tttinserviceIntegerRecommendedTypes of Training: Inservice0;1; 888; 9990 = not checked, 1 = checked, 888 = not applicable, 999= missingbltbfinservice
bltbfothformtrainIntegerRecommendedOther Formal Training0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfinformauttrainIntegerRecommendedInformal Training Specific to Autism0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfinformautreadIntegerRecommendedInformal Reading0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbinformconsultIntegerRecommendedInformal Consultants0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbinforminternetIntegerRecommendedInformal Internet0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfinformothtrainIntegerRecommendedInformal Other0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
bltbfyearautassesFloatRecommendedYrs of assessing children with autism888 = not applicable; 999 = missing
bltbfnumautassesIntegerRecommendedNumber of Children with Autism Assessed888 = not applicable; 999 = missing
bltbfyearteachautFloatRecommendedYrs of teaching/intervention Children with Autism888 = not applicable; 999 = missing
bltbfnumautteachautIntegerRecommendedNumber of teaching/intervention Children with Autism888 = not applicable; 999 = missing
bltbfyconsulttrainautFloatRecommendedYrs of consultation/ training for children with autism888 = not applicable; 999 = missing
bltbfnumconsulttrainautIntegerRecommendedNumber of children with autism consulted/trained888 = not applicable; 999 = missing
bltbftotyearautFloatRecommendedhow many years have you worked with children with autism?888 = not applicable; 999 = missing
bltbfnumtaughtautIntegerRecommendedHow many children with ASD have you worked with?888 = not applicable; 999 = missing
bltbfadminsuptrainIntegerRecommendedAdmin Support Participating in training/continuing education1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupflexIntegerRecommendedAdmin Support Having flexibility to be creative or develop innovative programs1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupstaffIntegerRecommendedAdmin Support Having adequate classroom staffing1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupcaseIntegerRecommendedAdmin Support Having reasonable class or caseload size1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupplaceIntegerRecommendedAdmin Support Having a range of classroom placements in which students with autism can participate1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupplanIntegerRecommendedAdmin Support Having adequate planning time1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupprofactIntegerRecommendedAdmin Support Participating in professional organization activities1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupacceptIntegerRecommendedAdmin Support Developing an atmosphere of understanding and acceptance within the school1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupcollabIntegerRecommendedAdmin Support Providing process of collaboration with school personnel regarding specific students1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupcommIntegerRecommendedAdmin Support Fostering communication with parents1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfadminsupmaterIntegerRecommendedAdmin Support Having adequate space and materials1::4; 888; 9991 = not much; 2 = some support; 3 = more support; 4 = very much support; 888 = not applicable; 999 = missing
bltbfpcontactFloatRecommendedHow often do you contact parents-times per week888 = not applicable; 999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: bif01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.