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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Brigance Parent-Child Interactions Scale

bpcis

01

Brigance Parent-Child Interactions Scale

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
brigance_02IntegerRecommendedI play with my child and show him or her things about toys.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_03IntegerRecommendedI hug and kiss my child.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_04IntegerRecommendedI mostly talk to my child when he is crying.1 :: 31 = Not very true; 2 = Sometimes true; 3 = Mostly true
brigance_05IntegerRecommendedI help my child learn by talking and showing him or her new things.1 :: 31 = Not very true; 2 = Sometimes true; 3 = Mostly true
brigance_06IntegerRecommendedI look at or read children's books to my child.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_07IntegerRecommendedMy child does not calm down or seem very interested when I talk to him.1 :: 31 = Mostly true; 2 = Sometimes true; 3 = Not very true
brigance_08IntegerRecommendedI make up games or songs for my child.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_09IntegerRecommendedWhen my child looks at or touches a toy, I talk to him about the toy.1 :: 31 = Not very often; 2 = Some of the time; 3 = Most of the time
brigance_10IntegerRecommendedWhen my child is looking at me, I talk or make sounds with him.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_11IntegerRecommendedMy child doesn't seem to like me.1 :: 31 = Mostly true; 2 = Sometimes true; 3 = Not very true
brigance_12IntegerRecommendedI enjoy feeding my child or eating with him.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_13IntegerRecommendedI talk to my child in a special way.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_14IntegerRecommendedMy child is not very much fun to be with.1 :: 31 = Mostly true; 2 = Sometimes true; 3 = Not very true
brigance_15IntegerRecommendedI can make my child feel better when he or she is upset.1 :: 31 = Not very often; 2 = Sometimes; 3 = Often
brigance_16IntegerRecommendedWhen my child looks at or touch something, the first thing I say is "no".1 :: 31 = Mostly true; 2 = Sometimes true; 3 = Not very true
brigance_17IntegerRecommendedMost of the time I like my child.1 :: 31 = Not very true; 2 = Sometimes true; 3 = Mostly true
brigance_18IntegerRecommendedMy child does not need my help learning new things.1 :: 31 = Mostly true; 2 = Sometimes true; 3 = Not very true
brigance_19IntegerRecommendedI talk with my child when feeding or eating with him or her.1 :: 31 = Not very often; 2 = Some of the time; 3 = Most of the time
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: bpcis01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.