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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Brown Diagnostics

brdiag

01

Brown Diagnostics

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
diag_parrepIntegerRequiredParent reported diagnosis0;10 = No ASD reported; 1 = ASD reportedDiagnosis
ados_moduleIntegerRecommendedADOS Module
scoresumm_atotalIntegerRecommendedCommunication Total999 = NA/NK/missing
scoresumm_btotalIntegerRecommendedSocial Interaction Total999=NA/NK/missing
scoresumm_abtotalIntegerRecommendedCommunication + Social Interaction Total
scoresumm_dtotalIntegerRecommendedStereotyped Behaviors and Restricted Interests Total999=NA/NK/missing
scoresumm_adosdiagString255RecommendedADOS Diagnosis ClassificationMODULE 1: Autism = Few to no words overall total is 16 or higher, OR Some words overall total is 12 or higher; Autism spectrum = Few to no words overall total is 11 to 15, OR Some words total is 8 to 11; Non-spectrum = Few to no words overall total is 10 or lower, OR Some words overall total is 7 or lower; MODULE 2: Autism = Younger than 5 years overal total is 10 or higher, OR Aged 5 years or older overall total is 9 or higher; Autism spectrum = Younger than 5 years overall total is 7 to 9, OR Aged 5 years or older overall total is 8; Non-spectrum = Younger than 5 years overall total is 6 or lower, OR Aged 5 years or older overall total is 7 or lower 9; MODULE 3: Autism = Overall total is 9 or higher; Autism spectrum = Overall total is 7 or 8; Non-spectrum = Overall total is 6 or lower; MODULE 4: Autism = Communication total is 3 or higher, AND Social interaction total is 6 or higher, AND Communication + Social interaction total is 10 or higher; Autism spectrum = Communication total is 2 or higher, AND Social interaction total is 4 or higher, AND Communication + Social interaction total is 7 or higher, AND at least one of the following is true: Communication total is 2, Social interaction total is 4 or 5, Communication + Social interaction total is 7 to 9; Non-spectrum = At least one of the following is true: Communication total is 1 or lower, Social interaction total is 3 or lower, Communication + Social interaction total is 6 or lower 9 = Cannot be rated for some reason other than that listed above, such as if an examiner makes an error and does not administer a particular ADOS activity.
male_rawscoreallString50RecommendedTotal Raw Score
male_tscoreallString50RecommendedTotal T-Score
scq_total_scoreIntegerRecommendedSCQ total score
bayley_ageIntegerRecommendedAge at Bayley II adminsitration0::1200Age at time of Bayley Scales. If missing, then Bayley was not administered
bayleymdiIntegerRecommendedBayley II Mental Scale Index Score
bayleypdiIntegerRecommendedBayley II Motor Scale Index Score
bayleymdi_rawIntegerRecommendedBayley II Mental Scale Raw Score
bayleypdi_rawIntegerRecommendedBayley II Motor Scale Raw Score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: brdiag01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.