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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Blood Sample Collection

bsc

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*nimhid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectptid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldbldcldt, testdate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Sitesiteid
studyString100RecommendedStudystudyid
daysrzIntegerRecommendeddays since randomizationdatecollect, studyday
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, lostbldclst, formcomp
sitedatasource_1IntegerRecommendedSource of Data: Site0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infosrcr
sitedatasource_phoneIntegerRecommendedSource of Data: Telephone0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infosrct
sitedatasource_physicianIntegerRecommendedSource of Data: Physician0;1; -888; -9990=False; 1=True; -888=Not Applicable; -999=Missing;infosrcp
visitString50RecommendedVisit nameCharacter description of each type of visitinterval, visit_name, visitnum
version_formString100RecommendedForm usedbscpg, form_name
bsctotIntegerRecommendedTotal number of forms1::99
ldosedyIntegerRecommendedDay of last doseNumber of days from study baseline to date of last dosedatelast
ldosetmString10RecommendedTime of last doselasttime
bsc_q01IntegerRecommendedAny blood drawn1;21= Yes, 2=No;blood
drawdaysIntegerRecommendedblood draw days since consentbsc_q02, drawdate
drawtimeString20Recommendedtime of blood drawbsc_q03, timecollect
bsc_q04IntegerRecommendedConsume 70-gm carbohydrates1;21= Yes, 2=No;
lmealtmString10RecommendedTime of last mealbsc_q05, mealtime
lmealdyIntegerRecommendedDay of last mealNumber of days from study baseline to date of last meal
bsc_q06aFloatRecommendedFirst food grams0::99
bsc_q06bFloatRecommendedSecond food grams0::99
bsc_q06cFloatRecommendedThird food grams0::99
mefa3IntegerRecommendedIs the patient taking Risperidone? (Y/N) (If the patient is taking more than one anti-psychotic, the patient is ineligible.)0;1;9990=No; 1=Yes; 999=Legitimately skippedbsc_q07
adl_q03IntegerRecommendedDate of last study med taken in days from the randomization date (ADL_Q03 = Date of last dose of study medication - randomization date)-888=NAbsc_q08
sma005String20RecommendedTime of last dose of study medication (hh:mm, 24-hour clock)bsc_q09
bsc_q10aIntegerRecommendedBlood collected for Risperidone1;21= Yes, 2=No;
bsc_q10bIntegerRecommendedBlood collected for prolactin1;21= Yes, 2=No;
bsc_q10cIntegerRecommendedBlood collected for glucose1;21= Yes, 2=No;
bsc_q10dIntegerRecommendedBlood collected for hgbA1c1;21= Yes, 2=No;
bsc_q10eIntegerRecommendedBlood collected for triglycerides1;21= Yes, 2=No;
bsc_q10fIntegerRecommendedBlood collected for total cholesterol1;21= Yes, 2=No;
bsc_q10gIntegerRecommendedBlood collected for LDL1;21= Yes, 2=No;
bsc_q10hIntegerRecommendedBlood collected for HDL1;21= Yes, 2=No;
leptinFloatRecommendedLeptin blood test resultleptin_unit" specifies unit
leptin_unitString10RecommendedUnit for the leptin blood test result
ci_enrolledIntegerRecommendedParticipant enrolled0;10=No; 1=Yes
ptconIntegerRecommendedPatient consented0;10=No; 1=Yesbldcnsnt
commentsString4,000RecommendedComments about assessmentnotes
med2bIntegerRecommendedVisit DayNumber of days from study baseline to date of visit
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
hypforinFloatRecommendedPlasma assay: hyperforin
sertraFloatRecommendedPlasma assay: sertraline
dmsertraFloatRecommendedPlasma assay: N-desmethyl-sertraline
tx_numIntegerRecommendedMedication Code Number1::31 = Sertraline; 2 = Hypericum; 3 = Placebo
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: bsc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.