Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Biospecimen Shipping Form

bsf

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectbid, subject_id, subjectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fielddatacollecteddate, intvdate, v10_biobanking_date, v1_biobanking_date, v2_biobanking_date, v4_biobanking_date, v7_biobanking_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.dema1, intvage, v10_biobanking_age, v1_biobanking_age, v2_biobanking_age, v4_biobanking_age, v7_biobanking_age
genderString20RequiredSex of the subjectM;FM = Male; F = Femaledema2
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge filesvisitnumber
fseqnoIntegerRecommendedSequence Number0::999The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
visdayIntegerRecommendedNumber of days from study baseline to date of visitbsfa0b
bsfa1IntegerRecommendedWas a laboratory specimen collected at this visit?0;11=Yes; 0=No
bsfa2_2401String15RecommendedTime of last caloric intakebsfa1_24, bsfa2_24, v10_biobanking_mealtime, v1_biobanking_mealtime, v2_biobanking_mealtime, v4_biobanking_mealtime, v7_biobanking_mealtime
bsfa3_2401String15RecommendedFasting Collection Timebsfa3_24
bsfa4IntegerRecommendedPregnancy test requested?0;10=No; 1=Yesbsfa3
bsfa5IntegerRecommendedRed Cap Vial (Serum) (Frozen) Tubes Collectedbsfa4_1
bsfa6IntegerRecommendedEDTA Tube (Whole Blood) (Refrigerated) Tubes Collected
bsfa7IntegerRecommendedUrine Container (Frozen) (Not collected at visit 10) Tubes Collected
bsfa8IntegerRecommendedExtra EDTA Tube (Whole Blood) (Refrigerated) Tubes Collected
bsfa9IntegerRecommendedDate specimen shipped to Core Lab/biorepository-999::999bsfa5a, gpfa5
version_formString100RecommendedForm usedvers
gpfa1String3RecommendedDid patient consent to participate in the NIMH Genetics Repository Study?Y;N;N/AY=Yes; N=No; N/A=Not Available
gpfa2IntegerRecommendedDate of Genetics consent
drdatIntegerRecommendedDate blood drawngpfa4
gpfa6IntegerRecommendedSaturday or Holiday Delivery?0;10=No; 1=Yes
siteString100RecommendedSiteStudy Site
visitString50RecommendedVisit nameCharacter description of each type of visitvisitlabel
sample_takenString50RecommendedWas a sample taken at this interview/during this project time
Yes;No
gen001
gen001aIntegerRecommendedWas DNA collected?0;10=No; 1=Yes
gen001bIntegerRecommendedWas RNA collected?0;10=No; 1=Yes
gen001cIntegerRecommendedWas plasma collected?0;10=No; 1=Yes
gen002DateRecommendedCollection Date: (mm/dd/yyyy)
gen003String10RecommendedCollection Time: (hh:mm, 24-hour clock; enter 55:55 if unknown; record start time)v10_biobanking_timecollected, v1_biobanking_timecollected, v2_biobanking_timecollected, v4_biobanking_timecollected, v7_biobanking_timecollected
biorepositoryString100RecommendedSample provider: i.e. NIMH_Genetics; ATP; Correil
gen004IntegerRecommendedWas DNA sample shipped to biorepository?0;10=No; 1=Yes
gen004aDateRecommendedIf "Yes", Date shipped to biorepository
gen005IntegerRecommendedWas RNA sample shipped to biorepository?0;10=No; 1=Yes
gen005aDateRecommendedIf "Yes", Date shipped to biorepository
gen006IntegerRecommendedWas plasma sample shipped to biorepository?0;10=No; 1=Yes
gen006aDateRecommendedIf Yes, Date shipped to biorepository
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datagen007
daysrzIntegerRecommendeddays since randomizationbsfa1a, bsfa1b
bsfa4_24String10RecommendedOGTT: 2-hour Collection Time (24-hour):
drawtimeString20Recommendedtime of blood drawbio_proc_02
blood_receiveString10RecommendedTime blood samples received in labbio_proc_03
urine_collection_timeString10RecommendedUrine Measures: Time of urine collectionbio_proc_05
utoxcldtDateRecommendedUrine Tox Screen Collection Date Completed
labsample40FloatRecommendedFill volume for UNC 8.5 mL ACD-A Yellow Top Tobe: mLsbio_proc_06
labsample41String10RecommendedTemperature of centrifugeSpecify C or Fbio_proc_07
materials1String10RecommendedLeukoLock filter: time when RNA later addedhh:mm; NA=Not Applicablebio_proc_09
materials2IntegerRecommendedLeukoLock filter: number of filters-9=NAbio_proc_10
materials3String10RecommendedLeukocyte-depleted blood in 2.7ml citrate tubes and 3mL no-additive tube: time put in freezerhh:mm; NA=Not Applicablebio_proc_11
materials4IntegerRecommendedLeukocyte-depleted blood in 2.7ml citrate tubes and 3mL no-additive tube: number of tubes-9=NAbio_proc_12
materials5String10RecommendedUrine in 3mL "no"-additive tubes: time put in freezerhh:mm; NA=Not Applicablebio_proc_13
materials6IntegerRecommendedUrine in 3mL "no"-additive tubes: number of tubes-9=NAbio_proc_14
materials7String10RecommendedSerum cryovials (4mL red top tube): time put in freezerhh:mm; NA=Not Applicablebio_proc_15
materials8IntegerRecommendedSerum cryovials (4mL red top tube): # of cryovials-9=NAbio_proc_16
materials9IntegerRecommendedSerum cryovials (4mL red top tube): hemolysis index0, 20, 50, 100, 200, 500, 1000bio_proc_17
materials10IntegerRecommendedSerum cryovials (4mL red top tube): Lipemia0;10=No; 1=Yesbio_proc_18
materials11String10RecommendedEDTA plasma cryovials (4ml EDTA tube): time put in freezerhh:mm; NA=Not Applicablebio_proc_19
materials12IntegerRecommendedEDTA plasma cryovials (4ml EDTA tube): # of cryovials-9=NAbio_proc_20
materials13IntegerRecommendedEDTA plasma cryovials (4ml EDTA tube): hemolysis index0, 20, 50, 100, 200, 500, 1000bio_proc_21
materials14IntegerRecommendedEDTA plasma cryovials (4ml EDTA tube): Lipemia0;10=No; 1=Yesbio_proc_22
materials15String10RecommendedACD plasma cryovials (8.5ml ACD Tube): time put in freezerhh:mm; NA=Not Applicablebio_proc_23
materials16IntegerRecommendedACD plasma cryovials (8.5ml ACD Tube): # of cryovials-9=NAbio_proc_24
materials17IntegerRecommendedACD plasma cryovials (8.5ml ACD Tube): hemolysis index0, 20, 50, 100, 200, 500, 1000bio_proc_25
materials18IntegerRecommendedACD plasma cryovials (8.5ml ACD Tube): Lipemia0;10=No; 1=Yesbio_proc_26
materials19IntegerRecommended2mL EDTA purple top tube: sent to lab0;10=No; 1=Yesbio_proc_27
materials20IntegerRecommended8.5mL ACD yellow top tube drawn0;10=No; 1=Yesbio_proc_28
materials21IntegerRecommended2.5mL RNAGard tube drawn0;10=No; 1=Yesbio_proc_29
materials22IntegerRecommended2.5mL PAXgene RNA tube drawn0;10=No; 1=Yesbio_proc_30
materials23IntegerRecommended8.5mL PAXgene DNA tube drawn0;10=No; 1=Yesbio_proc_31
materials24IntegerRecommended8.5mL ACD tube drawn0::20=No; 1=Yes; 2=NAbio_proc_32
elig_inclusion_checkIntegerRecommendedChecks for a pass/fail on Elig for Inclusion0::30=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
dataqualityIntegerRecommendedData quality0::50=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
bsfa5_1IntegerRecommendedClear cap vial (plasma) frozen tubes collected
bsfa8_1IntegerRecommendedSample set complete0;10=No; 1=Yes
bsfa1hIntegerRecommendedTime of last caloric intake: hour
bsfa1mIntegerRecommendedTime of last caloric intake: minutes
bsfa2hIntegerRecommendedFasting Collection Time: hour
bsfa2mIntegerRecommendedFasting Collection Time: minutes
subjecttypeString20RecommendedSubject TypeControl;Prodromal; Enhanced; Non-Enhanced
bio_proc_08IntegerRecommended1;21;21=Celsius; 2=Farenheit
blooddtmString25RecommendedDate and Time of Blood Drawbio_proc_01
bio_proc_04DateRecommendedDate urine obtained
bio_proc_34String25Recommended903 ProteinSaver Card: Time blood applied to cardhh:mm; NA=Not Applicable
chfastString2RecommendedIs this a fasting sample?Y;N;UY=Yes; N=No; U=Unknownv10_biobanking_fasting, v1_biobanking_fasting, v2_biobanking_fasting, v4_biobanking_fasting, v7_biobanking_fasting
lstmldtDateRecommendedDate of Last Mealv10_biobanking_mealdate, v1_biobanking_mealdate, v2_biobanking_mealdate, v4_biobanking_mealdate, v7_biobanking_mealdate
v1_biobanking_exerciseIntegerRecommendedphysical exercise in last 48hrs (yes/no)0;10= no; 1= yesv10_biobanking_exercise, v2_biobanking_exercise, v4_biobanking_exercise, v7_biobanking_exercise
v1_biobanking_timeprocessedString15Recommendedsample time processed (24hr clock)hh:mmv10_biobanking_timeprocessed, v2_biobanking_timeprocessed, v4_biobanking_timeprocessed, v7_biobanking_timeprocessed
v1_biobanking_timefrozenString15Recommendedsample time frozen (24hr clock)hh:mmv10_biobanking_timefrozen, v2_biobanking_timefrozen, v4_biobanking_timefrozen, v7_biobanking_timefrozen
form_completedIntegerRecommendedWas the form completed?1;21=Yes; 2=No
nimh_idString250Recommendednimh id
patient_id_biorepositoryString100RecommendedBiorepository Patient ID
weekFloatRecommendedWeek in level/study99=week 10-week 14
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: bsf01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.