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BSRC Intervention History Form

bsrc_intervention

01

Baby Sibling Research Consortium Intervention History Form

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
date_last_visitDateRecommendedDate of last visit
prof_referIntegerRecommendedDid a professional refer your child to an "early intervention" or "birth-to-three" program?0;10 = No; 1 = Yesrefer_birth_to_three
early_therapyIntegerRecommendedDid your child receive any "early intervention" or "birth to three" program service?0;10 = No; 1 = Yesreceive_birth_to_three
community_classIntegerRecommendedDid a professional recommend that your child attend any community based classes/activities?0;10 = No; 1 = Yesrecommend_community_classes
participate_classIntegerRecommendedDid your child participate in any classes/activities whether or not recommended by a professional?0;10 = No; 1 = Yes
dev_servicesIntegerRecommendedDid your child receive services for developmental delays of any kind or concerns about delay?0;10 = No; 1 = Yesreceive_services_dev_delays
txhx1occtx1IntegerRecommendedDid child participate in occupational therapy
0;1
0 = No; 1 = Yesoccupational_therapy
txhxocctx1startDateRecommendedoccupational therapy start datedate_started_occupational_therapy
txhxocctx1ongIntegerRecommendedoccupational therapy ongoing?
0;1
0 = No; 1 = Yesstill_receiving_occupational_therapy
txhxocctx1endDateRecommendedoccupational therapy end dateif_no_date_stopped_occupational_therapy
txhxocctx1typeString10Recommendedoccupational therapy typeIndividual; Groupindividual_or_group_occupational_therapy
ot_settingString200Recommendedsetting of OTsetting_occupational_therapy
ot_otherString25RecommendedOther setting of Occupational Therapyother_setting_occupational_therapy
ot1_week_hrsFloatRecommendedOccupational Therapy Occurrence 1:For the following intervention, how many hours per week were provided?hours_per_week_occupational_therapy
service_physicalString5RecommendedPhysical TherapyYes; Nophysical_therapy
pt_startDateRecommendedDate started Physical Therapy:date_started_physical_therapy
pt_ongoingIntegerRecommendedStill receiving Physical Therapy?0;10 = No; 1 = Yesstill_receiving_physical_therapy
pt_endDateRecommendeddate subject ended PTdate_stopped_physical_therapy
pt_typeIntegerRecommendedIndividual or Group Physical Therapy?0;10 = Group; 1 = Individualindividual_group_physical_therapy
pt_settingString200Recommendedsetting of PTsetting_physical_therapy
pt_otherString25RecommendedOther setting of Physical Therapy:other_setting_physical_therapy
pt_week_hrsFloatRecommendedAverage hours per week at Physical Therapy:hours_per_week_physical_therapy
txhx1speechtx1IntegerRecommendedDid child participate in speech therapy
0;1
0 = No; 1 = Yesspeech_language_therapy
txhxspeechtx1startDateRecommendedspeech therapy start datedate_started_speech_language
txhxspeechtx1ongIntegerRecommendedspeech therapy ongoing?
0;1
0 = No; 1 = Yesstill_receiving_speech_language_therapy
txhxspeechtx1endDateRecommendedspeech therapy end datedate_stopped_speech_language
txhxspeechtx1typeString10Recommendedspeech therapy typeIndividual; Groupindividual_or_group_speech_language
speech_settingIntegerRecommendedSetting of Speech-Lanugage Therapy:0::30 = Daycare/preschool; 1 = Home; 2 = Office/Clinic; 3= Othersetting_speech_lanugage_therapy
speech_otherString25RecommendedOther setting of Speech-Lanugage Therapyother_setting_speech_lanugage_therapy
speech_week_hrsFloatRecommendedAverage hours per week at Speech-Language Therapy:hours_per_week_speech_language
cbe_intervIntegerRecommendedComprehensive Behavioral/Educational Interventions0;10 = No; 1 = Yescomp_behavioral_educational_interventions
cbe_startDateRecommendedDate Started Comprehensive Behavioral/Educational Interventionsdate_started_comprehensive_behavioral
cbe_ongoingIntegerRecommendedStill receiving Comprehensive Behavioral/Educational Interventions?0;10 = No; 1 = Yesstill_receiving_comprehensive_behavioral
cbe_endDateRecommendedIf, No, date stopped Comprehensive Behavioral/Educational Interventionsdate_stopped_comprehensive
sbe_typeIntegerRecommendedIndividual or Group Comprehensive Behavioral/Educational Interventions?0;10 = Group; 1 = Individualindividual_or_group_comprehensive_behavioral
cbe_settingIntegerRecommendedSetting of Comprehensive Behavioral/Educational Interventions0::30 = Daycare/preschool; 1 = Home; 2 = Office/Clinic; 3= Othersetting_comprehensive_behavioral
cbe_otherString25RecommendedOther setting of Comprehensive Behavioral/Educational Interventionsother_setting_comprehensive_behavioral
cbe_week_hrsFloatRecommendedAverage hours per week at Comprehensive Behavioral/Educational Interventions:average_hours_per_week_comp_behavioral
other_interventionIntegerRecommendedOther Intervention0;10 = No; 1 = Yes
other_startDateRecommendeddate subject began other therapydate_started_other_intervention
other_ongoingIntegerRecommendedStill receiving Other Intervention?0;10 = No; 1 = Yesstill_receiving_other_intervention
other_endDateRecommendeddate subject ended other therapyif_no_date_stopped_other_intervention
othertherapy1_group_indString50RecommendedOther Therapy Occurrence 1: For the following intervention, how was it provided?Individual;Group;Bothindividual_or_group_other_intervention
other_settingString200Recommendedsetting of other therapysetting_other_intervention
other_otherString50RecommendedOther Setting of Other Intervention:other_setting_other_intervention
othertherapy1_week_hrsFloatRecommendedOther Therapy Occurrence 1:For the following intervention, how many hours per week were provided?average_hours_per_week_other_intervention
intervention_averageFloatRecommendedOn average, how many hours per week has your child been in intervention since your last visit to our research program?hours_per_week_since_last_visit
intervention_average_yearFloatRecommendedOn average, how many hours per week has your child been in intervention in the past year?hours_per_week_in_past_year
alternative_therapiesIntegerRecommendedDid your child receive complementory or alternative therapies used to treat symptoms of autism?0;10 = No; 1 = Yesreceive_alternative_therapies
alternative_specifyString50RecommendedIf Yes, please specify:please_specify_alternative_therapy
pharma_intIntegerRecommended8. Did your child receive medical or pharmacological interventions?0;10 = No; 1 = Yesmedical_pharmacological_intervention
pharma_specifyString50RecommendedIf, Yes, please specify:specify_pharm_intervention
assess_36mIntegerRecommendedIs this your child's 36-month assessment?0;10 = No; 1 = Yesthis_your_childs_36_month_assessment
intervention_planIntegerRecommendedDo you plan to continue your child's enrollment in intervention during the next year?0;10 = No; 1 = Yesplan_continue_childs_enrollment_intervention
future_interventionString100RecommendedPlan to continue following interventions
program_week_hrsFloatRecommendedAverage hours per week (of early intervention or birth to three programs).average_hours_per_week
total_hrsFloatRecommendedTotal hours since last visit (of early intervention or birth to three programs).total_hours_since_last_visit
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form dataanything_tell_us_about_services
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: bsrc_intervention01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.