Loading...

Login
Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Clinical Assessment Interview for Negative Symptoms -CAINS

cains

01

Clinical Assessment Interview for Negative Symptoms

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fielddate_of_rating
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age
genderString20RequiredSex of the subjectM;FM = Male; F = Female
cains_01_mot_famIntegerRecommended1. Motivation for Close Family/Spouse/Partner Relationships0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains1, cains_01
cains_02_mot_friendIntegerRecommended2. Motivation for Close Friendships/Romantic Relationships0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains2, cains_02
cains_03_frq_soc_pastIntegerRecommended3. Frequency of Pleasurable Social Activities - Past Week0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains3, cains_03
cains_04_frq_soc_nextIntegerRecommended4. Frequency of Expected Pleasurable Social Activities - Next Week0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains4, cains_04
cains_05_mot_workIntegerRecommended5. Motivation for Work and School Activities0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains5, cains_05
cains_06_frq_work_nextIntegerRecommended6. Expected Pleasurable Work and School Activities - Next Week0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains6, cains_06
cains_07_mot_recIntegerRecommended7. Motivation for Recreational Activities0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains7, cains_07
cains_08_frq_rec_pastIntegerRecommended8. Frequency of Pleasurable Recreational Activities - Past Week0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains8, cains_08
cains_09_frq_rec_nextIntegerRecommended9. Frequency of Expected Pleasure from Recreational Activities - Next Week0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains9, cains_09
cains_map_ssumIntegerRequiredMotivation and Pleasure Total Score (questions 1-9 added)0::36; 999
cains_10_fac_expIntegerRecommended10. Facial Expression0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains10, cains_10
cains_11_voc_expIntegerRecommended11. Vocal Expression0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains11, cains_11
cains_12_exp_gesIntegerRecommended12. Expressive Gestures0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains12, cains_12
cains_13_qty_speechIntegerRecommended13. Quantity of Speech0::40= No Impairment; 1= Mild deficit; 2= Moderate Deficit; 3= Moderately Severe Deficit; 4= Severe deficitcains13, cains_13
cains_exp_ssumIntegerRequiredExpression Items Total Score (questions 10-13 added)0::16; 999
cains_ssumIntegerRequiredCAINS Total Score (MAP_ssum + EXP_ssum)0::52; 999
t1wkIntegerRecommendedWeeks since Treatment Session 1tpt
cains_social_avgFloatRecommendedItems Averaged within the Social domain
cains_vocational_avgFloatRecommendedItems Averaged within the Vocational domain
cains_recreation_avgFloatRecommendedItems Averaged within the Recreational domain
cains_expression_avgFloatRecommendedItems Averaged within the Expression domain
aescodeIntegerRecommendedStaff code number of person completing this formrater
dodeString10RecommendedDate of Data Entrydate_of_entry
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datanotes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: cains01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.