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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Description
Value Range
Notes
Data Structures with shared data
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Child Anxiety Impact Scale

cais

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectpid
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visittimpt
visdayIntegerRecommendedNumber of days from study baseline to date of visitdaycais
cais01IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Being with a group of strangers0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais02IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Completing assignment in class0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais03IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Concentrating on his/her work0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais04IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Doing fun things.0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais05IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Doing homework0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais06IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Eating in public, away from home, or at a friends house0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais07IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Eating with other kids0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais08IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Getting along with his or her brothers or sisters0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais09IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Getting along with his or her parents0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais10IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Getting good grades0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais11IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Getting ready for bed at night0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais12IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Getting to school on time0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais13IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Giving oral reports or reading out loud0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais14IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Going on a date0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais15IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Going shopping or trying on clothes0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais16IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Going to a friends house during the day0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais17IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Going to a sports event or ball game0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais18IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Having a boyfriend / girlfriend0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais19IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Having relatives visit0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais20IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Leaving the house0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais21IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Making new friends0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais22IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Sleeping at night0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais23IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Spending the night at a friends house0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais24IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Taking tests or exams0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais25IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Talking on the phone0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais26IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Visiting relatives0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais27IntegerRecommendedHow much have your anxiety symptoms caused problems for you over the last two weeks - Writing in class0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais28aIntegerRecommendedOverall, how much have your anxiety symptoms caused Problems for you at school?0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais28bIntegerRecommendedOverall, how much have your anxiety symptoms caused Problems for you socially, that is with friends?0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
cais28cIntegerRecommendedOverall, how much have your anxiety symptoms caused Problems for you with family or at home?0::30 = Not at all;1 = Just a little;2 = Pretty much;3 = Very much
respondIntegerRecommendedRespondent1::4;9991 = Parent; 2 = Teacher; 3=Self; 4= Other; 999 = Not available
respond_detailIntegerRecommendedRespondent detail1::8;9991 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
respond_detail_oth_specString255RecommendedRespondent details
respondent_other_specifyString50RecommendedRespondent: Other (specify)nfcais_d
caisschIntegerRecommendedChild Anxiety Impact Scale - Academic Difficultiessum(cais02,cais03,cais04,cais05,cais07,cais10,cais12,cais13,cais24,cais27)
caissocIntegerRecommendedChild Anxiety Impact Scale - Social Difficultiessum(cais01,cais06,cais14,cais15,cais16,cais17,cais18,cais20,cais21,cais23,cais25)
caishfIntegerRecommendedChild Anxiety Impact Scale - Home/Family Difficultiessum(cais08,cais09,cais11,cais19,cais22,cais26)
caistotIntegerRecommendedChild Anxiety Impact Scale - Total Difficultiessum(caissch,caissoc,caishf)
imputationIntegerRecommendedIndicator noting imputed data set number1::20
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: cais01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.