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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Concise Associated Symptoms Tracking Scale

casts

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, subject_id, subjectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldvisit_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
cast_01IntegerRecommended1. I feel anxious all the time.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Doneanxious, castsr1
cast_02IntegerRecommended2. I have been feeling really good lately.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr2, feelgood
cast_03IntegerRecommended3. I feel as if I am going to have a heart attack.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr3, hrt_attk
cast_04IntegerRecommended4. I wish people would just leave me alone.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donealone, castsr4
cast_05IntegerRecommended5. I have been having more trouble sleeping than usual.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr5, sleeptrb
cast_06IntegerRecommended6. I am feeling restless, as if I have to move constantly.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr6, restless
cast_07IntegerRecommended7. I suddenly feel very confident.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr7, confiden
cast_08IntegerRecommended8. I am more talkative than normal.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr8, talkativ
cast_09IntegerRecommended9. I feel very uptight.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr9, uptight
cast_10IntegerRecommended10. I find myself saying or doing things without thinking.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr10, nothink
cast_11IntegerRecommended11. I feel very tense and I cannot relax.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr11, tense
cast_12IntegerRecommended12. I can feel my heart racing.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr12, hrt_race
cast_13IntegerRecommended13. Lately everything seems to be annoying me.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Doneannoy, castsr13
cast_14IntegerRecommended14. I slept very little last night.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr14, sleepltl
cast_15IntegerRecommended15. I cannot sit still.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr15, sitstil
cast_16IntegerRecommended16. I find people get on my nerves easily.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr16, nerves
cast_17IntegerRecommended17. I have been having lots of great ideas.0::50=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree; 5=Not Donecastsr17, ideas
cast_score_totalFloatRecommendedTotal Score
visitString50RecommendedVisit nameCharacter description of each type of visitvisit_name
siteString100RecommendedSiteStudy Sitesite_uid
dsmversString10Recommendedversion/name of assessmentform_name
date_updatedDateRecommendedDate record updatededit_date
session_idString20Recommendedsession ID/screening IDscreeningid
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, losttststfld
subject_descriptionString4,000RecommendedSubject related information (e.g the affection, phenotype, disease information, etc.).
studyString100RecommendedStudy
weekFloatRecommendedWeek in level/study99=week 10-week 14week1
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interviewphone
days_baselineIntegerRecommendedDays since baselinedate
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: casts01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.