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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Centrality of Event Scale

ces

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
ces1IntegerRecommended1. This event has become a reference point for the way I understand new experiences.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces2IntegerRecommended2. I automatically see connections and similarities between this event and experiences in my present life.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces3IntegerRecommended3. I feel that this event has become part of my identity1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_1
ces4IntegerRecommended4. This event can be seen as a symbol or mark of important themes in my life.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces5IntegerRecommended5. This event is making my life different from the life of most other people.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces6IntegerRecommended6. This event has become a reference point for the way I understand myself and the world.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no data
ces7IntegerRecommended7. I believe that people who haven't experienced this type of event think differently than I do.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces8IntegerRecommended8. This event tells a lot about who I am.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces9IntegerRecommended9. I often see connections and similarities between this event and my current relationships with other people.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces10IntegerRecommended10. I feel that this event has become a central part of my life story.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_3
ces11IntegerRecommended11. I believe that people who haven't experienced this type of event, have a different way of looking upon themselves than I have.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces12IntegerRecommended12. This event has colored the way I think and feel about other experiences.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_4
ces14IntegerRecommended14. If I were to weave a carpet of my life, this event would be in the middle with threads going out to many other experiences.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces15IntegerRecommended15. My life story can be divided into two main chapters: one is before and one is after this event happened.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces13IntegerRecommended13. This event has become a reference point for the way I look upon my future.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no datacentrality_of_event_2
ces16IntegerRecommended16. This event permanently changed my life.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_5
ces17IntegerRecommended17. I often think about the effects this event will have on my future.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_6
ces18IntegerRecommended18. This event was a turning point in my life.1::5; 99995= Totally Disagree; 4= Disagree; 3= Neither Disagree or Agree; 2= Agree; 1= Totally Agree; 9999= no datacentrality_of_event_7
ces19IntegerRecommended19. If this event had not happened to me, I would be a different person today.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
ces20IntegerRecommended20. When I reflect upon my future, I often think back to this event.1::5; 99991= Totally Disagree; 2= Disagree; 3= Neither Disagree or Agree; 4= Agree; 5= Totally Agree; 9999= no data
cestotIntegerRecommendedCES score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ces01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.