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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Neurodevelopmental Phenotype



Neurologic and developmental phenotype as defined by the laboratory of Dr. Christopher A. Walsh at Boston Children's Hospital

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Element NameData TypeSizeRequiredConditionDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
raceString30RequiredRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
ethnicityString30RequiredEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
phenotypeString200RequiredPhenotype/diagnosis for the subject
proband_subjectkeyGUIDRecommendedProband's NDAR GUID. Proband=child with Autism or other condition, which is a Study primary intererest groupNDAR*
rel_to_probandString25RecommendedThe relationship of this individual to the ProbandProband;Self;Mother;Father;Sibling;Other
consanguinityString10RecommendedThe parents of this individual are consanguinousTRUE;FALSE;UNKNOWN
consanguinity_detailsString200RecommendedDescription of parental consanguinous relationship
asd_yes_noString10RequiredHas the subject been diagnosed with Autism Spectrum Disorder?
NK = Not known
asd_detailsString200RecommendedDetails of ASD diagnosis
dd_yes_noString10RecommendedHas the subject been diagnosed with Developmental Disorder?
NK = Not known
dd_detailsString200RecommendedDetails of DD diagnosis
attentiondisorderIntegerRecommendedDoes (did) the subject have Attention Deficit Disorder +/- Hyperactivity?
0 = No/False; 1 = Yes/True; 2 = Unknown
dsmiv_asdString10RequiredThis individual meets DSMIV criteria for autistic disorderTRUE;FALSE;UNKNOWN
iq_testString10RequiredThis individual has had an IQ testTRUE;FALSE;UNKNOWN; REFUSED
iqtestnameString255RecommendedName of IQ test given to participant
iqIntegerConditionaliq_test == 'true' || iq_test == 'TRUE'IQ score as defined by the completion of an appropriate assessement
otherdevelopmentaltestIntegerRecommendedHas any other developmental test been done?
0 = No/False; 1 = Yes/True; 2 = Unknown
developmentaltestdetailsString200RecommendedDetails of other developmental testsdevelopmental_test_details
rev_headseizureString50RequiredSeizuresYes; No; NK; NSNK= Not known; NS = Not sure
rev_headseizuredetailString200RecommendedDetails of the seizure history and/or type(s)
microcephalyString10RecommendedThis individual has a head circumference smaller than 2 standard deviations below the mean for gender and ageTRUE; FALSE; UNKNOWN
macrocephalyString10RecommendedThis individual has a head circumference larger than 2 standard deviations above the mean for gender and ageTRUE; FALSE; UNKNOWN
head_circumference_detailsString255RecommendedDetails of head circumference
hearinglossIntegerRequiredHearing Loss: Does (did) the subject have Hearing loss?
0 = No/False; 1 = Yes/True; 2 = Unknown
hearinglossdetailString200RecommendedDetails of the hearing loss
visionproblemsIntegerRecommendedVision: Does (did) the subject have Vision/eye problems?
0 = No/False; 1 = Yes/True; 2 = Unknown
visionproblemdetailString255RecommendedDetails of the vision problemvision_problem_details
neurologic_problem_otherString10RecommendedThis individual been diagnosed with another neurologic problem(s)TRUE;FALSE;UNKNOWN
neurologic_problem_detailsString200RecommendedDetails of the other neurologic problem(s)
eegtestString10RecommendedDid the subject take a EEG exam?
NK = Not known
eeg_resultString255RecommendedDetails of EEG result(s)
ctscanofbrainString10RecommendedDid the subject take a CT scan of brain?
NK = Not known
ct_head_resultString255RecommendedDetails of the head CT result(s)
mribrainscanString10RecommendedDid the subject take an MRI scan of brain?
NK = Not known
mri_brain_resultString255RecommendedDetails of the brain MRI result(s)
other_phenotype_detailsString255RecommendedDetails of other phenotype(s)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: chb_medical_history01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.