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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
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Notes
Data Structures with shared data
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IAN Child with ASD

childwithasd

02

Child with autism spectrum disorder (ASD) measures as defined by the Interactive Autism Network (IAN)

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*null
ianianresearchidString10RecommendedIAN_Research_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#IAN_Research_idIAN_Research_id
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age_in_years
ianrecordnumberIntegerRecommendedrecord_number, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#record_numberrecord_number
iandonotdeleteFloatRecommendedDO_NOT_DELETE, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#DO_NOT_DELETEDO_NOT_DELETE
ianformcompletedIntegerRecommendedform_completed, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#form_completedform_completed
ianscientificversionString20Recommendedscientific_version, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#scientific_versionscientific_version
ianyearofassessmentIntegerRecommendedyear_of_assessment, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#year_of_assessmentyear_of_assessment
ianinformantidString10Recommendedinformant_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#informant_idinformant_id
ianfirstasddxIntegerRecommendedfirst_asd_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_asd_dxfirst_asd_dx
ianfirstasddxdateString10Recommendedfirst_asd_dx_date, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_asd_dx_datefirst_asd_dx_date
ianfirstasddxageIntegerRecommendedfirst_asd_dx_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_asd_dx_agefirst_asd_dx_age
ianfirstasddxpersonIntegerRecommendedfirst_asd_dx_person, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_asd_dx_personfirst_asd_dx_person
ianfirstasddxlocationIntegerRecommendedfirst_asd_dx_location, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_asd_dx_locationfirst_asd_dx_location
iancurasddxdiffIntegerRecommendedcur_asd_dx_diff, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dx_diffcur_asd_dx_diff
iancurasddxIntegerRecommendedcur_asd_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dxcur_asd_dx
iancurasddxdateString10Recommendedcur_asd_dx_date, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dx_datecur_asd_dx_date
iancurasddxageIntegerRecommendedcur_asd_dx_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dx_agecur_asd_dx_age
iancurasddxpersonIntegerRecommendedcur_asd_dx_person, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dx_personcur_asd_dx_person
iancurasddxlocationIntegerRecommendedcur_asd_dx_location, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cur_asd_dx_locationcur_asd_dx_location
ianfirstconcernageapprxIntegerRecommendedfirst_concern_age_apprx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_concern_age_apprxfirst_concern_age_apprx
ianfirstconcernagespecFloatRecommendedfirst_concern_age_spec, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_concern_age_specfirst_concern_age_spec
ianfirstconcernnewIntegerRecommendedfirst_concern_New, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#first_concern_Newfirst_concern_New
ianloseskillsIntegerRecommendedlose_skills, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#lose_skillslose_skills
ianskillslostlevelIntegerRecommendedskills_lost_level, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#skills_lost_levelskills_lost_level
ianlostskillsIntegerRecommendedlost_skills, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#lost_skillslost_skills
ianskillslostageFloatRecommendedskills_lost_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#skills_lost_ageskills_lost_age
ianplateauIntegerRecommendedplateau, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#plateauplateau
ianplateauageFloatRecommendedplateau_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#plateau_ageplateau_age
ianiqtestIntegerRecommendediq_test, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#iq_testiq_test
ianiqtestscoreIntegerRecommendediq_test_score, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#iq_test_scoreiq_test_score
ianadosIntegerRecommendedados, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#adosados
ianadosasddxIntegerRecommendedados_asd_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#ados_asd_dxados_asd_dx
ianadirIntegerRecommendedadir, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#adiradir
ianadirscoredxIntegerRecommendedadir_score_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#adir_score_dxadir_score_dx
ianmriIntegerRecommendedmri, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#mrimri
ianmriresultsIntegerRecommendedmri_results, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#mri_resultsmri_results
ianctscanIntegerRecommendedct_scan, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#ct_scanct_scan
ianctscanresultsIntegerRecommendedct_scan_results, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#ct_scan_resultsct_scan_results
ianeegIntegerRecommendedeeg, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#eegeeg
ianeegresultsIntegerRecommendedeeg_results, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#eeg_resultseeg_results
ianwalkageapprxIntegerRecommendedwalk_age_apprx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#walk_age_apprxwalk_age_apprx
ianwalkageFloatRecommendedwalk_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#walk_agewalk_age
iantalkageapprxIntegerRecommendedtalk_age_apprx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#talk_age_apprxtalk_age_apprx
iantalkageFloatRecommendedtalk_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#talk_agetalk_age
ianagemngflspeachIntegerRecommendedage_mngfl_speach, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#age_mngfl_speachage_mngfl_speach
iantoilettrainedageIntegerRecommendedtoilet_trained_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#toilet_trained_agetoilet_trained_age
ianpreglengthIntegerRecommendedpreg_length, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#preg_lengthpreg_length
ianbirthtypeIntegerRecommendedbirth_type, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_typebirth_type
ianbirthorderIntegerRecommendedbirth_order, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_orderbirth_order
ianbirthweightFloatRecommendedbirth_weight, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_weightbirth_weight
ianfragilexdxIntegerRecommendedfragile_x_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#fragile_x_dxfragile_x_dx
iantuberoussclerosisdxIntegerRecommendedTuberous_Sclerosis_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Tuberous_Sclerosis_dxTuberous_Sclerosis_dx
ianseizuresepilepsydxIntegerRecommendedSeizures_Epilepsy_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Seizures_Epilepsy_dxSeizures_Epilepsy_dx
ianmentalretardationdxIntegerRecommendedMental_Retardation_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Mental_Retardation_dxMental_Retardation_dx
ianmotordelayIntegerRecommendedMotor_Delay, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Motor_DelayMotor_Delay
iancpdxIntegerRecommendedCP_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#CP_dxCP_dx
iandepressiondxIntegerRecommendedDepression_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Depression_dxDepression_dx
ianbipolardisorderIntegerRecommendedBipolar_Disorder, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Bipolar_DisorderBipolar_Disorder
ianadhddxIntegerRecommendedADHD_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#ADHD_dxADHD_dx
iananxietydisorderIntegerRecommendedAnxiety_Disorder, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Anxiety_DisorderAnxiety_Disorder
ianschizophreniaIntegerRecommendedSchizophrenia, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#SchizophreniaSchizophrenia
ianschooltypeIntegerRecommendedschool_type, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#school_typeschool_type
ianschoolgradeIntegerRecommendedschool_grade, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#school_gradeschool_grade
ianspecialedpubschlIntegerRecommendedspecial_ed_pub_schl, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#special_ed_pub_schlspecial_ed_pub_schl
ianspecialedcodecurrIntegerRecommendedspecial_ed_code_curr, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#special_ed_code_currspecial_ed_code_curr
ianclassroomsettingIntegerRecommendedclassroom_setting, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#classroom_settingclassroom_setting
ianhasaideIntegerRecommendedhas_aide, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#has_aidehas_aide
ianclassroominclusionIntegerRecommendedclassroom_inclusion, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#classroom_inclusionclassroom_inclusion
iana2nddegreedx1IntegerRecommendeda_2nd_Degree_Dx_1, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_1a_2nd_Degree_Dx_1
iana2nddegreedx2IntegerRecommendeda_2nd_Degree_Dx_2, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_2a_2nd_Degree_Dx_2
iana2nddegreedx3IntegerRecommendeda_2nd_Degree_Dx_3, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_3a_2nd_Degree_Dx_3
iana2nddegreedx4IntegerRecommendeda_2nd_Degree_Dx_4, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_4a_2nd_Degree_Dx_4
iana2nddegreedx5IntegerRecommendeda_2nd_Degree_Dx_5, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_5a_2nd_Degree_Dx_5
iana2nddegreedx6IntegerRecommendeda_2nd_Degree_Dx_6, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_6a_2nd_Degree_Dx_6
iana2nddegreedx7IntegerRecommendeda_2nd_Degree_Dx_7, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#a_2nd_Degree_Dx_7a_2nd_Degree_Dx_7
iancousindx1IntegerRecommendedcousin_Dx_1, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_1cousin_Dx_1
iancousindx2IntegerRecommendedcousin_Dx_2, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_2cousin_Dx_2
iancousindx3IntegerRecommendedcousin_Dx_3, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_3cousin_Dx_3
iancousindx4IntegerRecommendedcousin_Dx_4, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_4cousin_Dx_4
iancousindx5IntegerRecommendedcousin_Dx_5, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_5cousin_Dx_5
iancousindx6IntegerRecommendedcousin_Dx_6, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_6cousin_Dx_6
iancousindx7IntegerRecommendedcousin_Dx_7, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#cousin_Dx_7cousin_Dx_7
ianprevresearchasdIntegerRecommendedprev_research_ASD, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#prev_research_ASDprev_research_ASD
ianpreviousresearchasdgeneticsIntegerRecommendedprevious_research_ASD_genetics, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#previous_research_ASD_geneticsprevious_research_ASD_genetics
ianpreviousstudyasdmedsIntegerRecommendedprevious_study_ASD_meds, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#previous_study_ASD_medsprevious_study_ASD_meds
ianformlengthIntegerRecommendedform_length, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#form_lengthform_length
ianrelativesasddxIntegerRecommendedrelatives_asd_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_asd_dxrelatives_asd_dx
ianrelativesfragilexdxIntegerRecommendedrelatives_fragile_X_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_fragile_X_dxrelatives_fragile_X_dx
ianrelativesseizuresepilepsydxIntegerRecommendedrelatives_seizures_epilepsy_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_seizures_epilepsy_dxrelatives_seizures_epilepsy_dx
ianrelativesmentalretrdtionIntegerRecommendedrelatives_mental_retrdtion, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_mental_retrdtionrelatives_mental_retrdtion
ianrelativesbipolardxIntegerRecommendedrelatives_bipolar_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_bipolar_dxrelatives_bipolar_dx
ianrelativesschizophreniadxIntegerRecommendedrelatives_schizophrenia_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#relatives_schizophrenia_dxrelatives_schizophrenia_dx
ianenrollmenttypeString50Recommendedenrollment_type, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#enrollment_typeenrollment_type
ianfirstasddxcompletenessString15Recommendedfirst_asd_dx_completeness, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#first_asd_dx_completenessfirst_asd_dx_completeness
iancurasddxcompletenessString15Recommendedcur_asd_dx_completeness, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#cur_asd_dx_completenesscur_asd_dx_completeness
ianagefirstdiagnosisFloatRecommendedage_first_diagnosis, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#age_first_diagnosisage_first_diagnosis
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: childwithasd02 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.