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Childrens Hospital Medical History

chmedhx

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
abnormalbpdateddDateRecommendedOther renal abnormality Abnormal BP Dateotherrenalabnormalityabnormalb
abnormalbpimagingString25RecommendedOther renal abnormality Abnormal BP ImagingRenal/bladder US; VCUGotherrenalabnormalityabnormalb5
abnormalbpongoingString5RecommendedOther renal abnormality Abnormal BP OngoingYes; Nootherrenalabnormalityabnormalb4
agenesisdateddDateRecommendedOther renal abnormality Agenesis Dateotherrenalabnormalityagenesisd
agenesisimagingString25RecommendedOther renal abnormality Agenesis imagingRenal/bladder US; VCUGotherrenalabnormalityagenesisi
agenesisongoingString5RecommendedOther renal abnormality Agenesis OngoingYes; Nootherrenalabnormalityagenesiso
hydronephrosisdateddDateRecommendedOther renal abnormality Hydronephrosis Dateotherrenalabnormalityhydroneph
hydronephrosisimagingString25RecommendedOther renal abnormality Hydronephrosis imagingRenal/bladder US; VCUGotherrenalabnormalityhydroneph5
hydronephrosisongoingString5RecommendedOther renal abnormality Hydronephrosis OngoingYes; Nootherrenalabnormalityhydroneph4
hypoplasiadateddDateRecommendedOther renal abnormality Hypoplasia Dateotherrenalabnormalityhypoplasi
hypoplasiaongoingString5RecommendedOther renal abnormality Hypoplasia OngoingYes; Nootherrenalabnormalityhypoplasi4
hypoplasiaimagingString25RecommendedOther renal abnormality Hypoplasia imagingRenal/bladder US; VCUGotherrenalabnormalityhypoplasi5
orenalabString10RecommendedOther renal abnormalityYes; No; Unknown; N/Aotherrenalabnormality
orenalab_otherongoString5RecommendedOther renal abnormality Other OngoingYes; Nootherrenalabnormalityotherongo
orenalab_otherimagString25RecommendedOther renal abnormality If Other imagingRenal/bladder US; VCUGotherrenalabnormalityotherimag
orenalab_otherddDateRecommendedOther renal abnormality Other DDotherrenalabnormalityotherdd
orenalab_otherspecString25RecommendedOther renal abnormality Other specifyotherrenalabnormalityotherspec
utidateddDateRecommendedOther renal abnormality UTI Dateotherrenalabnormalityutidatedd
utiongoingString5RecommendedOther renal abnormality UTI OngoingYes; Norenalabnormalityutiongoing
utiimagingString25RecommendedOther renal abnormality UTI imagingRenal/bladder US; VCUGotherrenalabnormalityutiimagin
vurdateddDateRecommendedOther renal abnormality VUR Dateotherrenalabnormalityvurdatedd
vurimagingString25RecommendedOther renal abnormality VUR imagingRenal/bladder US; VCUGotherrenalabnormalityvurimagin
vurongoingString5RecommendedOther renal abnormality VUR OngoingYes; Nootherrenalabnormalityvurongoin
rev_gastrootherString50RecommendedOther feeding difficultiesYes;No;NKNK = Not knownot_fdif, otherfeedingdifficulties
ot_fdif_dateddDateRecommendedOther feeding difficulties Dateotherfeedingdifficultiesdatedd
ot_fdif_ongoinString5RecommendedOther feeding difficulties OngoingYes; Nootherfeedingdifficultiesongoin
ot_fdif_specifString25RecommendedOther feeding difficulties If yes specifyotherfeedingdifficultiesifyess, otherfeedingdifficultiesspecif
rev_pulbreathabString50RecommendedAbnormal BreathingYes;No;NKNK = Not knownabnormalbreathing
abnormalbreathingdateddDateRecommendedAbnormal breathing Date
abnormalbreathingongoingString5RecommendedAbnormal breathing OngoingYes; No
rev_rythmString10RecommendedAbnormal rhythm or heart rateYes;No;NKNK = Not knownab_hrate, abnormalrhythmorheartrate
ab_hratedatedDateRecommendedAbnormal rhythm or heart rate Dateabnormalrhythmorheartratedated
ab_hrateongoiString5RecommendedAbnormal rhythm or heart rate OngoingYes; Noabnormalrhythmorheartrateongoi
alt_otr_csString25RecommendedAlteration in other CSrelevant gene eg SDHalterationinothercsrelevantgen
anemiaString10RecommendedAnemiaYes; No; Unknown; N/A
anemiadateddDateRecommendedAnemia Date
anemiaongoingString5RecommendedAnemia OngoingYes; No
child_anxietyString50RecommendedDoes (did) the Child have an Anxiety Disorder?Yes; No; NK; NSNK= Not known; NS = Not sureanxietydisorder
anxietydisorderdateddDateRecommendedAnxiety Disorder Date
anxietydisorderongoingString5RecommendedAnxiety Disorder OngoingYes; No
rev_pulaspirationString50RecommendedAspirationYes;No;NKNK = Not knownaspiration
aspirationdateddDateRecommendedAspiration Date
aspirationongoingString5RecommendedAspiration OngoingYes; No
rev_pulasthmaString50RecommendedAsthmaYes;No;NKNK = Not knownasthma
asthmadateddDateRecommendedAsthma Date
asthmaongoingString5RecommendedAsthma OngoingYes; No
attentiondeficitString10RecommendedAttention DeficitYes; No; Unknown; N/A
attentiondeficitdateddDateRecommendedAttention Deficit Date
attentiondeficitongoingString5RecommendedAttention Deficit OngoingYes; No
begunexperiencepubertyString10RecommendedHas the child begun to experience or completed pubertyYes; No; Unknown; N/Ahaschildbegunexperiencepuberty
pubertydateddDateRecommendedHas the child begun to experience or completed puberty Datebegunexperiencepubertydatedd, haschildbegunexperiencepuberty2
pubertyongoingString5RecommendedHas the child begun to experience or completed puberty OngoingYes; Nobegunexperiencepubertyongoing, haschildbegunexperiencepuberty5
othmem_bipolarString50RecommendedBipolar disorder (Manic/depression)Yes;No; NKNK = Not knownbipolardisorder
bipolardisorderdateddDateRecommendedBipolar Disorder Manic Depression Date
bipolardisorderongoingString5RecommendedBipolar Disorder Manic Depression OngoingYes; No
rev_skinbirthmarkString50RecommendedBirthmarks (e.g., cafe-au-lait spots, white spots)Yes;No;NKNK = Not knownbirthmarks
birthmarksdateddDateRecommendedBirthmarks Date
birthmarksongoingString5RecommendedBirthmarks OngoingYes; No
rev_hembleeddisorderString50RecommendedBleeding disorderYes;No;NKNK = Not knownbleed_dis, bleedingdisorder
bleed_disdateddDateRecommendedBleeding disorder Datebleedingdisorderdatedd
bleed_disifye_clinicalIntegerRecommendedBleeding Disorder if yes Clinical0;10=Unchecked box; 1=Checked boxbleedingdisorderifye_clinical
bleed_disifye_labbasedIntegerRecommendedBleeding Disorder if yes Lab-based0;10=Unchecked box; 1=Checked boxbleedingdisorderifye_labbased
bleed_disifye_unknownIntegerRecommendedBleeding Disorder if yes Unknown0;10=Unchecked box; 1=Checked boxbleedingdisorderifye_unknown
bleedingdisorderongoingString5RecommendedBleeding disorder OngoingYes; No
bonecystsString10RecommendedBone cystsYes; No; Unknown; N/A
bonecystsdateddDateRecommendedBone cysts Date
bonecystsongoingString5RecommendedBone cysts OngoingYes; No
breastString35RecommendedBreast developmentYes; No; Not applicable; Yes but date of consent unknownbreastdevelopment
breastageofonesetIntegerRecommendedBreast development age of oneset - yearsbreastdevelopmentageofoneset
breastdateofonesetddDateRecommendedBreast development Date of onesetbreastdevelopmentdateofonesetd
tsmfemaleIntegerRecommendedTSM Female development stage1::5; 9; 9998; 99991 = Prepubertal. No breast tissue; 2 = Areolar enlargement with breast bud; 3 = Enlargement of breast and areola as single mound; 4 = Projection of areola above breast as double mound; 5 = Adult. Papilla projects out of areola that is part of breast contour; 9 = Missing value; 9998 =subject skipped; 9999=not applicable--subject is not femalebreastdevelopmenttannerstage, breasttannerstage
ctdateddDateRecommendedCT date DDifyesctdatedd
ctscanresultIntegerRecommendedDetails of MRI/CT scan result(s)1;2;31 = Normal; 2 = Abnormal; 3 = Unknownctresults, ifyesctresults
cardio_tscIntegerRecommendedCardiovascular - TSC-related cardiac lesions1; 2; 91 = Yes; 2 = No; 9 = Unknowncardiaclesions, cardiaclesionsdefect
cardiaclesionsdateddDateRecommendedTSC related cardiac lesions Date
cardiaclesionsongoingString5RecommendedTSC related cardiac lesions OngoingYes; No
cardiacdefectString10RecommendedCardiac defectYes; No; Unknown; N/A
cardiacdefectddDateRecommendedCardiac defect DD
cardiacdefectongoingString5RecommendedCardiac defect OngoingYes; No
rev_immunocellimmunedefString50RecommendedCell Mediated Immune Def.Yes;No;NKNK = Not knowncellmed, cellmediatedimmunedeficiency
cellmeddaDateRecommendedCellmediated immune deficiency Datecellmediatedimmunedeficiencyda, cellmediatedimmunedeficiencyda2
cellmedonString5RecommendedCellmediated immune deficiency OngoingYes; Nocellmediatedimmunedeficiencyon
fhxcpString5RecommendedCerebral PalsyYes;No; NKNK = Not knowncerebralpalsy, cerebralpalsy2
cerebralpalsydateddDateRecommendedCerebral Palsy Date
cerebralpalsyongoingString5RecommendedCerebral Palsy OngoingYes; No
changesincelastvisitString10RecommendedHave there been any changes or development of any medical problemsconditions in the following body systems or in the status of genetic testing since the last study visitYes; No; Unknownhavetherebeenchangessincelastv
chrommicroyearIntegerRecommendedChromosomal microarray year if knownchromosomalmicroarrayyear
chromanalysisyearIntegerRecommendedChromosome analysis karyotype year if knownchromosomeanalysisyear
rev_mouthcleftlipString50RecommendedIs there a cleft lip and/or cleft palate?Yes;No;NKNK = Not knowncleftlip
cleftlipdateddDateRecommendedCleft lip Date
cleftlipongoingString5RecommendedCleft lip OngoingYes; No
rev_mouthcleftpalateString50RecommendedCleft PalateYes;No;NKNK = Not knowncleftpalate
cleftpalatedateddDateRecommendedCleft palateDate
cleftpalateongoingString5RecommendedCleft palateOngoingYes; No
colonpolypsString10RecommendedColon polypsYes; No; Unknown; N/A
colonpolypsddDateRecommendedColon polyps DD
colonpolypsongoingString5RecommendedColon polyps OngoingYes; No
colonpolypsspecifyString50RecommendedColon polyps a If yes specify number and type
gastro_constipationString50RecommendedDoes subject have issue of constipation?Yes; No; NK; NSNK= Not known; NS = Not sureconstipation
constipationdateddDateRecommendedConstipation Date
constipationongoingString5RecommendedConstipation OngoingYes; No
rev_cardiocyanosisString50RecommendedCyanosisYes;No;NKNK = Not knowncyanosis
cyanosisdateddDateRecommendedCyanosis Date
cyanosisongoingString5RecommendedCyanosis OngoingYes; No
dtapdateddDateRecommendedImmunizations up to date DTap Dateimmunizationsuptodatedtapdated
hear_lossString10RecommendedDeafness or significant hearing lossYes;No;NKNK = Not knowndeafness
deafnessdateddDateRecommendedDeafnesssignificant hearing loss Date
deafnessongoingString5RecommendedDeafnesssignificant hearing loss OngoingYes; No
rev_teethdentalabString50RecommendedDental abnormalitiesYes;No;NKNK = Not knownden_ab, dentalabnormalities
wk_dental_dateDateRecommendedDental. Dateden_abdatedd, dentalabnormalitiesdatedd
den_abifyesspecifString100RecommendedDental abnormalities If yes specifydentalabnormalitiesifyesspecif
den_abongoingString5RecommendedDental Abnormalities OngoingYes; Nodentalabnormalitiesongoing
othmem_depressionString50RecommendedDepressionYes;No; NKNK = Not knowndepression
depressiondateddDateRecommendedDepression Date
depressionongoingString5RecommendedDepression OngoingYes; No
dev_oralString10RecommendedDevelopment of oral conditionsYes; No; Unknowndevelopmentoralconditions
dev_oralspeString250RecommendedDevelopment of oral conditions specifydevelopmentoforalconditionsspe, oralcondspecify
rev_endodiabetesString50RecommendedDiabetesYes;No;NKNK = Not knowndiabetes
diabetesdateddDateRecommendedDiabetes Date
diabetesifyestypeString15RecommendedDiabetes G40a If yes typeType I; Type II; Unknown
diabetesongoingString5RecommendedDiabetes OngoingYes; No
dia_looseString10RecommendedDiarrhea loose stoolsYes; No; Unknown; N/Adiarrhealoosestools
dia_loosedateddDateRecommendedDiarrhea loose stools Datediarrhealoosestoolsdatedd
dia_looseongoingString5RecommendedDiarrhea loose stools OngoingYes; Nodiarrhealoosestoolsongoing
sleep_patString10RecommendedDisrupted sleep patternsYes;No;NKNK = Not knowndisruptedsleeppatterns
sleep_patdateddDateRecommendedDisrupted sleep patterns Datedisruptedsleeppatternsdatedd
sleep_patongoingString5RecommendedDisrupted sleep patterns OngoingYes; Nodisruptedsleeppatternsongoing
dysphagia_sdString10RecommendedDysphagia swallowing difficultYes; No; Unknown; N/Adysphagiaswallowingdifficult
dysphagia_sddaDateRecommendedDysphagia swallowing difficult Datedysphagiaswallowingdifficultda
dysphagia_sdonString5RecommendedDysphagia swallowing difficult OngoingYes; Nodysphagiaswallowingdifficulton
child_eatingdisString50RecommendedDoes (did) the Child have an Eating Disorder?Yes; No; NK; NSNK= Not known; NS = Not sureeatingdisorder
eatingdisorderdateddDateRecommendedEating Disorder Date
eatingdisorderongoingString5RecommendedEating Disorder OngoingYes; No
child_eatingdis_cmtString255RecommendedSpecify Child's Eating Disordereatingdisordertype
rev_skineczemaString50RecommendedEczemaYes;No;NKNK = Not knowneczema
eczemadateddDateRecommendedEczema Date
eczemaongoingString5RecommendedEczema OngoingYes; No
rev_headencephalitisString50RecommendedEncephalitisYes; No; NK; NSNK= Not known; NS = Not sureencephalitis
encephalitisdateddDateRecommendedEncephalitis Date DD
encephalitisifyestypeString25RecommendedEncephalitis If yes type of organism
encephalitisongoingString5RecommendedEncephalitis OngoingYes; No
rev_immunoenvallergyString50RecommendedEnvironmental AllergiesYes;No;NKNK = Not knownenv_allergy, environmentalallergies
env_allergydateddDateRecommendedEnvironmental allergies Dateenvironmentalallergiesdatedd
rev_immunoenvallergytypeString255RecommendedEnvironmental Allergies: Typeenvironmentalallergiesifyes
env_allergyongoingString5RecommendedEnvironmental allergies OngoingYes; Noenvironmentalallergiesongoing
fishyearIntegerRecommendedFISH year if known
rev_headfebseizString50RecommendedFebrile SeizuresYes; No; NK; NSNK= Not known; NS = Not surefebrileseizures
febseiz_eegIntegerRecommendedHead/Brain - Febrile Seizures - EEG done?1; 2; 91 = Yes; 2 = No; 9 = Unknownfebrileseizuresifyeseegdone
febrileseizuresifyeseegdonedatDateRecommendedFebrile Seizures - If yes was EEG done date
febrileseizuresifyeseegdoneresString50RecommendedFebrile Seizures - If yes was EEG done - If yes resultsNormal; Abnormal; Unknown
gtm_chromosomalIntegerRecommendedGenetic testing method: Chromosomal microarray0;10=Unchecked box; 1=Checked boxgenetictestingmethod_chromosomal, genetictestingresult_chromosomal
gtm_chromosomeaIntegerRecommendedGenetic testing method: Chromosome analysis (karyotype)0;10=Unchecked box; 1=Checked boxgenetictestingmethod_chromosomea, genetictestingresult_chromosomea
gtm_fishIntegerRecommendedGenetic testing method: FISH0;10=Unchecked box; 1=Checked boxgenetictestingmethod_fish, genetictestingresult_fish
gtm_otherpleaseIntegerRecommendedGenetic testing method: Other, please specify0;10=Unchecked box; 1=Checked boxgenetictestingmethod_otherplease, genetictestingresult_otherplease
gtm_sangerornexIntegerRecommendedGenetic testing method: Sanger or next-generation sequencing0;10=Unchecked box; 1=Checked boxgenetictestingmethod_sangerornex, genetictestingresult_sangerornex
gtm_singlegenetIntegerRecommendedGenetic testing method: Single gene testing0;10=Unchecked box; 1=Checked boxgenetictestingmethod_singlegenet, genetictestingresult_singlegenet
genetic_test_notesString255Recommendednote regarding genetic testsgenetictestingmethodotherspeci
genetictestingresultsddDateRecommendedGenetic testing results known If yes date of testing
genetic_test_otrString50RecommendedGenetic testing Other please specify
gentest_tscIntegerRecommendedGenetics - Genetic testing results known?1 :: 31 = Yes; 2 = No; 3 = Never testedgenetictestingresultsknown
hpvdateddDateRecommendedImmunizations up to date HPV Dateimmunizationsuptodatehpvdatedd
hashimotoString5RecommendedIf yes HashimotoYes; N/A; No
hashimotoonsetddDateRecommendedIf yes Hashimoto Date
hist_traumaString10RecommendedHistory of head traumaYes; No; NK; NSNK= Not known; NS = Not sureheadtrauma, historyheadtrauma
headtraumadateddDateRecommendedHistory of head trauma Datehistoryheadtraumadatedd
headtraumaifyesimagingString5RecommendedIf Head trauma were imaging studies doneYes; Nohistoryheadtraumaifyesimaging
headtraumaifyesimagingdateddDateRecommendedIf head trauma were imaging studies done Datehistoryheadtraumaifyesimagingd
headtraumaimagingify_ctIntegerRecommendedHeadTraumaImagingIfY: CT0;10=Unchecked box; 1=Checked box
headtraumaimagingify_mriIntegerRecommendedHeadTraumaImagingIfY: MRI0;10=Unchecked box; 1=Checked box
headtraumaimagingify_petIntegerRecommendedHeadTraumaImagingIfY: PET0;10=Unchecked box; 1=Checked box
headtraumaimagingify_usIntegerRecommendedHeadTraumaImagingIfY: US0;10=Unchecked box; 1=Checked box
headtraumalostconsciousnessString5RecommendedHead trauma loss of consciousnessYes; No; NKifyeslossofconciousness
headtraumaongoingString5RecommendedHistory of head trauma OngoingYes; Nohistoryheadtraumaongoing
rev_eartestString50RecommendedHearing Testing:Yes;No;NKNK = Not knownhearingtesting
hearingtestingdateddDateRecommendedHearing testing Date
rev_eartestresultString50RecommendedHearing Testing: ResultNormal;Abnormal;Unknownhearingtestingifyesresult
hearingtestingongoingString5RecommendedHearing testing OngoingYes; No
hepatitisadateddDateRecommendedImmunizations up to date Hepatitis A Dateimmunizationsuptodatehepatitis3
hepatitisbdateddDateRecommendedImmunizations up to date Hepatitis B Dateimmunizationsuptodatehepatitis
rev_endohyperthyroidismString50RecommendedHyperthyroidismYes;No;NKNK = Not knownhyperthyroidism
hyperthyroidismdateddDateRecommendedHyperthyroidism Date
hyperthyroidismongoingString5RecommendedHyperthyroidism OngoingYes; No
rev_endohypoglycemiaString50RecommendedHypoglycemiaYes;No;NKNK = Not knownhypoglycemia
hypoglycemiadateddDateRecommendedHypoglycemia Date
hypoglycemiaongoingString5RecommendedHypoglycemia OngoingYes; No
rev_endohypothyroidismString50RecommendedHypothyroidismYes;No;NKNK = Not knownhypothyroidism
hypothyroidismdateddDateRecommendedHypothyroidism Date
hypothyroidismongoingString5RecommendedHypothyroidism OngoingYes; No
brain_mri_corttubIntegerRecommendedHead/Brain - Brain MRI - Cortical tuber0; 10 = No; 1 = Yesfollow_mri_corticaltub, ifyesmriwerefollowin_corticaltub
brain_mri_subnodIntegerRecommendedHead/Brain - Brain MRI - Subependymal Nodule0; 10 = No; 1 = Yesfollow_mri_subependym1, ifyesmriwerefollowin_subependym1
brain_mri_astrocIntegerRecommendedHead/Brain - Brain MRI - Subependymal giant cell - Astrocytoma0; 10 = No; 1 = Yesfollow_mri_subependym2, ifyesmriwerefollowin_subependym2
ipvdateddDateRecommendedImmunizations up to date IPV Dateimmunizationsuptodateipvdatedd
ifyeshearingcorrecteddateddDateRecommendedIf yes was hearing corrected with hearing aids or cochlear implants If yes date corrected DD
ifyeswashearingcorrectedString5RecommendedIf yes was hearing corrected with hearing aids or cochlear implantsYes; No
immundtapIntegerRecommendedImmunologic - Immunizations up to date - Dtap0; 10 = No; 1 = Yesimm_dat_dtap, immunizationsuptodat_dtap
imm_dat_hpvIntegerRecommendedImmunizations Up to Date: HPV0;10=No; 1=Yesimmunizationsuptodat_hpv
imm_dat_hepatitisaIntegerRecommendedImmunizations Up to Date: Hepatitis A0;10=Unchecked box; 1=Checked boximmunizationsuptodat_hepatitisa
imm_dat_hepatitisbIntegerRecommendedImmunizations Up to Date: Hepatitis B0;10=Unchecked box; 1=Checked boximmunizationsuptodat_hepatitisb
imm_dat_ipvIntegerRecommendedImmunizations Up to Date: IPV0;10=Unchecked box; 1=Checked boximmunizationsuptodat_ipv
imm_dat_mmrIntegerRecommendedImmunizations Up to Date: MMR0;10=Unchecked box; 1=Checked boximmunizationsuptodat_mmr
imm_dat_prevnarIntegerRecommendedImmunizations Up to Date: Prevnar0;10=Unchecked box; 1=Checked boximmunizationsuptodat_prevnar
imm_dat_varicellaIntegerRecommendedImmunizations Up to Date: Varicella0;10=Unchecked box; 1=Checked boximmunizationsuptodat_varicella
imm_dateString10RecommendedImmunizations up to dateYes; No; Unknown; N/Aimmunizationsuptodate
imm_dateongoingString5RecommendedImmunizations up to date OngoingYes; Noimmunizationsuptodateongoing
immunoglobiniggdeficiencyString10RecommendedImmunoglobin IgG deficiencyYes; No; Unknown; N/A
immunoglobiniggdeficiencydatedDateRecommendedImmunoglobin IgG deficiency Date DD
immunoglobiniggdeficiencyongoiString5RecommendedImmunoglobin IgG deficiency OngoingYes; No
influenzavaccineString10RecommendedInfluenza vaccine this yearYes; No; Unknown; N/A
influenzavaccinedateddDateRecommendedInfluenza vaccine Date
influenzavaccineongoingString5RecommendedInfluenza vaccine OngoingYes; No
rev_pullungmalfuncString50RecommendedLung MalformationsYes;No;NK;NANK = Not knownlungmalformations
lungmalformationsdateddDateRecommendedLung malformations Date
lungmalformationsongoingString5RecommendedLung malformations OngoingYes; No
mmrdateddDateRecommendedImmunizations up to date MMR Dateimmunizationsuptodatemmrdatedd
wk_mri_dateDateRecommendedMRI. Datemridatedd
mriscanresultsIntegerRecommendedDetails of the brain MRI result(s)1;2;31 = Normal; 2 = Abnormal; 3 = Unknownmriresults
rev_immunomedallergyString50RecommendedMedication AllergiesYes;No;NK;NANK = Not known; NA=Not Applicablemedicationallergies
medicationallergiesdateddDateRecommendedMedication allergies Date
rev_immunomedallergymedString255RecommendedMedication Allergies: Medicationsmedicationallergiesifyes
medicationallergiesongoingString5RecommendedMedication allergies OngoingYes; No
rev_headmeningitisString50RecommendedMeningitisYes; No; NK; NSNK= Not known; NS = Not suremeningitis
meningitisdateddDateRecommendedMeningitis Date
rev_headmeningitisorgString255RecommendedMeningitis: Organismmeningitisifyestype
meningitisongoingString5RecommendedMeningitis OngoingYes; No
menstruationString35RecommendedMenstruationYes; No; Not applicable; Yes but date of consent unknown
menstruationageofonsetIntegerRecommendedMenstruation Age Of Onset
menstruationdateofonsetddDateRecommendedMenstruation Date Of Onset
rev_teethneonatalString50RecommendedNeonatal TeethYes;No;NKNK = Not knownneonatalteeth
neonatalteethdateddDateRecommendedNeonatal Teeth Date
neonatalteethongoingString5RecommendedNeonatal Teeth OngoingYes; No
nonrenalhamartomaString10RecommendedNonrenal hamartomaYes; No; Unknown; N/A
nonrenalhamartomadateddDateRecommendedNonrenal hamartoma Date
nonrenalhamartomaongoingString5RecommendedNonrenal hamartoma OngoingYes; No
rev_endoobesityString50RecommendedObesityYes;No;NKNK = Not knownobesity
obesitydateddDateRecommendedObesity Date
obesityongoingString5RecommendedObesity OngoingYes; No
child_ocdString50RecommendedDoes (did) the Child have Obsessive Compulsive Disorder?Yes; No; NK; NSNK= Not known; NS = Not sureobsessivecompulsivedisorder
ocddatDateRecommendedObsessiveCompulsive Disorder Dateobsessivecompulsivedisorderdat
ocddat2DateRecommendedObsessiveCompulsive Disorder Date 2obsessivecompulsivedisorderdat2
ocdongString5RecommendedObsessiveCompulsive Disorder OngoingYes; Noobsessivecompulsivedisorderong
otherabnorString10RecommendedOtherabnormalityYes; No; Unknown; N/A
otr_ren_ab_abnormalbpIntegerRecommendedOther Renal Abnormality: Abnormal BP0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_abnormalbp
otr_ren_ab_agenesisIntegerRecommendedOther Renal Abnormality: Agenesis0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_agenesis
otr_ren_ab_hydronephroIntegerRecommendedOther Renal Abnormality: Hydronephrosis0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_hydronephro
otr_ren_ab_hypoplasiaIntegerRecommendedOther Renal Abnormality: Hypoplasia0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_hypoplasia
otr_ren_ab_otherIntegerRecommendedOther Renal Abnormality: Other0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_other
otr_ren_ab_renalcellcaIntegerRecommendedOther Renal Abnormality: Renal cell carcinoma0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_renalcellca
otr_ren_ab_utiIntegerRecommendedOther Renal Abnormality: UTI0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_uti
otr_ren_ab_vurIntegerRecommendedOther Renal Abnormality: VUR0;10=Unchecked box; 1=Checked boxotherrenalabnormalit_vur
othertscdateddDateRecommendedOther TSC Date
othertscongoingString5RecommendedOther TSC OngoingYes; No
other_tsc4String255RecommendedOther TSC-Related Conditions - Other - Specifyothertscspecify
rev_earrecuotitisString50RecommendedRecurrent Otitis MediaYes; No; NK; NSNK= Not known; NS = Not sureottismedia, recurrentottismedia
ottismediadateddDateRecommendedRecurrent Otitis Media OM Date DDrecurrentottismediadatedd
ottismedianumberIntegerRecommendedIf Recurrent otitis numberrecurrentottismediaifyesnumber
ottismedianumbersincelastvisitIntegerRecommendedIf Recurrent otitis number since last visit
ottismediaongoingString5RecommendedRecurrent Otitis Media OM OngoingYes; Norecurrentottismediaongoing
rev_earrecuotitisyearIntegerRecommendedRecurrent Otitis Media: #Yearottismediayear, recurrentottismediaifyesyear
rev_earpetubeString50RecommendedPE TubesYes;No;NKNK = Not knownpeeartubes
peeartubesdateddDateRecommendedPE ear tubes Date
peeartubesongoingString5RecommendedPE ear tubes OngoingYes; No
petddDateRecommendedPET dateifyespetdd
petresIntegerRecommendedResults: PET scan1::31=Normal; 2=Abnormal; 3= Not Sureifyespetresults, petresults
ptenresults_altecsrIntegerRecommendedPTEN results: Alteration in other CS-relevant gene (e.g., SDH)0;10=Unchecked box; 1=Checked boxptenresults_alterationinothercsr
ptenresults_knowndiseasecausIntegerRecommendedPTEN results: PTEN, known disease causing0;10=Unchecked box; 1=Checked boxptenresults_ptenknowndiseasecaus
ptenresults_uncertainsignifiIntegerRecommendedPTEN results: PTEN, uncertain significance0;10=Unchecked box; 1=Checked boxptenresults_ptenuncertainsignifi
ptenskinmanifestatio_otherIntegerRecommendedPTENskinmanifestatio: Other0;10=Unchecked box; 1=Checked box
ptenskinman_paollomatouIntegerRecommendedPTENskinmanifestatio: Paollomatous papules0;10=Unchecked box; 1=Checked boxptenskinmanifestatio_paollomatou
ptenskinman_trichilemomIntegerRecommendedPTENskinmanifestatio: Trichilemommas0;10=Unchecked box; 1=Checked boxptenskinmanifestatio_trichilemom
ptenskinmanifestationsString10RecommendedPTEN skin manifestationsYes; No; Unknown; N/A
ptenskinmanifestationsongoingString5RecommendedPTEN skin manifestations OngoingYes; No
ptenskinmanifestationsotherString100RecommendedPTEN skin manifestations a If yes check all that apply Other Specifyptenskinmanifestationsspecify
prevnardateddDateRecommendedImmunizations up to date Prevnar Dateimmunizationsuptodateprevnarda
pubichairString35RecommendedPubic hair developmentYes; No; Not applicable; Yes but date of consent unknownpubichairdevelopment
pubichairageatonesetIntegerRecommendedPubic hair development Age at onesetpubichairdevelopmentageatonese
pubichairdateatonesetddDateRecommendedPubic hair development Date at onesetDDpubichairdevelopmentdateatones
tsftphgIntegerRecommendedDevelopmental pictures: Teenager's rating of Pubic Hair Growth1::5For Males: 1 = There is no pubic hair at all. 2 = There is a little soft, long, lightly colored hair 3 = The hair is darker in this stage. It is more curled 4 = The hair is now as dark and curly as that of an adult man 5 = The hair has spread out to the legs For Females: 1 = There is no pubic hair. 2 = There is a little long, lightly colored hair 3 = The hair is darker in this stage. It is coarser and more curled 4 = The hair is now as dark, curly, and coarse as that of an adult woman 5 = The hair now is like that of an adult womanpubichairdevelopmenttannerstag
rev_immunorecurinfectioIntegerRecommended73. Recurrent infections (>2 pneumonia or sinus infections/yr, >8 OM /yr, abscesses)0;1;-90=No;1=Yes;-9=Unknownrecurrentinfections
recurrentinfectionsdateddDateRecommendedRecurrent infections ie 2 pneumonia or sinus infections per year 8 OM per year abscesses Date
recurrentinfectionsongoingString5RecommendedRecurrent infections ie 2 pneumonia or sinus infections per year 8 OM per year abscesses OngoingYes; No; NK
rev_gastrorefluxString50RecommendedRefluxYes; No; NK; NSNK= Not known; NS = Not surereflux
refluxdateddDateRecommendedReflux Date
refluxongoingString5RecommendedReflux OngoingYes; No
renal_angiomIntegerRecommendedRenal - Renal angiomyolipoma1; 2; 91 = Yes; 2 = No; 9 = Unknownrenalangiomyolipoma
renalangiomyolipomadateddDateRecommendedRenal angiomyolipoma Date
renalangiomyolipomaongoingString5RecommendedRenal angiomyolipoma OngoingYes; No
renal_cystIntegerRecommendedRenal - Renal cyst1; 2; 91 = Yes; 2 = No; 9 = Unknownrenalcyst
renalcystdateddDateRecommendedRenal cyst Date
renalcystongoingString5RecommendedRenal cyst OngoingYes; No
renalcellcarcinomaddDateRecommendedRenal cell carcinoma Date
renalcellcarcinomaongoingString5RecommendedRenal cell carcinoma OngoingYes; No
renalcellcarcinomaimagingString25RecommendedRenal cell carcinoma If yes imagingRenal/bladder US; VCUG
sangeryearIntegerRecommendedSanger or nextgeneration sequencing year if known
schizophreniaorotherpsychosisString10RecommendedSchizophrenia or other psychosisYes; No; Unknown; N/A
schizophreniaorotherpsychosisdDateRecommendedSchizophrenia or other psychosis Date
schizophreniaorotherpsychosisoString5RecommendedSchizophrenia or other psychosis OngoingYes; No
seizuresdateddDateRecommendedSeizures Date
seizureshistoryString10RecommendedSeizures HistoryYes; No; Unknown; N/A
strseizuresongoingString5RecommendedSeizures, convulsions, epilepsy: Ongoing issue?Yes; No;999seizuresongoing
seizuresreviewString5RecommendedSeizures ReviewYes; No
child_selfinjString50RecommendedDoes (did) the Child have Self-Injuring Behavior?Yes;Noselfinjuringbehavior
selfinjuringbehaviordateddDateRecommendedSelf injuring behavior Date
selfinjuringbehaviorongoingString5RecommendedSelf injuring behavior OngoingYes; No
significantvisuallossString10RecommendedSignificant visual loss or congenital blindnessYes; No; Unknown; N/A
significantvisuallossdateddDateRecommendedSignificant visual loss or congenital blindness Date
significantvisuallossongoingString5RecommendedSignificant visual loss or congenital blindness OngoingYes; No
singlegenetestingyearIntegerRecommendedSingle gene testing year if known
skininfectionsabscessesString10RecommendedSkin InfectionsAbscessesYes; No; Unknown; N/A
skininfectionsabscessesdateddDateRecommendedSkin InfectionsAbscesses Date
skininfectionsabscessesongoingString5RecommendedSkin InfectionsAbscesses OngoingYes; No
gentest_tsc_detString255RecommendedGenetics - Detailed Genetic Test Resultsgeneticsspecify, specifydetailedgenetictestresu
rev_neckspinalabString50RecommendedSpinal abnormalitiesYes;No;NKNK = Not knownspinalabnormalities
spinalabnormalitiesdateddDateRecommendedSpinal abnormalities Date
spinalabnormalitiesongoingString5RecommendedSpinal abnormalities OngoingYes; No
spinalabnormalitiesspecifyString50RecommendedSpinal abnormalities specify
rev_eyestrabismusString50RecommendedStrabismusYes;No;NKNK = Not knownstrabismus
strabismusongoingString5RecommendedStrabismus OngoingYes; No
surgerycomplicationscode1_1String100RecommendedComplications Code
surgerycomplicationssearch1_1String50RecommendedComplications Searchsurgerycomplications1_1
surgerydatedd1_1DateRecommendedDate surgery 1
surgeryindicationcode1_1String100RecommendedIndication Code
surgeryindicationsearch1_1String50RecommendedIndication Searchsurgeryindication1_1
surgicalhistoryString10RecommendedSurgical HistoryYes; No; Unknown; N/A
surgicalhistoryongoingString5RecommendedSurgical History OngoingYes; No
tsccard_multiplerhaIntegerRecommendedTSCCardiacLesionsSpe: multiple rhabdomyomas0;10=Unchecked box; 1=Checked boxtsccardiaclesionsspe_multiplerha
tsccard_singlerhabdIntegerRecommendedTSCCardiacLesionsSpe: single rhabdomyomas0;10=Unchecked box; 1=Checked boxtsccardiaclesionsspe_singlerhabd
tscifyesspecifyString50RecommendedTSC If yes specify
tscrelatedfindingsString10Recommended6 TSC related findingsYes; No; Unknown; N/A
tscrelatedfindingsdateddDateRecommendedTSC related findings Date
tscrelatedfindingsongoingString5Recommended6 TSC related findings OngoingYes; No
tsc1knowndiseasecausiIntegerRecommendedTSCResults: TSC 1, known disease causing0;10=Unchecked box; 1=Checked boxtscresults_tsc1knowndiseasecausi
tsc1uncertainsignificIntegerRecommendedTSCResults: TSC 1, uncertain significance0;10=Unchecked box; 1=Checked boxtscresults_tsc1uncertainsignific
tsc2knowndiseasecausiIntegerRecommendedTSCResults: TSC 2, known disease causing0;10=Unchecked box; 1=Checked boxtscresults_tsc2knowndiseasecausi
tsc2uncertainsignificIntegerRecommendedTSCResults: TSC 2, uncertain significance0;10=Unchecked box; 1=Checked boxtscresults_tsc2uncertainsignific
tscskinifotherspecifyString50RecommendedTSC skin manifestations If other specify
skin_tsc4IntegerRecommendedSkin - TSC skin manifestations - Facial angiofibromas0; 10 = No; 1 = Yestsc_skinman_facialangio, tscskinmanifestation_facialangio
skin_tsc5IntegerRecommendedSkin - TSC skin manifestations - Forehead plaque0; 10 = No; 1 = Yestsc_skinman_foreheadpla, tscskinmanifestation_foreheadpla
skin_tsc2IntegerRecommendedSkin - TSC skin manifestations - Hypopigmented macules0; 10 = No; 1 = Yestsc_skinman_hypopigment, tscskinmanifestation_hypopigment
skin_tsc_otherIntegerRecommendedSkin - TSC skin manifestations - Other0; 10 = No; 1 = Yestscskinmanifestation_other
skin_tsc3IntegerRecommendedSkin - TSC skin manifestations - Shagreen patch0; 10 = No; 1 = Yestsc_skinman_shagreenpat, tscskinmanifestation_shagreenpat
skin_tsc1IntegerRecommendedSkin - TSC skin manifestations1; 2; 91 = Yes; 2 = No; 9 = Unknowntsc_skinmans, tscskinmanifestations
tsc_skinmansddDateRecommendedTSC skin manifestations Datetscskinmanifestationsdd
tsc_skinmansongoingString5RecommendedTSC skin manifestations OngoingYes; Notscskinmanifestationsongoing
tscrelatedcardiaclesionsspecifString50RecommendedTSC related cardiac lesions Specify any changes
ticdisorderString10RecommendedTic Disorder eg TouretteYes; No; Unknown; N/A
ticdisorderdateddDateRecommendedTic Disorder eg Tourette Date
ticdisorderongoingString5RecommendedTic Disorder eg Tourette OngoingYes; No
typeofsurgerycode1_1String100RecommendedType of surgery Codesnomedresult1_1
typeofsurgerysearch1_1String75RecommendedType of surgery searchsnomedinputcode1_1
usdateddDateRecommendedUS date DDifyesusdatedd
usresultsString50RecommendedUS resultsNormal; Abnormal; Unknownifyesusresults
varicelladateddDateRecommendedImmunizations up to date Varicella Dateimmunizationsuptodatevaricella
corticalwhitematterpathologyString50Recommendedc If yes to MRI cortical white matter pathologyMeningioma; Cerebellar dysplastic gangliocytoma
thyroidultrasoundddDateRecommendedIf yes was a thyroid ultrasound done DD
wasathyroidultrasounddoneString5RecommendedIf yes was a thyroid ultrasound doneYes; N/A; No
rev_teethdentalabdescString255RecommendedDental abnormalities: Describe
surgerycomplicationscode2_1String100RecommendedComplications Code 2
surgerycomplicationscode3_1String100RecommendedComplications Code 3
surgerycomplicationscode4_1String100RecommendedComplications Code 4
surgerycomplicationscode5_1String100RecommendedComplications Code 5
surgerycomplicationscode6_1String100RecommendedComplications Code 6
surgerycomplicationscode7_1String100RecommendedComplications Code 7
surgerycomplicationssearch2_1String50RecommendedComplications Search 2surgerycomplications2_1
surgerycomplicationssearch3_1String50RecommendedComplications Search 3surgerycomplications3_1
surgerycomplicationssearch4_1String50RecommendedComplications Search 4surgerycomplications4_1
surgerycomplicationssearch5_1String50RecommendedComplications Search 5surgerycomplications5_1
surgerycomplicationssearch6_1String50RecommendedComplications Search 6surgerycomplications6_1
surgerycomplicationssearch7_1String50RecommendedComplications Search 7
surgerydatedd2_1DateRecommendedSurgery Date 2
surgerydatedd3_1DateRecommendedSurgery Date 3
surgerydatedd4_1DateRecommendedSurgery Date 4
surgerydatedd5_1DateRecommendedSurgery Date 5
surgerydatedd6_1DateRecommendedSurgery Date 6
surgerydatedd7_1DateRecommendedSurgery Date 7
surgeryindicationcode2_1String100RecommendedIndication Code 2
surgeryindicationcode3_1String100RecommendedIndication Code 3
surgeryindicationcode4_1String100RecommendedIndication Code 4
surgeryindicationcode5_1String100RecommendedIndication Code 5
surgeryindicationcode6_1String100RecommendedIndication Code 6
surgeryindicationcode7_1String100RecommendedIndication Code 7
surgeryindicationsearch2_1String50RecommendedIndication Search 2surgeryindication2_1
surgeryindicationsearch3_1String50RecommendedIndication Search 3surgeryindication3_1
surgeryindicationsearch4_1String50RecommendedIndication Search 4surgeryindication4_1
surgeryindicationsearch5_1String50RecommendedIndication Search 5surgeryindication5_1
surgeryindicationsearch6_1String50RecommendedIndication Search 6surgeryindication6_1
surgeryindicationsearch7_1String50RecommendedIndication Search 7
typeofsurgerycode2_1String100RecommendedType of surgery Code 2snomedresult2_1
typeofsurgerycode3_1String100RecommendedType of surgery Code 3snomedresult3_1
typeofsurgerycode4_1String100RecommendedType of surgery Code 4snomedresult4_1
typeofsurgerycode5_1String100RecommendedType of surgery Code 5snomedresult5_1
typeofsurgerycode6_1String100RecommendedType of surgery Code 6snomedresult6_1
typeofsurgerycode7_1String100RecommendedType of surgery Code 7
typeofsurgerysearch2_1String50RecommendedType of surgery search 2snomedinputcode2_1
typeofsurgerysearch3_1String50RecommendedType of surgery search 3snomedinputcode3_1
typeofsurgerysearch4_1String50RecommendedType of surgery search 4snomedinputcode4_1
typeofsurgerysearch5_1String50RecommendedType of surgery search 5snomedinputcode5_1
typeofsurgerysearch6_1String50RecommendedType of surgery search 6snomedinputcode6_1
typeofsurgerysearch7_1String50RecommendedType of surgery search 7
droolingString5RecommendedDroolingYes; No; NK
droolingdateddDateRecommendedDrooling Date
droolingongoingString5RecommendedDrooling OngoingYes; No
esophagealmanometryresultsString10RecommendedEsophageal manometry ResultsNormal; Abnormal; Unknown
mri_arachnoidcyIntegerRecommendedMRI results - Arachnoid cysts0;10=No;1=Yesifyesmriwerefollowin_arachnoidcy
mri_dysmyelinatIntegerRecommendedMRI results - Dysmyelination0;10=No;1=Yesifyesmriwerefollowin_dysmyelinat
mri_frontalhypoIntegerRecommendedMRI results - Frontal Hypoplasia/Atrophy0;10=No;1=Yesifyesmriwerefollowin_frontalhypo
mri_morphologicIntegerRecommendedMRI results - Morphological changes in corpus callosum0;10=No;1=Yesifyesmriwerefollowin_morphologic
mri_otherIntegerRecommendedMRI results - Other0;10=No;1=Yesifyesmriwerefollowin_other
mri_other_specifiedString25RecommendedMRI results - Other SPECIFIEDifyestomriifother
mri_ventriculomIntegerRecommendedMRI results - Ventriculomegaly0;10=No;1=Yesifyesmriwerefollowin_ventriculom
rev_headimagestudyresultString255RecommendedImaging Studies: ResultsNormal; Abnormalimagingstudiesresults
oralmdString5RecommendedOral motor dysfunctionYes; No; NKoralmotordysfunction
oralmddateddDateRecommendedOral motor dysfunction Dateoralmotordysfunctiondatedd
oralmdongoingString5RecommendedOral motor dysfunction OngoingYes; Nooralmotordysfunctionongoing
q19_b7_s2String100RecommendedAbnormal Other: SpecifyComplete if q19_b7 = 1otherpleasespecify
picaString35RecommendedPica disorderYes; No; Not applicable; Yes but date of consent unknown
picadateddDateRecommendedPica disorder Date
picaongoingString5RecommendedPica disorder OngoingYes; No
refluxdiagnosedbyString20RecommendedReflux diagnosed byGastroenterologist; Pediatrician; Other; Unknownrefluxongoingifyesdiagnosedby, reluxdaignosby
refluxdiagnosedbyoString25RecommendedReflux diagnosed by Otherrefluxongoingifyesdiagnosedbyo, reluxdaignosbyother
refluxte_esophagealmIntegerRecommendedReflux - Esophageal manometry0;10=No;1=Yesrefluxongoingifyeste_esophagealm
refluxte_uppergixrayIntegerRecommendedReflux - Upper GI X-rays0;10=No;1=Yesrefluxongoingifyeste_uppergixray
uppergixraysresultsString15RecommendedReflux - Upper GI X-rays resultsNormal; Abnormal; Unknown
refluxte_uppergiendoIntegerRecommendedReflux - Upper GI endoscopy0;10=No;1=Yesrefluxongoingifyeste_uppergiendo
uppergiendoscopyresultsString15RecommendedReflux - Upper GI endoscopy resultsNormal; Abnormal; Unknown
refluxte_phprobemoniIntegerRecommendedReflux - pH probe monitoring0;10=No;1=Yesrefluxongoingifyeste_phprobemoni
phprobemonitoringresultsString15RecommendedReflux - pH probe monitoring resultsNormal; Abnormal; Unknown
cardiac_lesion_typeString25RecommendedCardiac lesions defect specified typecardiaclesionsdefectspecifytyp
ptenskinmanifestationsddDateRecommendedPTEN skin manifestations DD
strabismusddDateRecommendedStrabismus DDstrabismusdatedd
medhx_add_adhd_specifyString255RecommendedIf ADD/ADHD, specify:adhdspecify
abnormbreathspecifyString50RecommendedAbnormal breathing if yes specify
abnormhrspecifyString200RecommendedAbnormal rhythm or heart rate if yes specify
anemiaspecifyString50RecommendedAnemia if yes specify
medhx_anxiety_specifyString255RecommendedIf Anxiety Disorder, specify:anxietyspecify
aspirationspecifyString50RecommendedAspiration if yes specify
asthmaspecifyString50RecommendedAsthma if yes specify
hupbipdxString250RecommendedBipolar Disorder problembipolarspecify
birthmarksspecifyString50RecommendedBirthmarks if yes specify
bleedingdisorderspecifyString50RecommendedBleeding disorder if yes specify
bonecystsspecifyString50RecommendedBone cysts if yes specify
breast_cancerString20RecommendedBreast CancerYes;No;Unknownbreastcancerhistory
breastcancermonthDateRecommendedBreast cancer date
breastcancerongoingString3RecommendedBreast cancer OngoingYes;No
cellimmunedifspecifyString50RecommendedCell mediated immune deficiency if yes specify
cerebralpalsyspecifyString50RecommendedCerebral Palsy if yes specify
colonpolypshistoryString10RecommendedColon polyps HistoryYes;No;Unknown
colorectalcancerhistoryString10RecommendedColorectal cancer HistoryYes;No;Unknown
colorectalcancermonthDateRecommendedColorectal cancer date
colorectalcancerongoingString3RecommendedColorectal cancer OngoingYes;No
constipationspecifyString50RecommendedConstipation if yes specify
cyanosisspecifyString50RecommendedCyanosis if yes specify
deafspecifyString50RecommendedDeafness significant hearing loss if yes specify
depressionspecifyString50RecommendedDepression if yes specify
diabetesspecifyString50RecommendedDiabetes if yes specify
diarrheaspecifyString50RecommendedDiarrhealoose stools if yes specify
disrsleepotherdayDateRecommendedDisrupted Sleep Other Date of Onset
dysphagiaspecifyString150RecommendedDysphagia swallowing difficulties if yes specify
emwdayDateRecommendedEMW Date of Onset
eczemaspecifyString50RecommendedEczema if yes specify
endometrialcancerhistoryString10RecommendedEndometrial cancer HistoryYes;No;Unknown
endometrialcancermonthString3RecommendedEndometrial cancer Month
endometrialcancerongoingString5RecommendedEndometrial cancer OngoingYes;No
endometrialcanceryearIntegerRecommendedEndometrial cancer Year
epilepsydayDateRecommendedEpilepsy Date of Onset
epilepsyhistoryString10RecommendedEpilepsy HistoryYes;No;Unknown
epilepsyongoingString5RecommendedEpilepsy OngoingYes;No
epilepsyspecifyString50RecommendedEpilepsy if yes specify
febrileseizureongoingString5RecommendedFebrile Seizures OngoingYes;No
hashimothyroiditishistoryString10RecommendedHashimo thyroiditis HistoryYes;No;Unknown
hashimothyroiditismonthDateRecommendedHashimo thyroiditis date
hashimothyroiditisongoingString5RecommendedHashimo thyroiditis OngoingYes;No
headtraumaspecifyString50RecommendedHistory of head trauma if yes specify
hearingtestspecifyString50RecommendedHearing testing if yes specify
hyperthyroidismspecifyString50RecommendedHyperthyroidism if yes specify
hypoglycemiaspecifyString50RecommendedHypoglycemia if yes specify
hypothyroidismspecifyString50RecommendedHypothyroidism if yes specify
iggdefspecifyString50RecommendedImmunoglobin IgG deficiency if yes specify
imaginstudieshistoryString10Recommendedif yes to head trauma were imaging studies done HistoryYes;No;Unknown
immunizationsspecifyString50RecommendedImmunizations if yes specify
influenzaspecifyString50RecommendedInfluenza vaccine if yes specify
kidney_cancerString20RecommendedKidney CancerYes;Nokidneycancerhistory
kidneycancermonthDateRecommendedKidney cancer date
kidneycancerongoingString5RecommendedKidney cancer OngoingYes;No
lossofconschistString5RecommendedHistory of head trauma if Yes loss of consciousness HistoryYes;No
lungsmalformspecifyString50RecommendedLung malformations if yes specify
mripresentotherString50RecommendedMRI Present Other specify
nonrenalhamartomaspecifyString50RecommendedNonrenal hamartoma if yes specify
ocdspecifyString100RecommendedObsessive Compulsive Disorder if yes specify
omspecifyString50RecommendedReccurrent Otitis Media OM if yes specify
obesityspecifyString50RecommendedObesity if yes specify
otherrenalspecifyString100RecommendedOther renal abnormality if yes specify
pespecifyString100RecommendedPE ear tubes if yes specify
pubertyspecifyString150RecommendedHas the particpant begun to experience or completed puberty if yes specify
recurrentinfectspecifyString150RecommendedRecurrent infections if yes specify
refluxspecifyString50RecommendedReflux if yes specify
renalangiospecifyString50RecommendedRenal angiomyolipoma if yes specify
renalcystspecifyString50RecommendedRenal cyst if yes specify
smdayDateRecommendedSleep Maintenance Date of Onset
sodayDateRecommendedSleep Onset Date of Onset
schizospecifyString50RecommendedSchizophrenia or other psychosis if yes specify
seizuresspecifyString300RecommendedSeizures if yes specify
selfinjuryspecifyString50RecommendedSelf injuring behavior if yes specify
sigvislossspecifyString50RecommendedSignificant visual loss or congenital blindness if yes specify
skininfectionspecifyString100RecommendedSkin Infection if yes specify
sleeppatternspecifyotherString50RecommendedDisrupted sleep patterns if yes please specify Other
spspecify_earlymorningIntegerRecommendedSleep Pattern Specify: Early morning wakening (EMW)0;10 =unchecked box; 1 =checked boxsleeppatternspecify_earlymorning
sleeppatternspecify_otherIntegerRecommendedSleep Pattern Specify: Other0;10 =unchecked box; 1 =checked box
spspecify_sleepmaintenIntegerRecommendedSleep Pattern Specify: Sleep maintenance (SM)0;10 =unchecked box; 1 =checked boxsleeppatternspecify_sleepmainten
spspecify_sleeponsetsoIntegerRecommendedSleep Pattern Specify: Sleep onset (SO)0;10 =unchecked box; 1 =checked boxsleeppatternspecify_sleeponsetso
strabismusspecifyString50RecommendedStrabismus if yes specify
tscskinspecifyString50RecommendedTSC skin manifestation if yes specify
thyroid_cancerString20RecommendedThyroid CancerYes;No;999thyroidcancerhistory
thyroidcancerhistorymonthString3RecommendedThyroid cancer History Month
thyroidcancerhistoryongoingString5RecommendedThyroid cancer History OngoingYes;No
thyroidcancerhistoryyearDateRecommendedThyroid cancer History date
tic_symptoms_specifyString400RecommendedTic Disorder: If yes, specify symptomsticspecify
cardiaclesionstypeString50Recommendedyesspecifycardiaclesionstype
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
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  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: chmedhx01 and Element:
Chart Help

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