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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Concise Health Risk Tracking

chrt

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, subject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
chrt_que_1aIntegerRecommended1. Suicide Ideation - Passive (i.e. wanting to be dead) and/or active (i.e. method, intent, plan) suicidal ideation present.0;10=No; 1=Yes
chrt_que2IntegerRecommendedPatient made a suicide attempt0;10=No; 1=Yes
chrtc_que2aString250Recommended2a Suicide Attempt - Patient made a suicide attempt - If yes, method:
chrt_que3IntegerRecommended3. Self-injurious behavior - No Intent to Die - Purposeful self-injurious behavior with no intent to die.0;10=No; 1=Yes
chrt_que4IntegerRecommended6. Self-injurious behavior - Unknown Intent - Purposeful self-injurious behavior where associated intent to die is unknown and cannot be inferred.0;10=No; 1=Yes
chrt_que5IntegerRecommended8. Other injury - Other not purposeful injury (accidental, psychiatric, medical), no deliberate self-harm.0;10=No; 1=Yes
chrt_que6IntegerRecommended4. Preparatory Acts - Making preparatory acts toward imminent suicidal behavior0;10=No; 1=Yes
chrt_que7IntegerRecommended5. Completed Suicide - Confirmed (i.e. Coroner's report, suicide note, other collateral information).0;10=No; 1=Yes
chrt_que8IntegerRecommended7. Death (not enough information to classify as suicide)0;10=No; 1=Yes
chrt_que9IntegerRecommended9. Nonfatal injury (not enough information to classify)0;10=No; 1=Yes
chrt_01IntegerRecommended1 I feel that things will never get better0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreebetter
chrt_02IntegerRecommended2. I have no future.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreefuture
chrt_03IntegerRecommended3. It seems as if I can do nothing right.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreecantdo
chrt_04IntegerRecommended4. Everything I do turns out wrong.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreedowrong
chrt_05IntegerRecommended5. There is no one I can depend on.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreenoone
chrt_06IntegerRecommended6. The people I care the most for are gone.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreecare
chrt_07IntegerRecommended7. I wish my suffering could just all be over.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreeovers
chrt_08IntegerRecommended8. I feel that there is no reason to live0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreelive
chrt_09IntegerRecommended9. I wish I could just go to sleep and not wake up.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreesleeps
chrt_10IntegerRecommended10. I find myself saying or doing things without thinking.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
chrt_11IntegerRecommended11. I often make decisions quickly or "on impulse".0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
chrt_12IntegerRecommended12. I often feel irritable or easily angered.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
chrt_13IntegerRecommended13. I often overreact with anger or rage over minor things0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agree
chrt_14IntegerRecommended14. I have been having thoughts of killing myself.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreethoughts
chrt_15IntegerRecommended15. I have thoughts about how I might kill myself.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreehow
chrt_16IntegerRecommended16. I have a plan to kill myself.0::40=Strongly disagree; 1=Disagree; 2=Neither agree nor disagree; 3=Agree; 4=Strongly agreeplans
chrtp_propensity_scoreFloatRecommendedPropensity scoresums ques 1-13
chrtp_risk_scoreFloatRecommendedRisk scoresums ques 14-16
subject_descriptionString4,000RecommendedSubject related information (e.g the affection, phenotype, disease information, etc.).
siteString100RecommendedSiteStudy Site
studyString100RecommendedStudy
weekFloatRecommendedWeek in level/study99=week 10-week 14week1
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interviewphone
days_baselineIntegerRecommendedDays since baselinedate
srs_totIntegerRecommendedTotal ScoreSum of all answers
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: chrt01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.