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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Composite International Diagnostic Interview

cidi

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
cidi_stemq1IntegerRecommendedSome people have periods lasting several days or longer when they feel much more excited and faull of energy than usual. They talk a lot. They are very restless or unable to sit still and they sometimes do things that are unusual for them, such as driving too fast or spending too much money. Have you ever had a period like this that lasted several days or longer?0::10=No; 1=Yesstemq1
cidi_stemq1_commString250RecommendedComment about stemq1
cidi_stemq2IntegerRecommendedHave you ever had a period lasting several days or longer when most of the time you were so irritable or grouchy that you either started arguments, shouted at people, or hit people?0::10=No; 1=Yesstemq2
cidi_stemq2_commString250RecommendedComment about stemq2
cidi_critq1IntegerRecommendedPeople who have episodes like this often have changes in their thinking and behavior at the same time, like being more talkative, needing very little sleep, being very restless, going on buying sprees, and behaving in ways they would normally think are inappropriate. Did you ever have any of these changes during your episodes of being (excited and full of energy/very irritable or grouchy)?0::10=No; 1=Yescritq1
cidi_critq1_commString250RecommendedComment about critq1
cidi_epq1IntegerRecommendedWere you so irritable that you either started arguments, shouted at people, or hit people?0::10=No; 1=Yesepq1
cidi_epq1_commString250RecommendedComment about epq1
cidi_epq2IntegerRecommendedDid you become so restless or fidgety that you paced up and down or couldn't stand still?0::10=No; 1=Yesepq2
cidi_epq2_commString250RecommendedComment about epq2
cidi_epq3IntegerRecommendedDid you do anything else that wasn't usual for you: like talking about things you would normally keep private, or acting in ways that you'd usually find embarrassing?0::10=No; 1=Yesepq3
cidi_epq3_commString250RecommendedComment about epq3
cidi_epq4IntegerRecommendedDid you try to do things that were impossible to do, like taking on large amounts of work?0::10=No; 1=Yesepq4
cidi_epq4_commString250RecommendedComment about epq4
cidi_epq5IntegerRecommendedDid you constantly keep changing your plans or activities?0::10=No; 1=Yesepq5
cidi_epq5_commString250RecommendedComment about epq5
cidi_epq6IntegerRecommendedDid you find it hard to keep your mind on what you were doing?0::10=No; 1=Yesepq6
cidi_epq6_commString250RecommendedComment about epq6
cidi_epq7IntegerRecommendedDid your thoughts seem to jump from one thing to another or race through your head so fast you couldn't keep track of them?0::10=No; 1=Yesepq7
cidi_epq7_commString250RecommendedComment about epq7
cidi_epq8IntegerRecommendedDid you sleep far less than usual and still not get tired or sleepy?0::10=No; 1=Yesepq8
cidi_epq8_commString250RecommendedComment about epq8
cidi_epq9IntegerRecommendedDid you spend so much more money than usual that it caused you to have financial trouble?0::10=No; 1=Yesepq9
cidi_epq9_commString250RecommendedComment about epq9
siteString100RecommendedSiteStudy Siteasite
clinicidIntegerRecommendedClinic IDaclinic
ran002IntegerRecommendedWas the subject randomized?0::3; -90=No; 1=Yes; -9=unknown; 2=No meds; 3=No community carerand
days_baselineIntegerRecommendedDays since baseline
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: cidi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.