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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Classification of Seizures

class_seizure

01

Classification of Seizures

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
seizuresIntegerRequiredDoes (did) the subject have Seizures?
0;1;2;999
0 = No; 1 = Yes; 2 = Unknown; 999 =NA/missing
seizures_2aIntegerRequiredTonic clonic (in any combination)0;1;9990 = No; 1 = Yestonicclonic
seizures_2a_dateDateRecommendedTonic clonic onset datetoniccloniconset
seizures_2bIntegerRequiredAbsence0;1;9990=No; 1=Yesabsence
seizures_2b_dateDateRecommendedAbsence onset dateabsenceonset
seizures_2b1IntegerRequiredTypical0;1;9990 = No; 1 = Yes
seizures_2b1_dateDateRecommendedTypical onset date
seizures_2b2IntegerRequiredAtypical0;1;9990 = No; 1 = Yes
seizures_2b2_dateDateRecommendedAtypical onset date
seizures_2b3IntegerRequiredMyoclonic absence0;1;9990 = No; 1 = Yes
seizures_2b3_dateDateRecommendedMyoclonic absence onset date
seizures_2b4IntegerRequiredEylid myoclonia0;1;9990 = No; 1 = Yes
seizures_2b4_dateDateRecommendedEylid myoclonia onset date
seizures_2cIntegerRequiredMyoclonic0;1;9990 = No; 1 = Yesmyoclonic
seizures_2c_dateDateRecommendedMyoclonic onset datemyocloniconset
seizures_2c1IntegerRequiredMyoclonic atonic0;1;9990 = No; 1 = Yes
seizures_2c1_dateDateRecommendedMyoclonic atonic onset date
seizures_2c2IntegerRequiredMyoclonic tonic0;1;9990 = No; 1 = Yes
seizures_2c2_dateDateRecommendedMyoclonic tonic onset date
seizures_2dIntegerRequiredClonic0;1;9990 = No; 1 = Yesclonic
seizures_2d_dateDateRecommendedClonic onset datecloniconset
seizures_2eIntegerRequiredTonic0;1;9990 = No; 1 = Yestonic
seizures_2e_dateDateRecommendedTonic onset datetoniconset
seizures_2fIntegerRequiredAtonic0;1;9990 = No; 1 = Yesatonic
seizures_2f_dateDateRecommendedAtonic onset dateatoniconset
seizures_2gIntegerRequiredEpileptic spasms (focal or generalized)0;1;9990 = No; 1 = Yesepilepticspasms
seizures_2g_dateDateRecommendedEpileptic spasms (focal or generalized) onset dateepilepticspasmsonset
seizures_focalIntegerRequiredDoes patient have focal seizures?0::20 = No; 1 = Yes; 2 = Unknowndoesthepatienthavefocalseizure
seizures_3aIntegerRecommendedWithout impairment of consciousness or responsiveness0;10 = No; 1 = Yeswithoutimpairmentofconsc, withoutimpairmentofconsciousne
seizures_3a_dateDateRecommendedWithout impairment of consciousness or responsiveness; onset datewithoutimpairmentonsetdd
seizures_3a1IntegerRecommendedWith observable motor or autonomic components (roughly corresponds to the concept of "simple partial seizure")0;10 = No; 1 = Yeswithobservablemotororautonomic
seizures_3a1_dateDateRecommendedWith observable motor or autonomic components; onset datewithobservableonset
seizures_3a2IntegerRecommendedInvolving subjective sensory or psychic phenomena only (corresponds to the concept of "aura")0;10 = No; 1 = Yesinvolvingsubjectivesensoryorps
seizures_3a2_dateDateRecommendedInvolving subjective sensory or psychic phenomena only; onset dateinvolvingsubjectiveonset
seizures_3bIntegerRecommendedWith impairment of consciousness or responsiveness (roughly corresponds to the concept of "complex partial seizure")0;10 = No; 1 = Yeswithimpairmentofconsciousness
seizures_3b_dateDateRecommendedWith impairment of consciousness or responsiveness; onset datewithimpairmentonset
seizures_3cIntegerRecommendedEvolving to a bilateral, convulsive seizure (involving tonic, clonic, or tonic and clonic components; replaces the term "secondarily generalized seizure")0;10 = No; 1 = Yesevolvingtoabilateralconvulsive
seizures_3c_dateDateRecommendedEvolving to a bilateral, convulsive seizure; onset datebilateralconvulsiveonset
seizures_unclassIntegerRequiredDoes patient have an unclassified seizure type?0::20 = No; 1 = Yes; 2 = Unknownhaveanunclassifiedseizuretype
seizures_4aIntegerRequiredUnclassified epileptic event0;1;9990 = No; 1 = Yesunclassifiedepilepticevent
seizures_4a_dateDateRecommendedUnclassified epileptic event; onset dateepilepticeventonset
seizures_4bIntegerRecommendedNonepileptic event0;10 = No; 1 = Yesnonepilepticevent
seizures_4b_dateDateRecommendedNonepileptic event; onset datenonepilepticeventonset
seizures_2_ogIntegerRecommendedAbsence ongoing0;10=No;1=Yesabsenceongoing
seizures_2f_ogIntegerRecommendedAtonic ongoing0;10=No;1=Yesatonicongoing
seizures_2d_ogIntegerRecommendedClonic ongoing0;10=No;1=Yesclonicongoing
seizures_generalIntegerRecommendedDoes the patient have generalized seizures0;10=No;1=Yesdoesthepatienthavegeneralizeds
seizures_2g_ogIntegerRecommendedEpileptic spasms ongoing0;10=No;1=Yesepilepticspasmsongoing
seizures_3c_ogIntegerRecommendedEvolving to a bilateral convulsive seizure replaced term secondarily generalized seizure ongoing0;10=No;1=Yesevolvingtoabilateralconvulsive2
seizures_3a2_ogIntegerRecommendedInvolving subjective sensory or psychic phenomena only ie aura ongoing0;10=No;1=Yesinvolvingsubjectivesensoryorps2
seizures_2c_ogIntegerRecommendedMyoclonic ongoing0;10=No;1=Yesmyoclonicongoing
seizures_4b_ogIntegerRecommendedNonepileptic event ongoing0;10=No;1=Yesnonepilepticeventongoing
seizures_2a_ogIntegerRecommendedTonic clonic ongoing0;10=No;1=Yestonicclonicongoing
seizures_2e_ogIntegerRecommendedTonic ongoing0;10=No;1=Yestonicongoing
seizures_4a_ogIntegerRecommendedUnclassified epileptic event ongoing0;10=No;1=Yesunclassifiedepilepticeventongo
seizures_3b_ogIntegerRecommendedWith impairment of consciousness or responsiveness similar to concept of complex partial seizure ongoing0;10=No;1=Yeswithimpairmentofconsciousnesso
seizures_3a1_ogIntegerRecommendedWith observable motor or autonomic components similar to the concept of simple partial seizures ongoing0;10=No;1=Yeswithobservablemotororautonomic2
seizures_3a_ogIntegerRecommendedWithout impairment of consciousness or responsiveness ongoing0;10=No;1=Yeswithoutimpairmentofconsciousne2, withoutimpairmentofconscongoin
absencemmDateRecommendedAbsence No to Ongoing end date
atonicmmDateRecommendedAtonic No to Ongoing end date
clonicmmDateRecommendedClonicNo to Ongoing end date
complexpartialseizuremmDateRecommendedcomplex partial seizure end date
epilepticspasmsmmDateRecommendedEpileptic spasms No to Ongoing end date
involvingsubjectivemmDateRecommendedInvolving subjective end date
myoclonicmmDateRecommendedMyoclonic No to Ongoing end date
nonepilepticeventmmDateRecommendedNonepileptic event end date
observablemotormmDateRecommendedObservable Motor end date
secondarilygeneralizedseizuremDateRecommendedsecondarily generalized seizure end date
tonicclonicmmDateRecommendedTonic clonic No to Ongoing end date
tonicmmDateRecommendedTonic No to Ongoing end date
unclassifiedepilepticeventmmDateRecommendedUnclassified epileptic event end date
withoutimpairmentofconscmmDateRecommendedWithout impairment of consciousness or responsiveness end date
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: class_seizure01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.