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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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COINS Demographics

coinsdem

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reporteddemosam_001
demosam_002IntegerRecommendedHow many years of education have you had0 = No Education ;1 = 1st grade ;2 = 2nd grade ;3 = 3rd grade ;4 = 4th grade ; 5=5 years Completed 5th grade (Grade School) ;6=6 years Completed 6th grade;7=7 years Completed 7th grade ;8=8 years Completed 8th grade (Middle School) ;9 = 9th grade ; 10 = 10th grade ; 11 = 11th grade ; 12 = 12th grade OR GED ; 13 = 1 year of college ; 14 = 2 years of college or associates degree ; 15 = 3 years of college ; 16 = bachelor's degree ; 17 = 1 year of graduate school ; 18 = 2 years of graduate school ; 19 = 3 years of graduate school ; 20 = 4+ years of graduate school
resp_occupationString255RecommendedRespondent's occupation
demosam_004IntegerRecommendedHow many years of education did your mother complete5=5 years Completed 5th grade (Grade School) ;6=6 years Completed 6th grade;7=7 years Completed 7th grade ;8=8 years Completed 8th grade (Middle School)
demosam_005IntegerRecommendedHow many years of education did your father complete5=5 years Completed 5th grade (Grade School) ;6=6 years Completed 6th grade;7=7 years Completed 7th grade ;8=8 years Completed 8th grade (Middle School)
demo_siblingscountIntegerRecommendedNumber of siblings888 = not applicable; 999 = missingdemosam_006
demosam_007IntegerRecommendedSocioeconomic status of home of upbringing (i.e., parental home or family of origin)1=Upper class; 2=Uppermiddle class; 3=Middle class; 4=Lowermiddle class; 5=Lower class; -999=Don't Know Missing Data
ccc2spenglisString200RecommendedDetails of primary languagedemosam_008
demosam_009IntegerRecommendedWere other languages used by your family?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
das1msString75RecommendedMarital statusdemosam_010
demosam_011String20RecommendedIf you are currently involved with a primary romantic partner, how long have you been involved?
demosam_012IntegerRecommendedDo you have any biological children?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
d3bIntegerRecommendedNumber of biological childrendemosam_013
demosam_014IntegerRecommendedHow many biological children are with your current partner?
demosam_015IntegerRecommendedAre you currently on a weight loss diet?1=Yes; 0=No; -999=Don't know/Missing Data
demosam_016IntegerRecommendedWhat kind of weight loss diet are you on?
1::3;-999
1=Low Carb; 2= Low fat; 3=Other; -999=Don't Know/Missing Data
demosam_017IntegerRecommendedDo you work in an environment that exposes you to toxins on a regular basis? (This could be fumes from car exhaust, paint, pesticides, asbestos, radiation, mercury, etc.)
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_018String100RecommendedWhat toxin does your work environment expose you to?
demosam_019IntegerRecommendedHave you been exposed to any environmental toxins within the last 2 days? (This could be fumes from car exhaust, paint, pesticides, asbestos, radiation, mercury, etc.)
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_020String100RecommendedWhat toxin were you exposed to within the last two days?
demosam_021IntegerRecommendedHow old was your biological father when you were born?
demosam_022IntegerRecommendedHow old was your biological mother when you were born?
birth_weight_lbsFloatRecommendedBirth weight poundsdemosam_023
birth_weight_ozFloatRecommendedBirth weight ouncesdemosam_024
demosam_025IntegerRecommendedI was born by C-Section
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_026IntegerRecommendedI was born premature:
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
premature_weeksIntegerRecommendedWeeks premature0 = Full termdemosam_027
demosam_028IntegerRecommendedI was born late
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_029FloatRecommended__ weeks after due date
demosam_030IntegerRecommendedI was born with low birth weight (less than 5 lbs, 8 oz.)
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_031IntegerRecommendedI was born with very low birth weight (less than 3 lbs, 5 oz.)
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_032IntegerRecommendedI received specialized care in a neonatal intensive care unit
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_033IntegerRecommendedI was hospitalized longer than typical following my birth
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_034IntegerRecommendedHospitalized after birth for approximately ____days
demosam_035IntegerRecommendedMy mother was bedridden due to complications during her pregnancy with me
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_036IntegerRecommendedMy mother experienced maternal diabetes when pregnant with me
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_037IntegerRecommendedMy mother experienced hypertension during her pregnancy with me
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_038String250RecommendedPlease note any other unique circumstances or complications surrounding your birth here
demosam_039IntegerRecommendedHave any of your parents or grandparents been diagnosed with Alzheimer's Disease?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_040IntegerRecommendedHave any of your parents or grandparents had another form of dementia?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_041IntegerRecommendedHave you been sick at all within the last two weeks?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_042IntegerRecommendedAre you currently sick?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_043IntegerRecommendedAre you a vegetarian?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_044IntegerRecommendedAre you a vegan?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_045IntegerRecommendedAre you currently taking vitamin supplements?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_046String100RecommendedList vitamin supplements:
demosam_047IntegerRecommendedAre you currently taking herbal supplements?
0;1;-999; 9
1=Yes; 0=No; -999=NA/Missing Data; 9=DK
demosam_048String100RecommendedList herbal supplements:
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: coinsdem01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.