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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Consumer Satisfaction Questionnaire

consq

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other malerelcs
consq_1IntegerRecommendedThe degree of interest and concern shown for me and my child by the professional(s) administering the treatment has been1::71=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superiorcs1
consq_2IntegerRecommendedThe skill level of professional(s) administrating the treatment has been1::71=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superiorcs2
consq_3IntegerRecommendedThe demands placed upon me and my family by the assessment and testing components (e.g., completing forms, questionnaires, interviews) of the study were1::71=Very unacceptable; 2=Unacceptable; 3= Slightly unacceptable; 4=Neutral; 5= Slightly acceptable; 6=Acceptable; 7=Very acceptablecs3
consq_4IntegerRecommendedDisregarding the assessment and testing components of the study, the demands placed upon me and my family by the treatment we received were1::71=Very unacceptable; 2=Unacceptable; 3= Slightly unacceptable; 4=Neutral; 5= Slightly acceptable; 6=Acceptable; 7=Very acceptablecs4
consq_5IntegerRecommendedThe length of duration of the treatment program that I/my child received was1::71=Much too short; 2=Too short; 3= slightly too short; 4=Appropriate; 5= Slightly too long; 6=too long; 7=Much too longcs5
consq_6IntegerRecommendedWould you recommend the treatment(s) that you received to a friend or relative who had a child with an anxiety disorder1::71=I would strongly not recommend; 2=I would not recommend; 3= I might not recommend; 4=Neutral; 5= I might recommend; 6=I would recommend; 7=I would strongly recommendcs6
consq_7IntegerRecommendedOverall, my level of satisfaction with quality of the treatment services that I have received is1::71=Very dissatisfied; 2=Dissatisfied; 3= Slightly dissatisfied; 4=Neutral; 5= Slightly satisfied; 6=Satisfied; 7=Very satisfiedcs7
consq_8IntegerRecommendedThe major problems that originally prompted me to begin treatment for my child are at this point1::71=Much worse; 2=Worse; 3= slightly worse; 4=Unchanged; 5= Slightly improved; 6=Improved; 7=Much improvedcs8
consq_9IntegerRecommendedMy feelings at this point about my childs progress are that I am1::71=Very dissatisfied; 2=Dissatisfied; 3= Slightly dissatisfied; 4=Neutral; 5= Slightly satisfied; 6=Satisfied; 7=Very satisfiedcs9
consq_10IntegerRecommendedPrior to beginning treatment, my outlook for my childs future was1::71=Very pessimistic; 2=Pessimistic; 3= slightly pessimistic; 4=Neutral; 5= Slightly optimistic; 6=Optimistic; 7=Very optimisticcs10
consq_11IntegerRecommendedAt this point in time, my outlook for my childs future is1::71=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superiorcs11
consq_12String250RecommendedThe thing that I liked most about the treatment I received was
consq_13String250RecommendedThe thing that I liked least about the treatment I received was
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
days_baselineIntegerRecommendedDays since baselinedaycs, lof
assbdicString5RecommendedAssessment PointD;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; CD=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)asscs
actbdicIntegerRecommendedActive status0::50=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Activeactcs
siteString100RecommendedSiteStudy Siteasite, sitenum
sjtypIntegerRecommendedSubject type1;21=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
csattotxFloatRecommendedConsumer satisfaction total mean score
csattottFloatRecommendedConsumer satisfaction total total score
nrawsat1IntegerRecommendedHow dissatisfied or satisfied were you with the overall health care available to you during the past 6 months?1::51 = very dissatisfied; 2 = dissatisfied; 3 = neither satisfied nor dissatisfied; 4 = satisfied; 5 = very satisfiedsat1
nrawsat2IntegerRecommendedHow dissatisfied or satisfied were you with the health care available to you for personal or emotional problems in the past 6 months?1::51 = very dissatisfied; 2 = dissatisfied; 3 = neither satisfied nor dissatisfied; 4 = satisfied; 5 = very satisfiedsat2
clinicidIntegerRecommendedClinic IDaclinic
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitwave
studyString100RecommendedStudy
version_formString100RecommendedForm used
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: consq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.