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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Community Participation Scale

cpscale

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
version_formString100RequiredForm used
timeptIntegerRecommendedTime Point888 = not applicable; 999 = missingcps_p_time
cps_p_q1timeIntegerRecommendedCommunity Participation Item 1 Lectures or Classroom Learning - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q2timeIntegerRecommendedCommunity Participation Item 2 Homework/Quizzes or exam prep - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q3timeIntegerRecommendedCommunity Participation Item 3 Other - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q4timeIntegerRecommendedCommunity Participation Item 4 Exercise - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q5timeIntegerRecommendedCommunity Participation Item 5 Social Media - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q6timeIntegerRecommendedCommunity Participation Item 6 Email - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q7timeIntegerRecommendedCommunity Participation Item 7 Gaming - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q8timeIntegerRecommendedCommunity Participation Item 8 Watching videos/movies - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q9timeIntegerRecommendedCommunity Participation Item 9 Blogging - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q10timeIntegerRecommendedCommunity Participation Item 10 Education - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q11timeIntegerRecommendedCommunity Participation Item 11 Reading the news - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q12timeIntegerRecommendedCommunity Participation Item 12 Other - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q13timeIntegerRecommendedCommunity Participation Item 13 Volunteer - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q14timeIntegerRecommendedCommunity Participation Item 14 Jobs - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q15timeIntegerRecommendedCommunity Participation Item 15 Arts and crafts - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q16timeIntegerRecommendedCommunity Participation Item 16 Participating in a team sport - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q17timeIntegerRecommendedCommunity Participation Item 17 Listening to Music- How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q18timeIntegerRecommendedCommunity Participation Item 18 Playing an instrument - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q19timeIntegerRecommendedCommunity Participation Item 19 Community events/entertainment - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q20timeIntegerRecommendedCommunity Participation Item 20 Watching TV - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q21timeIntegerRecommendedCommunity Participation Item 21 Literacy activity - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q22timeIntegerRecommendedCommunity Participation Item 22 Other - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q23timeIntegerRecommendedCommunity Participation Item 23 Cleaning - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q24timeIntegerRecommendedCommunity Participation Item 24 Shopping - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q25timeIntegerRecommendedCommunity Participation Item 25 Errands or appointments - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q26timeIntegerRecommendedCommunity Participation Item 26 Dining Out - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q27timeIntegerRecommendedCommunity Participation Item 27 Communicating - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q28timeIntegerRecommendedCommunity Participation Item 28 Driving/Commuting - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q29timeIntegerRecommendedCommunity Participation Item Attend religious services or spiritual practice - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q30timeIntegerRecommendedCommunity Participation Item 30 Other - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q31timeIntegerRecommendedCommunity Participation Item 31 Traveling/vacation - How much time1::6; 888;9991 = rarely or never; 2 = a few times a year; 3 = about monthly; 4 = about weekly; 5 = about daily; 6 = several times each day; 888 = not applicable; 999 = missing
cps_p_q32religIntegerRecommendedCommunity Participation Item 32 - Membership Religious group0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32ymcaIntegerRecommendedCommunity Participation Item 32 - Membership YMCA/JCC/etc0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32sportIntegerRecommendedCommunity Participation Item 32 - Membership Sports team or club0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32sicIntegerRecommendedCommunity Participation Item 32 - Membership Special interst club0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32pagIntegerRecommendedCommunity Participation Item 32 - Membership Performing arts group0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32sgIntegerRecommendedCommunity Participation Item 32 - Membership student government/political group0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32acIntegerRecommendedCommunity Participation Item 32 - Membership Academic club0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32vsIntegerRecommendedCommunity Participation Item 32 - Membership Volunteer service0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32cgIntegerRecommendedCommunity Participation Item 32 - Membership Cultural group0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32lIntegerRecommendedCommunity Participation Item 32 - Membership Leadership0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q32otherIntegerRecommendedCommunity Participation Item 32 - Membership Other0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33dlIntegerRecommendedCommunity Participation Item 33 - Document Driver's license0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33scIntegerRecommendedCommunity Participation Item 33 - Document Supermarket card0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33lcIntegerRecommendedCommunity Participation Item 33 - Document Library card0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33sidIntegerRecommendedCommunity Participation Item 33 - Document School ID0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33vidIntegerRecommendedCommunity Participation Item 33 - Document Voting ID0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33caIntegerRecommendedCommunity Participation Item 33 - Document Checking account0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33saIntegerRecommendedCommunity Participation Item 33 - Document Savings account0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33ccIntegerRecommendedCommunity Participation Item 33 - Document Credit cards0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
cps_p_q33otherIntegerRecommendedCommunity Participation Item 33 - Document Other0;1; 888; 9990 = no; 1 = yes; 888 = not applicable; 999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: cpscale01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.