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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Cumulative Illness Rating Scale

crs

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, record_id, subjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldcirsg_doa
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
updateIntegerRecommendedUpdated form0;11=Updated
crcidString40RecommendedCRC ID/ROA ID
heartIntegerRecommendedHeart0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_1_heart, crs1
vsclrIntegerRecommendedVascular0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_2_vascular, crs2
hemaIntegerRecommendedHaematopoietic0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_3_hematopoietic, crs3
eyesIntegerRecommendedEyes, ears, nose, throat, and larynx0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_5_eentl, crs5
ugiIntegerRecommendedUpper GI0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_6_upper_gastro, crs6
lgiIntegerRecommendedLower GI0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_7_lower_gastro, crs7
renalIntegerRecommendedRenal0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_9_renal, crs9
genurIntegerRecommendedGenitourinary0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_10_genitourinary, crs10
msklIntegerRecommendedMusculoskeletal/Integument0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_11_musculoskel, crs11
neuroIntegerRecommendedNeurological0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_12_neurological, crs12
psychIntegerRecommendedPsychiatric illness0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_14_psychiatric
respiratoryIntegerRecommendedRespiratory0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_4_respiratory, crs4, resp
liverdIntegerRecommendedLiver0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_8_liver, crs8, liver
endodIntegerRecommendedEndocrine/metabolic, and breast0::40=no problem; 1=current mild or no problem; 2= moderate disability/morbidity; 3-severe constant disability; 4= extremely severecirsg_13_endocrine, crs13, endo
days_baselineIntegerRecommendedDays since baselinedate
cirscntIntegerRecommendedCount of scored CIRS-G itemscirsg_total_num_cat_endorsed
cirstotIntegerRecommendedCIRS-G Total Scorecirsg_total
siteString100RecommendedSiteStudy Site
weekFloatRecommendedWeek in level/study99=week 10-week 14intid
study_idIntegerRecommendedStudy ID number46=Acute Phase; 47=Stabilization Phase
cirsg_severity_indexFloatRecommendedCIRS-G Severity Index
cirsg_num_level3_severityIntegerRecommendedNumber of categories at level-3 severity
cirsg_num_level4_severityIntegerRecommendedNumber of categories at level-4 severity
iecsigIntegerRecommendedInvestigator signature on form.0;10=No; 1= Yescirsg_signature_clin_staff
lab020DateRecommendedDate of PI/clinician signaturecirsg_date_time_signature
commentsString4,000RecommendedComments about assessmentcirsg_notes
doa_futdtString20RecommendedFuture date entered (Assessment)cirsg_doa_futdt
dodeString10RecommendedDate of Data Entrycirsg_dode
dode_futdtString20RecommendedFuture date entered (Data Entry)cirsg_dode_futdt
form_completedIntegerRecommendedWas the form completed?1;21=Yes; 2=Nocirsg_form_complete
form_explainIntegerRecommendedWhy was this form not completed?86::9999=Participant unable to complete due to cognitive impairment; 98=Participant unable to complete due to physical impairment; 97=Participant refused to begin/finish; 96=Participant completed but with less than best effort; 95=Participant unable to be contacted; 94=Participant deceased; 93=Participant withdrew consent; 92=Time constraints; 91=Rater forgot to administer; 90=Missed appointment; 89=Participant was terminated from study; 88=Other;87 = Not Done (reason unspecified); 86 = Not Applicablecirsg_explain
other_reason_ncString100RecommendedOther reason form was not completedcirsg_other_reason_nc
assessment_completeIntegerRecommendedComplete?0::20=Incomplete; 1=Unverified; 2=Completecirsg_complete
cirsg_1_heart_condnString200RecommendedDescribe Heart condition
cirsg_2_vascular_condnString200RecommendedDescribe Vascular condition
cirsg_3_hematopoietic_condnString200RecommendedDescribe Hematopoietic condition
cirsg_4_respiratory_condnString200RecommendedDescribe Respiratory condition
cirsg_5_eentl_condnString200RecommendedDescribe Eyes, Ears, Nose, Throat and Larynx condition
cirsg_6_upper_gastro_condnString200RecommendedDescribe Upper Gastrointestinal Tract condition
cirsg_7_lower_gastro_condnString200RecommendedDescribe Lower Gastrointestinal Tract condition
cirsg_8_liver_condnString200RecommendedDescribe Liver condition
cirsg_9_renal_condnString200RecommendedDescribe Renal condition
cirsg_10_genitourinary_condnString200RecommendedDescribe Genito-urinary condition
cirsg_11_musculoskel_condnString200RecommendedDescribe Musculoskeletal/integument condition
cirsg_12_neurological_condnString200RecommendedDescribe Neurological condition
cirsg_13_endocrine_condnString200RecommendedDescribe Endocrine/metabolic and breast condition
cirsg_14_psychiatric_condnString200RecommendedDescribe Psychiatric illness condition
tleq_31IntegerRecommendedHave you ever had a life-threatening illness? If yes, how often?0::61 = Once; 2 = Twice; 3 = 3 times; 4 = 4 times; 5 = 5 times; 6 = more than 6 times; 0= None
cirs_sum4IntegerRecommendedNumber of severe illnesses
cirs_sum5IntegerRecommendedNumber of moderate illnesses
cirs_sum6IntegerRecommendedTotal CIRS score excluding psychiatric
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
rbsr_overall_endorsedIntegerRecommendedOverall number of items endorsed
cir99fIntegerRecommendedCardiovascularScore Heart + Score Vascular
visitString50RecommendedVisit nameCharacter description of each type of visit
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: crs01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.