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CPEA STAART ADOS G Module 1

cs_ados_g_1

02

ADOS G Module 1 as defined by the CPEA STAART project

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldADOS_DATE_STD, q24_date
cycleIntegerRecommendedTimepoint information-1 = Screener; 0 = Baseline; 97 = Taper; 98 = Withdrawal; 99 = Interim contact
patidString20Recommendedsrc_Subject_idA Participant ID provided by DM-STAT must be present to process form
networkString20RecommendedNetworkCPEA or STAART Network
siteString100RecommendedSiteStudy Site
studyString100RecommendedStudy
ados_alg_cmsitIntegerRecommendedCommunication Social Interaction Total0 :: 24MODULE 1: 7 = Autism spectrum cut-off; 12 = Autism cut-off. MODULE 2: 8 = Autism spectrum cut-off; 12 = Autism cut-off. MODULES 3 AND 4: 7 = Autism spectrum cut-off; 10 = Autism cut-offq24_tot3
ados_alg_cmsitsIntegerRecommendedADOS: Social-Communication Severity Score
ados_alg_commtIntegerRecommendedCommunication Total0 :: 10MODULE 1: 2 = Autism spectrum cut-off; 4 = Autism cut-off. MODULE 2: 3 = Autism spectrum cut-off; 5 = Autism cut-off. MODULES 3 AND 4: 2 = Autism spectrum cut-off; 3 = Autism cut-offq24_tot1
ados_alg_commtsIntegerRecommendedADOS: Communication Severity Score
ados_alg_imgcrIntegerRecommendedImagination Creativity0 :: 2
ados_alg_playtIntegerRecommendedPlay Total0 :: 4q24_tot4
ados_alg_playtsIntegerRecommendedADOS: Play Severity Score
ados_alg_sbritIntegerRecommendedStereotyped Behaviors and Restricted Interests Total0 :: 6q24_tot5
ados_alg_sbritsIntegerRecommendedADOS: Stereotyped Behaviors-Restricted Interests Severity Score
ados_alg_sclitIntegerRecommendedSocial Interaction Total0 :: 14MODULE 1: 4 = Autism spectrum cut-off; 7 = Autism cut-off. MODULE 2: 4 = Autism spectrum cut-off; 6 = Autism cut-off. MODULES 3 AND 4: 4 = Autism spectrum cut-off; 6 = Autism cut-offq24_tot2
ados_alg_sclitsIntegerRecommendedADOS: Social Severity Score
ados_dateIntegerRecommendedADOS Date
ados_dxString15RecommendedADOS Diagnosisq24_comm
ados_dia_classString50RecommendedADOS Classificationq24_cla4
ados_dia_diagString75RecommendedOverall Diagnosis
ados_moduleIntegerRecommendedADOS Modulemodule
ados_lac_fvdtoIntegerRecommendedFrequency of Vocalization Directed to OthersNulled value range of: 0;1;2;3 to accept outlier data. 0 = Directs vocalizations to parent/caregiver or examiner in a variety of pragmatic contexts. Must include chatting or vocalizing to be friendly or to express interest, as well as to make needs known. 1 = Directs vocalizations to parent/caregiver or examiner consistently in one pragmatic context, OR directs a limited number of vocalizations to parent/caregiver or examiner across a variety of pragmatic contexts. 2 = Directs an occasional vocalization to parent/caregiver or examiner inconsistently in a limited number of pragmatic contexts. May include whining or crying due to frustration. 3 = Vocalizations never or almost never appear to be directed to parent/caregiver or examiner, OR rarely or never vocalizes.q24_a2
ados_lac_gestrIntegerRecommendedGesturesNulled value range of: 0;1;2;8 to accept outlier data. 0 = Spontaneous use of at least two different gestures of any type (descriptive, conventional, emotional, or instrumental, excluding pointing); at least one used more than once. 1 = Spontaneous use of descriptive, conventional, instrumental, or emotional gestures, but exaggerated or limited in range and/or contexts (e.g., only one or used only once each). Communicative reaching can be coded here, but not as pa rt of a code of 0. 2 = No spontaneous use of descriptive, conventional, instrumental, or emotional gestures, OR inappropriate use only (e.g., a child who signs "more" when he wants something to stop). 8 = N/A (e.g., limited by severe motor difficulties).q24_a8
ados_lac_imechIntegerRecommendedImmediate EcholaliaNulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Does not repeat others' speech. (Note: Requires at least five words to code 0 rather than 8.) 1 = Occasional echoing. 2 = Echoing words and phrases regularly, but some spontaneous language, which can be stereotyped. 3 = Speech largely consists of immediate echolalia. 8 = No echolalia noted, but language too limited to judge.q24_a4
ados_lac_ivlvbFloatRecommendedIntonation of Vocalization or VerbalizationNulled value range of: 0;1;2;8 to accept outlier data. 0 = Normal, appropriately varying intonation, with no peculiar or odd intonation. 1 = Little variation in pitch and tone; rather flat or exaggerated, or occasional peculiar intonation. 2 = Odd intonation or inappropriate pitch and stress, AND/OR markedly flat and toneless mechanical vocalizations, OR an odd cry and few other vocalizations. 8 = N/A (insufficient vocalizations for assessment of intonation; includes presence of normal cry and few other vocalizations).q24_a3
ados_lac_olnel1IntegerRecommendedOverall Level of Non-Echoed LanguageNulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Regular use of utterances with two or more words. 1 = Occasional phrases only; mostly single words. 2 = Recognizable single words only; must use at least five different words during session. 3 = At least one word or word approximation, but fewer than five words used during session. 8 = No words or word approximations.q24_a1
ados_lac_point1IntegerRecommendedPointing_Pointing to Express InterestNulled value range of: 0;1;2;3 to accept outlier data. 0 = Points with index finger to show visually directed referencing (coordinated gaze to object and person) of distal objects in at least two activities (e.g., points to bubbles and to balloon). 1 = Uses pointing to reference objects, but without sufficient flexibility or frequency to meet criteria for a rating of 0 (e.g., only one instance of pointing that fits the preceding description for a rating of 0, or absence of coordinated gaze with distal pointing, though the child may vocalize); AND/OR produces an approximation of pointing (coordinated with gaze or vocalization) rather than an index finger point; AND/OR coordinates only pointing that includes touching a picture or other nearby objects with gaze or vocalization; AND/OR points with coordination (gaze or vocalization) only to a person or to himself or herself. 2 = Points only when close to or actually touching an object, without coordinated gaze or vocalization. Does not have to be well-formed index finger point. 3 = Does not point as described aboveq24_a7
ados_lac_stidw1IntegerRecommendedStereotyped_Idiosyncratic Use of Words or PhrasesNulled value range of: 0;1;2;3;8 to accept outlier data. 0 = Rarely or never uses stereotyped or idiosyncratic words or phrases. (Note: Requires at least five words to code 0 rather than 8.) 1 = Use of words or phrases tends to be more repetitive than that of most individuals at the same level of expressive language, but not obviously odd, OR occasional stereotyped utterances or use of odd words, OR use of phrases in an unusual way, with other flexible spontaneous language as well. 2 = Often uses stereotyped utterances or odd words or phrases, with some other language. 3 = Frequently uses odd or stereotyped speech, and rarely uses non-stereotyped spontaneous speech. 8 = Language too limited to judge.q24_a5
ados_lac_uobtcIntegerRecommendedUse of Other s Body to CommunicateNulled value range of: 0;1;2;8 to accept outlier data. 0 = No use of another person's body for a specific goal (e.g., to manipulate an object), except in situations where other strategies have not worked (e.g., when others are conversing and the participant cannot get their attention) and in conjunction with coordinated gaze. 1 = Takes another person's hand and leads him/her places without coordinated gaze, but no placement of hand on objects and no use of another person's body as a tool, to point, or for a specific goal. 2 = Movement of another person's hand when it is holding an object OR pushing examiner's hand away from object without eye contact. 3 = Placement of another person's hand or other body part on object (including placing the balloon or food to the examiner's mouth without coordinated gaze), OR use of his/her hand or other body part as a tool or to gesture "for" the participant (such as pointing). 8 = Little or no spontaneous communication.q24_a6
ados_sar_bhvirIntegerRecommendedADOS: Stereotyped Behaviors and Restricted Interests: Behavior When Interrupted
ados_oab_anxtyIntegerRecommendedAnxietyNulled value range of: 0;1;2 to accept outlier data. 0 = No obvious anxiety (e.g., trembling or jumpiness). 1 = Mild signs of anxiety, especially at the beginning of the ADOS session, OR marked anxiety only in response to a specific request or to one particular toy or task. 2 = Marked anxiety in response to more than one toy or task or several times during the ADOS evaluation.q24_e3
ados_oab_ovratIntegerRecommendedOveractivityNulled value range of: 0;1;2;7 to accept outlier data. 0 = Sits or stands still appropriately when expected to do so during the assessment. 1 = Sits briefly or stands still when expected to do so (e.g., during the symbolic imitation task, the birthday party) for activities besides the snack. Often fidgets, moves about, or gets up out of his/her seat, but is not obviously restless or unusually fidgety. Difficulties in the assessment are not principally due to overactivity. 2 = Hardly remains still at all (not counting the snack). May move around the room in a way that is difficult to interrupt; the level of activity disrupts the assessment. 7 = Underactive.q24_e1
ados_oab_tandbIntegerRecommendedTantrums, Aggression, Negative or Disruptive BehaviorNulled value range of: 0;1;2 to accept outlier data. 0 = Not upset, disruptive, negative, destructive, or aggressive during ADOS. 1 = Occasional display of mild upset, anger, aggression, negativism, or disruptive behavior to the parent/caregiver or the examiner. 2 = Shows marked or repeated negativism, temper tantrums, or more significant aggression (e.g., hitting, biting others). Loud screaming is included here.q24_e2
ados_ply_fpwobIntegerRecommendedFunctional Play with ObjectsNulled value range of: 0;1;2;3 to accept outlier data. 0 = Spontaneously plays with a variety of toys in a conventional manner, including appropriate play with several different miniatures/representational toys (e.g., telephone, truck, dishes, materials in the "Birthday Party" activity). Do not include imitations, prompted actions, or pushing the car. 1 = Some spontaneous functional play with at least one miniature/representational toy. Do not include imitations, responses to the examiner's or a parent/caregiver's direct requests (e.g., "Answer the phone"), pushing the car, or use of construction toys. 2 = Plays appropriately with cause-and-effect toys and/or construction toys only, AND/OR pushing the car. This may include imitating a demonstration or imitating more representational play with other toys. 3 = No play with toys or only stereotyped play.q24_c1
ados_ply_imgcr1IntegerRecommendedImagination CreativityNulled value range of: 0;1;2;3 to accept outlier data. 0 = Spontaneous use of a doll or other object as an independent agent, OR spontaneous use of objects to represent other objects (e.g., pretends to eat the string like spaghetti). 1 = Spontaneous pretend play with a doll (e.g., feeding, hugging, or giving a drink) or other objects, but no use of a doll or other toy as an independent agent or to represent something else. 2 = Imitates pretend play as described above for a rating of 1, OR imitation with a placeholder; no spontaneous pretend play. 3 = No imitated or spontaneous pretend play.q24_c2
ados_rsi_fedtoIntegerRecommendedFacial Expression Directed to OthersNulled value range of: 0;1;2 to accept outlier data. 0 = Directs a range of appropriate facial expressions to the examiner and/or parent/caregiver in order to communicate affective or cognitive states. 1 = Some direction of facial expressions to the examiner and/or parent/caregiver (e.g., directs only expressions indicating emotional extreme(s) to others, or occasionally directs wider range of expressions). A child who has a limited range of facial expressions, but who directs most of his or her facial expressions to another person, may be rated here. 2 = Does not direct appropriate facial expressions to others.q24_b3
ados_rsi_givngIntegerRecommendedGivingNulled value range of: 0;1;2 to accept outlier data. 0 = Spontaneously gives toys or objects to other people in a variety of contexts throughout the ADOS evaluation, including giving toys, food, or pretend food for the purpose of sharing. 1 = Gives objects to other people for the purpose of getting help (e.g., in operating toys or opening food containers) or as part of a routine. 2 = Rarely or never gives anything to another person.q24_b8
ados_rsi_igobdIntegerRecommendedIntegration of Gaze and Other Behaviors During Social OverturesNulled value range of: 0;1;2;3 to accept outlier data. 0 = Uses eye contact effectively with words or vocalizations or gestures to communicate social intention. 1 = Uses eye contact and other strategies independently of each other to communicate social intention (i.e., uses both eye contact and vocalization at different times, but does not coordinate them with each other). 2 = Uses either eye contact or other strategies (e.g., vocalization, gestures) to communicate social intention. 3 = Uses neither eye contact nor other strategies to communicate social intention, OR no social overtures.q24_b4
ados_rsi_qscloIntegerRecommendedQuality of Social OverturesNulled value range of: 0;1;2;3 to accept outlier data. 0 = Effectively uses nonverbal and verbal means to make clear social overtures to the examiner or the parent/caregiver. The overtures must be appropriate to immediate contexts. 1 = Slightly unusual quality of social overtures. Assign this rating if overtures are restricted to personal demands or related to strong interests, but with some attempt to involve the examiner or the parent/caregiver in those interests. 2 = Overtures often lack integration into context AND/OR social quality. Assign this rating if there are some clearly inappropriate overtures, even if there are other overtures. 3 = No social overtures of any kind.q24_b12
ados_rsi_reqstIntegerRecommendedRequestingNulled value range of: 0;1;2;3 to accept outlier data. 0 = Exhibits appropriate integration of eye contact and at least one behavior (e.g., vocalization, gesture, or handing an object to the examiner or the parent/caregiver) to request bubbles, the remote-controlled toy animal, object routine, or social routine. Must include eye contact and a definite indication of wanting the other person to do or give something (e.g., by persisting in the request if the other person pauses before responding). This does not include physically pulling or placing the examiner's hand on an object or to the child himself or herself. 1 = Uses one or more behavior(s) listed above to request the remote-controlled toy animal, bubbles, and/or a routine, without integrating eye contact and other behavior(s), such as vocalization or gesture. This includes handing an object to the examiner or parent/caregiver without looking at him or her, looking at the other person without another behavior, and brief requests without persistence. It does not include physically pulling the examiner's hand to an object or to himself or herself. 2 = Does not directly request, as specified above for ratings of 0 or 1, but uses some physical means to request at least one action as part of a routine (e.g., pulls the examiner's hand to an object or to himself or herself). 3 = May participate in routine(s) or try to activate an object by vocalizing, banging, or other actions (e.g., bouncing) without looking at another person or vocalizing for help, but does not request, as specified above.q24_b7
ados_rsi_rspjaIntegerRecommendedResponse to Joint AttentionNulled value range of: 0;1;2;3 to accept outlier data. 0 = Uses the orientation of the examiner's eyes and face alone as a cue to look toward the target, without the need for pointing. The child must follow the examiner's gaze and turn his/her face or eyes in the direction of the target after watching the examiner do so; he/she does not actually have to catch sight of the target. 1 = Responds to the examiner's pointing by looking at or toward the target. 2 = Looks at the target when it is activated or placed directly in front of himlher, but does not make use of the examiner's gaze or pointing in order to locate the target from a distance. 3 = No interest or awareness of the target. If it is not possible to get the child's attention in order to direct it in five attempts, assign this rating.q24_b11
ados_rsi_rspsmIntegerRecommendedResponsive Social Smile0 = Smiles immediately in response to one of the first two smiles of the examiner and/or parent/caregiver. This must be a clear change from nonsmiling to a fully responsive smile that is not prompted by a specific request (e.g., "Give me a smile"). 1 = Delayed or partial smile in response to one of the first two smiles of the examiner and/or parent/caregiver, OR smiles fully or partially only after more than two smiles by the parent/caregiver, OR smiles only in response to a specific request. 2 = Smiles fully or partially at the parent/caregiver only after being tickled or touched in some way OR in response to a repeated action with a physical component (even if the child is not actually touched). 3 = Does not smile in response to another person.q24_b2
ados_rsi_rsptn1IntegerRecommendedResponse to NameNulled value range of: 0;1;2;3 to accept outlier data. 0 = Looks toward the examiner and makes eye contact immediately on at least one of the first two presses made by the examiner. 1 = Looks toward the parent/caregiver and makes eye contact after first or second press of name only, OR makes eye contact with the examiner after the examiner's third or fourth press of name only. 2 = Does not immediately make eye contact with either the examiner or the parent/caregiver after his or her name is called in six attempts, but shifts gaze briefly (no eye contact), shifts gaze after a delay, OR looks at least once when an interesting or familiar vocalization or verbalization is made (e.g., tongue clucking, "I'm gonna get you"). 3 = Does not look toward either the examiner or the parent/caregiver after any purely verbal or vocal attempt to get attention.q24_b6
ados_rsi_seiit1IntegerRecommendedShared Enjoyment in InteractionNulled value range of: 0;1;2 to accept outlier data. 0 = Shows definite and appropriate pleasure with the examiner during more than one activity. Must include pleasure in at least one activity that is not purely physical in nature (e.g., tickling). 1 = Shows some appropriate pleasure in the examiner's actions during more than one activity, OR shows definite pleasure directed to the examiner during one interaction (may be physical in nature). 2 = Shows little or no expressed pleasure in interaction with the examiner. May show pleasure in his/her own actions, in interaction with a parent/caregiver, or in the available toys.q24_b5
ados_rsi_showgIntegerRecommendedShowingNulled value range of: 0;1;2 to accept outlier data. 0 = Spontaneously shows toys or objects throughout the ADOS evaluation by holding them up or placing them in front of others and using eye contact with or without vocalization. 1 = Shows toys or objects in a partial or inconsistent manner (e.g., holds them up and/or places them in front of others without coordinated eye contact, looks from an object in his/her hands to another person without clearly orienting it toward that person, or shows objects as described above for a rating of 0 on one occasion only). 2 = Does not show objects to another person.q24_b9
ados_rsi_spijaIntegerRecommendedSpontaneous Initiation of Joint AttentionNulled value range of: 0;1;2 to accept outlier data. 0 = Uses clearly integrated eye contact to reference an object that is out of reach by looking at the object, then at the examiner or the parent/caregiver, and then back to the object. Eye contact may be coordinated with pointing and/or vocalization. One clear example of an attempt to draw another person's attention to an object (i.e., more than just referencing) is sufficient for this rating. 1 = Partially references an object that is clearly out of reach. May spontaneously look and point to the object and/or vocalize, but does not coordinate either of these with looking at another person, OR may look at an object and then look at or point to the examiner or the parent/caregiver, but not look back at the object. 2 = No approximation of spontaneous initiation of joint attention in order to reference an object that is out of reach.q24_b10
ados_rsi_uneycIntegerRecommendedUnusual Eye Contact0 = Appropriate gaze with subtle changes meshed with other communication. 2 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction. 3 = Uses poorly modulated eye contact to initiate, terminate, or regulate social interaction AND frequently actively avoids eye contact (e.g., by turning away, pushing away, closing eyes).q24_b1
ados_versionString35RecommendedADOS Version
ados_sar_hfocmIntegerRecommendedHand and Finger and Other Complex MannerismsNulled value range of: 0;1;2 to accept outlier data. 0 = None. 1 = Very brief or rare hand and finger mannerisms or complex mannerisms, OR mannerisms not as clear as specified below for a rating of 2. 2 = Definite finger flicking or twisting, ANP/OR, hand or other mannerisms or stereotypes.q24_d2
ados_sar_sfijbIntegerRecommendedSelf-Injurious BehaviorNulled value range of: 0;1;2 to accept outlier data. 0 = No attempts to harm self. 1 = Dubious or possible self-injury, and/or rare but clear self-injury (e.g., one clear example of biting at own hand or arm, pulling own hair, slapping own face, or banging own head). 2 = More than one clear example of self-injury, such as head banging, face slapping, hair pulling, or self-biting.q24_d3
ados_sar_urisbIntegerRecommendedUnusually Repetitive Interests or Stereotyped BehaviorsNulled value range of: 0;1;2;3 to accept outlier data. 0 = No repetitive or stereotyped behaviors during the ADOS evaluation. 1 = An interest or behavior that is repetitive or stereotyped to an unusual degree, including an intense interest in a particular toy or object, a definite interest in an unusual object or activity (odd for the child's level of motor skill), an unusually routinized activity, or a clear interest in a part of an object. This interest or behavior occurs in conjunction with several other activities and does not prevent the child from completing any ADOS activities. 2 = Clearly repetitive or stereotyped interests and/or behaviors, as described above. These behaviors may form a substantial minority of the child's interests and spontaneous behaviors and may interfere with the child's ability to complete ADOS activities, but it is possible for his or her attention to be directed to other objects or activities, at least momentarily. 3 = Repetitive or stereotyped interests and/or behaviors, as described above, form the majority of the child's interests, AND/OR attempts to direct his or her attention to other objects or activities are met with significant resistance and/or distress.q24_d4
ados_sar_usipmIntegerRecommendedUnusual Sensory Interest in Play Material PersonNulled value range of: 0;1;2 to accept outlier data. 0 = No sniffing, repetitive touching, feeling of texture, licking or biting (not mouthing), interest in the repetition of or unusually strong reactions to certain sounds, or unusual or prolonged visual examination. 1 = Occasional unusual sensory interests or responses, OR not as clear as specified below for a rating of 2. 2 = Definite interest in nonfunctional elements of play materials, OR sensory examination of himself/herself or others on more than one occasion, OR persistent unusual sensory response to several materials or events.q24_d1
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