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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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CPEA STAART PATIENT HISTORY

cs_phf

01

Patient History as defined by the CPEA STAART Project

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
fhi_df_adhd_anyIntegerRecommendedFamily History: ADHD Any0;10=No; 1= Yes
cycleIntegerRecommendedTimepoint information-1 = Screener; 0 = Baseline; 97 = Taper; 98 = Withdrawal; 99 = Interim contact
patidString20Recommendedsrc_Subject_idA Participant ID provided by DM-STAT must be present to process form
networkString20RecommendedNetworkCPEA or STAART Network
siteString100RecommendedSiteStudy Site
studyString100RecommendedStudy
fhi_df_adhd_chdIntegerRecommendedFamily History: ADHD Child
fhi_df_alco_anyIntegerRecommendedFamily History: Alcoholism Any
fhi_df_alco_chdIntegerRecommendedFamily History: Alcoholism Child
fhi_df_atsm_anyIntegerRecommendedFamily History: Autism Any
fhi_df_atsm_chdIntegerRecommendedFamily History: Autism Child
fhi_df_atsm_fcmIntegerRecommendedFamily History: Autism Maternal First Cousin
fhi_df_bipl_aumIntegerRecommendedFamily History: Bipolar Disorder Maternal Aunts and Uncles
fhi_df_bipl_gpmIntegerRecommendedFamily History: Bipolar Disorder Maternal Grandparents
fhi_df_bipl_gppIntegerRecommendedFamily History: Bipolar Disorder Paternal Grandparents
fhi_df_cond_anyIntegerRecommendedFamily History: Conduct Disorder Any
fhi_df_cond_chdIntegerRecommendedFamily History: Conduct Disorder Child
fhi_df_depr_anyIntegerRecommendedFamily History: Depression Any
fhi_df_depr_chdIntegerRecommendedFamily History: Depression Child
fhi_df_depr_gpmIntegerRecommendedFamily History: Depression Maternal Grandparents
fhi_df_depr_gppIntegerRecommendedFamily History: Depression Paternal Grandparents
fhi_df_lang_anyIntegerRecommendedFamily History: Language Delay Any
fhi_df_lang_chdIntegerRecommendedFamily History: Language Delay Child
fhi_df_lrn_anyIntegerRecommendedFamily History: Learning Problems Any
fhi_df_lrn_aumIntegerRecommendedFamily History: Learning Problems Any Maternal Aunts and Uncles
fhi_df_lrn_chdIntegerRecommendedFamily History: Learning Problems Child
fhi_df_lrn_fcpIntegerRecommendedFamily History: Learning Problems Paternal Cousins
fhi_df_migr_anyIntegerRecommendedFamily History: Migraine Headaches Any
fhi_df_migr_chdIntegerRecommendedFamily History: Migraine Headaches Child
fhi_df_nfib_anyIntegerRecommendedFamily History: Neurofibromatosis Any
fhi_df_nfib_chdIntegerRecommendedFamily History: Neurofibromatosis Child0;1;9990=Unchecked; 1=Checked
fhi_df_ocd_anyIntegerRecommendedFamily History: OCD Any
fhi_df_ocd_aupIntegerRecommendedFamily History: OCD Paternal Aunts and Uncles
fhi_df_ocd_chdIntegerRecommendedFamily History: OCD Child
fhi_df_ocd_gppIntegerRecommendedFamily History: OCD Paternal Grandparents
fhi_df_panc_anyIntegerRecommendedFamily History: Panic or Anxiety Disorder Any0;10=No; 1= Yes
fhi_df_panc_chdIntegerRecommendedFamily History: Panic or Anxiety Disorder Child
fhi_df_panc_fcpIntegerRecommendedFamily History: Panic or Anxiety Disorder First Cousin Paternal
fhi_df_panc_gpmIntegerRecommendedFamily History: Panic or Anxiety Disorder Maternal Grandparents
fhi_df_panc_gppIntegerRecommendedFamily History: Panic or Anxiety Disorder Paternal Grandparents
fhi_df_seiz_anyIntegerRecommendedFamily History: Seizures Any
fhi_df_seiz_chdIntegerRecommendedFamily History: Seizures Child
fhi_ed_dlay_anyIntegerRecommendedFamily History: Developmental Delay Any
fhi_ed_dlay_chdIntegerRecommendedFamily History: Developmental Delay Child
fhi_notes1IntegerRecommendedFamily History: Notes
fhi_versionString3RecommendedFamily History: Version
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: cs_phf01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.