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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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CSBS DP Infant-Toddler Checklist



CSBS DP Infant-Toddler Checklist. This Checklist is designed to identify different aspects of development in infants and toddlers. Provided by Dr. A. Thurm

Download Definition as
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Element NameData TypeSizeRequiredConditionDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
birth_prematureString20RecommendedWas birth premature?
Yes; No
premature_weeksIntegerConditionalbirth_premature == 'Yes'Weeks premature0 = Full term
respond_detailIntegerRecommendedRespondent detail1::8;9991 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
chronol_ageIntegerRecommendedChronological age, months
emotion_eyegaze_it_q1String50RecommendedDo you know when your child is happy and when your child is upset?Not yet; Sometimes; Often
emotion_eyegaze_it_q2String50RecommendedWhen your child plays with toys, does he/she look at you to see if you are watching?Not yet; Sometimes; Often
emotion_eyegaze_it_q3String50RecommendedDoes your child smile or laugh while looking at you?Not yet; Sometimes; Often
emotion_eyegaze_it_q4String50RecommendedWhen you look at and point to a toy across the room, does your child look at it?Not yet; Sometimes; Often
communicat_it_q5String50RecommendedDoes your child let you know that he/she needs help or wants an object out of reach?Not yet; Sometimes; Often
communicat_it_q6String50RecommendedWhen you are not paying attention to your child, does he/she try to get your attention?Not yet; Sometimes; Often
communicat_it_q7String50RecommendedDoes your child do things just to get you to laugh?Not yet; Sometimes; Often
communicat_it_q8String50RecommendedDoes your child try to get you to notice interesting objects just to get you to look at the objects, not to get you to do anything with them?Not yet; Sometimes; Often
gestures_it_q9String50RecommendedDoes your child pick up objects and give them to you?Not yet; Sometimes; Oftencommunicat_it_q9
gestures_it_q10String50RecommendedDoes your child show objects to you without giving you the object?Not yet; Sometimes; Often
gestures_it_q11String50RecommendedDoes your child wave to greet people?Not yet; Sometimes; Often
gestures_it_q12String50RecommendedDoes your child point to objects?Not yet; Sometimes; Often
gestures_it_q13String50RecommendedDoes your child nod his/her head to indicate yes?Not yet; Sometimes; Often
sounds_it_q14String50RecommendedDoes your child use sounds or words to get attention or help?Not yet; Sometimes; Often
sounds_it_q15String50RecommendedDoes your child string sounds together, such as uh oh, mama, gaga, bye bye, bada?Not yet; Sometimes; Often
sounds_it_q16String50RecommendedAbout how many of the following consonant sounds does your child use: ma, na, ba, da, ga, wa, la, ya, sa, sha?
None; 1 to 2; 3 to 4; 5 to 8; over 8
words_it_q17String50RecommendedAbout how many different words does your child use meaningfully that you recognize (such as baba for bottle; gaggie for doggie)?
None; 1 to 3; 4 to 10; 11 to 30; over 30
words_it_q18String50RecommendedDoes your child put two words together (for example, more cookie, bye bye Daddy)?Not yet; Sometimes; Often
understanding_it_q19String50RecommendedWhen you call your child's name, does he/she respond by looking or turning toward you?Not yet; Sometimes; Often
understanding_it_q20String50RecommendedAbout how many different words or phrases does your child understand without gestures? For example, if you say "where's your tummy", "where's Daddy", "give me the ball", or "come here", without showing or pointing, your child will respond appropriately.
None; 1 to 3; 4 to 10; 11 to 30; over 30
object_use_q33String50RecommendedDoes your child show interest in playing with a variety of objects?Not yet; Sometimes; Often
object_use_it_q22String50RecommendedAbout how many of the following objects does your child use appropriately: cup, bottle, bowl, spoon, comb or brush, toothbrush, washcloth, ball, toy vehicle, toy telephone?
None; 1 to 2; 3 to 4; 5 to 8; over 8
object_use_it_q23String50RecommendedAbout how many blocks (or rings) does your child stack? Stacks
None; 2 blocks; 3 to 4 blocks; 5 or more
object_use_it_q24String50RecommendedDoes your child pretend to play with toys (for example, feed a stuffed animal, put a doll to sleep, put an animal figure in a vehicle)?Not yet; Sometimes; Often
additional_it_q1String20RecommendedDo you have any concerns about your child's development?
Yes; No
additional_it_q2String255Conditionaladditional_it_q1 == 'Yes'If yes, please describe.
emotion_eyegaze_rsIntegerRequiredEmotion and Eye Gaze raw score
communication_rsIntegerRequiredCommunication raw score
gestures_rsIntegerRequiredGestures raw score
social_composite_rsIntegerRequiredSocial composite raw score
social_composite_ssIntegerRequiredSocial composite standard score
social_composite_percFloatRecommendedSocial composite percentile rank
social_concernString20RequiredSocial concern
Yes; No; 999
999 = Missing value
sounds_rsIntegerRequiredSound raw score
words_rsIntegerRequiredWords raw score
speech_composite_rsIntegerRequiredSpeech composite raw score
speech_composite_ssIntegerRequiredSpeech composite standard score
speech_composite_percFloatRecommendedSpeech composite percentile rank
speech_concernString20RequiredSpeech concern
Yes; No; 999
999 = Missing value
understanding_rsIntegerRequiredUnderstanding raw score
object_use_rsIntegerRequiredObject use raw score
symbolic_composite_rsIntegerRequiredSymbolic composite raw score
symbolic_composite_ssIntegerRequiredSymbolic composite standard score
symbolic_composite_percFloatRecommendedSymbolic composite percentile rank
symbolic_concernString20RequiredSymbolic concern
Yes; No; 999
999 = Missing value
total_rsIntegerRequiredTotal raw score
total_ssIntegerRequiredTotal standard score
total_percFloatRecommendedTotal percentile rank
total_concernString20RequiredTotal concern
Yes; No; 999
999 = Missing value
recommendation_2String20RecommendedThis child should be carefully monitored. Re-administer the Checklist in 3 months to determine if a developmental evaluation will become advisable.
Yes; No
recommendation_3String20RecommendedThis child should be referred for a developmental evaluation.
Yes; No
recommendation_1String20RecommendedThis child currently communicates as expected for his or her age. Because new skills are emerging each month, it is important to monitor this child's development by asking the child's caregiver to complete the Checklist again in 3 months.
Yes; No
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: csbs_dp_it01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.