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Caregiver Strain Questionnaire

csq

01

Caregiver Strain Questionnaire

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectcase_id, patid
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.bslage
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
csq_1IntegerRecommendedHow much of a problem were the following: Interruption of personal time resulting from your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas2, cgsq_q1, csqinter, fmbd_q1a1
csq_2IntegerRecommendedHow much of a problem were the following: Your missing work or neglecting other duties because of child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas3, cgsq_q2, csqwork, fmbd_q1a2
csq_3IntegerRecommendedHow much of a problem were the following: Disruption of family routines due to your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas4, cgsq_q3, csqdisrup, fmbd_q1a3
csq_4IntegerRecommendedHow much of a problem were the following: Any family member having to do without things because of your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas5, cgsq_q4, csqprob, fmbd_q1a4
csq_5IntegerRecommendedHow much of a problem were the following: Any family member suffering negative mental or physical health effects as a result of your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas6, cgsq_q5, csqhlth, fmbd_q1a5
csq_6IntegerRecommendedHow much of a problem were the following: Your child getting into trouble with the neighbors, community or law enforcement?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas7, cgsq_q6, csqtrbl, fmbd_q1a6
csq_7IntegerRecommendedHow much of a problem were the following: Financial strain for your family as a result of your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas8, cgsq_q7, csqfinan, fmbd_q1a7
csq_8IntegerRecommendedHow much of a problem were the following: Less attention paid to any family member because of the attention given to your child1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas9, cgsq_q8, csqatten, fmbd_q1a8
csq_9IntegerRecommendedHow much of a problem were the following: Disruption or upset relationships within your family due to your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas10, cgsq_q9, csqrelat, fmbd_q1a9
csq_10IntegerRecommendedHow much of a problem were the following: Disruption of your family's social activities resulting from your child's illness1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas11, cgsq_q10, csqsocial, fmbd_q1a10
csq_11IntegerRecommendedHow you felt about life in your household: How socially isolated did you feel as a result of your child's illness?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas12, cgsq_q11, csqisolated, fmbd_q2a1
csq_12IntegerRecommendedHow you felt about life in your household: How sad or unhappy did you feel as a result of your child's illness?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas13, cgsq_q12, csqsad, fmbd_q2a2
csq_13IntegerRecommendedHow you felt about life in your household: How embarrassed did you feel about your child's illness?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas14, cgsq_q13, csqembar, fmbd_q2a3
csq_14IntegerRecommendedhow you felt about life in your household: How well did you relate to your child?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas15, cgsq_q14, csqwell, fmbd_q2a4
csq_15IntegerRecommendedHow you felt about life in your household: How angry did you feel toward your child?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas16, cgsq_q15, csqangry, fmbd_q2a5
csq_16IntegerRecommendedHow you felt about life in your household: How worried did you feel about your child's future?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas17, cgsq_q16, csqchild, fmbd_q2a6
csq_17IntegerRecommendedHow you felt about life in your household: How worried did you feel about your family's future?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas18, cgsq_q17, csqfamily, fmbd_q2a7
csq_18IntegerRecommendedHow you felt about life in your household: How guilty did you feel about your child's illness?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas19, cgsq_q18, csqguilty, fmbd_q2a8
csq_19IntegerRecommendedHow you felt about life in your household: How resentful did you feel toward your child?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas20, cgsq_q19, csqresent, fmbd_q2a9
csq_20IntegerRecommendedHow you felt about life in your household: How tired or strained did you feel as a result of your child's illness?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas21, cgsq_q20, csqfatigue, fmbd_q2a10
csq_21IntegerRecommendedHow you felt about life in your household: In general, how much of a toll has your child's illness been on your family?1::5; -7; -8; -9; 9991 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missingbas22, cgsq_q21, csqtoll, fmbd_q2a11
siteString100RecommendedSiteStudy Sitefmbd_site_x, site_no
trt_grpString10RecommendedTreatment Group Assignment1;1AO;1CT;2;31=Group 1 first 8 weeks; 1AO=Group 1 8 week add on; 1CT=Group 1 8 week cross taper; 2=Group 2; 3=Group 3
days_baselineIntegerRecommendedDays since baselinebsldays
etypeString10RecommendedRating PeriodBSL;WK1;WK2;WK3;WK4;WK5;WK6;WK7;WK8;WK9;WK10;WK11;WK12;WK13;WK14;WK15;WK16BSL=Baseline; WK1-WK16=Weeks 1-16
respond_detail_oth_specString255RecommendedRespondent detailsinformnt, nfobas
relationshipIntegerRecommendedRelationship of respondent to individual
1::84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nannyinfrmnt2, nfbas
basnIntegerRecommendedNumber of Items 2 22 Completed
bassumIntegerRecommendedSum Total of Items 2 22
bastotIntegerRecommendedCSQ Total Score
respondent_other_specifyString50RecommendedRespondent: Other (specify)nfbas_d
visitString50RecommendedVisit nameCharacter description of each type of visitfmbd_interval
visdayIntegerRecommendedNumber of days from study baseline to date of visitfmbd_visitdat_x
bas1IntegerRecommendedDo you feel that your child's problems have affected your family life?0;10=No; 1=Yes
imputationIntegerRecommendedIndicator noting imputed data set number1::20
csq_1_cngIntegerRecommendedMore or Less problem since entering treatment: Interruption of personal time resulting from your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b1
csq_2_cngIntegerRecommendedMore or Less problem since entering treatment: Your missing work or neglecting other duties because of child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b2
csq_3_cngIntegerRecommendedMore or Less problem since entering treatment: Disruption of family routines due to your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b3
csq_4_cngIntegerRecommendedMore or Less problem since entering treatment: Any family member having to do without things because of your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b4
csq_5_cngIntegerRecommendedMore or Less problem since entering treatment: Any family member suffering negative mental or physical health effects as a result of your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b5
csq_6_cngIntegerRecommendedMore or Less problem since entering treatment: Your child getting into trouble with the neighbors, community or law enforcement?1::31= Less; 2= No change; 3= More;fmbd_q1b6
csq_7_cngIntegerRecommendedMore or Less problem since entering treatment: Financial strain for your family as a result of your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b7
csq_8_cngIntegerRecommendedMore or Less problem since entering treatment: Less attention paid to any family member because of the attention given to your child1::31= Less; 2= No change; 3= More;fmbd_q1b8
csq_9_cngIntegerRecommendedMore or Less problem since entering treatment: Disruption or upset relationships within your family due to your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b9
csq_10_cngIntegerRecommendedMore or Less problem since entering treatment: Disruption of your family's social activities resulting from your child's illness1::31= Less; 2= No change; 3= More;fmbd_q1b10
csq_11_cngIntegerRecommendedMore or Less problem since entering treatment: How socially isolated did you feel as a result of your child's illness?1::31= Less; 2= No change; 3= More;fmbd_q2b1
csq_12_cngIntegerRecommendedMore or Less problem since entering treatment: How sad or unhappy did you feel as a result of your child's illness?1::31= Less; 2= No change; 3= More;fmbd_q2b2
csq_13_cngIntegerRecommendedMore or Less problem since entering treatment: How embarrassed did you feel about your child's illness?1::31= Less; 2= No change; 3= More;fmbd_q2b3
q34_15_cngIntegerRecommendedMore or Less problem since entering treatment: Did you have any problems relating to your child?1::31= Less; 2= No change; 3= More;fmbd_q2b4
csq_15_cngIntegerRecommendedMore or Less problem since entering treatment: How angry did you feel toward your child?1::31= Less; 2= No change; 3= More;fmbd_q2b5
csq_16_cngIntegerRecommendedMore or Less problem since entering treatment: How worried did you feel about your child's future?1::31= Less; 2= No change; 3= More;fmbd_q2b6
csq_17_cngIntegerRecommendedMore or Less problem since entering treatment: How worried did you feel about your family's future?1::31= Less; 2= No change; 3= More;fmbd_q2b7
csq_18_cngIntegerRecommendedMore or Less problem since entering treatment: How guilty did you feel about your child's illness?1::31= Less; 2= No change; 3= More;fmbd_q2b8
csq_19_cngIntegerRecommendedMore or Less problem since entering treatment: How resentful did you feel toward your child?1::31= Less; 2= No change; 3= More;fmbd_q2b9
csq_20_cngIntegerRecommendedMore or Less problem since entering treatment: How tired or strained did you feel as a result of your child's illness?1::31= Less; 2= No change; 3= More;fmbd_q2b10
csq_21_cngIntegerRecommendedMore or Less problem since entering treatment: In general, how much of a toll has your child's illness been on your family?1::31= Less; 2= No change; 3= More;fmbd_q2b11
completedIntegerRecommendedChecks if completed0::20=No; 1=Yes; 2=Yes, lostfmbd_frmcomp
studyString100RecommendedStudyfmbd_studyid
trtgroupString2RecommendedTreatment GroupN1;N2;R1;R2;R3N1=Non-Responder Entering Fluvoxamine; N2=Non-Responder Entering Fluoxetine; R1=Maintenance; R2=Responder Entering Fluvoxamine; R3=Responder Entering Fluoxetine
weekFloatRecommendedWeek in level/study99=week 10-week 14
daysrzIntegerRecommendeddays since randomization
rand_numIntegerRecommendedRandomization Number0::2
csq_od_subIntegerRecommendedObjective Dimension Sub-Scale0::105
csq_is_subIntegerRecommendedInternalized Dimension Sub-Scale0::105
csq_es_subIntegerRecommendedExternalized Dimension Sub-Scale0::105
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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  • Description: A basic description
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Distribution for DataStructure: csq01 and Element:
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