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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Client Satisfaction Questionnaire

csq_md

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
csq_md01IntegerRecommendedHow would you rate the quality of the program?1::41=Poor; 2=Fair;3=Good,4=Excellentq1
csq_md02IntegerRecommendedDid your patients get the kind of help they need?1::41=No, definitely not;2=No, not really;3=Yes, generally;4=Yes, definitelyq2
csq_md03IntegerRecommendedTo what extent has our program met your needs in the management of patients with bipolar disorder?1::41=None of my needs have been met;2=Only a few of my needs have been met;3=Most of my needs have been met;4=Almost all of my needs have been metq3
csq_md04IntegerRecommendedHow likely would you be to recommend our program to a patient with bipoolar disorder in the future?1::41=No, definitely not;2=No, I don't think so;3=Yes, I think so;4=Yes, definitelyq4
csq_md05IntegerRecommendedHow satisfied are you with the procedures for referring patients to the program?1::41=Quite dissatisfied;2=Indifferent or mildly dissatisfied;3=Mostly satisfied;4=Very satisfiedq5
csq_md06IntegerRecommendedDid the program help you out in your efforts to take better care of your patients?1::41=No, it seemed to make things worse;2=No, it really didn't help;3-Yes, it helped somewhat;4=Yes, it helped a great dealq6
csq_md07IntegerRecommendedHow satistifed are you with information received about patients as the progressed through the program?1::41=Quite dissatisfied;2=Indifferent or mildly dissatisfied;3=Mostly satisfied;4=Very satisfiedq7
psq8IntegerRecommendedC: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program?1::41 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitelycsq_md08, q8
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
version_formString100RecommendedForm used
siteString100RecommendedSiteStudy Site
csq1IntegerRecommendedThe FREQUENCY of having blood draws was:1::4;7;8not the blood draws themselves; 1 = Very convenient; 2 = Convenient; 3 = Inconvenient; 4 = Very inconvenient; 7 = Refused; 8 = Don�t Know
csq2IntegerRecommendedThe frequency of coming for visits was:1::4;7;81 = Very convenient; 2 = Convenient; 3 = Inconvenient; 4 = Very inconvenient; 7 = Refused; 8 = Don�t Know
csq3IntegerRecommendedParticipating in interviews was:1::3;7;81 = Very helpful; 2 = Helpful; 3 = Not helpful; 7 = Refused; 8 = Don't Know
csq4IntegerRecommendedMeeting with the psychiatrist was:1::3;7;81 = Very helpful; 2 = Helpful; 3 = Not helpful; 7 = Refused; 8 = Don't Know
csq5IntegerRecommendedDid you benefit from participating in this study?1::4;7;81 = Not at all; 2 = Somewhat; 3 = A Lot; 4 = A Great Deal; 7 = Refused; 8 = Don't Know
csq6IntegerRecommendedHow troublesome was participating in this study for you?1::4;7;81 = Not at all; 2 = Somewhat; 3 = A Lot; 4 = A Great Deal; 7 = Refused; 8 = Don't Know
visitString50RecommendedVisit nameCharacter description of each type of visit
days_baselineIntegerRecommendedDays since baseline
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: csq_md01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.