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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Consumer Satisfaction Survey

csqa

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectnewid, patid, pid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentcsqat0, csqpt0
dsmversString10Recommendedversion/name of assessment
csqa1IntegerRecommendedQuestion 1: The interest and concern that my doctor has shown for me/my child has been:1::71 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superiorcsqp1
csqa2IntegerRecommendedQuestion 2: Thinking about the quality of care, how well has your/your child doctor been in treating you/your child?1::71 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superiorcsqp2
csqa3IntegerRecommendedQuestion 3: How hard was it to do the questionnaires and interviews for the study?1::71 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easycsqp3
csqa4IntegerRecommendedQuestion 4: How hard was it to do the tasks the therapist/doctor asked you to do?1::71 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easycsqp4
csqp5IntegerRecommendedQuestion 5: The length or duration of the treatment program that my child received was:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Long
csqa5aIntegerRecommendedQuestion 5a: Were the individual treatment sessions:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Longcsqp7
csqa5bIntegerRecommendedQuestion 5b: Was the total length of the treatment you received:1::71 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Longcsqp6
csqa6IntegerRecommendedQuestion 6: Do you think other patients who are depressed should get this treatment?1::71 = Definitely Not 2 = Probably Not 3 = Maybe Not 4 = Neutral 5 = Maybe 6 = Probably 7 = Definitelycsqp8
csqa7IntegerRecommendedQuestion 7: How happy are you with the treatment you/your child received?1::71 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happycsqp9
csqa8IntegerRecommendedQuestion 8: The problems that made me/my child want to start treatment are now:1::71 = Much Worse 2 = Worse 3 = Slightly Worse 4 = The Same 5 = A Little Better 6 = Better 7 = A Lot Bettercsqp10
csqa9IntegerRecommendedQuestion 9: How happy are you with how much treatment helped you/your child?1::71 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happycsqp11
csqa10IntegerRecommendedQuestion 10: Before starting treatment, the way I thought about my future/my child future was:1::71 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positivecsqp12
csqa11IntegerRecommendedQuestion 11: Now, the way I think about my future/my child future is:1::71 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positivecsqp13
visitString50RecommendedVisit nameCharacter description of each type of visittimept
visdayIntegerRecommendedNumber of days from study baseline to date of visitcsdays, daypsq
truncvisIntegerRecommendedTruncated Visit NumberCreated variable: provides a numeric visit number for all visits, including unscheduled and end of phase
psq1IntegerRecommendedC: How would you rate the quality of care you have received? P: How would you rate the quality of care your child has received?1::41 = Poor; 2 = Fair; 3 = Good; 4 = Excellenteos_1
psq2IntegerRecommendedC: Did you get the kind of help you wanted? P: Did you get the kind of help you wanted for your child?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely;eos_2
psq3IntegerRecommendedC: To what extent has the program met your needs? P: To what extent has the program met your child's needs?1::41 = None of my (child's) needs have been met; 2 = Only a few of my (child's) needs have been met; 3 = Most of my (child's) needs have been met; 4 = Almost all of my (child's) needs have been metcs1, eos_3
psq4IntegerRecommendedC: If a friend were in need of similar help, would you recommend the program to him her? P: If a friend's child were in need of similar help, would you recommend the program to him her?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitelyeos_4
psq5IntegerRecommendedC: How satisfied are you with the amount of help you have received? P: How satisfied are you with the amount of help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedeos_5
psq6IntegerRecommendedC: Has the help you have received helped you to deal more effectively with your problems? P: Has the help your child received helped your child to deal more effectively with his her problems?1::41 = No, they seemed to make things worse; 2 = No, they really didn't help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great dealeos_6
psq7IntegerRecommendedC: In an overall, general sense, how satisfied are you with the help you have received? P: In an overall, general sense, how satisfied are you with the help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedcs2, eos_7
psq8IntegerRecommendedC: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program?1::41 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitelycs3, eos_8
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
respondent_otherString50RecommendedFIGS Y1: Respondent other than mother or father
respondent_other_specifyString50RecommendedRespondent: Other (specify)
siteString100RecommendedSiteStudy Site
meancsFloatRecommendedMean of Consumer Satisfaction
aescodeIntegerRecommendedStaff code number of person completing this formassigned_counselor
icfwothsString250RecommendedReason ICF Withdrawn: Other textwithdraw_reason
i_groupString3RecommendedTreatment AssignmentCET; EST; TAU; SPITAU = Treatment As Usual; SPI = Suicide Prevention Interventioncondition
withdrawalIntegerRecommendedWithdrawal by participant post-randomization1::31 = stopped treatment but continued assessments & chart reviews ; 2 = stopped assessments but continued chart reviews ; 3 = stopped assessments and chart reviews
withdrawn_typeIntegerRecommendedHas the participant withdrawn post-randomization from assessments? Chart review? Treatment?1::31 = assessments; 2 = chart review; 3 = treatmentwithdrawn
spi_sessionIntegerRecommendedIf withdrawn from study: immediate treatment history1;21 = Received in-jail session; 2 = Received at least ONE post-release SPI session
withdrawn___1IntegerRecommendedHas the participant withdrawn post-randomization from: Assessments?0;10 = No; 1 = Yes
withdrawn___2IntegerRecommendedHas the participant withdrawn post-randomization from: Chart Review?0;10 = No; 1 = Yes
withdrawn___3IntegerRecommendedHas the participant withdrawn post-randomization from: Treatment?0;10 = No; 1 = Yes
satis1IntegerRecommendedPlease rate how helpful you think the FER Assistant is for you personally1::101 = Not at all helpful; 5 = Somewhat helpful; 10 = Very helpful
satis2IntegerRecommendedDid you learn anything during the intervention?0;10 = No; 1 = Yes
satis2_describeString200RecommendedIf you have learned from the intervention, then briefly describe
satis3IntegerRecommendedHow easy was it to interact with the FER Assistant?1::101 = Not easy/Very hard; 5 = A little easy; 10 = Very easy
satis4IntegerRecommendedHow fun or enjoyable was your experience with the FER Assistant?1::101 = Not at all fun; 5 = Somewhat fun; 10 = Very fun
satis5_helpfulString500RecommendedPlease write down anything that you found especially useful or helpful from the program
satis5_unhelpfulString500RecommendedPlease write down anything that you found especially unhelpful from the program
satis5_recommendString500RecommendedTo improve the FER Assistant, I would recommend [please let us know if there is anything we should change or do more/less of]
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: csqa01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.