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Description
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Data Structures with shared data
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Care Satisfaction Questionnaire

csquest

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectrandid, stepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visit
daysconsIntegerRecommendeddays since consent
txmillIntegerRecommendedmental illness family problems0;1;-70=No; 1=Yes; -7=Refused
txalcuseIntegerRecommendedtreatment for alcohol use0;1;-70=No; 1=Yes; -7=Refused
txdrugabIntegerRecommendedtreatment for drug abuse0;1;-70=No; 1=Yes; -7=Refused
txrtawayIntegerRecommendedsee clinician right away0;1;-70=No; 1=Yes; -7=Refused
txsoonIntegerRecommendedtreatment as soon as wanted0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
callapptIntegerRecommendedcall to make appointment0;1;-70=No; 1=Yes; -7=Refused
apptsoonIntegerRecommendedappointment for counseling0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
hlpphoneIntegerRecommendedhelp by telephone0;1;-70=No; 1=Yes; -7=Refused
frqphoneIntegerRecommendedadvice by telephone0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
ervisitsIntegerRecommendedemergency room or center
txofficeIntegerRecommendedtreatment for yourself0::3;-70=None; 1=1-5; 2=6-10; 3=more than 10; -7=Refused
courtesyIntegerRecommendedoffice staff with courtesy0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
waitgt15IntegerRecommendedhow often did wait in office0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
hclistenIntegerRecommendedclinician listen carefully0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
hcexplnIntegerRecommendedclinicians explain things0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
hcrespctIntegerRecommendedclinicians show respect0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
hctimeIntegerRecommendedclinicians spend enough time0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
txmedsIntegerRecommendedtaken prescription medication0;1;-70=No; 1=Yes; -7=Refused
medrisksIntegerRecommendedclinician tell you about risks0;1;-70=No; 1=Yes; -7=Refused
hcsupprtIntegerRecommendedclinicians give you support0::3;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -7=Refused
txinvolvIntegerRecommendedhow often were you involved0::3;-5;-70=Never; 1=Sometimes; 2=Usually; 3=Always; -5=No decisions; -7=Refused
txhelpedIntegerRecommendedhelped by treatment0::3;-70=Not at all; 1=Somewhat; 2=Quite a bit; 3=A great deal; -7=Refused
txkindIntegerRecommendeddifferent kinds of treatments0;1;-70=No; 1=Yes; -7=Refused
rtrefuseIntegerRecommendedright to refuse treatment0;1;-70=No; 1=Yes; -7=Refused
rateallIntegerRecommendedrating of all clinicians0::10;-70=Worst treatment; 10=Best treatment; -7=Refused
mainhcIntegerRecommendedmain clinician0;1;-70=No; 1=Yes; -7=Refused
ratemtxIntegerRecommendedwho provides most treatment0::10;-70=Worst main clinician; 10=Best main clinician; -7=Refused
nohealthIntegerRecommendedno health insurance0;1;-70=No; 1=Yes; -7=Refused
planallIntegerRecommendedhealth plan for all0;1;-70=No; 1=Yes; -7=Refused
inarowIntegerRecommendedcovered by a health plan1::5;-71=Less than 12 months; 2=12-24 months; 3=2-5 years; 4=5-10 years; 5=10 or more years; -7=Refused
paidtxIntegerRecommendedpaid for by health plan0::2;-70=None; 1=All; 2=Only part; -7=Refused
newhcIntegerRecommendednew clinician for treatment0;1;-70=No; 1=Yes; -7=Refused
happyhcIntegerRecommendedhappy with health plan0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
delaytxIntegerRecommendeddelays in treatment0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
allowvstIntegerRecommendedreturn to your clinician0;1;-70=No; 1=Yes; -7=Refused
paperwrkIntegerRecommendedpaperwork for health plan0;1;-70=No; 1=Yes; -7=Refused
pwrkprobIntegerRecommendedproblem with paperwork0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
txprobIntegerRecommendedany problem in counseling0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
infowrtnIntegerRecommendedinformation written materials0;1;-70=No; 1=Yes; -7=Refused
findinfoIntegerRecommendedfind information0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
custservIntegerRecommendedcall customer service0;1;-70=No; 1=Yes; -7=Refused
servhelpIntegerRecommendedproblem to call service0::2;-70=Not a problem; 1=A big problem; 2=A small problem; -7=Refused
rateplanIntegerRecommendedworst health plan possible0::10;-70=Worst plan; 10=Best plan; -7=Refused
medmanagIntegerRecommendedmedication management0;1;-70=No; 1=Yes; -7=Refused
outpatIntegerRecommendedoutpatient group therapy0;1;-70=No; 1=Yes; -7=Refused
daytxIntegerRecommendedday treatment in hospital0;1;-70=No; 1=Yes; -7=Refused
inpatpsyIntegerRecommendedmental health services0;1;-70=No; 1=Yes; -7=Refused
grphomeIntegerRecommendedresidential group home0;1;-70=No; 1=Yes; -7=Refused
ratemntlIntegerRecommendedrate overall mental health1::5;-71=Excellent; 2=Very good; 3=Good; 4=Fair; 5=Poor; -7=Refused
ratehlthIntegerRecommendedrate overall health1::8;-71=Excellent; 2=Very good; 3=Good; 4=Fair; 5=Poor; -7=Refused; 7=Bad; 8=Very Bad; 6=Moderate
siteString100RecommendedSiteStudy Sitesite_id, siteid
visits_feelsIntegerRecommendedFeelings about the number of visits1::3;91 = They were just right; 2 = There were too many; 3 = There were not enoughvisits
adi_feelsIntegerRecommendedFeelings about the ADI1::3;91 = It seemed complete and well worth the time, I am glad it was done; 2 = It seemed too short and incomplete; 3 = It seemed too long and too detailedadi
bldtst_feelsIntegerRecommendedFeelings about the blood tests1::3;91 = They seemed to be a necessary part of the treatment to follow safety issues; 2 = There were not enough of them to ensure safety; 3 = I felt my chld could have been treated without risk without getting the bloodbldtst
behavior_feelsIntegerRecommendedFeelings about behavioral assessments1::3;91 = They were very important; 2 = They were somewhat important; 3 = They were not importantbehavior
sideeff_feelsIntegerRecommendedFeelings about side effect assessments1::3;91 = They were very important; 2 = They were somewhat important; 3 = They were not importantsideeff
learng_feelsIntegerRecommendedFeelings about learning assessments1::3;91 = They were very important; 2 = They were somewhat important; 3 = They were not importantlearng
observe_feelsIntegerRecommendedFeelings about playroom/observation1::3;91 = They were very important; 2 = They were somewhat important; 3 = They were not importantobserve
recommString500RecommendedWould you recommend this treatment to another parent of a child with an autism spectrum disorder/adolescent with an autism spectrum disorder??recomd
doagainIntegerRecommendedIf you had it to do all over again....1::3;91 = Yes, definitely; 2 = Maybe; 3 = Noagain
stdy_dislikedIntegerRecommendedAspects of study you did not like1;0;91 = Yes; 0 = Nodisliked
stdy_likedIntegerRecommendedAspects of study you did like1;0;91 = Yes; 0 = Noliked
studyString100RecommendedStudystudyid
daysrzIntegerRecommendeddays since randomizationstudyday
weekFloatRecommendedWeek in level/study99=week 10-week 14interval
completedIntegerRecommendedChecks if completed0::20=No; 1=Yes; 2=Yes, lostfrmcomp
ci_enrolledIntegerRecommendedParticipant enrolled0;10=No; 1=Yesenrolled
psq_4IntegerRecommendedWhile the blood was being drawn, we took some additional blood for purposes of research on important clinical issues. How do you feel about extra blood being taken for research purposes?1::3;9991=Very glad it was done; 2=Did not mind; 3=Unnecessary
psq_7IntegerRecommendedWould you recommend this study to other parents who have children with similar problems?1::3;9991=Yes, definitely; 2=Maybe, some reservations; 3=No
psq11IntegerRecommendedDid you participate in the Behavior Management Training Program (in addition to medication management)?0;1;9990=No, You have completed this questionnaire. Do you have any other comments?; 1=Yes, Please Continue with Items 12-28
psq12IntegerRecommendedThe number of training sessions/appointments was1::3;9991=Too few; 2=Just right; 3=Too many
psq13IntegerRecommendedThe length of training sessions/appointments was generally1::3;9991=Too short; 2=Just right; 3=Too long
psq14IntegerRecommendedThe materials presented by the clinician were generally1::3;9991=Too easy; 2=Just right; 3=Too difficult
psq15IntegerRecommendedThe videotape examples were generally1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq16IntegerRecommendedThe handouts were generally1::3;9991=Too easy; 2=Just right; 3=Too difficult
psq17IntegerRecommendedThe session on behavioral principles was1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq18IntegerRecommendedThe sessions on prevention approaches were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq19IntegerRecommendedThe sessions on teaching my child to listen or comply were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq20IntegerRecommendedThe sessions on how to reward my child and when to pay attention to my child were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq21IntegerRecommendedThe sessions on how to teach my child were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq22IntegerRecommendedThe sessions on how to maintain and generalize my child's behavior change to other settings were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq23IntegerRecommendedThe home visits were1::3;9991=Very helpful; 2=Somewhat helpful; 3=Not helpful
psq24IntegerRecommendedThe behaviors targeted for change in this intervention for my child1::3;9991=Have improved; 2=Are about the same; 3=Have worsened
psq25IntegerRecommendedPresent level of confidence: My level of confidence in managing present behaviors is1::3;9991=I am more confident since participating in this intervention program; 2=I am about the same as when I started the program; 3=I am less confident than I had been
psq26IntegerRecommendedLevel of confidence concerning new problem behaviors: In terms of managing future behavior issues,1::3;9991=I am more confident since participating in this intervention program; 2=I am about the same as when I started the program; 3=I am less confident than I had been
relationshipIntegerRecommendedRelationship of respondent to individual1::84; -9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: csquest01 and Element:
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Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.