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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Customer Satisfaction Questionnaire

custsq

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
csq_q1IntegerRecommendedWhen you first came to our program, were you seen as promptly as you felt necessary?1::41 = No, it seemed to take forever; 2 = No, there was some delay; 3 = Yes, promptly; 4 = Yes, very promptly
csq_q2IntegerRecommendedIn general, how satisfied are you with the comfort and attractiveness of our facility?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very Satisfied
csq_q3IntegerRecommendedDid the characteristics of our building detract from the services you have received?1::41= Yes, they detracted very much; 2 = Yes, they detracted somewhat; 3 = No, they did not detract much; 4 = No, they did not detract at all
psq5IntegerRecommendedC: How satisfied are you with the amount of help you have received? P: How satisfied are you with the amount of help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedcsq_q4
csq_q5IntegerRecommendedConsidering your particular needs, how appropriate are the services you have received?1::41 = Highly inappropriate; 2 = Generally inappropriate; 3 = Generally appropriate; 4 = Highly appropriate
psq6IntegerRecommendedC: Has the help you have received helped you to deal more effectively with your problems? P: Has the help your child received helped your child to deal more effectively with his her problems?1::41 = No, they seemed to make things worse; 2 = No, they really didn't help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great dealcsq_q6
csq_q7IntegerRecommendedWhen you talked to the person with whom you have worked most closely, how closely did he or she listen to you?1::41 = Not at all closely; 2 = Not too closely; 3 = Fairly closely; 4 = Very closely
psq2IntegerRecommendedC: Did you get the kind of help you wanted? P: Did you get the kind of help you wanted for your child?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely;csq_q8
csq_q9IntegerRecommendedAre there other services you need, but have not received?1::41 = Yes, there definitely were; 2 = Yes, I think there were; 3 = No, I don't think there were; 4 = No, there definitely were not
csq_q10IntegerRecommendedHow clearly did the person with whom you worked most closely understand your problem and how you felt about it?1::41 = Very unclearly; 2 = Somewhat unclearly; 3 = Clearly; 4 = Very clearly
csq_q11IntegerRecommendedHow competent and knowledgeable was the person with whom you have worked closely?1::41 = Poor abilities at best; 2 = Only of average ability; 3 = Competent and knowledgeable; 4 = Highly competent and knowledgeable
psq1IntegerRecommendedC: How would you rate the quality of care you have received? P: How would you rate the quality of care your child has received?1::41 = Poor; 2 = Fair; 3 = Good; 4 = Excellentcsq_q12
psq7IntegerRecommendedC: In an overall, general sense, how satisfied are you with the help you have received? P: In an overall, general sense, how satisfied are you with the help your child has received?1::41 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfiedcsq_q13
psq4IntegerRecommendedC: If a friend were in need of similar help, would you recommend the program to him her? P: If a friend's child were in need of similar help, would you recommend the program to him her?1::41 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitelycsq_q14
csq_q15IntegerRecommendedHave the people in our program generally understood the kind of help you wanted?1::41 = No, they misunderstood almost completely; 2 = No, they seemed to misunderstand; 3 = Yes, they seemed to generally understand; 4 = Yes, they understood almost perfectly
psq3IntegerRecommendedC: To what extent has the program met your needs? P: To what extent has the program met your child's needs?1::41 = None of my (child's) needs have been met; 2 = Only a few of my (child's) needs have been met; 3 = Most of my (child's) needs have been met; 4 = Almost all of my (child's) needs have been metcsq_q16
csq_q17IntegerRecommendedHave your rights as an individual been respected?1::41 = No, almost never respected; 2 = No, sometimes not respected; 3 = Yes, generally respected; 4 = Yes, almost always respected
psq8IntegerRecommendedC: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program?1::41 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitelycsq_q18
csq_totalscoreIntegerRecommendedCustomer Satisfaction Questionnaire total scoreseverity_totscore
visitString50RecommendedVisit nameCharacter description of each type of visit
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: custsq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.