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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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End of Treatment Debriefing Flow and Recommendations

debrief14

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
days_baselineIntegerRecommendedDays since baselinedaydb14
assbdicString5RecommendedAssessment PointD;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; CD=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)assdb14
siteString100RecommendedSiteStudy Sitesitenum
sjtypIntegerRecommendedSubject type1;21=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
trtnameString10RecommendedTreatment groupM;C;P; A; P; LM=Medication only; C=Combined medication and psychosocial; P=Psychosocial only; A = Assessment and Referral; L = LNCG (Local Normative Comparison Group)
eotcatIntegerRecommendedEnd of treatment category1::3;991 = There has been improvement over time, and/or the child is now doing well generally (CGI's now no higher than 1 or 2); 2 = Child's progress and behavior has been "so-so," and some further improvement is needed (any most recent CGI of 3); or there is no clear pattern per se, but there have been some "ups and downs," suggesting child may benefit from some additional treatments; 3 = There has been some worsening or gradual deterioration over time, and/or the child is not doing well (defined as any most recent CGI of 4). More treatment is clearly needed, both clinically and ethically; 99 = No debriefing visit took place; no recommendations given
db1IntegerRecommendedLocal Attention Deficit/Hyperactivity Disorder Parent Group (e.g., ChADD., LDA)11 = This service was selected as a recommendation for this child
db2IntegerRecommendedOther Parent Support Group (e.g., AMI, MHA)11 = This service was selected as a recommendation for this child
db3IntegerRecommendedParenting/Marriage Classes taught thru the community (church/synagogue, etc.)11 = This service was selected as a recommendation for this child
db4IntegerRecommendedOther Self-Help Groups, like AA or NA11 = This service was selected as a recommendation for this child
db5IntegerRecommendedSummer Treatment Program or Special Summer Camp for children with behavioral or attention problems11 = This service was selected as a recommendation for this child
db6IntegerRecommendedWeekend Treatment Program11 = This service was selected as a recommendation for this child
db7IntegerRecommendedAdditional testing (specify purpose - pediatric, psychological, or educational)11 = This service was selected as a recommendation for this child
db8IntegerRecommendedRecreational and supportive activities for the child11 = This service was selected as a recommendation for this child
db9IntegerRecommendedOccupational/Physical Therapy11 = This service was selected as a recommendation for this child
db10IntegerRecommendedParent Training (Group-based)11 = This service was selected as a recommendation for this child
db11IntegerRecommendedParent Guidance or Training (Individual family-based)11 = This service was selected as a recommendation for this child
db12IntegerRecommendedGroup Therapy or other Group Treatment for you/your spouse/the child11 = This service was selected as a recommendation for this child
db13IntegerRecommendedIndividual Therapy/Counseling for you/your spouse/the child11 = This service was selected as a recommendation for this child
db14IntegerRecommendedFamily Therapy11 = This service was selected as a recommendation for this child
db15IntegerRecommendedSpecial Teacher-Parent Meetings, School consultation, IEP/Special Educational Staffing meetings11 = This service was selected as a recommendation for this child
db16IntegerRecommended1-to-1 Tutoring (not done by the parent)11 = This service was selected as a recommendation for this child
db17IntegerRecommendedSpeech and Language Therapy11 = This service was selected as a recommendation for this child
db18IntegerRecommendedCouples/Marital Therapy/Marriage Classes or Activities (e.g., Marriage Encounter)11 = This service was selected as a recommendation for this child
db19IntegerRecommendedParent Training/Behavioral Therapy for any other child in the family11 = This service was selected as a recommendation for this child
db20IntegerRecommendedPsychiatric Hospitalization11 = This service was selected as a recommendation for this child
db21IntegerRecommendedStimulant Medication Treatment11 = This service was selected as a recommendation for this child
db22IntegerRecommendedOther Medication Treatment11 = This service was selected as a recommendation for this child
db23IntegerRecommendedOther11 = This service was selected as a recommendation for this child
dbnumrecIntegerRecommendedNumber of recommendations given at debriefing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: debrief1401 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.