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Description
Value Range
Notes
Data Structures with shared data
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Demographics form UCLA

dem_ucla

01

Demographics form UCLA

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldInterviewYear
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other maleDemo_fillForm
respond_detail_oth_specString255RecommendedRespondent detailsDemo_fillFormOth
demo_countlivehomeIntegerRecommendedHow many people live in your house?0::12Demo_countLiveHome, house
demo_countliveover21IntegerRecommendedNumber of adults over 21 yrs:0::12Demo_countLiveOver21, adults
demo_countliveless21IntegerRecommendedNumber of children less than 21 yrs:0::12Demo_countLiveLess21, numchild
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
ethnic_groupString255RecommendedEthnic group
mother_ethnicityString30RecommendedMother ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)Hispanic or Latino;Not Hispanic or Latino;Not ProvidedDemo_ethMother
bio_mother_raceString150RecommendedBiological Mother Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
father_ethnicityString30RecommendedFather ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino)Hispanic or Latino;Not Hispanic or Latino;Not ProvidedDemo_ethFather
bio_father_raceString150RecommendedBiological Father RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
demo_languageIntegerRecommendedWhat language does your child hear most at home?1;2;3;4;51 = English; 2 = Spanish; 3 = Korean; 4 = French; 5 = Other
language_specifyString255RecommendedLanguage in the home - Specify if other than standard englishDemo_languageOth
demo_othlanguageIntegerRecommendedDoes your child hear any other language at home?
0;1
0 = No; 1 = Yes
demo_othlangdescString150RecommendedIf yes, specify the language(s):
mother_eduString55RecommendedMother's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School; Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional TrainingDemo_momEdu, momedu
bio_mother_occupationString100RecommendedBiological Mother OccupationDemo_momJob, momocc
demo_momemployString1RecommendedMother's current employment status:a;b;c;d;e;fa = Not employed; b = Employed part-time; c = Employed full-time; d = Self-employed part-time; e = Self-employed full-time; f = Employed full-time and second job
demo_momworkIntegerRecommendedDoes the mother work outside the home?:0;1;20 = No; 1 = Part-time; 2 = Full-time
father_eduString55RecommendedFather's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School;Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional TrainingDemo_dadEdu, dadedu
bio_father_occupationString100RecommendedBiological Father OccupationDemo_dadJob, dadocc
demo_dademployString1RecommendedFather's current employment status:a;b;c;d;e;fa = Not employed; b = Employed part-time; c = Employed full-time; d = Self-employed part-time; e = Self-employed full-time; f = Employed full-time and second job
demo_dadworkIntegerRecommendedDoes the Father work outside the home?:0;1;20 = No; 1 = Part-time; 2 = Full-time
demo_incomeString2RecommendedWhat is the family income per year:a;b;c;d;e;f;g;h;i;j; k; l; m;n;-7a = Less than $10,000; b = $10,000-$20,000; c = $20,000-$30,000; d = $30,000-$40,000; e = $40,000-$50,000; f = $50,000-$60,000; g = $60,000-$80,000; h = $80,000-$100,000; i = Above $100,000; j=$50,000-$74,999; k=$75,000-$99,999; l=$100,000-$149,999; m=$150,000-$199,999; n=$200,000 or more; -7=Refused
demo_assistanceString10RecommendedDoes the family receive any of the following assistance? (check all that apply)1 = Medicaid; 2 = Food stamps; 3 = SSI; 4 = Commodities/food pantry; 5 = TANF; 6 = Unemployment; 7 = WIC; 8 = Housing assistance; 9 = Other
demo_assistothString250RecommendedSpecify other:
demo_liveIntegerRecommendedHow would you describe the area where you live?1;2;3;41 = City; 2 = Rural; 3 = Suburban; 4 = Small town
demo_moveIntegerRecommendedDuring the past year, has your family moved?0;10 = No; 1 = Yes
demo_movehowmanyString250RecommendedIf yes, how many moves?
demo_chgcaregiverIntegerRecommendedDuring the past year, has there been a change in your child's primary caregiver?0;10 = No; 1 = Yes
demo_chgcaregiverdescString250RecommendedIf yes, briefly explain:
demo_chgparentmaritalIntegerRecommendedDuring the past year, has there been a change in the parent's marital status?0;10 = No; 1 = Yes
demo_chgparentmaritaldescIntegerRecommendedParents marital status1::61 = Married; 2 = Separated; 3 = Divorced; 4 = Widowed; 5 = Single; 6 = Othermarital
demo_chgcustodyIntegerRecommendedDuring the past year, has there been a change in child custody?0;10 = No; 1 = Yes
demo_chgcustodydescString250RecommendedIf yes, briefly explain:
visitString50RecommendedVisit nameCharacter description of each type of visit
mother_ageIntegerRecommendedMother's age0 :: 1200
bio_mother_employedString5RecommendedBiological Mother Employed?Yes;Nomomemp
father_ageIntegerRecommendedFather's age0 :: 1200
bio_father_employedString5RecommendedBiological Father Employed?Yes;Nodademp
gradeString50RecommendedCurrent Grade
demo_asd_ageIntegerRecommendedIf yes, age at ASD diagnosis0::1200chagedx
cspecial_edIntegerRecommendedChild's school placement1;2;91=General Education; 2=Special Education; 9=Otherplacemt
fr_lunchIntegerRecommendedwhether they receive free/reduced lunch;0;10 = no; 1 = yeslunch
esl_registryIntegerRecommendedEnglish is second language (ESL)?0;10=No; 1=Yesesl
asispedString200RecommendedSpecify special education servicesserv
livwithIntegerRecommendedWith whom is subject currently living (choose one)?1::25; 88; 991 = Both natural parents; 2 = Both natural parents, but joint custody; 3 = Natural mother and stepfather; 4 = Natural father and stepmother; 5 = Natural mother and boyfriend/girlfriend; 6 = Natural father and boyfriend/girlfriend; 7 = Natural mother only; 8 = Natural father only; 10 = Stepmother only; 11 = Stepfather only; 12 = Grandparent; 13 = Adoptive parent; 14 = Other relative/friend; 15 = Foster home; 16 = Group home; 17 = Residential institution; 18 = Boarding home; 19 = Runaway; 20 = College student; 21 = Lives independently; 22=Aunt/Uncle; 23=Legal Guardian;24 = Military; 25 = Spouse/significant other88 = other; 99 = missinglive
famchdemoString100RecommendedDescribing the other children in the familyDescribed by age, sex, name, diagnoses etc..
otheroppIntegerRecommendedOther opportunities0;10 = no; 1 = yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: dem_ucla01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.