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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
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Notes
Data Structures with shared data
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Demographics and Birth History

demabh

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Femalechildsgender
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
otherraceString50Recommendedspecify other racechildsraceother
ethnicityString30RecommendedEthnicity of participantHispanic or Latino; Not Hispanic or Latino; Unknownchildsethnicity
dembadptIntegerRecommendedIs the child/teen adopted?0;10 = No 1 = Yesischildadopted
info_apgar1String50RecommendedApgars 1 min.apgarscore1min
info_apgar5String50RecommendedApgars 5 min.apgarscore5min
apgar1nkIntegerRecommendedOne Minutes Apgar Score Not known0;10=Not known, but cried immediately; 1=Not knownu1minapgarscorenotknown
apgar5nkIntegerRecommendedFive Minute Apgar Score Not known0;10=Not known, but cried immediately; 1=Not knownu5minapgarscorenotknown
birthIntegerRecommendedPerinatal - Complications at birth?0::30=N/A; 1=no; 2=yes; 3=NKbirthcomplications
demosam_038String250RecommendedPlease note any other unique circumstances or complications surrounding your birth herebirthcomplicationsifyesdetails
ldnb_headcircumcmFloatRecommendedWhat was the babys head circumference at birth (cm)birthheadcircumferencecm
ldnb_headcircuminFloatRecommendedWhat was the babys head circumference at birth (inches)-1 = Not knownbirthheadcircumferenceinches
ldnb_headcircumdkString50RecommendedWhat was the babys head circumference at birth - Don't KnowDon't Know; 0;10 = unchecked box; 1 = checked boxbirthheadcircumferenceunknown
ldnb_lgthcmFloatRecommendedWhat was the babys length at birth(cm)birthlengthcm
ldnb_lgthinFloatRecommendedWhat was the babys length at birth(inches)-1 = Not knownbirthlengthinches
ldnb_lgthdkString50RecommendedWhat was the babys length at birth - Don't KnowDon't Know; 0;10 = unchecked box; 1 = checked boxbirthlengthunknown
child_bwkgFloatRecommended2.1.a. Birth Weight (kg)birthweightkg
birth_weight_lbsFloatRecommendedBirth weight poundsbirthweightlbs
birth_weight_ozFloatRecommendedBirth weight ouncesbirthweightoz
bwnk_2IntegerRecommendedBirth weight not Known or Not Available (choice=NK)0;10=Unchecked; 1=Checkedbirthweightunknown
gestationalagedaysIntegerRecommendedGestational age days
gestationalageunknownIntegerRecommendedGestational age Unknown0; 10 = unchecked box; 1 = checked box
info_gestString50RecommendedNo. Weeks Gestation (G.A.)gestationalageweeks
decreasedalerString10RecommendedDecreased alertnessYes; No; Unknowndecreasedalertness
decreasedalercommString50RecommendedDecreased alertness commentsdecreasedalertnesscomments
decreasedaler2String10RecommendedDecreased alertness SeverityMild; Moderate; Severedecreasedalertnessseverity
disruptedsleeString10RecommendedDisrupted sleep patternYes; No; Unknowndisruptedsleeppattern
disruptedsleecommString50RecommendedDisrupted sleep pattern commentsdisruptedsleeppatterncomments
disruptedslee2String10RecommendedDisrupted sleep pattern SeverityMild; Moderate; Severe
floppinessString10RecommendedFloppinessYes; No; Unknown
floppinesscommentsString50RecommendedFloppiness comments
floppinessseverityString10RecommendedFloppiness severityMild; Moderate; Severe
perinatalinfomkIntegerRecommendedPerinatal information Unknown0; 10 = unchecked box; 1 = checked boxperinatalinformationunknown
irritabilityString10RecommendedIrritabilityYes; No; Unknown
irritabilitycommentsString50RecommendedIrritability comments
irritabilitysString10RecommendedIrritability SeverityMild; Moderate; Severeirritabilityseverety
lethargyString10RecommendedLethargyYes; No; Unknown
lethargycommentsString50RecommendedLethargy comments
lethargyseverString10RecommendedLethargy SeverityMild; Moderate; Severelethargyseverity
neonatcompString15RecommendedNeonatal complicationsYes; No; Not Applicableneonatalcomplications
neonatcomp_speString250RecommendedIf yes specify Neonatal complicationsneonatalcomplicationsifyesdeta
peri_feedString15RecommendedPerinatal feeding problemsYes; No; Not Applicableneonatalfeedingproblems
peri_feed_specString250RecommendedIf yes specify Perinatal feeding problemsFree Textneonatalfeedingproblemsifyesde
other_eiString10RecommendedOther Early InfancyYes; No; Unknownother
othercommentsString50RecommendedProblems Other comments
otherseverity_eiString10RecommendedOther Severity Early InfancyMild; Moderate; Severeotherseverity
otherspecify_eiString100RecommendedIf yes specify Other Severity Early Infancyotherspecify
poorfeedingString10RecommendedPoor feeding or sucklingYes; No; Unknownpoorfeedingorchewing
poorfeedingcommString100RecommendedPoor feeding or chewing commentspoorfeedingorchewingcomments
poorfeedingseString10RecommendedPoor feeding or suckling severityMild; Moderate; Severepoorfeedingorchewingseverity
poorswallchokString10RecommendedPoor swallowing or chokingYes; No; Unknownpoorswallowingorchoking
poorswallcomString50RecommendedPoor swallowing or choking commentspoorswallowingorchokingcomment
poorswalchoksevString10RecommendedPoor swallowing or choking severityMild; Moderate; Severe
toogoodString10RecommendedToo good rarely fussedYes; No; Unknowntoogoodrarelyfussed
toogoodfuscommString50Recommendedtoo good rarely fussed commentstoogoodrarelyfussedcomments
toogoodseveriString10RecommendedToo good rarely fussed SeverityMild; Moderate; Severetoogoodrarelyfussedseverity
preg_complicString10RecommendedComplications during pregnancy?Yes; No; NKNK = Not knownpregnancycomplications
preg_comp_noteString255RecommendedNote regarding complications during pregnancypregnancycomplicationsifyesdet
pregexposString3RecommendedPregnancy exposures drug/toxinYes;Nopregnancyexposures
pregexposdetailsString100RecommendedPregnancy exposures drug/toxin If yes detailspregnancyexposuresifyesdetails
das1msString75RecommendedMarital statusmaritalstatusofbirthparents
bpc_adhdorad1IntegerRecommendedBirth Parent 1 Condition ADHD or ADD0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_adhdorad1
bpc_adhdorad2IntegerRecommendedBirth Parent 2 Condition ADHD or ADD0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_adhdorad2
bpc_anxiet1IntegerRecommendedBirth Parent 1 Condition Anxiety0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_anxiet1
bpc_anxiet2IntegerRecommendedBirth Parent 2 Condition Anxiety0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_anxiet2
bpc_autismspec1IntegerRecommendedBirth Parent 1 Condition Autism spectrum0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_autismspec1
bpc_autismspec2IntegerRecommendedBirth Parent 2 Condition Autism spectrum0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_autismspec2
bpc_autoimmune1IntegerRecommendedBirth Parent 1 Condition Autoimmune disorder:0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_autoimmune1
bpc_autoimmune2IntegerRecommendedBirth Parent 2 Condition Autoimmune disorder:0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_autoimmune2
bpc_depressio1IntegerRecommendedBirth Parent 1 Condition Depression0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_depressio1
bpc_depressio2IntegerRecommendedBirth Parent 2 Condition Depression0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_depressio2
bpc_developmen1IntegerRecommendedBirth Parent 1 Condition Developmental delay/intellectual disability0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_developmen1
bpc_developmen2IntegerRecommendedBirth Parent 2 Condition Developmental delay/intellectual disability0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_developmen2
bpc_diabete1IntegerRecommendedBirth Parent 1 Condition Diabetes0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_diabete1
bpc_diabete2IntegerRecommendedBirth Parent 2 Condition Diabetes0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_diabete2
bpc_highcholes1IntegerRecommendedBirth Parent 1 Condition High Cholesterol0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_highcholes1
bpc_highcholes2IntegerRecommendedBirth Parent 2 Condition High Cholesterol0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_highcholes2
bpc_highbloodp1IntegerRecommendedBirth Parent 1 Condition High blood pressure0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_highbloodp1
bpc_highbloodp2IntegerRecommendedBirth Parent 2 Condition High blood pressure0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_highbloodp2
bpc_learningdi1IntegerRecommendedBirth Parent 1 Condition Learning disability (dyslexia, dyscalculia)0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_learningdi1
bpc_learningdi2IntegerRecommendedBirth Parent 2 Condition Learning disability (dyslexia, dyscalculia)0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_learningdi2
bpc_non1IntegerRecommendedBirth Parent 1 Condition None0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_non1
bpc_non2IntegerRecommendedBirth Parent 2 Condition 2 None0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_non2
bpc_oc1IntegerRecommendedBirth Parent 1 Condition OCD0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_oc1
bpc_oc2IntegerRecommendedBirth Parent 2 Condition OCD0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_oc2
bpc_othe1IntegerRecommendedBirth Parent 1 Condition Other:0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_othe1
bpc_othe2IntegerRecommendedBirth Parent 2 Condition Other:0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_othe2
bpc_seizuredis1IntegerRecommendedBirth Parent 1 Condition Seizure disorder0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_seizuredis1
bpc_seizuredis2IntegerRecommendedBirth Parent 2 Condition Seizure disorder0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_seizuredis2
bpc_unknow1IntegerRecommendedBirth Parent 1 Condition Unknown0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_unknow1
bpc_unknow2IntegerRecommendedBirth Parent 2 Condition Unknown0; 10 = unchecked box; 1 = checked boxbirthparentsconditio_unknow2
bpcfathersd2String50RecommendedFathers disorders Autoimmune disorderbirthparentsconditionsfathersd2
bpcfathersd3String100RecommendedChronic health conditions Fathers disorders Otherbirthparentsconditionsfathersd3
bpcmothersd2String50RecommendedMothers disorders Autoimmune disorderbirthparentsconditionsmothersd2
bpcmothersd3String100RecommendedChronic health conditions Mothers disorders Otherbirthparentsconditionsmothersd3
frx_medicationsIntegerRecommendedFathers prescribed medications0;1;99=Unknown; 0=Father did NOT take prescribed medications; 1=Father did take prescribed medicationsfathersprescribedmedications
frx_medication1_1IntegerRecommendedFathers prescribed medications Medications 1 route1::41=Oral; 2=IV; 3=IM; 4=Otherfathersprescribedmedication1_1
frx_medication1_2String100RecommendedFathers prescribed medications Medication 1 namefathersprescribedmedication1_2
frx_medication1_3String25RecommendedFathers prescribed medications Medication 1 frequencyfathersprescribedmedication1_3
frx_medication2_1IntegerRecommendedFathers prescribed medications Medications 2 route1::41=Oral; 2=IV; 3=IM; 4=Otherfathersprescribedmedication2_1
frx_medication2_2String50RecommendedFathers prescribed medications Medication 2 namefathersprescribedmedication2_2
frx_medication2_3String25RecommendedFathers prescribed medications Medication 2 frequencyfathersprescribedmedication2_3
frx_medication3_1IntegerRecommendedFathers prescribed medications Medications 3 route1::41=Oral; 2=IV; 3=IM; 4=Otherfathersprescribedmedication3_1
frx_medication3_2String50RecommendedFathers prescribed medications Medication 3 namefathersprescribedmedication3_2
frx_medication3_3String25RecommendedFathers prescribed medications Medication 3 frequencyfathersprescribedmedication3_3
frx_medication4_1IntegerRecommendedFathers prescribed medications Medications 4 route1::41=Oral; 2=IV; 3=IM; 4=Otherfathersprescribedmedication4_1
frx_medication4_2String50RecommendedFathers prescribed medications Medication 4 namefathersprescribedmedication4_2
frx_medication4_3String25RecommendedFathers prescribed medications Medication 4 frequencyfathersprescribedmedication4_3
frx_medication5_1IntegerRecommendedFathers prescribed medications Medications 5 route1::41=Oral; 2=IV; 3=IM; 4=Otherfathersprescribedmedication5_1
frx_medication5_2String50RecommendedFathers prescribed medications Medication 5 namefathersprescribedmedication5_2
frx_medication5_3String25RecommendedFathers prescribed medications Medication 5 frequencyfathersprescribedmedication5_3
mrx_medicationsIntegerRecommendedMothers prescribed medications0;1;99=Unknown; 0=Mother did NOT take prescribed medications; 1=Mother did take prescribed medicationsmothersprescribedmedications
medication1_frequencyString50RecommendedFirst medication frequencymedicationstaken1_1
medication1_routeIntegerRecommendedRoute medication 11::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput1_1
medication1_nameString100RecommendedName first medication that the participant has taken999= Legitimately skipped;medicationstakenrxmeds1_1
medication2_frequencyString50RecommendedSecond medication frequencymedicationstaken2_1
medication2_routeIntegerRecommendedRoute medication 21::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput2_1
medication2_nameString100RecommendedName second medication that the participant has taken999= Legitimately skipped;medicationstakenrxmeds2_1
medication3_frequencyString50RecommendedThird medication frequencymedicationstaken3_1
medication3_routeIntegerRecommendedRoute medication 31::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput3_1
medication3_nameString150RecommendedName third medication that the participant has taken999= Legitimately skipped;medicationstakenrxmeds3_1
medication4_frequencyString50RecommendedFourth medication frequencymedicationstaken4_1
medication4_routeIntegerRecommendedRoute medication 41::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput4_1
medication4_nameString100RecommendedName fourth medication that the participant has taken999= Legitimately skipped;medicationstakenrxmeds4_1
medication5_frequencyString50RecommendedFifth medication frequencymedicationstaken5_1
medication5_routeIntegerRecommendedRoute medication 51::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput5_1
medication5_nameString100RecommendedName fifth medication that the participant has takenmedicationstakenrxmeds5_1
medication6_frequencyString50RecommendedSixth medication frequencymedicationstaken6_1
medication6_routeIntegerRecommendedRoute medication 61::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput6_1
medication6_nameString100RecommendedName sixth medication that the participant has takenmedicationstakenrxmeds6_1
medication7_frequencyString50RecommendedSeventh medication frequencymedicationstaken7_1
medication7_routeIntegerRecommendedRoute medication 71::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput7_1
medication7_nameString100RecommendedName seventh medication that the participant has takenmedicationstakenrxmeds7_1
medication8_frequencyString50RecommendedEighth medication frequencymedicationstaken8_1
medication8_routeIntegerRecommendedRoute medication 81::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput8_1
medication8_nameString100RecommendedName eighth medication that the participant has takenmedicationstakenrxmeds8_1
medication9_frequencyString50RecommendedNinth medication frequencymedicationstaken9_1
medication9_routeIntegerRecommendedRoute medication 91::41=Oral; 2=IV; 3=IM; 4=Othermedicationstakenrxinput9_1
medication9_nameString100RecommendedName ninth medication that the participant has takenmedicationstakenrxmeds9_1
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demabh01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.