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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographics and Baseline Characteristics



Demographics and baseline characteristics

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectCATIEID, bid
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.AGE, dema1
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fielddate, followup_date
genderString20RequiredSex of the subjectM;FM = Male; F = FemaleGENDER, dema2
whiteIntegerRecommended5. Race0;11=yes, 0=no
blackIntegerRecommendedBlack or African-American0;11=yes, 0=no
nativeIntegerRecommendedAmerican Indian or Alaska Native0;11=yes, 0=no
asianString5RecommendedEthnicity: Asian
pacificString5RecommendedEthnicity: Pacific
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reporteddema3, race1
race_cIntegerRecommendedRace in two category (white only vs. other)1;21=White alone; 2=other
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yesdema4
exacerIntegerRecommendedHas patient been hospitalized or required crisis stabilization services in the past three months for any mental health problem?0;10=No; 1=Yes; Baseline covariate adjusted for in many statsitical models based on analysis plan
tdIntegerRecommendedDoes the patient now meet Schooler-Kane criteria for probable tardive dyskinesia?0;10=No; 1= Yes; This item is question 10 from the screening eCRF. It is NOT the variable used to stratify patients into Phase 1A nor adjust for TD in statistical models. That variable, which was collected at the time of randomization via IVR (interactive voice response) is in the KEYVARS file, and is called PHASE1A
das1msString75RecommendedMarital statusdema5, marital, marital_status
marital2IntegerRecommendedMarital Stat categorized (married vs not)0;11=Married; 0=Not married
sigotherIntegerRecommendedAre you currently living with a significant other?0;11=yes, 0=no
psysoc_89String5RecommendedVeteran?Y;N;-7Y=Yes; N=No; -7=RefusedDEMO3, veteran
curreduccompletedString50RecommendedCurrent grade education level completedPAT_EDUC
demo4aIntegerRecommendedIf patient did not finish high school, years of education
educ_yrsFloatRecommendedNumber of Years of Patient's Education1::11;11.5;12::211-11 =(for patients who did not complete high school, these categories represent the number of years of education); 11.5 = Did not complete high school and number of years of education is 12; 12 = GED/high school diploma; 13 = Some college, did not graduate; 14 = Community college / tech school degree; 16 = College graduate; 17 = College graduate and some Master's level courses; 18 = Master's degree completed; 19 = Advanced degree courses, not graduated 21 = Advanced degree completeddema8
par_educIntegerRecommendedHow far did your parents go in school0::90=Did not complete high school; 1=GED/High school diploma; 2=Some college, did not graduate; 3=Community college or technical school degree; 4=College graduate; 5=College graduate and some Master's level; 6=Master's degree completed; 7=Advanced degree courses, not graduated; 8=Advanced degree completed (e.g. Ph.D., M); 9=Unknown
demo5aIntegerRecommendedIf parent did not finish highschool, years of education
cgi_sevIntegerRecommendedClinician Global Impressions: Severity score1::71 = Normal, Not ill; 2 = Minimally ill; 3 = Mildly ill; 4 = Moderately ill; 5 = Markedly ill; 6 = Severely ill; 7 = Very Severely ill
cgi_catIntegerRecommendedBaseline CGI Severity (Normal vs not)0;11=Normal, not ill; 0=Ill
b1_panssIntegerRecommendedPhase 1 Baseline PANSS TotalBaseline score for the phase Also in PANSS file
employIntegerRecommendedPatient Employment Status at Baseline0::30=Unknown; 1=Full Time; 2=Part Time; 3=Did Not Work; Full time = worked at least 18 days in past month; Part time = worked less than 18 days in past month and earned income (SURFQA=1); Did not work = worked less than 18 days in past month and did not earn income (SURFQA = 2 or 3)
employ2IntegerRecommendedEmployment Status (Full time vs not)0;11=Full time; 0=Not full time
qol01aIntegerRecommendedCurrently live with parent0;11=yes; 0=no
qol01bIntegerRecommendedCurrently live with a spouse/girlfriend/boyfriend0;11=yes; 0=no
qol01cIntegerRecommendedCurrently live with a sibling0;11=yes; 0=no
qol01dIntegerRecommendedCurrently live with a son or daughter0;11=yes; 0=no
qol01eIntegerRecommendedCurrently live with other relatives0;11=yes; 0=no
qol01fIntegerRecommendedCurrently live with other people not related and not friends0;11=yes; 0=no
qol01gIntegerRecommendedLives alone0;11=yes; 0=no
scid17aIntegerRecommendedAge 1st treated for emo/behavioral
yrs_trtIntegerRecommendedYears Since First Treatment for Behavioral or Emotional Problem
scid18aIntegerRecommendedAge at 1st antipsychotic prescriptionyrs_ause
yrs_presIntegerRecommendedYears Since First Prescribed an Antipsychotic Medication
scid19IntegerRecommendedNumber previous hospitalizations lifetime
scid20IntegerRecommendedNumber previous hospitalizations past year
anti_behIntegerRecommendedChildhood Antisocial BehaviorsSum of (SCID23 - SCID28)
beh_catIntegerRecommendedCategorized Childhood Antisocial Behaviors1::41=0 Antisocial Behaviors; 2=1-2 Antisocial Behaviors; 3=3-4 Antisocial Behaviors; 4=5-6 Antisocial Behaviors
sitetypeString20RecommendedSite Care SettingSite care setting indicated by the site (all applicable types are listed per site); MC = Managed Care; PN = Private, Non-Profit Agency; PP = Private Practice; RO =Research Only;SH = State Mental Health;UC = University Clinic;VA = VA; MHIS = Mental health, isolation, or suicide watch; GP = General Populationinterview_sublocation
rescreenIntegerRecommendedRescreened0;11=Yes for patients screened multiple times for inclusion in the study; missing otherwise
scrn_dyIntegerRecommendedDay ScreenedNumber of days from study baseline to date of screening
olz_0IntegerRecommendedBaseline OLZ0;1Patient was receiving this antipsychotic medication (olanzapine) at baseline 1=Yes, 0=No Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
quet_0IntegerRecommendedBaseline QUET0;1Patient was receiving this antipsychotic medication (quetiapine) at baseline 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
risp_0IntegerRecommendedBaseline RISP0;1Patient was receiving this antipsychotic medication (risperidone) at baseline 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
zip_0IntegerRecommendedBaseline ZIP0;1Patient was receiving this antipsychotic medication (ziprasidone) at baseline 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
hal_0IntegerRecommendedBaseline HAL0;1Patient was receiving this antipsychotic medication (Haldol) at baseline; 1=Yes, 0=No
deca_0IntegerRecommendedBaseline DECA0;1Patient was receiving this antipsychotic medication (a decanoate) at baseline 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
per_0IntegerRecommendedBaseline PER0;1Patient was receiving this antipsychotic medication (perphenazine) at baseline 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
othr_0IntegerRecommendedBaseline Other Antipsychotics0;1Patient was receiving any other antipsychotic medication besides OLZ, QUET, RISP, ZIP, HAL, DECA, or PER at baseline; 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
allothr0IntegerRecommendedBaseline All Other Antipsychotics0;1Patient received any other antipsychotic medications (ZIP, HAL, DECA, PER, or anything falling within the OTHR_0 category) at baseline (meds not included here are OLZ, QUET, and RISP); 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
none_0IntegerRecommendedNo Baseline Antipsychotic Med0;1Patient was receiving no antipsychotic medication at baseline; 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
olzi_0IntegerRecommendedBaseline OLZ Monotherapy0;1Patient received ONLY this antipsychotic medication at baseline; 1=Yes, 0=No
queti_0IntegerRecommendedBaseline QUET Monotherapy0;1Patient received ONLY this antipsychotic medication at baseline; 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
rispi_0IntegerRecommendedBaseline RISP Monotherapy0;1Patient received ONLY this antipsychotic medication at baseline; 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
dualmed0IntegerRecommendedBaseline Combination Meds0;1Patient received multiple antipsychotic medications at baseline, one of which was olanzapine, quetiapine, or risperidone 1=Yes, 0=No; Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
allothi0IntegerRecommendedBaseline All Other Monotherapy0;1Patient received one or more antipsychotic medications at baseline which did not include olanzapine, quetiapine, or risperidone 1=Yes, 0=No; (Note: this can be monotherapy or more than one drug); Note: includes medications reported taken on the day of baseline or in the 2 weeks prior to baseline
switchIntegerRecommendedBaseline Med Switch Status0::2Compares Phase 1/1A randomized treatment with antipsychotic medications received at baseline 0=Newly treated (not taking an antipsychotic at baseline); 1=Same medication 2=Switched medication
me0aIntegerRecommendedSignificant historical medical diag?0;10=No; 1=Yes
socString100RecommendedSOC System Organ ClassCoded variable: MedDRA dictionary, version 4.0: System Organ Class This file contains the MedDRA coded terms for any AEs/side effects that were reported spontaneously by the patient at a visit
prf_termString100RecommendedPreferred TermCoded variable: MedDRA dictionary, version 4.0: Preferred Term This file contains the MedDRA coded terms for any AEs/side effects that were reported spontaneously by the patient at a visit
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
me3IntegerRecommendedDid the patient have a hysterectomy?0;10=No; 1=Yes
me3aIntegerRecommended3a. Did the hysterectomy include an ooph0;1;990 = No; 1 = Yes; 99 = Unknown
any_mhxIntegerRecommendedAny Active Significant Medical History1=Yes, missing otherwise
ran002IntegerRecommendedWas the subject randomized?0::3; -90=No; 1=Yes; -9=unknown; 2=No meds; 3=No community carerand
dema6IntegerRecommendedWhich Best describes your current living situation?1::91=Independent Living. Live alone, with spouse, family or friend, in an apartment or house.; 2=Minimally Structured Residence. Live in a supervised apartment program, boarding home, adult foster care.; 3=Moderately Restrictive Residence. Live in a halfway house, treatment program, acute psychiatric diversion facility, treatment lodge; 4=Extremely Restrictive Residence. Psychiatric hospital, skilled nursing facility, jail or prison.; 5=Homeless. Has been homeless or in emergency shelter for the homeless; 6=Lives in someone elses apartment, room or house; 7=Dormitory/College residence; 8=Residential treatment; 9=Other, specify
dema7IntegerRecommendedIn the past week, how many days did you get to choose what you had to eat for your meals. (Applies to MOST meals in a day)0::30=0 to 1 days; 1=2 to 3 days; 2= 4 to 5 days; 3= 6to 7 days
dema9IntegerRecommendedDid you earn a high school diploma or GED?0;10=No; 1=Yes
living1IntegerRecommendedLiving situation0;10=Other type of living situation; 1=Independent Living
strataString1RecommendedO/Q/R ? Incoming Study MedicationO;Q;RO=Olanzapine; Q=Quetiapine; R=Risperidone
trtIntegerRecommendedTreatment code1;21: Switch; 2: Stay
visitString50RecommendedVisit nameCharacter description of each type of visitweek, wk
fseqnoIntegerRecommendedSequence Number0::999The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
daysrzIntegerRecommendeddays since randomizationdays, dema0b
version_formString100RecommendedForm usedvers
siteString100RecommendedSiteStudy Sitepsite
treatment_nameString200Recommendedtreatment nametrt1
wtliab2IntegerRecommendedWeight liability at baseline1::31=High only; 2=Low only; 3=Both
fspgodString20RecommendedSubject's gender OTHER describe
incardatDateRecommendeddate of last incarcerationjail_date
psysoc_78IntegerRecommendedLifetime: # Arrests0::200arrests
psysoc_81IntegerRecommendedLifetime: Jail Time: # Years0::200years_incarcerated
psysoc_82IntegerRecommendedLifetime: Jail Time: # Months0::11months_incarcerated
psysoc_83IntegerRecommendedLifetime: Jail Time: # Daysdays_incarcerated
vr_arrestIntegerRecommendedarrested since last visit0;10=No; 1=Yesarrested
am16IntegerRecommendedTotal number of times arrested during this intervaltimes_arrested
dthdateDateRecommendedDate of deathdeath_date
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
ca15DateRecommendedAdmission dateadmission_1
ca16DateRecommendedDischarge datedischarge_1
demosam_002IntegerRecommendedHow many years of education have you had0 = No Education ;1 = 1st grade ;2 = 2nd grade ;3 = 3rd grade ;4 = 4th grade ; 5=5 years Completed 5th grade (Grade School) ;6=6 years Completed 6th grade;7=7 years Completed 7th grade ;8=8 years Completed 8th grade (Middle School) ;9 = 9th grade ; 10 = 10th grade ; 11 = 11th grade ; 12 = 12th grade OR GED ; 13 = 1 year of college ; 14 = 2 years of college or associates degree ; 15 = 3 years of college ; 16 = bachelor's degree ; 17 = 1 year of graduate school ; 18 = 2 years of graduate school ; 19 = 3 years of graduate school ; 20 = 4+ years of graduate schooleducation
status_beforeString500RecommendedIn the 12 months before your current incarceration, were you (select all that apply):Legally employed for wages; Legally self-employed; Making money illegally; Out of work and looking for work; Out of work but not currently looking for work; A full-time parent; A student; Military; Retired; Unable to work; Receiving disability benefits (such as SSDI, VA disability benefits, etc)
children_under18IntegerRecommendedNumber of children you have under age 18
children_supportIntegerRecommendedNumber of children (of any age) who you were living with you or who you were supporting financially in the year before your current incarceration:
income_beforejailIntegerRecommendedAnnual household income (legal or illegal) in the year prior to the current incarceration:
householdIntegerRecommendedNumber of people in your household in the year prior to the current incarceration:
incarceratedIntegerRecommendedNumber of times you have been incarcerated including house of correction, prison or jail, in your lifetime (include current jail time served; if transferred between facilities [like jail to prison] count as one time; best estimate):
suicide_watchIntegerRecommendedSince you were arrested most recently and brought to this jail, have you spent any time on suicide or mental health watch?0;10 = No; 1 = Yes
interview_statusIntegerRecommendedInterview status1::41 = Occurring; 2 = Missed; 3 = Deceased; 4 = Other
other_interview_statusString300RecommendedIf interview status is "Other," then please explain
currently_incarceratedIntegerRecommendedCurrently incarcerated?0;10 = No; 1 = Yes
type_incarcerationIntegerRecommendedIf incarcerated, please specify type1::31 = Jail detention (unsentenced); 2 = Serving a jail sentence; 3 = Serving a prison sentence
release_dateDateRecommendedWhat date were you released after the time we saw you in jail (initial assessment)?
incarcerated_againIntegerRecommendedHave you been incarcerated again since last assessment?0;10 = No; 1 = Yes
incarcerated_numIntegerRecommendedHow many times incarcerated since last assessment?
admission_2DateRecommendedAdmission date #2
discharge_2DateRecommendedDischarge date #2
admission_3DateRecommendedAdmission date #3
discharge_3DateRecommendedDischarge date #3
admission_4DateRecommendedAdmission date #4
discharge_4DateRecommendedDischarge date #4
admission_5DateRecommendedAdmission date #5
discharge_5DateRecommendedDischarge date #5
admission_6DateRecommendedAdmission date #6
discharge_6DateRecommendedDischarge date #6
admission_7DateRecommendedAdmission date #7
discharge_7DateRecommendedDischarge date #7
actual_release_dateDateRecommendedActual Release Date
outreach_type1IntegerRecommendedCommunication type1::51 = Phone call ; 2 = Email ; 3 = Postal letter ; 4 = Phone text ; 5 = In person
locator_type1IntegerRecommendedCommunication type1::51 = Phone call ; 2 = Email ; 3 = Postal letter ; 4 = Phone text ; 5 = In person
otherraceString50Recommendedspecify other racerace_otr
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demo01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.