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Demographics Data

demod

01

Database of Cognitive Training and Remediation: Demographics (DEMO)

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*demo_guid, guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectParticipant_ID, record_id, subject, subject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldDEMDate, date_demo, demo_doa, intake_date, intvdate, np_fact_doa
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.AGE, Pt_Baseline_Age, age_months, demo_age_study_entry, intvage, np_fact_age
genderString20RequiredSex of the subjectM;FM = Male; F = FemalePt_Gender, SEX, demo_current_sex, np_fact_sex
study_idIntegerRecommendedStudy ID number46=Acute Phase; 47=Stabilization Phase
study_conditionIntegerRecommendedStudy condition to which participant was assigned1::71 = Cognitive remediation; 2 = Comparison condition; 3 = Other; 4= treatment as usual; 5= Computers first; 6= CRT first; 7=SCITcondition
day_catIntegerRecommendedMethod for calculating days since baseline1::31 = calculated from visit dates when provided in data; 2 = calculated from target dates when visit dates not provided; 3 = missing visit
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Pt_Hispanic, dem003, ethnic
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedPt_Race, dem004a-dem004g, demo_race, np_fact_race
pt_race_origString30RecommendedOriginal Study Text: Race
das1msString75RecommendedMarital statusMARSTAT, Pt_Marital
dem_marital_motherString255RecommendedWhat is the marital status of subject's biological mother?Married/ Domestic partners; Single; Divorced; WidowedMother_Marital
dem_marital_fatherString255RecommendedWhat is the marital status of subject's biological father?Married/ Domestic partners; Single; Divorced; WidowedFather_Marital
pt_marital_origString30RecommendedOriginal Study Text: Participants marital status
mother_marital_origString30RecommendedOriginal Study Text: Mother's marital status
father_marital_origString30RecommendedOriginal Study Text: Father's marital status
pt_edu_yearsFloatRecommendedParticipant's years of education101=Missingdemo_highest_grade_self, education
mother_edu_yearsFloatRecommendedMother's years of education101=Missing8demo_highest_grade_mom, demo_highest_grade_mom, mother_education
father_edu_yearsFloatRecommendedFather's years of education101=Missingdemo_highest_grade_dad, father_education
pt_edu_catIntegerRecommendedParticipant's highest educational level category completed0::260 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing
mother_edu_catIntegerRecommendedMother's highest educational level category completed0::260 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing
father_edu_catIntegerRecommendedFather's highest educational level category completed0::260 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing
pt_edu_cat_origIntegerRecommendedOriginal text: Participant's highest educational level category completed0::300 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
mother_edu_cat_origIntegerRecommendedOriginal text: Mother's highest educational level category completed0::300 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
father_edu_cat_origIntegerRecommendedOriginal text: Father's highest educational level category completed0::300 = Never attended or Kindergarten only; 1-11 = Grades 1=11; 12 = High school No diploma; 13 = GED or equivalent; 14 = High school graduate; 15 = Completed 12 years of school (but unable to determine if code 12, 13, or 14); 16 = Some college, no degree; 17 = Associate degree: occupational/technical/vocational program; 18 = Associate degree: academic program (includes non-US post high school/pre college levels); 19 = Associate degree (but unable to determine if code 16 or 17); 20 = Bachelor degree (e.g., BA, AB, BS, BBA); 21 = Completed 16 years of school (but unable to determine if code 16-20); 22 = Master¿s degree (e.g., MA, MS, MEng, MEd, MBA); 23 = Professional school degree (e.g., MD, DDS, DVM, JD); 24 = Doctoral degree (e.g., PhD, EdD); 25 = Post Master degree (but unable to determine if code 20 or 21); 26 = Unknown/Missing; 27=College; 28=No College; 29=postcollege; 30=less than 13
dsm_icd_codeIntegerRecommendedPrimary Psychiatric Diagnosis Diagnostic System1::41 = Diagnostic and Statistical Manual of Mental Disorders (2000-2012) DSM-IV-TR; 2 = Diagnostic and Statistical Manual of Mental Disorders (2013-current) DSM-5; 3 = International Classification of Diseases (1990-current) ICD-10; 4 = International Classification of Diseases (under development) ICD-11
primary_dxIntegerRecommendedPrimary psychiatric diagnosis1::15 ;98;991 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
other_dx1IntegerRecommendedAdditional psychiatric diagnosis1::15 ;98;991 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
other_dx2IntegerRecommendedAdditional psychiatric diagnosis 21::15 ;98;991 = Schizophrenia, Unspecified type; 2 = Schizophrenia, Disorganized type; 3 = Schizophrenia, Paranoid type; 4 = Schizophrenia, Residual type; 5 = Schizophrenia, Undifferentiated type; 6 = Schizophreniform disorder; 7 = Schizoaffective disorder; 8 = Dysthymia/Persistent Depressive Disorder; 9 = Major Depressive Disorder; 10 = Bipolar Disorder; 11 =
age_1st_sxIntegerRecommendedAge of onset of psychiatric symptoms (years)age_onset
age_1st_txcontactIntegerRecommendedAge of first treatment for psychiatric symptoms
age_1st_hospIntegerRecommendedAge at first psychiatric hospitalization (years)
psych_hosp_totalIntegerRecommendedTotal number of psychiatric hospitalizationsnum_hosp
psych_hosp_yearIntegerRecommendedNumber of psychiatric hospitalizations in last year
num_sessionsIntegerRecommendedNumber of sessions completednumber_sessions
percent_sessionsFloatRecommendedPercentage of sessions completed
completer_statusIntegerRecommendedStudy completion status1::31 = Complete; 2 = Randomized but did not complete any sessions; 3 = Non-Complete
aescodeIntegerRecommendedStaff code number of person completing this formdemcode
asianString5RecommendedEthnicity: Asian
Yes;No
racea
bafinfoIntegerRecommendedCheck if the Assessment was not done.0;10=No; 1=Yesdeminfo
blackIntegerRecommendedBlack or African-American0;11=yes, 0=noraceb
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datademcom, demo_notes1, np_fact_comments
curlivgIntegerRecommendedLiving status1::51=Independent Living; 2=Minimally Structured Residence; 3=Moderately Restrictive Residence; 4=Extremely Restrictive Residence; 5=Homeless
edutotFloatRecommendedTotal years of education
gedIntegerRecommendedDid you receive a GED0;10 = No; 1 = Yeshighgrad
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yeshisp
nativeIntegerRecommendedAmerican Indian or Alaska Native0;11=yes, 0=noraceai
pacificString5RecommendedEthnicity: Pacific
Yes;No
racenh
visitString50RecommendedVisit nameCharacter description of each type of visit
whiteIntegerRecommended5. Race0;11=yes, 0=noracew
siteString100RecommendedSiteStudy Sitenp_fact_where_test_done
completedIntegerRecommendedChecks if completed0::20=No; 1=Yes; 2=Yes, lost
schizophrenia_diagnosisString10RecommendedSchizophrenia (N=no diagnosis for any first degree relative; Y=positive lifetime diagnosis for one or more first degree relatives)N;Y; NKN = No diagnosis for any first degree relative; Y = Positive lifetime diagnosis for one or more first degree relatives; NK=not knowndem005
fh07IntegerRecommended7. Subject adopted0;1;9demo_adopted_yn
demosam_012IntegerRecommendedDo you have any biological children?0;1;-999; 91=Yes; 0=No; -999=NA/Missing Data; 9=DKdemo_offspring
demo_siblingsIntegerRecommendedDo you have siblings?1;2;91=Yes; 2=No; 9=Unknown/Missing
demo_related_schizoIntegerRecommendedAre you related to someone who has Schizophrenia?1;2;91=Yes; 2=No; 9=Unknown/Missing
relative_type1IntegerRecommendedIs your relative...1::31=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildrendemo_related_schizo_relationship
demo_related_bpdIntegerRecommendedAre you related to someone who has bipolar or depressive disorder with psychotic features?1;2;91=Yes; 2=No; 9=Unknown/Missing
relative_type2IntegerRecommendedIs your relative...1::31=A 1st degree relative, which would include parents, full siblings, or children; 2=A 2nd degree relative, which would include grandparents, grandchildren, aunts, uncles, nephews, nieces, or half-siblings; 3=A 3rd degree relative, which would include first-cousins, great-grandparents or great grandchildrendemo_related_bpd_relationship
demo_spec_ed_selfIntegerRecommendedSpecial Education, self1;2;91=Yes; 2=No; 9=Unknown/Missing
demo_spec_ed_momIntegerRecommendedSpecial Education, mother1;2;91=Yes; 2=No; 9=Unknown/Missing
demo_spec_ed_dadIntegerRecommendedSpecial Education, father1;2;91=Yes; 2=No; 9=Unknown/Missing
ccc2englishIntegerRecommendedDoes the subject speak English as a primary language?0;1;-90 = No; 1 = Yes; -9 = Missing valuedemo_eng_prim_lang, np_fact_eng_native_lang
marital_statusIntegerRecommendedMarital status of adult subject1::5;91 = Married; 2 = Divorced; 3 = Single or never married; 4 = Widow or widower; 5=Remarried; 9 = Unknownadd5=remarried, demo_marital_status
sexdescString60RecommendedParticipant sex at birthM;FM = Male; F = Femaledemo_sex_birth
demo_current_sex_differentIntegerRecommendedIs the current sex different than the sex at birth?0;10=No; 1=Yes
doa_futdtString20RecommendedFuture date entered (Assessment)demo_doa_futdt
dodeString10RecommendedDate of Data Entrydemo_dode
dode_futdtString20RecommendedFuture date entered (Data Entry)demo_dode_futdt
form_completedIntegerRecommendedWas the form completed?1;21=Yes; 2=Nodemo_form_complete
form_explainIntegerRecommendedWhy was this form not completed?86::9999=Participant unable to complete due to cognitive impairment; 98=Participant unable to complete due to physical impairment; 97=Participant refused to begin/finish; 96=Participant completed but with less than best effort; 95=Participant unable to be contacted; 94=Participant deceased; 93=Participant withdrew consent; 92=Time constraints; 91=Rater forgot to administer; 90=Missed appointment; 89=Participant was terminated from study; 88=Other;87 = Not Done (reason unspecified); 86 = Not Applicabledemo_explain
other_reason_ncString100RecommendedOther reason form was not completeddemo_other_reason_nc
assessment_completeIntegerRecommendedComplete?0::20=Incomplete; 1=Unverified; 2=Completedemographics_complete, neuropsych_fact_sheet_complete, participant_id_complete
notesString200RecommendedAny additional notesdemo_notes2
otherraceString50Recommendedspecify other racedemo_race_other, np_fact_race_other
ca243IntegerRecommendedWhat handedness do you consider yourself?1::31=Right; 2=Left; 3=Mixedhandedness, np_fact_handedness
curreduccompletedString50RecommendedCurrent grade education level completednp_fact_ed
np_reason_not_continuString500RecommendedReason for not continuing
demo_learn_eng_ageIntegerRecommendedIf English is not your first language, age that you learned English-9=N/Anp_fact_learn_eng
entry_statusIntegerRecommendedEntry status1::51 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Othernp_fact_participant_status
np_fact_hear_or_glassesIntegerRecommendedDoes the participant wear a hearing aid or eyeglasses?0;10=No; 1=Yes
np_fact_bring_todayIntegerRecommendedDid the participant remember to bring them today?0;10=No; 1=Yes
writeletterIntegerRecommendedWrite a letter legibly-1;11=R; -1=Ltintq1aspecf
throwballIntegerRecommendedThrow a ball to hit a target-1;11=R; -1=Lpintq1b
dealcardsIntegerRecommendedDeal a deck of playing cards-1;11=R; -1=Lpintq1c
holdIntegerRecommendedHold a toothbrush while cleaning teeth-1;11=R; -1=Lpintq1cspecf
handed_sumIntegerRecommendedTotal Score is Sum of (R * 1) + (L * -1)Handedness Categories: Left-handed: Handedness Index = -4 to -2 Right-handed: Handedness Index = 2 to 4 Ambidextrous (mixed laterality) = -1 to 1pintq1d
num_psych_hosp_6_mthIntegerRecommendedNumber of psychiatric hospitalizations in the past 6 months
num_indiv_sess_6_mthIntegerRecommendedNumber of individual therapy sessions in the past 6 months
num_grp_sess_6_mthIntegerRecommendedNumber of group sessions in the past 6 months
conservIntegerRecommendedhas conservator?0;10= no; 1= yesconservator
num_jobsIntegerRecommendedHow many full time jobs have you had that lasted one year or more?num_ft_jobs
lastjobIntegerRecommendedmonths since last full time jobmonths_since_last
longestIntegerRecommendedlongest lasting job in monthslongest_ft_job
psysoc_243FloatRecommendedTotal income for the last month (Your Income)0::9999999income_last_month
psysoc_244IntegerRecommendedTotal income for the last month (Amt Available to You)0::9999999income_available_last_month
cog_sessionIntegerRecommendedNumber of CRT sessions attendednum_1_on_1_sessions
comp_sessionIntegerRecommendedNumber of Computer sessions attendednum_comp_sessions
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
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  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
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Distribution for DataStructure: demod01 and Element:
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