Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Demographic Form

demof

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectbid, catieid, stepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age
genderString20RequiredSex of the subjectM;FM = Male; F = Female
daysrzIntegerRecommendeddays since randomizationdayscons
visitString50RecommendedVisit nameCharacter description of each type of visit
certcodeIntegerRecommendedstepbd certification code
ccc2spenglisString200RecommendedDetails of primary languageprimlang
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
etnic_groupIntegerRecommendedspecify ehtnicity1::5;-71=Mexican/Mexican American/Chicano; 2=Cuban/Cuban American; 3=Puerto Rican; 4=Dominican; 5=Other; -7=Refusedethnspec
das1msString75RecommendedMarital statusdema5, marital, marstat
qol01gIntegerRecommendedLives alone0;11=yes; 0=nolivealon
grphomeIntegerRecommendedresidential group home0;1;-70=No; 1=Yes; -7=Refused
hmem1IntegerRecommendedhousehold member 11::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex1IntegerRecommendedhousehold member sex 11;21=Male; 2=Female
hmemage1IntegerRecommendedhousehold member age 1
hmem2IntegerRecommendedhousehold member 21::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex2IntegerRecommendedhousehold member sex 21;21=Male; 2=Female
hmemage2IntegerRecommendedhousehold member age 2
hmem3IntegerRecommendedhousehold member 31::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex3IntegerRecommendedhousehold member sex 31;21=Male; 2=Female
hmemage3IntegerRecommendedhousehold member age 3
hmem4IntegerRecommendedhousehold member 41::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex4IntegerRecommendedhousehold member sex 41;21=Male; 2=Female
hmemage4IntegerRecommendedhousehold member age 4
hmem5IntegerRecommendedhousehold member 51::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex5IntegerRecommendedhousehold member sex 51;21=Male; 2=Female
hmemage5IntegerRecommendedhousehold member age 5
hmem6IntegerRecommendedhousehold member 61::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex6IntegerRecommendedhousehold member sex 61;21=Male; 2=Female
hmemage6IntegerRecommendedhousehold member age 6
hmem7IntegerRecommendedhousehold member 71::10;-71=Spouse; 2=Parent; 3=Child; 4=Sibling; 5=Grandchild; 6=Aunt/Uncle; 7=Niece/Nephew; 8=Other Relative (specify); 9=Friend/Roommate; 10=Other (specify); -7=Refused
hmemsex7IntegerRecommendedhousehold member sex 71;21=Male; 2=Female
hmemage7IntegerRecommendedhousehold member age 7
dependtsIntegerRecommendedhom many dependents in house
coheadIntegerRecommendedcohead of household0;1;-70=No; 1=Yes; -7=Refused
residencIntegerRecommendeddescribes primary residence1::14;-71=Private home; 2=Apartment in private home; 3=Apartment building; 4=Mobile home; 5=Public housing; 6=Military housing; 7=Group home/assisted living facility; 8=Other; -7=Refused; 9=Single Residence with Assisted living; 10=Retirement community (Not assisted living); 11=Lives with family/others and does not pay rent; 12=Rehab/Nursing Home; 13=Homeless/Shelter/Motel; 14=Don’t Know
ownrentIntegerRecommendedbest describes payment1::3;-71=You own or pay mortgage on your primary residence; 2=You pay rent on your primary residence; 3=Other; -7=Refused
educateIntegerRecommendedyears of education completed1::8;-71=Less than seventh grade; 2=Seventh grade-ninth grade; 3=Partial high school; 4=High school diploma or GED; 5=Some college (at least one year); 6=Technical school or associates degree; 7=College diploma (Bachelor's degree); 8=Graduate or professional degree; -7=Refuseddem5
jobcodeIntegerRecommendedmost appropriate job code1::6;-71=Professional; 2=Managers and administrators; 3=Craftsmen and kindred workers; 4=Clerical and sales workers; 5=Laborers, operatives and kindred workers; 6=Other; -7=Refused
ftepayIntegerRecommendedfull time employment for pay0;1;-70=No; 1=Yes; -7=Refused
ftdaysIntegerRecommendedfull time days since randomization
hrwrkavgFloatRecommendedhours work on average
wksworkFloatRecommendedweeks have you worked
laidoffIntegerRecommendedhave you been laid off0;1;-70=No; 1=Yes; -7=Refused
firedIntegerRecommendedhave you been fired0;1;-70=No; 1=Yes; -7=Refused
daylateIntegerRecommendeddays late to work
dayearlyIntegerRecommendeddays leave work early
fullattnIntegerRecommendedcut back level of attention0;1;-70=No; 1=Yes; -7=Refused
nonworkFloatRecommendedspent on non work activities
studentIntegerRecommendedCurrently a student0::20=No; 1=Yes; 2=Part time
studfteIntegerRecommendedstudent full time part time1::3;-71=Full time; 2=Part time; 3=currently not in school; -7=Refused
volworkIntegerRecommendeddo you do volunteer work0;1;-70=No; 1=Yes; -7=Refused
volfreqIntegerRecommendedvolunteer work frequency1::4;-71=Daily; 2=Weekly; 3=Monthly; 4=Infrequently; -7=Refused
volhrsFloatRecommendedhow many hours per week
psysoc_89String5RecommendedVeteran?Y;N;-7Y=Yes; N=No; -7=Refusedveteran
earningsIntegerRecommendedannual personal income earning1::9;-71=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refused
pincomeIntegerRecommendedannual personal income1::9;-71=less than $10,000; 2=$10,000-$19,999; 3=$20,000-$29,999; 4-$30,000-$39,999; 5=$40,000-$49,999; 6=$50,000-$74,999; 7=$75,000-$99,999; 8=$100,000-$149,999; 9=$150,000 or more; -7=Refused
srcwagesIntegerRecommendedsource of income wages0;1;-70=No; 1=Yes; -7=Refused
srcssiIntegerRecommendedsources of income ssi0;1;-70=No; 1=Yes; -7=Refused
srcssdiIntegerRecommendedsources of income ssdi0;1;-70=No; 1=Yes; -7=Refused
srcwlfarIntegerRecommendedsources of income welfare0;1;-70=No; 1=Yes; -7=Refused
srcafdcIntegerRecommendedsources of income afdc0;1;-70=No; 1=Yes; -7=Refused
srcunempIntegerRecommendedsources of income unemployed0;1;-70=No; 1=Yes; -7=Refused
srcssecIntegerRecommendedsources of income soc security0;1;-70=No; 1=Yes; -7=Refused
srcothIntegerRecommendedsources of income other0;1;-70=No; 1=Yes; -7=Refused
demo_incomeString2RecommendedWhat is the family income per year:a;b;c;d;e;f;g;h;i;j; k; l; m;n;-7a = Less than $10,000; b = $10,000-$20,000; c = $20,000-$30,000; d = $30,000-$40,000; e = $40,000-$50,000; f = $50,000-$60,000; g = $60,000-$80,000; h = $80,000-$100,000; i = Above $100,000; j=$50,000-$74,999; k=$75,000-$99,999; l=$100,000-$149,999; m=$150,000-$199,999; n=$200,000 or more; -7=Refusedhincome, hincome2
medinsIntegerRecommendeddo you have medical insurance0;1;-7; 70=No; 1=Yes; -7=Refused; 7=DK
typeinsIntegerRecommendedtype of medical insurance0;1;-70=No; 1=Yes; -7=Refused
mcaidhmoIntegerRecommendedmedicaid hmo0;1;-70=No; 1=Yes; -7=Refused
mcaidIntegerRecommendedmedicaid not hmo0;1;-70=No; 1=Yes; -7=Refused
publicdIntegerRecommendedPublic Insurance: Medicare HMO0;10 = No; 1 = Yesmcarehmo
mcareIntegerRecommendedmedicare traditional0;1;-70=No; 1=Yes; -7=Refused
mcaresupIntegerRecommendedmedicare supplementary policy0;1;-70=No; 1=Yes; -7=Refused
mcarerxIntegerRecommendedmedicare pay for rx0::3;-70=No; 1=Yes; -7=Refused; 2=Other; 3=DK
hmoIntegerRecommendedprivate insurance hmo0;1;-70=No; 1=Yes; -7=Refused
nohmoIntegerRecommendedprivate insurance not hmo0;1;-70=No; 1=Yes; -7=Refused
insrxIntegerRecommendedprivate insurance pay rx0;1;-7; 70=No; 1=Yes; -7=Refused; 7=DK
visitfeeIntegerRecommendedout of pocket fee or copay0;1;-70=No; 1=Yes; -7=Refused
fixedfeeIntegerRecommendedfixed copay or fee0;1;-70=No; 1=Yes; -7=Refused
percfeeIntegerRecommendedfee percentage0;1;-70=No; 1=Yes; -7=Refused
mhlimitIntegerRecommendedlimits on mental health0;1;-70=No; 1=Yes; -7=Refused
limitinIntegerRecommendedlimits inpatient days per year0;1;-70=No; 1=Yes; -7=Refused
limitoutIntegerRecommendedlimits outpatient visits0;1;-70=No; 1=Yes; -7=Refused
siteString100RecommendedSiteStudy Sitesite_id, siteid
forgoIntegerRecommendedforgo recommended treatment0;1;-70=No; 1=Yes; -7=Refused
fvisitIntegerRecommendedfrequent followup visits0;1;-70=No; 1=Yes; -7=Refused
txadIntegerRecommendedtreatment antidepressant0;1;-70=No; 1=Yes; -7=Refused
txapIntegerRecommendedtreatment antipsychotic0;1;-70=No; 1=Yes; -7=Refused
txlithIntegerRecommendedtreatment lithium1;0;-70=No; 1=Yes;-7=Refused
txvalIntegerRecommendedtreatment valproate1;0;-70=No; 1=Yes;-7=Refused
txmsIntegerRecommendedtreatment other mood stabilizer0;1;-70=No; 1=Yes; -7=Refused
txnutraIntegerRecommendedtreatment nutraceutical0;1;-70=No; 1=Yes; -7=Refused
txpsiIntegerRecommendedtreatment psychosocial0;1;-70=No; 1=Yes; -7=Refused
txshIntegerRecommendedtreatment selfhelp group0;1;-70=No; 1=Yes; -7=Refused
txothIntegerRecommendedtreatment other1;0;-70=No; 1=Yes;-7=Refused
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
employcurIntegerRecommendedcurrent employment status1::11;-71=Full time; 2=Part time for pay; 3=Homemaker; 4=Incarcerated; 5=Disabled; 6=Leave of absence; 7=Unemployed; 8=Retired; 9=Other; 10=Student; 11=Volunteer; -7=Refuseddem8emp, employ
fseqnoIntegerRecommendedSequence Number0::999The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
visdayIntegerRecommendedNumber of days from study baseline to date of visitdema0b
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yesdem3, dema4, hisp
dema6IntegerRecommendedWhich Best describes your current living situation?1::91=Independent Living. Live alone, with spouse, family or friend, in an apartment or house.; 2=Minimally Structured Residence. Live in a supervised apartment program, boarding home, adult foster care.; 3=Moderately Restrictive Residence. Live in a halfway house, treatment program, acute psychiatric diversion facility, treatment lodge; 4=Extremely Restrictive Residence. Psychiatric hospital, skilled nursing facility, jail or prison.; 5=Homeless. Has been homeless or in emergency shelter for the homeless; 6=Lives in someone elses apartment, room or house; 7=Dormitory/College residence; 8=Residential treatment; 9=Other, specify
dema8IntegerRecommendedDid you earn a high school diploma or GED0;11=Yes; 0=No
edutotFloatRecommendedTotal years of educationdema7, educ_yrs, yrsedcn
version_formString100RecommendedForm used
maristIntegerRecommendedMarital status0;10 = No; 1 = Yesmarital2
ac_residenceString20RecommendedLocation of residence?At own home; At family member home; At non-family member's home;At assisted living facility;Other
curreduccompletedString50RecommendedCurrent grade education level completedac_educatn
parnteduString100RecommendedHow far did your parents go in school?Did not complete high school; GED/High school diploma ;Some college, did not graduate; Community college or technical school degree (e.g., AA); College graduate; College graduate and some Master's level courses;Master's degree completed;Advanced degree courses, not graduated [e.g., Ph.D., MD, DVM, DDS, JD); Advanced degree completed [e.g., Ph.D., MD, DVM, DDS, JD); Unknown
cg1_genderString10RecommendedCaregiver/Parent 1's GenderMale;Femalecaregen
relation_primIntegerRecommendedPrimary caregiver relationship to subject0::13;-77;88;990= Adoptive Dad ; 1= Adoptive Mom ; 2= Biological Dad ; 3= Biological Mom ; 4= Grandpa ; 5= Grandma ; 6= Uncle ; 7= Aunt ; 8= Gay partner ; 9= Lesbian partner ; 10=0 Parent's male/boyfriend ; 11=1 Parent's female/girlfriend ; 12=2 Step Dad ; 13=3 Step Mom ; -99= NA; 77= Refused; 88= Missingcaregivr
bicgschoIntegerRecommendedHow far did the caregiver go in school?1::101 = If the caregiver did not finish high school or obtain a GED, indicate years of education; 2 = Unknown; 3 = GED/high school diploma; 4 = Some college, did not graduate; 5 = Community college or technical school degree (e.g. AA); 6 = College graduate; 7 = College graduate and some Master's level courses; 8 = Master's degree completed 9 = Advanced degree courses, not graduateD (e.g. PhD, MD, DVM, DDS,JD); 10 = Advanced degree completed [e.g. PhD, MD, DVM, DDS, JD)careedu
exacerIntegerRecommendedHas patient been hospitalized or required crisis stabilization services in the past three months for any mental health problem?0;10=No; 1=Yes; Baseline covariate adjusted for in many statsitical models based on analysis plan
bicgageIntegerRecommendedCaregiver's Agecareage
agecatIntegerRecommendedSubject Age Categorized1= .z < AGE <= 69 ; 2= 70 <= AGE <= 74 ; 3= 75 <= AGE <= 79 ; 4= 80 <= AGE <= 84 ; 5= AGE >; 85 ; missing otherwise
caregvr2IntegerRecommendedCaregiver subgroup (spouse, son/daughter)
residnc2IntegerRecommendedResidence categorized (own home vs not)
rescreenIntegerRecommendedRescreened0;11=Yes for patients screened multiple times for inclusion in the study; missing otherwise
scrn_dyIntegerRecommendedDay ScreenedNumber of days from study baseline to date of screening
marriedIntegerRecommendedAre you married?1::61 = Married/Common Law; 2 = Never Married; 3 = Married and Seperated ;4 = Divorced or Annulled; 5 = Widowed; 6=Living with someone as though marrieddem6
marital2IntegerRecommendedMarital Stat categorized (married vs not)0;11=Married; 0=Not married
lthsIntegerRecommendedEducation Group1::31=less than 12th grade, 2=12th grade, 3= more than 12th grade
hsIntegerRecommendedHigh School0;10=no; 1=12th grade
smcollIntegerRecommendedSome College0;10=no, 1=more than 12th grade
workpayIntegerRecommendedAre you a worker for pay?0;10=No; 1=Yesdem8a
mw_j1bIntegerRecommendedJob 1 full or part time1;21=Full time; 2=Part timedem8b
dem8cdayIntegerRecommendedDuring the past 4 weeks, how many days of work did you miss due to illness0::30
dem8ddayIntegerRecommendedDuring the past 4 weeks, how many days were you late to work or did you have to leave early due to illness or doctor visits.0::30
calm_inc1IntegerRecommendedHow much income did you earn from work in the last year
calm_inc1aIntegerRecommendedDoes annual income amount to $22,000 or more?1;21=Yes; 2=No
calm_inc1bIntegerRecommendedDoes annual income amount to $11,000 or more?1;21=Yes; 2=No
calm_inc1cIntegerRecommendedDoes annual income amount to $35,000 or more?1;21=Yes; 2=No
calm_inc2IntegerRecommendedHow much total income did you and your family receive from work and other sources such as interest or dividends, pensions or social security, income from rental property, estates, or trusts, public assistance or welfare, unemployment compensation, disability income, child support or other sources?famincom
calm_inc2aIntegerRecommendedWould total family income amount to $30,000 or more?
1;2
1=Yes; 2=No
calm_inc2bIntegerRecommendedWould total family income amount to $13,000 or more?1;21=Yes; 2=No
calm_inc2cIntegerRecommendedWould total family income amount to $57,000 or more?1;21=Yes; 2=No
calm_inc3IntegerRecommendedIncluding you, how many people in your family were supported by this total income in last yearnumber supportedfamsize
calm_inc3aIntegerRecommendedHow many family supported by total income last year were children under the age of 18 who were related to you?totkids
calm_inc4IntegerRecommendedIn general, would you say (you have/your family living here has) more money than you need, just enough money for your needs, or not enough to meet your needs?1::31 = more than need; 2 = just enough; 3 = not enough
poverty2IntegerRecommendedpoverty index for famsize, age, and number of kidsusing Poverty_Thresholds_2005.doc found at http://www.census.gov/hhes/www/poverty/data/threshld/thresh05.html
pincomageFloatRecommendedadjusted by age, famsize, and number of kids
ses1IntegerRecommendedsocioeconmic status 10;1(1= pincomage<=1, 0= Ppincomage>1)
ses2IntegerRecommendedsocioeconmic status 20;1(1= pincomage <=2, 0=pincomage >2)
usbornIntegerRecommendedUS born0;10=No; 1=Yes
clinicidIntegerRecommendedClinic ID
days_baselineIntegerRecommendedDays since baseline
interviewmonthIntegerRecommendedInterview Month
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
entry_statusIntegerRecommendedEntry status1::51 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Other
statusString50RecommendedStatus
adem7IntegerRecommendedDoes patient have any home health aide or live-in help (including assistance from family and friends)?0;1;7;80 = No; 1 = Yes; 7 = Don't know; 8 = Refused
adem7aIntegerRecommendedIf patient has any home health aide or live-in help (including assistance from family and friends. Is this help paid or unpaid?1;21 = Paid help (including services not paid by the patient); 2 = Unpaid help (example: Friends, family, meals-on-wheels)
chldynIntegerRecommendedDoes the client have children?0;10=No; 1=Yes
numlivchildIntegerRecommendedNumber of living children
ccc2englishIntegerRecommendedDoes the subject speak English as a primary language?0;1;-90 = No; 1 = Yes; -9 = Missing value
exillitIntegerRecommendedUnable to speak, read, and write English0::20=No;1=Yes; 2=Somewhat
demosam_002IntegerRecommendedHow many years of education have you had0 = No Education ;1 = 1st grade ;2 = 2nd grade ;3 = 3rd grade ;4 = 4th grade ; 5=5 years Completed 5th grade (Grade School) ;6=6 years Completed 6th grade;7=7 years Completed 7th grade ;8=8 years Completed 8th grade (Middle School) ;9 = 9th grade ; 10 = 10th grade ; 11 = 11th grade ; 12 = 12th grade OR GED ; 13 = 1 year of college ; 14 = 2 years of college or associates degree ; 15 = 3 years of college ; 16 = bachelor's degree ; 17 = 1 year of graduate school ; 18 = 2 years of graduate school ; 19 = 3 years of graduate school ; 20 = 4+ years of graduate school
refothersString50RecommendedReferral source: specify
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
workynIntegerRecommendedIs the client currently working0;10=No; 1=Yes
p_paemployedIntegerRecommendedIs your current partner currently employed?0::8;-99;88;770= No ; 1= Yes ; -99= N/A ; 88= Missing ; 77= Refused
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demof01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.