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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Demographic Questionnaire

demoform

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectpatid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentdembt0, demut0
dembfinfIntegerRecommendedFemale informant relationship to the teenager0::80 = No female caretaker present 1 = Biological mother 2 = Adoptive mother 3 = Foster mother 4 = Stepmother 5 = Grandmother 6 = Sister 7 = Aunt 8 = Otherdemufinf
dembminfIntegerRecommendedMale informant relationship to the teenager0::80 = No male caretaker present 1 = Biological father 2 = Adoptive father 3 = Foster father 4 = Stepfather 5 = Grandfather 6 = Brother 7 = Uncle 8 = Otherdemuminf
gradeString50RecommendedCurrent Gradedembgrad
dembschlIntegerRecommendedIs teen currently enrolled in school? (alternatively, does teen plan to return to school when it resumes)0;10 = No 1 = Yesdemuschl
dembdaymIntegerRecommendedNumber of school days missed during last two months of school (alternatively, the last two months school was in session)
dembadptIntegerRecommendedIs the child/teen adopted?0;10 = No 1 = Yes
dembmlivIntegerRecommendedIs the teen's mother living?0;10 = No 1 = Yes
dembmdieIntegerRecommendedIf the teen's mother is not living, how old was the teen when she died?
dembflivIntegerRecommendedIs the teen's father living?0;10 = No 1 = Yes
dembfdieIntegerRecommendedIf the teen's father is not living, how old was the teen when he died?
dembtogIntegerRecommendedDo the teen's parents currently live together?0::20 = Parents live together 1 = Parents do not live together 2 = Unknown
dembmarrIntegerRecommendedAre the teen's parents currently married to each other?0::50 = Never married 1 = Married 2 = Legally separated 3 = Divorced 4 = One or both parents(s) deceased 5 = Unknown
dembmothIntegerRecommendedIs the teen's mother currently married to someone other than the teen's father (or living with a significant other)?0;1;20 = No 1 = Yes 2 = N/A (mother deceased)
dembfothIntegerRecommendedIs the teen's father currently married to someone other than the teen's mother (or living with a significant other)?0;1;20 = No 1 = Yes 2 = N/A (father deceased)
dembsibsIntegerRecommendedDoes the teen have any brothers or sisters?0;10 = No 1 = Yes
dembfbroIntegerRecommendedNumber of full or half brothers
dembfsisIntegerRecommendedNumber of full or half sisters
dembsbroIntegerRecommendedNumber of step-brothers
dembssisIntegerRecommendedNumber of step-sisters
primcg1IntegerRecommendedPrimary residence caretaker(s): Biological mother11 = Yespricg1u
primcg2IntegerRecommendedPrimary residence caretaker(s): Adoptive mother11 = Yespricg2u
primcg3IntegerRecommendedPrimary residence caretaker(s): Foster mother11 = Yespricg3u
primcg4IntegerRecommendedPrimary residence caretaker(s): Stepmother11 = Yespricg4u
primcg5IntegerRecommendedPrimary residence caretaker(s): Grandmother11 = Yespricg5u
primcg6IntegerRecommendedPrimary residence caretaker(s): Sister11 = Yespricg6u
primcg7IntegerRecommendedPrimary residence caretaker(s): Aunt11 = Yespricg7u
primcg8IntegerRecommendedPrimary residence caretaker(s): Biological father11 = Yespricg8u
primcg9IntegerRecommendedPrimary residence caretaker(s): Adoptive father11 = Yespricg9u
primcg10IntegerRecommendedPrimary residence caretaker(s): Foster father11 = Yespricg10u
primcg11IntegerRecommendedPrimary residence caretaker(s): Stepfather11 = Yespricg11u
primcg12IntegerRecommendedPrimary residence caretaker(s): Grandfather11 = Yespricg12u
primcg13IntegerRecommendedPrimary residence caretaker(s): Brother11 = Yespricg13u
primcg14IntegerRecommendedPrimary residence caretaker(s): Uncle11 = Yespricg14u
primcg15IntegerRecommendedPrimary residence caretaker(s): Other #111 = Yespricg15u
primcg16IntegerRecommendedPrimary residence caretaker(s): Other #211 = Yespricg16u
primcglvIntegerRecommendedHow long has teen lived with primary residence caretaker(s)0::20 = Less than 6 months 1 = Between 6-12 months 2 = More than 12 monthspricglvu
othcgIntegerRecommendedHas teen lived with anyone else or stayed in another home during the past 6 months?0;10 = No 1 = Yes
othcg1IntegerRecommendedOther residence caretaker(s): Biological mother11 = Yesothcg1u
othcg2IntegerRecommendedOther residence caretaker(s): Adoptive mother11 = Yesothcg2u
othcg3IntegerRecommendedOther residence caretaker(s): Foster mother11 = Yesothcg3u
othcg4IntegerRecommendedOther residence caretaker(s): Stepmother11 = Yesothcg4u
othcg5IntegerRecommendedOther residence caretaker(s): Grandmother11 = Yesothcg5u
othcg6IntegerRecommendedOther residence caretaker(s): Sister11 = Yesothcg6u
othcg7IntegerRecommendedOther residence caretaker(s): Aunt11 = Yesothcg7u
othcg8IntegerRecommendedOther residence caretaker(s): Biological father11 = Yesothcg8u
othcg9IntegerRecommendedOther residence caretaker(s): Adoptive father11 = Yesothcg9u
othcg10IntegerRecommendedOther residence caretaker(s): Foster father11 = Yesothcg10u
othcg11IntegerRecommendedOther residence caretaker(s): Stepfather11 = Yesothcg11u
othcg12IntegerRecommendedOther residence caretaker(s): Grandfather11 = Yesothcg12u
othcg13IntegerRecommendedOther residence caretaker(s): Brother11 = Yesothcg13u
othcg14IntegerRecommendedOther residence caretaker(s): Uncle11 = Yesothcg14u
othcg15IntegerRecommendedOther residence caretaker(s): Other11 = Yesothcg15u
legalc1IntegerRecommendedLegal custodian of the teen: Biological mother11 = Yeslegal1
legalc2IntegerRecommendedLegal custodian of the teen: Adoptive mother11 = Yeslegal2
legalc3IntegerRecommendedLegal custodian of the teen: Foster mother11 = Yeslegal3
legalc4IntegerRecommendedLegal custodian of the teen: Stepmother11 = Yeslegal4
legalc5IntegerRecommendedLegal custodian of the teen: Grandmother11 = Yeslegal5
legalc6IntegerRecommendedLegal custodian of the teen: Sister11 = Yeslegal6
legalc7IntegerRecommendedLegal custodian of the teen: Aunt11 = Yeslegal7
legalc8IntegerRecommendedLegal custodian of the teen: Biological father11 = Yeslegal8
legalc9IntegerRecommendedLegal custodian of the teen: Adoptive father11 = Yeslegal9
legalc10IntegerRecommendedLegal custodian of the teen: Foster father11 = Yeslegal10
legalc11IntegerRecommendedLegal custodian of the teen: Stepfather11 = Yeslegal11
legalc12IntegerRecommendedLegal custodian of the teen: Grandfather11 = Yeslegal12
legalc13IntegerRecommendedLegal custodian of the teen: Brother11 = Yeslegal13
legalc14IntegerRecommendedLegal custodian of the teen: Uncle11 = Yeslegal14
legalc15IntegerRecommendedLegal custodian of the teen: Other #111 = Yeslegal15
legalc16IntegerRecommendedLegal custodian of the teen: Other #211 = Yeslegal16
fosthIntegerRecommendedTeen ever lived in the following setting: Foster Home0;10 = No 1 = Yes
juvdcIntegerRecommendedTeen ever lived in the following setting: Juvenile Detention Center0;10 = No 1 = Yes
hospmiIntegerRecommendedTeen ever lived in the following setting: Hospital/Medical Institution0;10 = No 1 = Yes
brdschIntegerRecommendedTeen ever lived in the following setting: Boarding School0;10 = No 1 = Yes
othgrpIntegerRecommendedTeen ever lived in the following setting: Other Group Residence0;10 = No 1 = Yes
homelsIntegerRecommendedTeen ever lived in the following setting: Homeless Shelter0;10 = No 1 = Yes
streetIntegerRecommendedTeen ever lived in the following setting: On the Street0;10 = No 1 = Yes
fosth3mIntegerRecommendedTeen lived in the following setting in the past three months: Foster Home0;10 = No 1 = Yesfosth3mu
juvdc3mIntegerRecommendedTeen lived in the following setting in the past three months: Juvenile Detention Center0;10 = No 1 = Yesjuvdc3mu
hospmi3mIntegerRecommendedTeen lived in the following setting in the past three months: Hospital/Medical Institution0;10 = No 1 = Yeshospmi3u
brdsch3mIntegerRecommendedTeen lived in the following setting in the past three months: Boarding School0;10 = No 1 = Yesbrdsch3u
othgrp3mIntegerRecommendedTeen lived in the following setting in the past three months: Other Group Residence0;10 = No 1 = Yesothgrp3u
homels3mIntegerRecommendedTeen lived in the following setting in the past three months: Homeless Shelter0;10 = No 1 = Yeshomels3u
street3mIntegerRecommendedTeen lived in the following setting in the past three months: On the Street0;10 = No 1 = Yesstreet3u
expeldIntegerRecommendedHas teen ever been expelled/suspended from school?0;10 = No 1 = Yes
expeldnIntegerRecommendedNumber of times teen expelled/suspended from school
nospclsIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Not enrolled in any special education programs/classes11 = Yes
addclsIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Attention Deficit Disorder (ADD/ADHD)11 = Yes
learndisIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Learning Disability11 = Yes
readdisIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Reading Disability11 = Yes
behprobIntegerRecommendedIs teen currently enrolled in any special education program/classes?: Behavioral / Emotional Problems11 = Yes
mentretIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Mental Retardation11 = Yes
giftedIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Gifted and Talented11 = Yes
othclassIntegerRecommendedIs teen currently enrolled in any special education programs/classes?: Other11 = Yes
grepeatIntegerRecommendedDid teen ever repeat a grade in school?0;10 = No 1 = Yes
grepeatnIntegerRecommendedNumber of times teen repeated a grade
gradesIntegerRecommendedHow are teen's grades in school at the present time?0::50 = Teen dropped out of school 1 = Enrolled, but school not in session 2 = Better than average 3 = Average 4 = Below average 5 = Failinggradesu
failclsIntegerRecommendedDid teen fail any course on last report card?0::30 = Teen dropped out of school 1 = Passed all courses 2 = Failed one course 3 = Failed two or more coursesfailclsu
primarmIntegerRecommendedPrimary female caretaker/mother figure (maternal demographics)0::100 = No female caretaker 1 = Biological mother 2 = Adoptive mother 3 = Foster mother 4 = Stepmother 5 = Grandmother 6 = Sister 7 = Aunt 8 = Other 9 = Other female relative 10 = Other female non-relative
meducatIntegerRecommendedMother figure/primary female caretaker: highest year in school completed1::101 = Did not complete high school 2 = Completed GED / high schooldiploma program 3 = High school graduate 4 = Attended trade school / community college 5 = Associate's degree (2-yearprogram) 6 = Attended 4-year college / university 7 = Bachelor's degree 8 = Attended graduate or professional school 9 = Master's degree / law degree 10 = Doctoral degree or equivalent
mageIntegerRecommendedAge of mother figure/primary female caretaker at last birthday
mraceIntegerRecommendedRace/ethnic background of mother figure/primary female caretaker1::81 = Caucasian 2 = African American 3 = Hispanic, black 4 = Hispanic, white 5 = Asian 6 = Native American 7 = Pacific Islander 8 = Other
mlangIntegerRecommendedMother figure/primary female caretaker fluency in English1::31 = Fluent in English 2 = Somewhat fluent in English 3 = Not fluent in English
primarfIntegerRecommendedPrimary male caretaker/father figure (paternal demographics)0::100 = No male caretaker 1 = Biological father 2 = Adoptive father 3 = Foster father 4 = Stepfather 5 = Grandfather 6 = Brother 7 = Uncle 8 = Other 9 = Other male relative 10 = Other male non-relative
feducatIntegerRecommendedFather figure/primary male caretaker: highest year in school completed1::101 = Did not complete high school 2 = Completed GED / high schooldiploma program 3 = High school graduate 4 = Attended trade school / community college 5 = Associate's degree (2-yearprogram) 6 = Attended 4-year college / university 7 = Bachelor's degree 8 = Attended graduate or professional school 9 = Master's degree / law degree 10 = Doctoral degree or equivalent
fageIntegerRecommendedAge of father figure/primary male caretaker at last birthday
fraceIntegerRecommendedRace/ethnic background of father figure/primary male caretaker1::81 = Caucasian 2 = African American 3 = Hispanic, black 4 = Hispanic, white 5 = Asian 6 = Native American 7 = Pacific Islander 8 = Other
flangIntegerRecommendedFather figure/primary male caretaker fluency in English1::31 = Fluent in English 2 = Somewhat fluent in English 3 = Not fluent in English
specresdIntegerRecommendedTeen ever lived in a special residential setting (excluding hospital/medical institution)Items included in the derivation were: FOSTH, JUVDC, BRDSCH, OTHGRP, HOMELS, STREET0;10 = No 1 = Yes
speceducIntegerRecommendedTeen currently enrolled in a special education program or classes (excluding Gifted and Talented and Other)Items included in the derivation were: ADDCLS, LEARNDIS, READDIS, BEHPROB, MENTRET0;10 = No 1 = Yes
guardianIntegerRecommendedTeen living arrangements with respect to parents1::51 = Both biological/adoptive parents 2 = One biological/adoptive parent and one step-parent 3 = Single mother 4 = Single father 5 = Neither parent
demuintoIntegerRecommendedSpecific Other time period covered in this DEMU
dexpeldIntegerRecommendedHas teen been expelled/suspended from school in the past 3 months?0;10 = No 1 = Yes
dexpeldnIntegerRecommendedNumber of times teen expelled/suspended from school in the past 3 months
momdiedIntegerRecommendedAny major changes within the family in the past 3 months: Mother passed away?11 = Yes
daddiedIntegerRecommendedAny major changes within the family in the past 3 months: Father passed away?11 = Yes
famdiedIntegerRecommendedAny major changes within the family in the past 3 months: Another family member passed away?11 = Yes
siblingIntegerRecommendedAny major changes within the family in the past 3 months: Birth of sibling?11 = Yes
pseparIntegerRecommendedAny major changes within the family in the past 3 months: Parents separated?11 = Yes
pdivorcIntegerRecommendedAny major changes within the family in the past 3 months: Parents divorced?11 = Yes
plostjobIntegerRecommendedAny major changes within the family in the past 3 months: Parent lost a job?11 = Yes
omajorchIntegerRecommendedAny major changes within the family in the past 3 months: Other major change?11 = Yes
legal3mIntegerRecommendedHas the legal custody of the teen changed in the past 3 months?0;10 = No 1 = Yes
livarrchIntegerRecommendedHas your teen's living arrangements changed in the past 3 months?0;10 = No 1 = Yes
nospclsuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Not enrolled in any special education programs/classes11 = Yes
addclsuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Attention Deficit Disorder (ADD/ADHD)11 = Yes
lrndisuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Learning Disability11 = Yes
readdisuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Reading Disability11 = Yes
behprobuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Behavioral / Emotional Problems11 = Yes
mentretuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Mental Retardation11 = Yes
gifteduIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Gifted and Talented11 = Yes
othclasuIntegerRecommendedHas teen attended any special education programs/classes in the past 3 months?: Other11 = Yes
specresuIntegerRecommendedTeen lived in a special residential setting (excluding hospital/medical institution) in the past 3 months0;10 = No; 1 = Yes
demuinIntegerRecommendedTime period covered in this form1::31=Past 3 months; 2=Past 6 months; 3=Other months
speceduuIntegerRecommendedTeen enrolled in a special education program or classes (excluding Gifted and Talented and Other) in the past 3 months0;10 = No; 1 = Yes
othcg16uIntegerRecommendedOther residence caretaker(s) in the past 3 months: Other #211 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demoform01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.