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Clinical Trials. Demographics

demogr

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, patid, pid, randid, subjectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fielddemdat, visit_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age, age_v, agem
genderString20RequiredSex of the subjectM;FM = Male; F = Femalesex
visitString50RecommendedVisit nameCharacter description of each type of visitint1, timept, visit_name, vtypdhs
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
enrollIntegerRecommendedSOFTAD enrollment record0;10 = No; 1 = Yes
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentdemt0, stet0
bsimoFloatRecommendedMonths from Time 0 to assessmentdemmo, ste_m
bsistmFloatRecommendedMonths from SOFTAD enrollment date to assessmentdemstm
height_metFloatRecommendedHeight - Metric Unitht_cm, steht
weight_metFloatRecommendedWeight - Metric Unitstewt, wt_kg
maristIntegerRecommendedMarital status0;10 = No; 1 = Yes
signifotIntegerRecommendedLiving with significant other0;10 = No; 1 = Yes
livehomeIntegerRecommendedLiving at home0;10 = No; 1 = Yes
primarmIntegerRecommendedPrimary female caretaker/mother figure (maternal demographics)0::100 = No female caretaker 1 = Biological mother 2 = Adoptive mother 3 = Foster mother 4 = Stepmother 5 = Grandmother 6 = Sister 7 = Aunt 8 = Other 9 = Other female relative 10 = Other female non-relativedem_05af, fpcare
fpcareoString40RecommendedOther female primary caregiver
primarfIntegerRecommendedPrimary male caretaker/father figure (paternal demographics)0::100 = No male caretaker 1 = Biological father 2 = Adoptive father 3 = Foster father 4 = Stepfather 5 = Grandfather 6 = Brother 7 = Uncle 8 = Other 9 = Other male relative 10 = Other male non-relativedem_05bf, mpcare
mpcareoString40RecommendedOther male primary caregiver
independIntegerRecommendedLiving independently in past 6 months0;10 = No; 1 = Yes
fosterIntegerRecommendedFoster home in past 6 months0;10 = No; 1 = Yes
college_6mIntegerRecommendedCollege/university in past 6 months0;10 = No; 1 = Yescollege
treatctrIntegerRecommendedTreatment center in past 6 months0;10 = No; 1 = Yes
homelessIntegerRecommendedHomeless in past 6 months0;10 = No; 1 = Yes
boardscIntegerRecommendedBoarding school in past 6 months0;10 = No; 1 = Yes
grouphmIntegerRecommendedGroup home in past 6 months0;10 = No; 1 = Yes
detentIntegerRecommendedDetention center in past 6 months0;10 = No; 1 = Yes
ceducatIntegerRecommendedCurrent educational status0::60 = Not in an educational pgm.; 1 = Graduate or professional pgm.; 2 = College / junior college; 3 = Trade school; 4 = High school; 5 = GED / high school diploma pgm.; 6 = Middle school
gradesIntegerRecommendedHow are teen's grades in school at the present time?0::50 = Teen dropped out of school 1 = Enrolled, but school not in session 2 = Better than average 3 = Average 4 = Below average 5 = Failing
suspendIntegerRecommendedExpelled/suspended in past 6 months0;10 = No; 1 = Yes
suspcntIntegerRecommendedNo. expulsions/suspensions, past 6 mos.Number of expulsions or suspensions in the past 6 months
employstIntegerRecommendedCurrent employment status1::81 = Working full-time job; 2 = Working part-time job; 3=not employed; 4=NA; 5 =retired;6=Disability recipient; 7=Student; 8=Other
empcurIntegerRecommendedCurrently employed0;1; -99; 77; 880 = No; 1 = Yes; -99= N/A ; 88= Missing ; 77= Refusedemploy
daysrzIntegerRecommendeddays since randomizationvisitdt
studyString100RecommendedStudystudyid
siteString100RecommendedSiteStudy Sitepsite, site_uid, siteid
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, lostformcomp
subtrial_nameIntegerRecommendedName of subtrial1::31=Crossover; 2=Guanfacine; 3= Open Label MPH
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
ethnic, hispanic
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
dem_04IntegerRecommendedChilds usual living arrangement1::71=Parental Home(At least one parent) 2=Relative(Other than parent) 3=With Unrelated Adults 4=Shared apartment/ residence with parents friends 5=Shelter/street/homeless/ transient 6=Unknown 7=Other
dem_05aaIntegerRecommendedCurrent mother figure age
dem_05baIntegerRecommendedCurrent father figure age
dem_06aIntegerRecommendedGive the number of each of the following in the childs usual living arrangement - Brothers
dem_06bIntegerRecommendedGive the number of each of the following in the childs usual living arrangement - Sisters
dem_06cIntegerRecommendedGive the number of each of the following in the childs usual living arrangement - Other relatives
dem_06dIntegerRecommendedGive the number of each of the following in the childs usual living arrangement - Other non-relatives
dem_07IntegerRecommendedType of educational activity1::171=Regular public school grade; 2=Regular private/parochial school grade 3=Regular public nursery; 4=Regular public kindergarten; 5=Regular private/parochial nursery; 6=Regular private/parochial kindergarten; 7=Special school for preschoolers with emotional/behavioral or learning problems; 8=Day Care; 9=Play group; 10=Pre-nursery; 11=Pre-kindergarten; 12=Not in school, not in play group, not in day care; 13=Special Class within regular school; 14=Special school for school-age children with emotional/behavioral or learning problems; 15=Other (Specify);16=Special school; 17=Home school
currgradelevelString50RecommendedCurrent grade leveldem_07a
dem_08aIntegerRecommendedMother current employment1::11;991=Working full time(35hrs or more a week at one or more jobs) ; 2=Working part time; 3=Keeping house ; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household
dem_08bIntegerRecommendedFather current employment1::12;991=Working full time(35hrs or more a week at one or more jobs); 2=Working part time; 3=Keeping house; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household; 12 = Self-employed
dem_09aIntegerRecommendedMother highest occupation1::8;991=Higher executive, proprietor of large concern, major professional 2=Business manager or large concern, proprietor of medium-sized business, lesser professional 3=Administrative personnel, owner of small independent business, minor professional 4=Clerical or sales worker, technician, owner of little business 5=Skilled manual employee 6=Machine operator, semi-skilled employee 7=Unskilled employee 8=Never worked in paid employment 99=Not ascertainedjob_moh
dem_09bIntegerRecommendedFather highest occupation1::9;991=Higher executive, proprietor of large concern, major professional ; 2=Business manager or large concern, proprietor of medium-sized business, lesser professiona;l 3=Administrative personnel, owner of small independent business, minor professional; 4=Clerical or sales worker, technician, owner of little business; 5=Skilled manual employee; 6=Machine operator, semi-skilled employee; 7=Unskilled employee; 8=Never worked in paid employment; 99=Not ascertained; 9 = Not in householdjob_fahi
dem_10IntegerRecommendedIncome from public assistance
0;1
1=Yes 0=No
dem_11aIntegerRecommendedMother level of education1::9; 991=Eighth grade or less; 2=Some high school ; 3=High school graduate or GED; 4=Some college or post-high school; 5=College graduate; 6=Advanced graduate or professional degree; 7=Attended grade school, not through 8th grade; 8=Some post-graduate training, no degree; 9=No schooling; 99=Information not availableed_mo
dem_11bIntegerRecommendedFather level of education1::9; 991=Eighth grade or less; 2=Some high school; 3=High school graduate or GED; 4=Some college or post-high school; 5=College graduate; 6=Advanced graduate or professional degree; 7=Attended grade school, not through 8th grade; 8=Some post-graduate training, no degree; 9=No schooling; 99=Information not availableed_fa
dem_12IntegerRecommendedParents marital status1::71=Married/common law 2=Not married, living together 3=Separated 4=Divorced/annulled 5=Widowed ; 6=Never married, not living with someone; 7=other
dem_13IntegerRecommendedNumber of years married / living together
dem_14IntegerRecommendedParental separations or divorces
dem_15IntegerRecommendedNumber different foster homes
dem_16aIntegerRecommendedCurrent mother problems1::5;991=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this 3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital 99=Unknown
dem_16bIntegerRecommendedCurrent father problems1::5;991=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this 3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital 99=Unknown
dem_17aIntegerRecommendedBiologic mother problems1::5;991=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this 3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital 99=Unknown
dem_17bIntegerRecommendedBiologic father problems1::5;991=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this 3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital 99=Unknown
dem_18aIntegerRecommendedADD or hyperactivity0;11=Yes 0=No
dem_18bIntegerRecommendedLD dyslexia or learning problems0;11=Yes 0=No
dem_18cIntegerRecommendedBehavior / discipline problems school0;11=Yes 0=No
dem_18dIntegerRecommendedBehavior / discipline problems home0;11=Yes 0=No
dem_18eIntegerRecommendedProblems with alcohol use or abuse0;11=Yes 0=No
dem_18fIntegerRecommendedProblems with drug use or abuse0;11=Yes 0=No
dem_18gIntegerRecommendedAggression or conduct disorder0;11=Yes 0=No
dem_18hIntegerRecommendedProblems with the law0;11=Yes 0=No
dem_18iIntegerRecommendedJail due to problems with the law0;11=Yes 0=No
dem_18jIntegerRecommendedMuscle twitches or motor tics0;11=Yes 0=No
dem_18kIntegerRecommendedTourettes Syndrome0::41=Yes; 0=No; 2=Current;3=In partial remission; 4=Past
dem_18lIntegerRecommendedAnxiety0;1; 9991=Yes; 0=No; 999=missing
dem_18mIntegerRecommendedDepression0;11=Yes 0=No
dem_18nIntegerRecommendedAlternating mania and depression0;11=Yes 0=No
dem_18oIntegerRecommendedSuicide0;11=Yes 0=No
dem_18pIntegerRecommendedObsessive thoughts or compulsions0;11=Yes 0=No
dem_18qIntegerRecommendedNervous breakdown0;11=Yes 0=No
dem_18rIntegerRecommendedHospitalized for emotional problems0;1;91=Yes; 0=No; 9=Don't Know
dem_18sIntegerRecommendedOther psych / behavior problems0;11=Yes 0=No
dem_18tIntegerRecommendedMental retardation0;11=Yes 0=No
emp_01IntegerRecommendedEmployment update visit: Change in Employment0;11=Yes 0=No
emp_02IntegerRecommendedEmployment update visit: Mother current employment1::10;991 = Working full time (35 hrs or more a week at one or more jobs) 2 = Working part time 3 = Keeping house 4 = Unemployed, looking for work 5 = Unemployed, not looking for work 6 = Disabled 7 = Retired 8 = Student, full time 9 = Student, part time 10 = Other: 99 = Not in household
emp_03IntegerRecommendedEmployment update visit: Mother highest occupation1::8;991 = Higher executive; proprietor of large concern, major professional 2 = Business manager of large concern, proprietor of medium-sized business, lesser professional 3 = Administrative personnel, owner of small independent business, minor professional 4 = Clerical or sales worker, technician, owner of little business 5 = Skilled manual employee 6 = Machine operator, semi-skilled employee 7 = Unskilled employee 8 = Never worked in paid employment 99 = Not ascertained
emp_04IntegerRecommendedDate of employment status change in days from the randomization date (EMP_04 = date of employment status change - randomization date)
session_idString20Recommendedsession ID/screening IDscreeningid
version_formString100RecommendedForm usedform_name
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interviewphone
days_baselineIntegerRecommendedDays since baselinedate
educatFloatRecommendedNumber of years in formal education999=Unknown/Missingschool
education_levelIntegerRecommendedHighest level of education completed for adult subject1::6; 91 = Grades 1 to 11; 2 = High school graduate or GED; 3 = Associate or technical degree; 4 = Bachelor's degree; 5 = Master's degree; 6 = Doctorate or equivalent professional degree; 9 = Unknowndegree
totincomString40RecommendedMonthly household incomeincome
weekFloatRecommendedWeek in level/study99=week 10-week 14
visdayIntegerRecommendedNumber of days from study baseline to date of visitdaygeninfo
otherraceString50Recommendedspecify other raceraceoth
liveswith_scidString30RecommendedLives with:livwith
jobhString150Recommendedjob title
grade_highedString50RecommendedGrade/Highest education1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high schooled_pt, educ
p_p2jobString100RecommendedWhat is his/her primary occupation?If unemployed or disabled, list his/her past occupationoccode
resp_employmentstatusIntegerRecommendedRespondent's employment status1::61 = Working at a full-time paid job (35 or more hours a week); 2 = Working at a part-time paid job (less than 35 hours a week); 3 = A full-time student (3 or more class/semester); 4 = A part-time student (1 or 2 classes/semester); 5 = Not currently working; 6 = Other
sesIntegerRecommendedHollingshead SES ScoreSES at age of entry to study
sestotIntegerRecommendedSocio-Economic Status (SES)1::51 = SES score of 08 to 19;2 = SES score of 20 to 29;3 = SES score of 30 to 39;4 = SES score of 40 to 54;5 = SES score of 55 to 66
refothersString50RecommendedReferral source: specify
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
respondent_other_specifyString50RecommendedRespondent: Other (specify)nfogeninfo
race_cIntegerRecommendedRace in two category (white only vs. other)1;21=White alone; 2=otherracebi, racebi_m
sestotbiIntegerRecommendedDichotomous SES variable0;10 = SES 1-3;1 = SES 4-5
referral_dIntegerRecommendedReferral Derived1::12Changed documentation to 1-12 to match the data file (was 0-11).1 = Newspaper Ad;2 = Poster/Brochure;3 = Radio Ad;4 = Inpatient Unit;5 = Outpatient Clinic;6 = Private clinician;7 = Other;8 = Internet/Website;9 = Television Ad;10 = School Staff;11 = Friend;12 = Seminar
referraltriIntegerRecommendedTrichotomous Referral Variable0::20 = Other;1 = Through Ads/Outreach;2 = Through Referral
agebiIntegerRecommendedDichotomous Age Variable0;10 = Child (7-12 years);1 = Adolescent (13-17 years)
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male
rcsestotIntegerRecommendedHollingshead Socio-Economic Status (SES) Total Score (Recoded)1::51 = SES score of 08 to 19; 2 = SES score of 20 to 29; 3 = SES score of 30 to 39; 4 = SES score of 40 to 54; 5 = SES score of 55 to 66
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
imputationIntegerRecommendedIndicator noting imputed data set number1::20
date_updatedDateRecommendedDate record updatededit_date
das1msString75RecommendedMarital status
living_notesString50RecommendedLiving arrangements (specify)res_oth
residenc1IntegerRecommendedPatients Current Residence1;2;3;4;5;6;71=Living alone; 2=Supported living arrangement; 3=Structured environment; 4=Family of origin; 5=Family of orientation; 6=Other relatives; 7=Other living situationresidenc
job_pthiIntegerRecommendedLevel of Occupation. Patient highest1;2;3;4;5;6;7;9; 991=Higher executive, proprietor of large concern, major professional; 2=Business manager of large concern, proprietor of medium sized business, lesser professional; 3=Administrative personnel, owner of small independent business, minor professional, owner of a large farm; 4=Clerical or sales worker, technician, owner of a little business, owner of a medium sized farm; 5=Skilled manual employee, owner of a small farm; 6=Machine operator, semi-skilled employee, tenant farmer who owns little equipment; 7=Unskilled employee, share cropper; 9=Never had paid employment/Not currently employed; 99=unknown
job_ptcuIntegerRecommendedLevel of Occupation. Patient current1::9; 991=Higher executive, proprietor of large concern, major professional; 2=Business manager of large concern, proprietor of medium sized business, lesser professional; 3=Administrative personnel, owner of small independent business, minor professional, owner of a large farm; 4=Clerical or sales worker, technician, owner of a little business, owner of a medium sized farm; 5=Skilled manual employee, owner of a small farm; 6=Machine operator, semi-skilled employee, tenant farmer who owns little equipment; 7=Unskilled employee, share cropper; 9=Never had paid employment/Not currently employed; 99=not scertained
surfqhaIntegerRecommendedDollar amount for other social welfarefin_wel
surfqeaFloatRecommendedDollar amount for SSIfin_ssi
other_amountFloatRecommendedDollar amount per monthfin_oth
fin_ptFloatRecommendedPatients current sources of finacial support-Patient (including earnings, unemployment benefits)
fin_famFloatRecommendedPatients current sources of finacial support-Family Members
fin_totFloatRecommendedPatients current sources of finacial support-TOTAL
longestIntegerRecommendedlongest lasting job in monthsjob_len
begin_pdIntegerRecommendedWhen did patient begin regular paid employment?1;2;31=During or before adolescence; 2=After 20 years of age; 3=Never had regular paid employment
cg_work_hoursString255RecommendedNumber of hours worked per week for Payjob_hr
spc_ptcuString255RecommendedSpecify Occupation and Size of Business- Patient current
spc_mohiString255RecommendedSpecify Occupation and Size of Business- Mother highest
spc_fahiString255RecommendedSpecify Occupation and Size of Business- Father highest
con_dxFloatRecommendedConsensus DSM-IV Diagnosis code295.0 = Schizophrenia, NOS; 295.1=Schizophrenia, Disorganized Type; 295.2=Schizophrenia, Catatonic Type; 295.3=Schizophrenia, Paranoid Type; 295.4=Schizophreniform Disorder; 295.6=Schizophrenia, Residual Type; 295.7=Schizoaffective Disorder; 295.9=Schizophrenia, Undifferentiated Type
intrtIntegerRecommendedTreatment Status Code0::20=Baseline; 1=In Treatment; 2=In Follow-up
trtgrp_pIntegerRecommendedTreatment Group1;21=Long-Acting Injectable Risperidone Microspheres; 2=Second Generation Oral Antipsychotic Medication
days_visit1IntegerRecommendedDays from Visit 1dav1dhs
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
spc_pthiString255RecommendedSpecify Occupation and Size of Business-Patient Highest
rlhqlqlIntegerRecommendedPatient's status is childbearing potential
1;2;9
1=No; 2=Yes; 9=unknownchdpot
numchildIntegerRecommendednumber of children
dem14IntegerRecommendedHousehold income1::41=24,999 or less; 2=25,000 - 49,999; 3=50,000 - 74,999; 4=75,000 or greater
country_originString100RecommendedCountry of Origin
born_usIntegerRecommendedWere you born in the United States0;10=No;1=Yes
ustimeIntegerRecommendedHow long you lived in US, years
read_engIntegerRecommendedHow well do you read English0::3; 8; 90 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refused
write_engIntegerRecommendedHow well do you write in English0::3; 8; 90 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refused
speak_engIntegerRecommendedHow well do you speak English0::3; 8; 90 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refused
dem_ptdIntegerRecommendedDays from date of negative pregnancy test to baseline visit date
totaladultsIntegerRecommendedHow many total adults are in the home, including PCG?
zipdistFloatRecommendedDistance between home to clinic in miles
proccodeIntegerRecommendedProcedure/rationale code for educational placement1::41=IEIS data collected before Week 4; 2=No IEIS data collected - Demographic data used with confirmation; 3=IEIS was collected later than 4 Weeks into the study and matched demographic information; 4=IEIS was collected later than 4 weeks into the study, and conflicted with demographic data regarding placement. Resolved by using all information available.
eduplaceIntegerRecommendedEducational placement code1::91=Full time Regular Ed without aide; 2=Full time Regular Ed with aide; 3=Regular Ed with "pull out" for certain subjects; 4=Special Ed classroom(minimal or no inclusion); 5=Special School (grade school);6=Home School; 7=Special Preschool; 8=Regular Preschool; 9=No School
fdi_q19IntegerRecommendedHousehold income1 :: 131=$20,000 or less; 2=$20,001-$40,000; 3=$40,001-$60,000; 4=$60,001-$80,000; 5=$80,001-$100,000; 6=$100,001 - $125,000; 7=$125,001-$150,000; 8=$150,000-$200,000; 9=$200,000 or higher; 10=I don't know; 11=I prefer not to answer; 12 = $60,001 - $90,000;13 = More than $90,000
dademplIntegerRecommendedIn the current household, which of the following best describes the father's (father figure) current employment status?1::911 = Working full time 2 = Working part time 3 = Unemployed, looking for work 4 = Unemployed, not looking for work 5 = Keeping house 6 = Disabled 7 = Retired 8 = Student, full time 9 = Student, part time 10 = Other 62 = Disabled and working part time 81 = Student full time and working full time 82 = Student full time and working part time 91 = Student part time and working full time
psysoc_214String160RecommendedEmployment: Other1:
psysoc_217String160RecommendedEmployment: Other2:
pre001IntegerRecommendedWas a pregnancy test done?0;1; 3; -90=No; 1=Yes; -9 =unknown; 3=N/A (male)
ifnaIntegerRecommendedIf N/A checked (pregnancy test), please select one reason1::31 = Male; 2 = Premanarche; 3 = Other (specify)
specifyString200RecommendedIf "Other", (pregnancy test N/A) specify - TEXT
pre004IntegerRecommendedPregnancy Test Result1;2;9;-91=Positive; 2=Negative; 9=Equivocal; -9=Unknown
chi_living_otherString255Recommendedchild living arrangement_otherOther living arrangement
eop10IntegerRecommendedInvestigators Signature Day signed:Number of days from study baseline to date investigator's signature was obtained
recscoreString150RecommendedRecruitment score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demogr01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.