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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Demographics

demographics

02

General demographics data structure

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid_r03, nimhid
bio_mother_educationString75RecommendedBiological Mother Highest level of education
Less than High School;High School Degree;GED;Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify ; 99 ; 77; -999
momedu_4cat
bio_mother_ethnicityString50RecommendedBiological Mother Ethnicity
Hispanic or Latino;Not Hispanic or Latino; No Answer
mother_eth_main
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age, demo_age_ym, v1_demo_age
bio_mother_raceString150RecommendedBiological Mother Race
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
mother_race1;mother_race2;mother_race3, mother_race_main, racemother_r03
bio_mother_marital_statusString50RecommendedBiological Mother Marital StatusSingle;Married;Divorced;Divorced and Remarried;Widowed;Separated
bio_mother_number_childrenIntegerRecommendedBiological Mother Number of Children
bio_mother_employedString5RecommendedBiological Mother Employed?
Yes;No
dm9a
bio_mother_type_employmentString15RecommendedBiological Mother Type of EmploymentFull time;Part time; Not Employed
bio_mother_occupationString100RecommendedBiological Mother Occupation
bio_mother_incomeIntegerRecommendedBiological Mother: income (1=$0-$5,000; 2=$5,001-$10,000; 3=$10,001-$15,000; 4=$15,001-$25,000; 5=$25,001-$35,000; 6=$35,001-$50,000; 7=$50,001-$75,000; 8=$75,001-$100,000; 9=$100,001-$150,000; 10=over $150,000)1 :: 101 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000
bio_mother_writing_handString5RecommendedBiological Mother: Hand used to write withR;L;BR = Right; L = Left; B = Both
bio_father_educationString75RecommendedBiological Father Highest level of education
Less than High School;High School Degree;GED;Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify ; 99 ; 77; -999
99= D/K ; 77= N/A; 999= Missingdadedu_4cat
bio_father_ethnicityString50RecommendedBiological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)
Hispanic or Latino; Not Hispanic or Latino; No Answer
father_eth_main
bio_father_raceString150RecommendedBiological Father RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedfather_race1, father_race2, father_race3, father_race_main
bio_father_marital_statusString50RecommendedBiological Father Marital StatusSingle;Married;Divorced;Divorced and Remarried;Widowed;Seperated
bio_father_number_childrenIntegerRecommendedBiological Father Number of Children
bio_father_employedString5RecommendedBiological Father Employed?
Yes;No
dm10a
bio_father_type_employmentString15RecommendedBiological Father Type of EmploymentFull time;Part time; Not Employed
bio_father_occupationString100RecommendedBiological Father Occupation
bio_father_incomeIntegerRecommendedBiological Father: income (1=$0-$5,000; 2=$5,001-$10,000; 3=$10,001-$15,000; 4=$15,001-$25,000; 5=$25,001-$35,000; 6=$35,001-$50,000; 7=$50,001-$75,000; 8=$75,001-$100,000; 9=$100,001-$150,000; 10=over $150,000)1 :: 101 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000
bio_father_writing_handString5RecommendedBiological Father: Hand used to write withR;L;BR = Right; L = Left; B = Both
household_where_child_livesString50RecommendedChild (subject/proband) with ASD currently lives withBoth Parents;Biological Mother Only;Biological Father Only;Biological Mother and Step Father;Biological Father and Step Mother;Foster Parents;Other Relatives;Other;Adoptive Parents
household_physical_custodyString50RecommendedPhysical Custody situation if mother and father are divorced or separatedJoint;Mother has sole custody;Father has sole custody
household_visitationString5RecommendedIf either parent has sole custody based on the previous question, does the other parent have visitation?
Yes;No
household_number_in_houseIntegerRecommendedNumber of people living in primary residence for subject (proband)
household_dwelling_typeString25RecommendedPrimary Residence Dwelling typeApartment;Attached House;Detached House
src_subject_idString20RequiredSubject ID how it's defined in lab/projectnewid, ptid, record_id, sid_r03, subject_id, subjectid, subjectnumber, v1_demo_inf
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fielddatacollecteddate, testdate, v1_demo_date
genderString20RequiredSex of the subject
M;F
M = Male; F = Femalechildgender_r03, correctgender, demo_sex, sex, v1_demo_sex
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
household_income_levelIntegerRecommendedCombined income all adults in home1::211 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000; 11 = Less than $10,000; 12 = $15,000-$20,000; 13 = $20,000-$25,000; 14 = $25,000-$30,000; 15 = $30,000-$35,000; 16 = $35,000-$40,000; 17 = $40,000-$45,000; 18 = $45,000-$50,000; 19 = $50,000-$55,000; 20 = $55,000-$60,000; 21 = Above $60,000
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datademo_43, demogcmts, notes
primary_languageString255RecommendedSubject's Primary Languagedemo_lang_first, language1
preferredlanguageString100RecommendedBackground Variable: Preferred Language for interviewdemo_lang_pref
demo_learn_eng_ageIntegerRecommendedIf English is not your first language, age that you learned English-9=N/A
raceString30RecommendedRace of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
childrace_5cat, race_main;race_1;race_2;race_3, racechild_r03, v1_demo_race
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
demo_hispanic_latino, dm3, v1_demo_ethnicity
self_birthspString50RecommendedWhere were you born specify. PX010201_Birthplace_LocationIn the United States - Print name of state. Outside the United States - Print U.S. Territory (e.g., Puerto Rico, U.S. Virgin Islands, Guam) or name of foreign country etc.birth_loc, demo_birth_country
demo_birth_townString100RecommendedWhere were you born? Town/city
born_usIntegerRecommendedWere you born in the United States0;10=No;1=Yes
demo_immigrant_statusIntegerRecommendedImmigrant status1::41=Born in USA (Canada) or not 1st or 2nd generation; 2=1st generation migrant(subject and parents born abroad); 3=1st generation migrant plus (subject and parent born aboard; subject came to USA(Canada) before age 5); 4=2nd generation migrant (born in USA (Can.), one or both parents born abroad)
demo_citizenshipIntegerRecommendedCitizenship status1::41=US (Canadian) citizen; 2=Permanent resident; 3=Refugee; 4=Temporary resident (work/study)
demo_education_dadIntegerRecommendedHighest level of formal education completed by your father?1::91=No schooling; 2=Some primary school; 3=Completed primary school; 4=Some high school; 5=Completed high school; 6=Some college/technical school/undergraduate; 7=Completed college/technical school/undergraduate; 8=Some graduate/professional school; 9=Completed graduate/professional school
demo_education_momIntegerRecommendedHighest level of formal education completed by your mother?1::91=No schooling; 2=Some primary school; 3=Completed primary school; 4=Some high school; 5=Completed high school; 6=Some college/technical school/undergraduate; 7=Completed college/technical school/undergraduate; 8=Some graduate/professional school; 9=Completed graduate/professional school
demo_resp_statusIntegerRecommendedrespondent's marital status1 :: 111 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answercivil_stat, demo_marital_status, dm6, marital_status, maritalstatus, v1_demo_maritalstatus
numchildIntegerRecommendednumber of childrenchildren_num, demo_num_children, kids_number
mother_ageIntegerRecommendedMother's age0 :: 1200demo_mom_age, motherage_r03
father_ageIntegerRecommendedFather's age0 :: 1200demo_dad_age, fatherage_r03
demo_livingIntegerRecommendedBest describes your current living arrangements?1::81=Living with family; 2=Living with spouse/partner; 3=Living on own in apartment/house; 4=Living in a group/boarding/rooming house; 5=Living with other(s), not spouse/partner; 6=Living in a shelter; 7=Living on the street; 8=Otherdemo_living_arrangment
living_notesString50RecommendedLiving arrangements (specify)demo_living_other, livingsitotr
ann_family_incIntegerRecommendedWhat was your best estimate of the total income of all family members from all sources, before taxes, in last year? PX011101_Annual_Family_Income0::70=Less than $10,000; 1= $10,000- $19,999; 2= $20,000- $39,999; 3=$40,000-$59,999; 4=$60,000-$99,999; 5=$100,000+; 6=Don�t know; 7=Prefer not to answerdemo_income
demo_income_sourceIntegerRecommendedWhat is the main source of your personal income?1::81=Contributions from family/spouse/partner; 2=Disability income;3=Gross earnings (self); 4=Social Support; 5=Pension/Insurance; 6=Personal Needs Allowance; 7=Student Loan; 8=Other income
demo_income_otherString100RecommendedIncome source: specify
ann_personal_incIntegerRecommendedWhat category best represents your total personal income, before taxes, from all sources? PX011101_Annual_Personal_Income0::70=Less than $10,000; 1= $10,000- $19,999; 2= $20,000- $39,999; 3=$40,000-$59,999; 4=$60,000-$99,999; 5=$100,000+; 6=Don�t know; 7=Prefer not to answerdemo_income_category
demo_workingIntegerRecommendedAre you currently working?1::51=Yes, working full-time; 2=Yes, working half-time; 3=No, but I have worked in the past year; 4=No, and have not worked in the past year; 5=Full-time parent
volworkIntegerRecommendeddo you do volunteer work0;1;-70=No; 1=Yes; -7=Refuseddemo_volunteer
educatFloatRecommendedNumber of years in formal education999=Unknown/Missingdemo_education_years
demo_education_maxIntegerRecommendedWhat is the highest level of formal eduation you have completed?1::71=Some grade schooling but not completed high school; 2=High school; 3=College; 4=Technical school; 5=University; 6=Graduate School; 7=Professional school
studentIntegerRecommendedCurrently a student0::20=No; 1=Yes; 2=Part timedemo_enrolled_student
demo_edu_otherString100RecommendedEducation other: specifydemo_education_other, v1_demo_education_other
demo_enrolled_locationIntegerRecommendedWhere have you been enrolled in the past 6 months?1::91=Elementary, junior high, or middle school; 2=High school; 3=Adult Education;4=Community college; 5=Vocational/Technical/Trade school; 6=University; 7=Learning Disability or special education class; 8=Other; 9=N/A
demo_other_enrollString100RecommendedEnrolled as a student other: specifydemo_other_enrolled, demo_other_enrollement
studfteIntegerRecommendedstudent full time part time1::3;-71=Full time; 2=Part time; 3=currently not in school; -7=Refuseddemo_class_time
demo_class_attendIntegerRecommendedHow regularly did you attend classes in the past 6 months?1::91=All of the time; 2=Most of the time; 3=About half the time; 4=Less than half of the time; 5=N/A; 6 = Attended at all; 7 = Never attended; 9 = Missing
demo_health_rateIntegerRecommendedPlease rate your physical health problems in the past 6 months1::51=No physical health problem; 2=Minor health problems;3=Physical health problem imposes mild restriction on mobility and activity; 4=Moderate degree of restriction on activity due to physical health problem; 5=Severe or complete incapacity due to physical health problem
demo_health_conditionIntegerRecommendedDo you have any physical health conditions?1::81=No physical health conditions; 2=High blood pressure; 3=Diabetes; 4=Heart problems; 5=Cancer; 6=Arthritis; 7=HIV/AIDS; 8=Other
demo_health_condspString100RecommendedPhysical health conditions: specifydemo_health_condition_other
demo_sibling_studyIntegerRecommendedDo you have a sibling in the study?1::61=No; 2=An identical twin; 3=A brother; 4=A sister; 5=A half-brother; 6=A half-sister
sib1_src_subject_idString20RecommendedStudy Study ID (sibling 1)demo_sibling_id
siteString100RecommendedSiteStudy Sitesitenumber
visit_nameString20Recommendedsession ID/screening IDvisitnum, visitnumber
visitString50RecommendedVisit nameCharacter description of each type of visittimept, visitlabel
subjecttypeString20RecommendedSubject TypeControl;Prodromal; Enhanced; Non-Enhanced
ethnic_groupString255RecommendedEthnic groupdemo_racial, ethniother
livein_fatherIntegerRecommendedDoes father live in home with child?0;10=No; 1=Yeslivein_father_r03
livein_patgrandfIntegerRecommendedDoes paternal grandfather live in home with child?0;10=No; 1=Yeslivein_patgrandpa_r03
livein_patgrandmIntegerRecommendedDoes paternal grandmother live in home with child?0;10=No; 1=Yeslivein_patgrandma_r03
livein_matgrandfIntegerRecommendedDoes maternal grandfather live in home with child?0;10=No; 1=Yeslivein_matgrandpa_r03
livein_matgrandmIntegerRecommendedDoes maternal grandmother live in home with child?0;10=No; 1=Yeslivein_matgrandma_r03
livein_adultsIntegerRecommendedTotal adults who live in home with child0;10=No; 1=Yeslivein_adults_r03
livein_kidsover4IntegerRecommendedTotal kids over age 4 who live in home with child0;10=No; 1=Yeslivein_kidsover4_r03
livein_kidsunder4IntegerRecommendedTotal kids under age 4 who live in home with child0;10=No; 1=Yeslivein_kidsunder4_r03
patgrandf_ageIntegerRecommendedAge of paternal grandfather0 :: 1200patgrandpaage_r03
patgrandm_ageIntegerRecommendedAge of paternal grandmother0 :: 1200patgrandmaage_r03
matgrandf_ageIntegerRecommendedAge of maternal grandfather0 :: 1200matgrandpaage_r03
matgrandm_ageIntegerRecommendedAge of maternal grandmother0 :: 1200matgrandmaage_r03
care_selfIntegerRecommendedNo. of hours per week child cared for by MomEnter '0' if this person does not do childcareinhomeself_r03
care_fatherIntegerRecommendedNo. of hours per week child cared for by DadEnter '0' if this person does not do childcareinhomefather_r03
care_grandsIntegerRecommendedNo. of hours per week child cared for by GrandparentsEnter '0' if this person does not do childcareinhomegrands_r03
care_siblingsIntegerRecommendedNo. of hours per week child cared for by Whole/Half/Step SiblingsEnter '0' if this person does not do childcareinhomesiblings_r03
care_auntuncleIntegerRecommendedNo. of hours per week child cared for by Aunts/UnclesEnter '0' if this person does not do childcareinhomeauntuncle_r03
care_cousinIntegerRecommendedNo. of hours per week child cared for by CousinEnter '0' if this person does not do childcareinhomecousin_r03
care_ggrandsIntegerRecommendedNo. of hours per week child cared for by Great-grandparentsEnter '0' if this person does not do childcareinhomeggrands_r03
care_otherfamIntegerRecommendedNo. of hours per week child cared for by Other Extended FamilyEnter '0' if this person does not do childcareinhomeotherfamily_r03
care_nonfamIntegerRecommendedNo. of hours per week child cared for by a Non-Family MemberEnter '0' if this person does not do childcareinhomenonfamily_r03
care_childcareIntegerRecommendedNo. of hours per week child in Childcare Center Outside of HomeEnter '0' for NAouthomecenter_r03
care_nonrelIntegerRecommendedNo. of hours per week child in care of Non-Relative Outside HomeEnter '0' for NAouthomenonrelative_r03
care_privateIntegerRecommendedNo. of hours per week child in care of Private Provider in HomeEnter '0' for NAouthomeprovider_r03
care_otherIntegerRecommendedNo. of hours per week child in other childcare situation Outside of HomeEnter '0' for NAouthomeother_r03
mother_ms1IntegerRecommendedMother: is currently married0;10=No; 1=Yesmsmarried_r03
mother_ms2IntegerRecommendedMother: is currently living with birth father0;10=No; 1=Yesmslivingwbirthfather_r03
mother_ms3IntegerRecommendedMother: is currently living with partner0;10=No; 1=Yesmslivingwpartner_r03
mother_ms4IntegerRecommendedMother: is or has been divorced0;10=No; 1=Yesmsdivorced_r03
mother_ms5IntegerRecommendedMother: is currently separated0;10=No; 1=Yesmsseparated_r03
mother_ms6IntegerRecommendedMother: is has been widowed0;10=No; 1=Yesmswidowed_r03
mother_ms7IntegerRecommendedMother: has never been married0;10=No; 1=Yesmsnevermarried_r03
relationship_lengthIntegerRecommendedLength of current relationship (in months)relationshiplengthmonths_r03
housing_typeIntegerRecommendedType of Housing1::41=Own; 2=Rent; 3=Section 8 or Public housing; 4=Otherhousing_r03
surfqaIntegerRecommendedA. Earned income (competitive employment)0;1;31 = Yes; 0 = No; 3 = Not knownemployment_r03
surfqiIntegerRecommendedUnemployment compensation0;1;31 = Yes; 0 = No; 3 = Not knowncompensation_r03
workmansIntegerRecommendedIncome received through Disability (workmans compensation)0;10=No; 1=Yesdisability_r03
srcssecIntegerRecommendedsources of income soc security0;1;-70=No; 1=Yes; -7=Refusedssi_r03
srcafdcIntegerRecommendedsources of income afdc0;1;-70=No; 1=Yes; -7=Refusedafdc_r03
support_alimonyIntegerRecommendedIncome received through Child Support or Alimony0;10=No; 1=Yeschildsupportalimony_r03
surfqlIntegerRecommendedL. Food stamps0;1;31 = Yes; 0 = No; 3 = Not knownfoodstamps_r03
care_caidIntegerRecommendedIncome received through Medicare or Medicaid0;10=No; 1=Yesmedicaremedicaid_r03
income_wicIntegerRecommendedIncome received through the Women, Infants, Children program (WIC)0;10=No; 1=Yeswic_r03
income_investIntegerRecommendedIncome received through Investments or Rent0;10=No; 1=Yesinvestmentrent_r03
employ_m1IntegerRecommendedCurrent no. of jobs Mother hasm_jobno_r03
employ_m2IntegerRecommendedMother employment type1::31=Employed full time; 2=Employed part time; 3=Staying at home with child full-timem_employmenttype_r03
employ_m3IntegerRecommendedMother unemployment type1::31=Unable to work; 2=Looking for employment; 3=On temporary leave of absencem_unemploymenttype_r03
employ_m4String100RecommendedDescription of Mother's jobdm9_sp, m_jobdescription_r03
employ_m5IntegerRecommendedMother supervises people at work0;10=No; 1=Yesm_supervision_r03
employ_f1IntegerRecommendedCurrent no. of jobs Father hasf_jobno_r03
employ_f2IntegerRecommendedFather employment type1::31=Employed full time; 2=Employed part time; 3=Staying at home with child full-timef_employmenttype_r03
employ_f3IntegerRecommendedFather unemployment type1::31=Unable to work; 2=Looking for employment; 3=On temporary leave of absencef_unemploymenttype_r03
employ_f4String100RecommendedDescription of Father's jobdm10_sp, f_jobdescription_r03
employ_f5IntegerRecommendedFather supervises people at work0;10=No; 1=Yesf_supervision_r03
house_incomeIntegerRecommendedHousehold income (based on last year)1::211=Less than 5,000; 2=Between 5,000-9,999; 3= Between 10,000-14,999; 4 =Between 15,000-19,999; 5= Between 20,000-24,999; 6=Between 25,000-29,999; 7=Between 30,000-34,999; 8=Between 35,000-39,999; 9 =Between 40,000-44,999; 10 =Between 45,000-49,999; 11= Between 50,000-54,999; 12= Between 55,000-59,999; 13 =Between 60,000-64,999; 14= Between 65,000-69,999; 15= Between 70,000-74,999; 16 =Between 75,000-79,999; 17 =Between 80,000-84,999; 18 =Between 85,000-89,999; 19 =Between 90,000-94,999; 20 =Between 95,000-99,999; 21= More than 100,000householdincome_r03
et2aIntegerRecommendedHighest Level of Education Achieved. Biological mother1::12; 99; 7799=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GEDm_education_r03
educat_m2IntegerRecommendedMom currently in school0;10=No; 1=Yesm_inschool_r03
educat_m3IntegerRecommendedMom current school type1::71= High School; 2 =G.E.D. Program; 3= Community College (A.A.); 4 =Vocational or Technical Program; 5= Job Training Program; 6= College (B.A. or B.S.); 7= Graduate Schoolm_schooltype_r03
et2bIntegerRecommendedHighest Level of Education Achieved. Biological father1::12; 99; 7799=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GEDf_education_r03
educat_f2IntegerRecommendedDad currently in school0;10=No; 1=Yesf_inschool_r03
educat_f3IntegerRecommendedDad current school type1::71= High School; 2 =G.E.D. Program; 3= Community College (A.A.); 4 =Vocational or Technical Program; 5= Job Training Program; 6= College (B.A. or B.S.); 7= Graduate Schoolf_schooltype_r03
handednessString29Recommendedhandedness
R;L;B;999
R = Right; L = Left; B = Both
otherraceString50Recommendedspecify other raceraceother, v1_demo_race_other
mother_ageunkString5RecommendedIs biological mother age unknown?Yes; No
mother_still_livingString5RecommendedMother still living?Yes; No
mother_age_deathIntegerRecommendedIf no, age at death of motherin months
mother_codString50RecommendedMother's cause of death
father_ageunkString5RecommendedIs biological father age unknown?Yes; No
father_still_livingString5RecommendedFather still living?Yes; No; NKNK = unknown
father_age_deathIntegerRecommendedIf no, age at death of fatherin months
father_cause_of_deathString50RecommendedFather's cause of death
dem_12IntegerRecommendedParents marital status1::71=Married/common law 2=Not married, living together 3=Separated 4=Divorced/annulled 5=Widowed ; 6=Never married, not living with someone; 7=otherparentrelation
emplIntegerRecommendedCurrent employment status1::15; -71=Unemployed not looking for employment; 2=Unemployed looking for employment; 3=Full time employed for pay; 4=Part time employed for pay; 5=Self employed for pay; 6=Retired not working; 7=Unemployed, volunteer work; 8=Unemployed, disabled; 9=Other, specify -7=Refused; 10= Paid employment or self-employed; 11= Voluntary employment; 12= Sheltered/Welfare employment; 13= Unemployed; 14= Student; 15= Otheremploystat, v1_demo_employment
employotrString50RecommendedEmployment situation other, specifyoccupation_specific, v1_demo_employment_other
dema6IntegerRecommendedWhich Best describes your current living situation?1::91=Independent Living. Live alone, with spouse, family or friend, in an apartment or house.; 2=Minimally Structured Residence. Live in a supervised apartment program, boarding home, adult foster care.; 3=Moderately Restrictive Residence. Live in a halfway house, treatment program, acute psychiatric diversion facility, treatment lodge; 4=Extremely Restrictive Residence. Psychiatric hospital, skilled nursing facility, jail or prison.; 5=Homeless. Has been homeless or in emergency shelter for the homeless; 6=Lives in someone elses apartment, room or house; 7=Dormitory/College residence; 8=Residential treatment; 9=Other, specifylivingsituation, residence
educat_subjectIntegerRecommendedSubject's Highest Level of Education Completed: (Select One)1::141 = Elementary School; 2 = Middle/Junior High School; 3 = High School, no degree; 4 = GED; 5 = High School, degree; 6 = Vocational School, but no diploma; 7 = Vocational School, diploma; 8 = Some University Courses; 9 = Associates Degree; 10 = Bachelors Degree; 11 = Some Grad. Level Courses; 12 = Masters Degree; 13 = Doctorate Level Courses; 14 = Doctorate Degreeeducation
enroll_subjectString25RecommendedCurrent Enrolled in School or Job Training Program (Select One):Not enrolled; Enrolled, part time; Enrolled, full time; Other, specify
ci_eligibleIntegerRecommendedParticipant eligible0 :: 20=Failed (Ineligible); 1=Passed (Eligible); 2=In screeningelig_inclusion_check
race_otherString100RecommendedRace of Respondent Specifydemo_08a
usbornIntegerRecommendedUS born0;10=No; 1=Yesdemo_born_usa_can
qa7IntegerRecommendedWhat language do you usually speak at home?1::51=English; 2=Spanish; 3=Other; 4=Both English and Spanish; 5=Both English and some other languagedm5, language2
dm8IntegerRecommendedDescribe who you have been living with during the past 30 days1::9;911=Living alone; 2=Living with spouse; significant other only; 3=Living with children only; 4=Living with spouse/significant other and children; 5=Living with parents; 6=Living with other relatives; 7=Living with friends; 8=Living with other non-related adults (not friends); 9=Living with other students in a dormitory or other college housing; 91=Other
dm9bIntegerRecommendedDoes not live with Mother?0;10=No; 1=Yes
dm10bIntegerRecommendedDoes not live with Father?0;10=No; 1=Yes
dm11IntegerRecommendedWhich of the following best describes where you have been living during the past 30 days1::6;911 = In a house or apartment alone or with a spouse friend or children;2 = In a house or apartment or boarding home where a mental health professional like a counselor or case manager visits regularly;3 = In a treatment program or boarding home where a mental health professional like a counselor or case manager is there all or almost all of the time;4 = In a hospital or nursing home;5 = In a jail or prison;6 = On the streets or in an emergency shelter for the homeless;91 = Some other place
dm12aIntegerRecommendedIn the past three months, how many days have you been...Living in a shelter or on the street
dm12bIntegerRecommendedIn the past three months, how many days have you been...In jail or a correctional facility
memplString40RecommendedMonthly employment incomedm13a
massistString40RecommendedMonthy public assistance incomedm13b
dm13cIntegerRecommendedMoney received during past month: Food stamps or assistance from the Temporary Assistance for Needy Families (TANF) program
dm13dIntegerRecommendedMoney received during past month: Social Security Retirement or Survivors Benefits
ssi_amountFloatRecommendedSocial Security dollar amount per monthdm13e
dm13fIntegerRecommendedMoney received during past month: Supplemental Security Income (SSI)
dm13gIntegerRecommendedMoney received during past month: VA or other armed services disability benefits
dm13hIntegerRecommendedMoney received during past month: Vocational program such as Vocational Rehabilitation, the Job Training Partnership Act, or Easter Seal
munemplString40RecommendedMonthly unemployment incomedm13i
surfqjaIntegerRecommendedDollar amount for retirement, investment or saving incomedm13j
dm13kIntegerRecommendedMoney received during past month: Alimony and child support
dm13lIntegerRecommendedMoney received during past month: Money from family members including gifts, loans, or bill payments
other_supIntegerRecommendedDo you get other support?0;1;-99;88;770= No ; 1= Yes ; -99= N/A ; 88= Missing ; 77= Refuseddm14
other_amountFloatRecommendedDollar amount per monthdm15
demo_income_queIntegerRecommendedWhat is the total incomedm16
blackIntegerRecommendedBlack or African-American0;11=yes, 0=norace_black
days_baselineIntegerRecommendedDays since baselinedemodays
phne_sc_2String40Recommended2. What is your highest grade completed in school?dm7
datetimeString25RecommendedDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYY and __:__date_of_appointment_for_in
have_childrenIntegerRecommendedDo you have children?0;10 = No; 1 = Yeskids
occustatIntegerRecommendedcurrent employment status1::71=A worker for pay;2=Disabled 3=A housewife; 4=A student; 5=Unemployed; 6=Retired; 7=employed/student
ci_enrolledIntegerRecommendedParticipant enrolled0;10=No; 1=Yesenrollment_current
samples_aIntegerRecommendeda. Your samples may be stored and used for future research studies to learn about, prevent, treat or cure brain diseases.0;10=No; 1=Yes
samples_bIntegerRecommendedb. your samples may be stored and used for research about other health problems.0;10=No; 1=Yes
samples_cIntegerRecommendedc. your samples may be shared with other investigators/groups without any identifying information?0;10=No; 1=Yes
samples_dIntegerRecommendedd. You would like us to keep your contact information and contact you about research opportunities in the future.0;10=No; 1=Yes
future_contactIntegerRecommendedFuture Contact0;10=No; 1=Yes
date_of_enrollmentString10RecommendedDate of enrollment
age_at_enrollmentIntegerRecommendedAge at enrollment
enrollment_pastIntegerRecommendedPast enrollment?0;10=No; 1=Yes
enroll_notIntegerRecommendedReason for not being in study1::71= Not eligible;2= Not interested;3= Withdrawn -- Participant choice;4= Withdrawn -- Investigator choice;5= Withdrawn -- Lost to follow-up;6= Death; 7 = Withdrawn -- Patient/Family choicereason_for_not_being_in_st
enroll_notesString200RecommendedNotes about enrollment statusnotes_about_enrollment_sta
preg_age_dadIntegerRecommendedAge of father at the time of birthIn years; 999=Unknownagedad
preg_age_momIntegerRecommendedAge of mother at the time of birthIn years; 999=Unknownagemom
paymentmethodIntegerRecommendedPrimary method of payment1::101 = Medicare; 2 = Medicaid; 3 = Veteran's Program/Other Gov't Aid; 4 = Insurance: Indemnity; 5 = Insurance: Managed Care; 6 = Self-pay; 7 = Free; 8 = Other; 9 = Managed Medicaid/Medicare; 10 = NKpaymentdelivery
birthplacemomIntegerRecommendedBirthplace of Mother1::31=Mother born in USA; 2=Mother born in Mexico; 3=Mother born Outside USA or Mexico
ownhomeIntegerRecommendedHome is owned by someone in household0;10=No;1=Yes
dataqualityIntegerRecommendedData quality0::50=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
spseduString100Recommendedspouse's educationless than 8th grade;some high school;high school diploma;some college;college degree;some graduate school;graduate school degree;other;missing;N/A
contac5IntegerRecommendedAmount of face to face contact in the last year (dad) - Father surrogate #10::90=none; 1=1-5 times per year; 2=6-11 times per year; 3=1-2 times per month; 4=1 week or more; 5=spends summer and vacations (no other contact); 6=lives with parent; 7=does not apply
medcaidbIntegerRecommendedMedicaid: Medicaid managed care0;10 = No; 1 = Yes
spouse_emplIntegerRecommendedIs your spouse currently employed0::20=No; 1=Yes part-time; 2=Yes full-time
contac4IntegerRecommendedAmount of face to face contact in the last year (dad) - Father0::90=none; 1=1-5 times per year; 2=6-11 times per year; 3=1-2 times per month; 4=1 week or more; 5=spends summer and vacations (no other contact); 6=lives with parent; 7=does not apply
contac2IntegerRecommendedAmount of face to face contact in the last year (mom) - Mother surrogate #10::90=none; 1=1-5 times per year; 2=6-11 times per year; 3=1-2 times per month; 4=1 week or more; 5=spends summer and vacations (no other contact); 6=lives with parent; 7=does not apply
contac1IntegerRecommendedAmount of face to face contact in the last year (mom) - Mother0::90=none; 1=1-5 times per year; 2=6-11 times per year; 3=1-2 times per month; 4=1 week or more; 5=spends summer and vacations (no other contact); 6=lives with parent; 7=does not apply
agecon5IntegerRecommendedAmount of face to face contact in the last year (dad) - Age of last contact - Father surrogate #1 (years)
agecon4IntegerRecommendedAmount of face to face contact in the last year (dad) - Age of last contact - Father (years)
agecon1IntegerRecommendedAmount of face to face contact in the last year (mom) - Age of last contact - Mother (years)
agecon2IntegerRecommendedAmount of face to face contact in the last year (mom) - Age of last contact - Mother surrogate #1 (years)
weekFloatRecommendedWeek in level/study99=week 10-week 14
sestotIntegerRecommendedSocio-Economic Status (SES)1::51 = SES score of 08 to 19;2 = SES score of 20 to 29;3 = SES score of 30 to 39;4 = SES score of 40 to 54;5 = SES score of 55 to 66
px_heatlh_ins1IntegerRecommendedWhat kind of health insurance or health care coverage do you have? PRIVATE HEALTH INSURANCE PX011501_Health_Insurance_Coverage_Private1;21=Yes; 2=No
px_heatlh_ins12IntegerRecommendedWhat kind of health insurance or health care coverage do you have? NO COVERAGE OF ANY TYPE PX011501_Health_Insurance_Coverage_None1;21=Yes; 2=No
agesepIntegerRecommendedHow old was the subject (in months) when first experienced this separation?
chgarrIntegerRecommendedDid subject ever experience any changes in caretaker arrangements?0;10 = No; 1 = Yes
educIntegerRecommendedHEAD OF HOUSEHOLD Education1::71 = Less than 7th Grade; 2 = Jr. High School (9th Grade); 3 = Some High School (10th or 11th Grade); 4 = High School Graduate; 5 = Some College (at least 1 year); 6 = Standard College Degree; 7 = Graduate Professional Training
emplyIntegerRecommendedHEAD OF HOUSEHOLD Presently Employed0;1;2;70 = NO; 1 = YES - PART TIME; 2 = YES - FULL TIME; 7 = RETIRED
inshpIntegerRecommendedHealth plan (HMO, PPO)0;10 = Not Checked; 1 = Checked;
insmedcIntegerRecommendedMedicaire0;10 = Not Checked; 1 = Checked;
insppIntegerRecommendedPrivate plan (e.g., BC/BS, Aetna)0;10 = Not Checked; 1 = Checked;
inspudkIntegerRecommendedPublic program, name unknown0;10 = Not Checked; 1 = Checked;
livwithIntegerRecommendedWith whom is subject currently living (choose one)?1::25; 88; 991 = Both natural parents; 2 = Both natural parents, but joint custody; 3 = Natural mother and stepfather; 4 = Natural father and stepmother; 5 = Natural mother and boyfriend/girlfriend; 6 = Natural father and boyfriend/girlfriend; 7 = Natural mother only; 8 = Natural father only; 10 = Stepmother only; 11 = Stepfather only; 12 = Grandparent; 13 = Adoptive parent; 14 = Other relative/friend; 15 = Foster home; 16 = Group home; 17 = Residential institution; 18 = Boarding home; 19 = Runaway; 20 = College student; 21 = Lives independently; 22=Aunt/Uncle; 23=Legal Guardian;24 = Military; 25 = Spouse/significant other88 = other; 99 = missing
ncaretkrIntegerRecommendedHow many caretakers has subject had besides primary caretaker?
nsepnsIntegerRecommendedHow many separations from caretaker of greater than 3 months did subject experience?
occupationIntegerRecommended(or OCCUP); Hollingshead Status - HEAD OF HOUSEHOLD1::91 = Farm Laborers/Menial Service Workers, Welfare Recipients; 2 = Unskilled Workers; 3 = Machine Operators, Semi-Skilled Workers; 4 = Smaller Business Owners, Skilled Manual Workers, Craftsmen, Tenant Farmers; 5 = Clerical and Sales Workers, Small Farm and Business Owners; 6 = Technicians, Semi-Professionals and Small Business Owners; 7 = Smaller Business Owners, Farm Owners, Managers, Minor Professionals; 8 = Administrators, Lesser Professionals, Proprietors of Medium-Sized Businesses; 9 = Higher Executives, Proprietors of Large Businesses, Major Professionals
occupationspIntegerRecommended(or OCCUPSP); Hollingshead Status - SPOUSE1::91 = Farm Laborers/Menial Service Workers, Welfare Recipients; 2 = Unskilled Workers; 3 = Machine Operators, Semi-Skilled Workers; 4 = Smaller Business Owners, Skilled Manual Workers, Craftsmen, Tenant Farmers; 5 = Clerical and Sales Workers, Small Farm and Business Owners; 6 = Technicians, Semi-Professionals and Small Business Owners; 7 = Smaller Business Owners, Farm Owners, Managers, Minor Professionals; 8 = Administrators, Lesser Professionals, Proprietors of Medium-Sized Businesses; 9 = Higher Executives, Proprietors of Large Businesses, Major Professionals; 88 = not applicable; 99 = missing
ocrelothString50RecommendedOTHER SIGNIFICANT CARETAKER (lives with subject, if applicable)
suptIntegerRecommendedReceives support if parent's divorced or separated?0; 10 = No; 1 = Yes
demo_sex_tgenderIntegerRecommendedTransgender0;10=No;1=Yes
arith_work_ctString50RecommendedWork
desc_diff_famString100RecommendedDifficulties (work/family)
diag_ruleoutString100RecommendedDiagnoses to be ruled out
eo4IntegerRecommendedAre you currently working at a job or business for pay0;10=No; 1=Yes
feel_bestString100RecommendedFeeling best
grade_highedString50RecommendedGrade/Highest education1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high schoolv1_demo_education
life_chartIntegerRecommendedGo to life chart0;10=No; 1=Yes
desc_notworkString100RecommendedWhy unemployed
desc_notwork_disString100RecommendedWhy unable to work or attend school
desc_worklengthString100RecommendedWork duration
scid_np110_3String100RecommendedLives where; With Whom
ran004String10RecommendedRandomization number/codingv1_demo_infi
demladder_peersIntegerRecommendedOn a scale from 1 to 10; where do you rank yourself among your peers, coworkers, or people at school?1::10
demladder_communityIntegerRecommendedOn a scale from 1 to 10; where do you rank yourself among those in your country as a whole?1::10
immigration_yearIntegerRecommendedYear when you moved to country of residenceimmigrte_year
partner_birthplaceString50RecommendedIn which country was your partner born?
livewith_detailsString255RecommendedList who lives at home and counts
home_detailsString255RecommendedAdditional details about home
bedtimeIntegerRecommendedIf child has a regular bedtime, what time is it?
bedtime_adherenceIntegerRecommendedHow many days per week does he/ she go to bed within 30 minutes of this bedtime?
eattimeIntegerRecommendedIf family has a regular dinner time, what time is it?
eattime_adherenceIntegerRecommendedHow many days per week does your family eat within 30 minutes of dinnertime?
chorenumberIntegerRecommendedIf your child has a regular set of chores, how many are there?
chore_adherenceIntegerRecommendedHow many chores does child do each week, on average?
allowanceIntegerRecommendedIf your child receive an allowance, how much is it?
allowance_adherenceIntegerRecommendedOn average, how much of the allowance does he/she receive each week?
poverty_nofoodIntegerRecommendedIn the past 12 months, were you ever hungry but did not eat because you could not afford to buy food?
poverty_lessfoodIntegerRecommendedIn the past 12 months, did you ever eat less than you felt you should because you didn't have money to buy food?
poverty_nofood_frequencyIntegerRecommendedHow often in the past 12 months did you not have enough money to buy food?1::41=Never; 2=Rarely; 3=Sometimes; 4=Often
poverty_poormeals_frequencyIntegerRecommendedHow often in the past 12 months could you not afford to eat balanced meals?1::41=Never; 2=Rarely; 3=Sometimes; 4=Often
divorced_amountIntegerRecommendedIf you have ever been divorced: how many times have you been divorced in your child's lifetime?
recent_divorceIntegerRecommendedHow long ago was the most recent divorce?
remarried_whenIntegerRecommendedIf you are remarried: How long have you been remarried?
remarried_timesIntegerRecommendedHow many times have you remarried in your child's lifetime?
room_amountIntegerRecommendedHow many rooms are there in your home (including living, dining, kitchen, family, bath, and bed rooms)?
bedroom_amountIntegerRecommendedHow many bedrooms are there in your home?
residence_lengthIntegerRecommendedHow long has your family lived in your current home?
move_frequencyIntegerRecommendedHow many times have you moved in the last 9 months?
school_hoursFloatRecommendedHow many hours per week does your child spend in school?
childcare_timeIntegerRecommendedHow many additional hours per week (over and above the time in school) does your child spend in out-of-home or group child-care?
child_activeIntegerRecommendedHow much does your child like being or prefer to be physically active?1::31=little or not at all; 2=Somewhat; 3=very much
child_exercise_timeIntegerRecommendedHow much time does your child spend in exercise or physical activity each day?1::41=Less than 10 minutes; 2=10 to 30 minutes; 3=30 to 60 minutes; 4=More than 60 minutes
child_tv_daysIntegerRecommendedHow many days a week does your child watch TV?1::51=Less than once a week; 2=Once a week; 3=About 2 or 3 days a week; 4=About 4 or 5 days a week; 5=Every day
child_tv_hoursIntegerRecommendedHow many hours at a time does your child watch TV?1::51=Less than a half hour; 2=About half hour; 3=About an hour; 4=About 2 or 3 hours; 5=4 or more hours
psych_p52IntegerRecommendedPrimary sexual orientation1::3;91=Heterosexual; 2=Homosexual; 3=Bisexual; 9=Othersexuality
fh07IntegerRecommended7. Subject adopted0;1;9adopt
acopt_dtlsString50RecommendedNature of adoption:
language3IntegerRecommendedThird Language1::31=English; 2=Spanish; 3=Other
childhood_religionIntegerRecommended9. Childhood religious affiliation:1::61=Catholic; 2=Protestant; 3=Jewish; 4=Muslim; 5=Not Affiliated; 6=Other
area5_explainString255RecommendedChurch, religion or spiritual orientation? Explain brieflychildhood_religion_oth
fh20IntegerRecommended20. Number of marriages0::9marriage_num
responsjobIntegerRecommendedThe most responsible job ever held1::191=Executive; 2=Professional; 3=Writers; 4=Technicians; 5=Sales Occupations; 6=Administrative Supporter; 7=Private Household; 8=Protective Service; 9=Service;10=Farm Operators 11=Other Farming 12=Mechanics 13=Machine Operators 14=Transportation 15=Handlers 16=Armed Services 17=Disabled 18=Housewife 19=Student 20=Full time student 21=Unemployed/Retired
house_income_altIntegerRecommendedHousehold income (based on last year)1::61= Less than $12,000; 2= $12,000 to $34,999; 3= $35,000 to $59,999; 4= $60,000 to $89,999; 5= $90,000 to $149,999; 6= $150,000 or more
mfigselectaString50RecommendedOther mother figure being described; Either the one spent most time with, or most difficult to live with
ffigselectaString50RecommendedOther father figure being described; Either the one spent most time with, or most difficult to live with
mimmigIntegerRecommendedMother native-born or immigrant?1;21= Native-born; 2= Immigrant
fimmigIntegerRecommendedFather native-born or immigrant?1;21= Native-born; 2= Immigrant
nexpbq13homeIntegerRecommendedWhat type of home do you currently live in1::81=Single house; 2=House attached to one or more other houses (duplex/ triplex/ 4-plex); 3=Building with 2-4 apartments; 4=Building with 5 -19 apartments; 5=Building with 20 or more apartments; 6=Condominium, townhouse; 7=Mobile home, RV, boat, van, etc.; 8=Other
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demographics02 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.