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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
Value Range
Notes
Data Structures with shared data
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Demographics and Med History Form

demomhf

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectcase_id, patid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.bslage
genderString20RequiredSex of the subjectM;FM = Male; F = Female
birthstateString2RecommendedState of Birth, Abbreviation
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
ethnic_group
raceString30RecommendedRace of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
otherraceString50Recommendedspecify other raceotherspecify
family_livesString255RecommendedMembers of family living in home
cg1_relationshipString100RecommendedCaregiver/Parent 1's Relationship to Participant
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose
infrmnt1, relationship_parent1
cg1_relationship_specifyString100RecommendedCaregiver/Parent 1's Relationship to Participant Other Specifyrelat_parent1_other
parent_1_livesIntegerRecommendedParent 1 lives with child or deceased1::31=Yes; 2=No; 3=Deceased
cg2_relationshipString100RecommendedCaregiver/Parent 2's Relationship to Participant
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose
infrmnt2, relationship_parent2
cg2_relationship_specifyString100RecommendedCaregiver/Parent 2's Relationship to Participant Other Specifyrelat_parent2_other
parent_2_livesIntegerRecommendedParent 2 lives with child or deceased1::31=Yes; 2=No; 3=Deceased
demo_maritial_statusIntegerRecommendedMarital Status:1::51=Single/Never married; 2=Married or living with someone as if married; 3= Divorced or annulled; 4= Separated; 5=Widowedparent_marital
demo_caregiver_eduIntegerRecommendedCaregiver's highest education1::8;971= Less than 7th grade ; 2= Junior High ; 3= Some High School ; 4= High School graduate ; 5= Special training after high school ; 6= Some college ; 7= College graduate ; 8= Graduate/professional training or above ; 97= Don't Knowparent_1_education
cg1_occupationString100RecommendedCaregiver/Parent 1's Occupationparent_1_occupation
parent_1_employmentIntegerRecommendedCurrent employment status for parent 11::101=Employed - full time; 2=Retired;3=Employed - part time; 4=Unable to work/Disabled;5=Unemployed; 6=A full time student; 7=Other; 8 = Looking for work; 9 = Keeping house/raising children full-time; 10 = I do not wish to disclose
p_p2educIntegerRecommendedWhat is the last level of formal education your child's other biological parent completed?0::8;-99;88;770= No formal schooling ; 1= 7th grade or less ; 2= Junior high/middle school completed ; 3= Partial high school (at least one year) ; 4= High school graduate/GED ; 5= Partial college (at least one year) or specialized training ; 6= Junior college/associates degree (2 years) ; 7= Standard college or university graduation (4 years) ; 8= Graduate professional training, graduate degree ; -99= N/A ; 88= Missing ; 77= Refusedparent_2_education
cg2_occupationString100RecommendedCaregiver/Parent 2's Occupationparent_2_occupation
parent_2_employmentIntegerRecommendedCurrent employment status for parent 21::101=Employed - full time; 2=Retired;3=Employed - part time; 4=Unable to work/Disabled;5=Unemployed; 6=A full time student; 7=Other; 8 = Looking for work; 9 = Keeping house/raising children full-time; 10 = I do not wish to disclose
family_incomeString10RecommendedWays family receives income1=Employment; 2=Social Security or SSI; 3=Unemployment compensation; 4=Aid to Families with Dependent Children (AFDC); 5=WIC or Women Infants and Children; 6=Disability (workman-s comp); 7=Child support or alimony; 8=MI Bridges (or other equivalent food assistance program); 9=Investments or Rent; 10=Regular income from estate or trust
headtraumalostconsciousnessString5RecommendedHead trauma loss of consciousness
Yes; No; NK
head_trauma
midihist_035aString250RecommendedHead Injury describehead_trauma_describe
cfmh_chd_seizureIntegerRecommendedDoes (did) the Child have Seizure Disorder/Epilepsy?1;0;999; -70 = No; 1 = Yes; ; -7=Refused; 999=NA/NKseizure_disorder
rev_headseizuredetailString200RecommendedDetails of the seizure history and/or type(s)seizure_describe
neuro_disIntegerRecommendedNeurologic Disorder (Brain, Spinal Cord, Peripheral Nerves)0;1;91 = Yes; 0 = No; 9 = Unknownneurologic_disorder
midihist_017aString250RecommendedNeurologic Disorder describeneuro_disorder_desc
cfmh_chd_sleepdisIntegerRecommendedDoes (did) the Child have a Sleep Disorder?1;00 = No; 1 = Yessleep_disorder
cfmh_chd_sleepdis_cmtString255RecommendedSpecify type of sleep disorder child hassleep_disorder_desc
endocIntegerRecommendedEndocrine Disorder (Thyroid gland, Adrenal glands, etc.)0;1;91 = Yes; 0 = No; 9 = Unknownendocrine_disorder
mhx016bString250RecommendedIf YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Endocrine disorderendocrine_describe
cardio_disorderIntegerRecommendedCardiovascular Disorder (Heart, Vessels)0;1;91 = Yes; 0 = No; 9 = Unknowncardio_disease
mhx003b_1String250RecommendedExplain Cardiovascular disorder historycardio_describe
cgi02gasdiagIntegerRecommendedHas any gastrointestinal diagnosis been given?0;1; 91 = Yes; 0 = No; 9 = Unknowngastro_disorder
cgi02gasdiagspecString100RecommendedSpecify gastrointestinal diagnosisgastro_describe
musculIntegerRecommendedMusculoskeletal Disorder (Muscles, Joints, Spine)0;1;91 = Yes; 0 = No; 9 = Unknownmusculo_disorder
midihist_016aString250RecommendedMusculoskeletal Disorder describemusculo_describe
mhf_10IntegerRecommendedChecks if condition is ongoing - skin0;1;91 = Yes; 0 = No; 9 = Unknownskin_disorder
mhf_09String250RecommendedChecks condition for Skinskin_describe
past_illnessIntegerRecommendedHistory of past medical illness0;1;91 = Yes; 0 = No; 9 = Unknown
past_illness_descString50RecommendedIf history past medical illness, description
sigillnIntegerRecommendedsignificant medical illness0;1;-7;90=No; 1=Yes; -7=Refused; 9=NKcurrent_illness
mdga20aString150RecommendedMedical Illness 1current_describe
elig_27IntegerRecommendedClinically abnormal lab results0;1;91 = Yes; 0 = No; 9 = Unknownabnormal_lab
abnormal_describeString50RecommendedIf any abnromal lab findings, description
current_psych_medIntegerRecommendedCurrent psychiatric medications1;21=Yes; 2=No;
past_psych_medIntegerRecommendedPast psychiatric medications1;21=Yes; 2=No;
medication1_nameString100RecommendedName first medication that the participant has taken999= Legitimately skipped;psychmed1
medication1_dosageString50RecommendedFirst medication dosagepsychmed1_dose
psychmed1_currpastIntegerRecommendedMedication 1 current or past1;21=Current; 2=Past
psychmed1_dateDateRecommendedMedication 1; if past, date last used
medication2_nameString100RecommendedName second medication that the participant has taken999= Legitimately skipped;psychmed2
medication2_dosageString50RecommendedSecond medication dosagepsychmed2_dose
psychmed2_currpastIntegerRecommendedMedication 2 current or past1;21=Current; 2=Past
psychmed2_dateDateRecommendedMedication 2; if past, date last used
medication3_nameString150RecommendedName third medication that the participant has taken999= Legitimately skipped;psychmed3
medication3_dosageString50RecommendedThird medication dosagepsychmed3_dose
psychmed3_currpastIntegerRecommendedMedication 3 current or past1;21=Current; 2=Past
psychmed3_dateDateRecommendedMedication 3; if past, date last used
medication4_nameString100RecommendedName fourth medication that the participant has taken999= Legitimately skipped;psychmed4
medication4_dosageString50RecommendedFourth medication dosagepsychmed4_dose
psychmed4_currpastIntegerRecommendedMedication 4 current or past1;21=Current; 2=Past
psychmed4_dateDateRecommendedMedication 4; if past, date last used
medication5_nameString100RecommendedName fifth medication that the participant has takenpsychmed5
medication5_dosageString50RecommendedFifth medication dosagepsychmed5_dose
psychmed5_currpastIntegerRecommendedMedication 5 current or past1;21=Current; 2=Past
psychmed5_dateDateRecommendedMedication 5; if past, date last used
nonpsychmedsIntegerRecommendedCurrent non-psychotropic medications1;21=Yes; 2=No;
nonpsychmed1String50RecommendedName of non-psychotropic medicaion 1
nonpsychmed1_doseString30RecommendedDose of non-psychotropic medication 1
nonpsychmed1_indicationString200RecommendedIndication of non-psychotropic medication 1
nonpsychmed2String50RecommendedName of non-psychotropic medicaion 2
nonpsychmed2_doseString30RecommendedDose of non-psychotropic medication 2
nonpsychmed2_indicationString200RecommendedIndication of non-psychotropic medication 2
nonpsychmed3String50RecommendedName of non-psychotropic medicaion 3
nonpsychmed3_doseString30RecommendedDose of non-psychotropic medication 3
nonpsychmed3_indicationString200RecommendedIndication of non-psychotropic medication 3
nonpsychmed4String50RecommendedName of non-psychotropic medicaion 4
nonpsychmed4_doseString30RecommendedDose of non-psychotropic medication 4
nonpsychmed4_indicationString200RecommendedIndication of non-psychotropic medication 4
nonpsychmed5String50RecommendedName of non-psychotropic medicaion 5
nonpsychmed5_doseString30RecommendedDose of non-psychotropic medication 5
nonpsychmed5_indicationString200RecommendedIndication of non-psychotropic medication 5
nonpsychmed6String50RecommendedName of non-psychotropic medicaion 6
nonpsychmed6_doseString30RecommendedDose of non-psychotropic medication 6
nonpsychmed6_indicationString200RecommendedIndication of non-psychotropic medication 6
surg_surgtype1String255RecommendedTYPE OF SURGERY 1surgery1
surgerydatedd1_1DateRecommendedDate surgery 1surgery1_date
surg_surgtype2String255RecommendedTYPE OF SURGERY 2surgery2
surgerydatedd2_1DateRecommendedSurgery Date 2surgery2_date
surg_surgtype3String255RecommendedTYPE OF SURGERY 3surgery3
surgerydatedd3_1DateRecommendedSurgery Date 3surgery3_date
surg_surgtype4DateRecommendedType of surgery 4surgery4
surgerydatedd4_1DateRecommendedSurgery Date 4surgery4_date
smoke_currentIntegerRecommendedIs the child a current smoker0;1;91 = Yes; 0 = No; 9 = Unknown
smoke_current_packsIntegerRecommendedhow many packs per day if yes?0::10
surq_2dString20RecommendedWhen did you have your last cigarette TIME24 hour clocksmoke_current_time
smoke_pastIntegerRecommendedChild ever smoked?0;1;91 = Yes; 0 = No; 9 = Unknown
smoke_past_startageIntegerRecommendedif yes, age when regular smoking began5::17
smoke_past_endageIntegerRecommendedIf yes, age when child last smoked5::17
smoke_past_packsIntegerRecommendedEstimated number of packs per day0::10
nicotineIntegerRecommendedDoes the child use nicotine0;1;91 = Yes; 0 = No; 9 = Unknown
nicotine_describeString25RecommendedIf uses nicotine, description
caffeineIntegerRecommendedDoes the child consume caffeinated beverages regularly0;1;91 = Yes; 0 = No; 9 = Unknown
caffeine_typeString25Recommendedcaffeinated beverages. how much (type and amount)
surq_11dString20RecommendedWhen was the last time you consumed a caffeinated drink TIME24 hour clockcaffeine_time
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: demomhf01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.