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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Description
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Notes
Data Structures with shared data
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Diagnostic Impression

diagimp

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectrandid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
studyString100RecommendedStudystudyid
siteString100RecommendedSiteStudy Sitesiteid
visitString50RecommendedVisit nameCharacter description of each type of visitint1
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, lostformcomp
subtrial_nameIntegerRecommendedName of subtrial1::31=Crossover; 2=Guanfacine; 3= Open Label MPH
cepispString500RecommendedCurrent diagnosis specifydi_a
lifedxspString50RecommendedLifetime diagnosis specifydi_b
major_depressive_epsiodeIntegerRecommendedcurrent diagnosis of major depressive episode.0::60 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite;5=Current; 6=Pastdi_cd1
bipolar_nosIntegerRecommendedcurrent diagnosis of bipolar NOS.0 :: 6;9990 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite;5=Current; 6=Pastdi_cd2
generalized_anxiety_disorderIntegerRecommendedcurrent diagnosis of generalized anxiety disorder.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definitedi_cd3
psychotic_featuresIntegerRecommendedcurrent diagnosis of psychotic features.0 :: 6;9990 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite; 999=NK/missing; 5=Current; 6=Pastdi_cd4
obsessive_compulsive_disorderIntegerRecommendedcurrent diagnosis of obsessive compulsive disorder.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definitedi_cd5
di_rm1IntegerRecommendedMajor Depression Requires Medication1;21 = Yes; 2 = No
di_rm2IntegerRecommendedBipolar Disorder Requires Medication1;21 = Yes; 2 = No
di_rm3IntegerRecommendedAnxiety Disorder Requires Medication1;21 = Yes; 2 = No
di_rm4IntegerRecommendedPsychotic Disorder Requires Medication1;21 = Yes; 2 = No
di_rm5IntegerRecommendedOCD Requires Medication1;21 = Yes; 2 = No
chronic_motor_voc_tic_disorderIntegerRecommendedcurrent diagnosis of chronic motor or vocal tic disorder.0::60 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite;5=Current; 6=Pastdi_c6
cgi_siIntegerRecommendedSeverity of Illness. Considering your total clinical experience with this particular population, how ill is the subject at this time?
0 :: 7; -7; -8; -9
CGI: 0 = Not assessed; 1 = Normal, not at all ill; 2 = Borderline ill; 3 = Mildly ill; 4 = Moderately ill; 5 = Markedly ill; 6 = Severely ill; 7 = Among the most extremely ill patients. CPEA STAART CGI: All of the above, plus: -7 = Don't know; -8 = Refused to answer; -9 = Does not applydi_c6a
daysrzIntegerRecommendeddays since randomizationvisitdt
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
sigp1IntegerRecommendedPhysician signature present0;10 = No; 1 = Yes
sigd1IntegerRecommendedPhysician/PI signature date (days since randomization)
majdepdiIntegerRecommendedMajor Depressive Disorder1::51=Current 2 weeks; 2=Past; 3=Recurrent; 4=Both Current and Lifetime; 5=Lifetime
a1d6IntegerRecommendedDepressive Disorder NOS1::5Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1;4=Lifetime; 5=Current
mini_sum_oIntegerRecommendedGeneralized Anxiety Disorder1::61=Current; 2=Past; 3=Lifetime; 4=Both Current and Lifetime;5=Yes; 6=In partial remission
psaIntegerRecommendedSeparation anxiety disorder1::60=Disorder not present; 1=Disorder present; 2=Current; 3=Lifetime; 4=Both Current and Lifetime; 5=In partial remission; 6=Past
yadyIntegerRecommendedADHD. Any type0::40 = Absent; 1 = Present;2=Current; 3=Lifetime; 4=Both Current and Lifetime
sub_use_disorderIntegerRecommendedSubstance Use Disorder0::40=None; 1=Current; 2=Past; 3=Both Current and Lifetime; 4=Lifetime
hxoppIntegerRecommendedOppositional defiant1::81=No; 2=Probable; 3=Definite; 4=Current; 5=Lifetime; 6=Both Current and Lifetime;7=In partial remission; 8=Past
hxcdIntegerRecommendedConduct disorder1::81=No; 2=Probable; 3=Definite; 4=Current; 5=Lifetime; 6=Both Current and Lifetime;7=In partial remission; 8=Past
psoIntegerRecommendedSocial phobia0::60=Disorder not present; 1=Disorder present; 2=Current; 3=Lifetime; 4=Both Current and Lifetime;5=In partial remission; 6=Past
baseline_k_014IntegerRecommendedAn eating disorder, like anorexia or bulimia?0::3; -888; -9990=No; 1=Yes; -888=Not Applicable; -999=Missing;2=Current; 3=Both Current and Lifetime
mini002aIntegerRecommendedDysthymia: Current or lifetime0::6;-90=No; 1=Yes; -9=Unknown; 2=Current; 3=Lifetime; 4=Both Current and Lifetime;5=In partial remission; 6=Past
a1d32IntegerRecommendedPTSD1::7Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1;4=Lifetime; 5=Current;6=In partial remission; 7=Past
elimination_disorderIntegerRecommendedElimination Disorder1::61=Current; 2=Lifetime; 3=Both Current and Lifetime;4=Yes; 5=In partial remission; 6=Past
bdd_pdxIntegerRecommendedBody Dysmorphic Disorder Diagnosis0::20=No; 1=Yes;2=Current
mini_sum_j1IntegerRecommendedAlcohol Abuse1::41=Past 12 Months; 2=Current; 3=Both Current and Lifetime; 4=Lifetime
speech_disorderIntegerRecommendedSpeech Disorder1::61=Current; 2=Lifetime; 3=Both Current and Lifetime; 4=Yes; 5= In partial remission; 6=Past
panic_epiIntegerRecommendedPanic Disorder1::41=Current; 2=Lifetime;3=In partial remission; 4=Past
a1d30IntegerRecommendedSpecific Phobia1::7Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1;4=Lifetime; 5=Current;6=In partial remission; 7=Past
mx1IntegerRecommendedDiagnosed with OCD0::50=No; 1=Yes; 2=Current; 3=Both Current and Lifetime; 4=In partial remission; 5=Past
pcrpIntegerRecommendedPCRP1::31=Current; 2=Lifetime; 3=Both Current and Lifetime
bipoliiIntegerRecommendedBipolar II Disorder1;21=Current; 2=Past
f103_j1aIntegerRecommendedAcute Stress Disorder0::20=No; 1=Yes; 2=Lifetime
gidIntegerRecommendedGID1::31=Current; 2=Lifetime; 3=Both Current and Lifetime
dem_18kIntegerRecommendedTourettes Syndrome0::41=Yes; 0=No; 2=Current;3=In partial remission; 4=Past
radIntegerRecommendedReactive Attachment Disorder (RAD)1::61=Current; 2=Lifetime; 3=Both Current and Lifetime;4=Yes; 5=In partial remission; 6=Past
sleep_diagIntegerRecommendedSleep Disorder Diagnosis1::71=Absent;2=Subthreshold; 3=Full diagnostic criteria; 4=Both Current and Lifetime; 5=Current; 6=In partial remission; 7=Past
exc_14IntegerRecommendedHas dementia, delirium, amnestic, or any other cognitive disorder1::31=Yes; 2=No; 3=Current
mini_sum_mIntegerRecommendedAnorexia Nervosa1::31=Current; 2=Past; 3=Lifetime
mini_sum_nIntegerRecommendedBulimia Nervosa1::31=Current; 2=Past; 3=Lifetime
dph00a7IntegerRecommendedHistory of nicotine dependence0::21=Yes; 0=No; 2=Current
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
ca304String100RecommendedDiagnosis code 1Axis III
axis1_com1String100RecommendedAxis I Comorbid Diagnosis DSM IV-TR diagnostic code
diagnosis_medcomString500RecommendedMedical comorbid diagnoses
diagnosis_psycomString50RecommendedPsychiatric comorbid diagnoses
days_baselineIntegerRecommendedDays since baseline
q127_a4_primsuppIntegerRecommendedAxis IV: Problem with Primary Support Group0;10 = Absent;1 = Present
q129_a4_socialenvirIntegerRecommendedAxis IV: Problems Related to Social Enviornment0;10 = Absent;1 = Present
q131_a4_edupromIntegerRecommendedAxis IV: Educational Problems0;10 = Absent;1 = Present
q133_a4_occprobIntegerRecommendedAxis IV: Occupational Problems0;10 = Absent;1 = Present
q135_a4_housprobIntegerRecommendedAxis IV: Housing Problems0;10 = Absent;1 = Present
q137_a4_ecoprobIntegerRecommendedAxis IV: Economic Problems0;10 = Absent;1 = Present
q139_a4_healthcareIntegerRecommendedAxis IV: Problems with Access to Health Care Services0;10 = Absent;1 = Present
q141_a4_legalsysIntegerRecommendedAxis IV: Problems Related to interaction with the Legal System0;10 = Absent;1 = Present
devcoord_doIntegerRecommendedDevelopmental coordination disorder0::40=No; 1=Yes;2=Current; 3=In partial remssion; 4=Past
scid_41IntegerRecommendedDiagnosis: Cyclothymic Disorder1::6;81=absent or false; 2=subthreshold; 3=threshold or true; 8=inadequate information; 4=Current; 5=In partial remission; 6=Past
medhx_adjustIntegerRecommendedAdjustment Disorder0::50 = No, 1 = Yes, 2 = Not sure;3=Current; 4=In partial remission; 5=Past
impulse_control_disIntegerRecommendedImpulse Control Disorder1::31=Current; 2=In partial remission; 3=Past
gen_ident_disorderIntegerRecommendedGender Identity Disorder1::31=Current; 2=In partial remission; 3=Past
inter_explos_disorderIntegerRecommendedIntermittent Explosive Disorder1::31=Current; 2=In partial remission; 3=Past
q1_21otherDateRecommendedCase Panel decision Date
case02IntegerRecommendedWas Special review needed0;10=No; 1=Yes
case05aString100RecommendedDSM IV Axis IV Code 5
case06IntegerRecommendedDid Subject Pass Caseness0;10=No; 1=Yes
case07String250RecommendedPrimary reason for not passing caseness
adhdtypcIntegerRecommendedType of ADHD1::31 = Combined; 2 = Inattentive; 3 = Impulsive/Hyperactive
picaString35RecommendedPica disorderYes; No; Not applicable; Yes but date of consent unknown
hxldIntegerRecommendedLearning disorder1::61=No; 2=Probable; 3=Definite;4=Current; 5=In partial remission; 6=Past
cmedhx37IntegerRecommendedAny history of physical and/or sexual abuse?0;10 = No;1 = Yes
trichotillomaniaIntegerRecommendedTrichotillomania0;10=No; 1=Yes
version_formString100RecommendedForm used
dce_01DateRecommendedDate of Consensus panel
adhdnos_pdxIntegerRecommendedParent/Child/Clinician diagnostic code for ADHD NOS0;10 = Does NOT meet DSM-IV criteria;1 = Meets full criteria for DSM-IV
scid5_dis1_subtypeString200RecommendedDisorder Subtype
scids45IntegerRecommended45. Axis IV: Psychosocial and Environmental Problems0;10 = no; 1 = yes to any of the following: Problems with primary support group (childhood, adult, parent-child) Problems related to the social-environment Educational problems Occupational problems Housing problems Economic problems Problems with access to health care services Problems related to interaction with the legal system/crime Other psychosocial problems
incl03IntegerRecommendedDiagnosis of PDD/Aspergers/Autism0::40=No; 1=Yes; 2=Current; 3=In partial remission; 4= Past
writtenexp_disorderIntegerRecommendedDisorder of Written Expression1::31=Current; 2=In partial remission; 3=Past (since las evaluation)
expresslang_disorderIntegerRecommendedExpressive Language Disorder0::40=No; 1=Yes; 2=Current; 3=In partial remission; 4= Past
scrn10IntegerRecommended10. Does the patient have tardive dyskinesia0::40=No; 1=Yes;2=Current; 3=In partial remission; 4=Past
parchild_relproblemIntegerRecommendedParent-child relational problem0;10=No; 1=Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: diagimp01 and Element:
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Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.