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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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Description
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Notes
Data Structures with shared data
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Diagnosis

diagnosis

02

General questionnaire providing information on whether the subject has been diagnosed with various conditions and whether the subject is a control as defined by New York University

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
cgasIntegerRecommendedscore on children's global assessment scale0 :: 100
controlIntegerRecommendedIs the participant a control? 0 = no; 1 = yes0;10 = No; 1 = Yes
control_probandIntegerRecommendedif the participant is a control, does he/she have a relative diagnosed with ASD? 0 = no; 1 = yes0;10 = No; 1 = Yes
control_proband_relationIntegerRecommendedif the participant has a relative diagnosed with ASD, specify the relationship to the affected person 0=mother; 1=father; 2=sister; 3=brother; 4=uncle; 5=aunt; 6=cousin; 7=grandmother; 8=grandfather0 :: 80 = Mother; 1 = Father; 2 = Sister; 3 = Brother; 4 = Uncle; 5 = Aunt; 6 = Cousin; 7 = Grandmother; 8 = Grandfather
subthreshold_otherIntegerRecommendeddoes participant have a subthreshold disorder other than adhd?True=1;False=00;10 = False; 1 = True
subthreshold_adhdIntegerRequireddoes participant have subthreshold adhd?True=1;False=00;1;9990 = False; 1 = True
adhdIntegerRequireddoes participant have adhd? 1 = does participant have adhd? 1 = ADHD-Innatentive; 2=ADHD-Hyperactive/Impulsive; 3=ADHD-Combined; 4=ADHD-NOS; 5=rule out ADHD0 :: 5;9991 = ADHD-Innatentive; 2 = ADHD-Hyperactive/Impulsive; 3 = ADHD-Combined; 4 = ADHD-NOS; 5 = Rule out ADHD
adhd_hyperimp2sIntegerRecommendedNumber of hyperactive/impulsive symptoms endorsed at 2 in summary on KSADS0 :: 9
adhd_hyperimp3sIntegerRecommendedNumber of hyperactive/impulsive symptoms endorsed at 3 in summary on KSADS0 :: 9
adhd_inattent2sIntegerRecommendedNumber of inattentive symptoms endorsed at 2 in summary on KSADS0 :: 9
adhd_inattent3sIntegerRecommendedNumber of inattentive symptoms endorsed at 3 in summary on KSADS0 :: 9
pddIntegerRequireddoes participant have pdd? 1=PDD; 2=Aspergers; 3=Autism; 5=rule out PDD0 :: 5;9991 = PDD; 2 = Aspergers; 3 = Autism; 5 = Rule out PDD
pdd_adhd_comborbidityIntegerRequiredis there adhd/pdd comorbidity? i.e. participant meets DSM-IV PDD criteria and all DSM-IV ADHD criteria except for criterion E? 1 - yes; 2 - no0;1;9990 = No; 1 = Yespdd_adhd_comorbidity
pdd_adhdIntegerRequiredif pdd does participant meet for any DSM-IV ADHD diagnosis ignoring criterion E? 1 = ADHD-Innatentive; 2=ADHD-Hyperactive/Impulsive; 3=ADHD-Combined; 4=ADHD-NOS0 :: 4;9991 = ADHD-Innatentive; 2 = ADHD-Hyperactive/Impulsive; 3 = ADHD-Combined; 4 = ADHD-NOS
anxiety_nosIntegerRecommendeddoes participant meet for Anxiety NOS? 1 = no; 1 = yes0;10 = No; 1 = Yes
social_phobiaIntegerRecommendedcurrent diagnosis of social phobia.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
gadIntegerRecommendeddoes participant meet for generalized anxiety disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
seperation_anxietyIntegerRecommendeddoes participant meet for separation anxiety? 0 = no; 1 = yes0;10 = No; 1 = Yes
dysthymiaIntegerRecommendedcurrent diagnosis of dysthymia.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
mddIntegerRequireddoes participant meet for major depressive disorder? 0 = no; 1 = yes0;1;9990 = No; 1 = Yes
spec_lang_disIntegerRecommendeddoes participant meet for specific language disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
spec_learn_disIntegerRequireddoes participant meet for specific learning disorder? 0 = no; 1 = yes0;1;9990 = No; 1 = Yes
maniaIntegerRecommendedcurrent diagnosis of mania.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
psychosisIntegerRequireddoes participant have psychosis? 0 = no; 1 = yes0;1;9990 = No; 1 = Yes
panicIntegerRecommendeddoes participant meet for panic disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
avoidant_disIntegerRecommendeddoes participant meet for avoidant disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
agoraphobiaIntegerRecommendedcurrent diagnosis of agoraphobia.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
ocdIntegerRequireddoes participant have obsessive compulsive disorder? 0 = no; 1 = yes0;1;9990 = No; 1 = Yes
enuresisIntegerRecommendedcurrent diagnosis of enuresis.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
encopresisIntegerRecommendedcurrent diagnosis of encopresis.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
anorexiaIntegerRecommendeddoes participant have anorexia? 0 = no; 1 = yes0;10 = No; 1 = Yes
bulimiaIntegerRecommendedcurrent diagnosis of bulimia.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
oddIntegerRecommendeddoes participant have oppositional defiant disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
cdIntegerRecommendeddoes participant have conduct disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
tic_disIntegerRecommendeddoes participant have tic disorder? 0 = no; 1 = yes0;10 = No; 1 = Yes
substance_abuseIntegerRecommendedcurrent diagnosis of substance abuse.0 :: 40 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
cigarette_useIntegerRecommendeddoes participant use cigarettes? 0 = no; 1 = yes0;10 = No; 1 = Yes
cigarette_number_packsFloatRecommendedindicate the average number of packs of cigarettes smoked daily
cigaretteuse_time_yrsFloatRecommendedindicate the number of years that the participant has smoked cigarettes
alcohol_abuseIntegerRequiredcurrent diagnosis of alcohol abuse.0 :: 4;9990 = No information; 1 = Not present; 2 = Probable; 4 = Partial remission; 3 = Definite
alcohol_dailyIntegerRecommendedindicate the average number of alcohol drinks consumed daily
substance_abuse_time_yrsIntegerRecommendedindicate the number of years that the participant has abused a substance
ptsdIntegerRequireddoes participant have post-traumatic stress disorder? 0 = no; 1 = yes0;1;9990 = No; 1 = Yes
ptsd_time_yrsIntegerRecommendedindicate the number of years that the participant has suffered from PTSD
ptsd_eventString255Recommendedprovide information about the event which prompted PTSD
notesString200RecommendedAny additional notes
substance_abusedString100Recommendedindicate the substance or substances used or abused by the participant
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: diagnosis02 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.