Loading...

Reset Password

NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action.

All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the National Database for Autism Research (NDAR) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDAR is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Selected Filters
No filters selected

The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
No filters have been selected

Diagnoses and Symptoms DSM V Level 2

dsm5_lvl2

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
visitString50RecommendedVisit nameCharacter description of each type of visit
lev1_sub1IntegerRecommendedPast two weeks: drinking at least 4 drinks of any kind of alcohol in a single day0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
lev1_sub2IntegerRecommendedPast two weeks: smoking any cigarettes, a cigar, or pipe, or using snuff or chewing tobacco0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
lev1_sub3IntegerRecommendedPast two weeks: using any of the following medicines on you own, without a doctor's prescription, in greater amounts or longer than prescribed, stimulants, sedatives or tranquilizers or drugs, hallucinogens, heroin, inhalants or solvents or methamphetamine?0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_painIntegerRecommendedPast two weeks take the following medicine on your own without a doctor's prescription, in greater amounts or longer than prescribed: Painkillers (like Vicodin)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_stimIntegerRecommendedPast two weeks take the following medicine on your own without a doctor's prescription, in greater amounts or longer than prescribed: Stimulants (like Ritalin, Adderall)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_sedIntegerRecommendedPast two weeks take the following medicine on your own without a doctor's prescription, in greater amounts or longer than prescribed: Sedatives or tranquilizers (like sleeping pills or Valium)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_thcIntegerRecommendedPast two weeks: Marijuana0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_cocIntegerRecommendedPast two weeks: Cocaine or crack0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_clubIntegerRecommendedPast two weeks: Club drugs (like ecstasy)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_lsdIntegerRecommendedPast two weeks: Hallucinogens (like LSD)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_herIntegerRecommendedPast two weeks: Heroin0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_gluIntegerRecommendedPast two weeks: Inhalants or solvents (like glue)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_methIntegerRecommendedPast two weeks: Methamphetamine (like speed)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
nida_totIntegerRecommendedNIDA Substance use total score
lev1_man1IntegerRecommendedPast two weeks: sleeping less than usual, but still have a lot of energy0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
lev1_man2IntegerRecommendedPast two weeks: starting lots more projects than usual or doing more risky things than usual0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
asrm_1IntegerRecommendedI feel happier or more cheerful than usual0::40=Not at all; 1=Occasionally; 2=Often; 3=Most of the time; 4=All the timeams_q1
asrm_2IntegerRecommendedI feel more self confident than usual0::40=Not at all; 1=Occasionally; 2=Often; 3=Most of the time; 4=All the timeams_q2
asrm_3IntegerRecommendedI need less sleep than usual0::40=Not at all; 1=Occasionally; 2=Often; 3=Most of the time; 4=All the timeams_q3
asrm_4IntegerRecommendedI talk more than usual0::40=Not at all; 1=Occasionally; 2=Often; 3=Most of the time; 4=All the timeams_q4
asrm_5IntegerRecommendedI have been more active than usual0::40=Not at all; 1=Occasionally; 2=Often; 3=Most of the time; 4=All the timeams_q5
asrm_score2FloatRequiredASRM score0::20; 999999=missingams_tot
ams_proIntegerRecommendedProrated total raw score= (Partial Raw Score x number of items on the ASRM) / Number of items that were actually answered
phq_ss1IntegerRecommendedPast two weeks: having unexplained aches and pains (ex: head, back, joints, abdomen, legs)0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
phq_ss2IntegerRecommendedPast two weeks: feeling like your illnesses are not being taken seriously enough0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
phq_1IntegerRecommendedLittle interest or pleasure in doing things0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_2IntegerRecommendedFeeling down, depressed, or hopeless0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_3IntegerRecommendedTrouble falling or staying asleep, or sleeping too much0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_4IntegerRecommendedFeeling tired or having little energy0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_5IntegerRecommendedPoor appetite or overeating0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_6IntegerRecommendedFeeling bad about yourself or that you are a failure or have let yourself or your family down0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_7IntegerRecommendedTrouble concentrating on things, such as reading the newspaper or watching television0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_8IntegerRecommendedMoving or speaking so slowly that other people could have noticed. Or the opposite being so fidgety or restless that you have been moving around a lot more than usual0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_9IntegerRecommendedThoughts that you would be better off dead, or of hurting yourself0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_10IntegerRecommendedIf you circled any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_11IntegerRecommendedPain or problems during sexual intercourse0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_12IntegerRecommendedConstipation, loose bowels, or diarrhea0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_13IntegerRecommendedNausea, gas, or indigestion0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phq_14IntegerRecommendedFeeling tired or having low energy0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
psc30_uIntegerRecommendedCondition 30: Trouble sleeping0::30 = Not at all; 1 = Just a little; 2 = Pretty much; 3 = Very muchphq_15
phq_totIntegerRecommendedPatient Health_Phy sym: total/partial raw score
phq_proIntegerRecommendedPatient Health_Phy sym: prorated score ((partial raw score x number of items of the PHQ-15)/ number of items answered)
phq_sssString25RecommendedSomatic Symptom SeverityMinimal;Low;Medium;HighMinimal=(0-4)
 Low=(5-9)
 Medium=(10-14)
 High=(15-30)
oci_rt1IntegerRecommendedPast two weeks: having unpleasant thoughts, urges, or images that repeatedly enter your mind0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
oci_rt2IntegerRecommendedPast two weeks: feeling driven to perform certain behaviors or mental acts over and over again0::40=None, not at all; 1=Slight, rare less than a day or two; 2=Mild, several days; 3=Moderate, more than half the days; 4=Severe, nearly every day
oci_1IntegerRecommendedPast 7 days: on average, how much time is occupied by these thoughts or behavior each day?0::40=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme
oci_2IntegerRecommendedPast 7 days: how much distress do these thoughts or behaviors cause you?0::40=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme
oci_3IntegerRecommendedPast 7 days: How hard is it for you to control these thoughts or behaviors?0::40=Complete control; 1=Much control; 2=Moderate control; 3=Little control; 4=No control
oci_4IntegerRecommendedPast 7 days: how much do these thoughts or behaviors cause you to avoid doing anything, going anyplace, or being with anyone?0::40=No avoidance; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme
oci_5IntegerRecommendedPast 7 days: How much do these thoughts or behaviors interfere with school, work, or your social or family life?0::40=None; 1=Mild; 2=Moderate; 3=Severe; 4=Extreme
foci_totIntegerRecommendedFOCI-B Total/Partial raw score
foci_proFloatRecommendedFOCI-B Prorated score = ((partial raw score x number of items on the measure)/ number of items answered))
foci_avgFloatRecommendedFOCI-B average score
foci_sssString30RecommendedFOCI-B Severity Scale
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: dsm5_lvl201 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.